Ethics and Health Research: Decision Making in Aotearoa New Zealand

REFERENCES

• Arminio , J. L. and Hultgren , F. 2002 . Breaking out from the shadow: The question of criteria in qualitative research . Journal of College Student Development , 43 ( 4 ) : 446 – 456 .
   Web of Science ®Google Scholar
• Bekker , H. , Thornton , J. G. Airey , C. M. 1999 . Informed decision making: An annotated bibliography and systematic review . Health Technology Assessment , 3 ( 1 ) : 1 – 3 .
   PubMedGoogle Scholar
• Belich , J. 1988 . The New Zealand wars and the Victorian interpretation of racial conflict , Auckland , , New Zealand : Penguin .
   Google Scholar
• Broughton , A. , Edwards , M. Hakopa , M. 2001 . The silent migration: Ngāti Pōneke Young Maōri Club 1937–1948: Stories of urban migration as told to Patricia Grace, Irihapeti Ramsden and Jonathan Dennis , Wellington , , New Zealand : Huia Publishers .
   Google Scholar
• Brown , R. , Pollock , N. Couchman , K. 2000 . A novel ryanodine receptor mutation and genotype-phenotype correlation in a large malignant hyperthermia New Zealand Maori pedigree . Human Molecular Genetics , 9 ( 10 ) : 1515 – 1524 .
   Web of Science ®Google Scholar
• Chamley , D. , Pollock , N. A. , Stowell , K. M. and Brown , R. L. 2000 . Malignant Hyperthermia in Infancy and Identification of a novel RYR1 mutation . British Journal of Anaesthesia , 84 : 500 – 504 .
   Web of Science ®Google Scholar
• Christians , C. 2000 . “ Ethics and politics in qualitative research. ” . In N. Handbook of qualitative research , 2nd ed. , Edited by: Denzin , N. and Lincoln , Y. 133 – 155 . Thousand Oaks , CA : Sage .
   Google Scholar
• Committee of Inquiry Into Allegations Concerning the Treatment of Cervical Cancer at National Women's Hospital and Into Other Related Matters . 1988 . Report of the Committee of Inquiry into Allegations Concerning the Treatment of Cervical Cancer at National Women's Hospital and into Other Related Matters Auckland , , New Zealand
   Google Scholar
• Coney , S. 2008 . Personal reflections of the inquiry and report on behalf of a party to the inquiry , University of Auckland . Paper presented at Twenty Years after the Cartwright Report: What Have We Learned?, 29 August
   Google Scholar
• Cunningham , C. 2000 . A framework for addressing Maori knowledge in research, science and technology . Pacific Health Dialogue , 7 ( 1 ) : 62 – 69 .
   PubMedGoogle Scholar
• Cunningham , C. 2003 . An indigenous New Zealand health researcher's perspective . Monash Bioethics Review , 22 ( 4 ) : 26 – 30 .
   Google Scholar
• Denzin , N. and Lincoln , Y. 2000 . Handbook of qualitative research , 2nd ed. , Thousand Oaks , CA : Sage .
   Google Scholar
• Dow , D. 1999 . Maori health and government policy 1840–1940 , Wellington , , New Zealand : Victoria University Press .
   Google Scholar
• Durie , A. 1997 . “ Te Aka Matua: Keeping a Maori identity ” . In Mai i Rangiatea , Edited by: Te Whaiti , P. M. 142 – 162 . Auckland , , New Zealand : Bridget Williams Books, Auckland University Press .
   Google Scholar
• Durie , E. 1998 . “ Ethics and values in Maori research ” . In Te Oru Rangahau: Maori Research & Development Conference 7–9 July , Edited by: Pumanawa Hauora , Te . 62 – 69 . Palmerston North , , New Zealand : Te Putahi-a-Toi, School of Maori Studies, Massey University .
   Google Scholar
• Durie , M. 1985 . A Maori perspective of health . Social Science and Medicine , 20 ( 5 ) : 483 – 486 .
   PubMed Web of Science ®Google Scholar
• Durie , M. 2000 . Maori health: Key determinants for the next twenty-five years . Pacific Health Dialog , 7 ( 1 ) : 6 – 11 .
   PubMedGoogle Scholar
• Durie , M. 2004 . Te Mana Te Kāwanatanga: The politics of Maori self-determination , Melbourne , , Australia : Oxford University Press .
   Google Scholar
• Durie , M. 2006 . Measuring Maori wellbeing , Wellington , , New Zealand : New Zealand Treasury . New Zealand Treasury Guest Lecture Series
   Google Scholar
• Durie , M. , Black , T. , Cunningham , C. , Durie , A. , Palmer , F. and Hawkins , C. 2005 . The parameters of Whanau Wellbeing: A report prepared for Te Puni Kokiri , Palmerston North , , New Zealand : Te Mata o Te Tau Academy for Maori Research and Scholarship, Massey University .
   Google Scholar
• Evison , H. 2006 . The Ngai Tahu deeds: A window on New Zealand history , Christchurch , , New Zealand : Canterbury University Press .
   Google Scholar
• Fergusson , D. , Horwood , L. and Swain-Campbell , N. R. 2003 . Ethnicity and criminal convictions: results of a 21-year longitudinal study . Australia and New Zealand Journal of Criminology , 36 ( 3 ) : 354 – 367 .
   Web of Science ®Google Scholar
• Fontana , A. and Frey , J. 2000 . “ The Interview: From Structured Questions to Negotiated Text. ” . In Handbook of qualitative research , 2nd ed. , Edited by: Denzin , N. L. 645 – 672 . Thousand Oaks : Sage .
   Google Scholar
• General Assembly of the United Nations . 1948 . Universal declaration of human rights , New York , NY : General Assembly of the United Nations .
   Google Scholar
• General Assembly of the United Nations . 2008 . United nations declaration on the rights of indigenous peoples , New York , NY : General Assembly of the United Nations .
   Google Scholar
• George , A. and Bennett , A. 2005 . Case studies and theory development in the social sciences. , Cambridge , MA : MIT Press .
   Google Scholar
• Guilford , P. , Hopkins , J. Harraway , J. 1998 . E-Cadherin germline mutations in familial gastric cancer . Nature , 392 ( 6674 ) : 402 – 405 .
   PubMed Web of Science ®Google Scholar
• Hair , A. 1985 . Muriwai and beyond , Gisborne: Muriwai School Centenary Book Committee .
   Google Scholar
• Harris , R. , Tobias , M. , Jeffreys , M. , Waldegrave , K. , Karlsen , S. S. and Nazroo , J. 2006a . Effects of self-reported racial discrimination and deprivation on Maori health and inequalities in New Zealand: Cross-sectional study . Lancet , 367 : 2005 – 2009 .
   PubMed Web of Science ®Google Scholar
• Harris , R. , Tobias , M. , Jeffreys , M. , Waldegrave , K. , Karlsen , S. S. and Nazroo , J. 2006b . Racism and health: The relationship between experience of racial discrimination and health in New Zealand . Social Science and Medicine , 63 ( 6 ) : 1428 – 1441 .
   PubMed Web of Science ®Google Scholar
• Health Research Council Act . 1990 . “ Wellington ” . New Zealand Government .
   Google Scholar
• Health Research Council of New Zealand Maori Health Committee . 2008 . Guidelines for researchers on health research involving Maori , Auckland : Health Research Council of New Zealand .
   Google Scholar
• Health Research Council of New Zealand Maori Health Committee . 2010 . Guidelines for researchers on health research involving Maori , Auckland : Health Research Council of New Zealand .
   Google Scholar
• Hibbard , J. and Peters , E. 2003 . Supporting informed consumer health care decisions: Data presentation approaches that facilitate the use of information in choice . Annual Review of Public Health , 24 : 413 – 33 .
   PubMed Web of Science ®Google Scholar
• Hudson , M. 2004 . He Matatika Maori: Maori and ethical review in health research , Auckland , , New Zealand : Unpublished master's thesis in health science. Auckland, New Zealand: Auckland University of Technology .
   Google Scholar
• Kawharu , H. 1977 . Maori land tenure: Studies of a changing institution , New York , NY : Clarendon Press .
   Google Scholar
• Lange , R. 1999 . May the people live: A history of Maori health development 1900–1920 , Auckland , , New Zealand : Auckland University Press .
   Google Scholar
• Lichenstein , S. and Slovic , P. 2006 . “ The construction of preference ” . New York , NY : Cambridge University Press .
   Google Scholar
• Liu , J. and Temara , P. 1998 . Leadership, colonization, and tradition: Identity and economic change in Ruatoki and Ruatahuna . Canadian Journal of Native Education , 22 ( 1 ) : 138 – 150 .
   Google Scholar
• Luxton , J. 2008 . Te Oranga o te Iwi Maori: A study of Maori economic and social progress. Te Puni Kokiri: The Ministry of Maori Development , Wellington : New Zealand Business Roundtable . Available at: http://www.nzbr.org.nz/site/nzbr/files/publications/te_puni_kokiri.pdf (accessed December 14, 2011)
   Google Scholar
• MacDonald , C. 2002 . Moral decision making—An analysis Available at: http://www.ethicsweb.ca/guide/moral-decision.html (accessed July 25, 2011)
   Google Scholar
• MacLean , H. 1932 . “ Nursing in New Zealand: Nursing in New Zealand: History and Reminiscences ” . Tolan Printing Company . Availalable at: http://www.nzetc.org/tm/scholarly/tei-MacNurs.html (accessed March 25, 2012)
   Google Scholar
• Marsden , M. 1989 . Resource management law reform: Part A: The natural world and natural resources, Maori value systems & perspectives: Part B, Water resources and the Kai Tahu claim , Wellington , , New Zealand : Ministry for the Environment .
   Google Scholar
• Marsden , M. and Henare , T. 1992 . Kaitiakitanga: A definitive introduction to the holistic world view of the Maori , Wellington , , New Zealand : Ministry for the Environment .
   Google Scholar
• Martínez Cobo , J. R. 1987 . Study of the problem of discrimination against indigenous populations Available at: http://social.un.org/index/IndigenousPeoples/Library/Mart%C3%ADnezCoboStudy.aspx (accessed March 25, 2012)
   Google Scholar
• Mautner , T. 2000 . Dictionary of philosophy. , London , , UK : Penguin Books .
   Google Scholar
• Maxwell , G. , Robertson , J. , Kingi , V. , Morris , A. and Cunningham , C. C. 2004 . Achieving effective outcomes in youth justice: An overview of findings , Wellington , , New Zealand : Te Manatu Whakahiato Ora: Ministry of Social Development .
   Google Scholar
• Mead , H. 2000 . Ngā Ahi e Ngiha Mai Nei: The fires that flare up , Unpublished manuscript .
   Google Scholar
• Meyrick , J. 2006 . What is good qualitative research? A first step towards a comprehensive approach to judging rigour/quality . Journal of Health Psychology , 11 : 799 – 808 .
   PubMed Web of Science ®Google Scholar
• Midcentral District Health Board . 2007 . Malignant hyperthermia , MidCentral District Health Board . Available at: http://www.midcentraldhb.govt.nz/HealthDisability/HospitalAndAssoc/SurgicalAnaesthetics/MalignantHyperthermia/default.htm(accessed March 25, 2012)
   Google Scholar
• Ministry for Culture & Heritage. n.d. Treaty of Waitangi . “ New Zealand History Online ” . Available at: http://www.nzhistory.net.nz/category/tid/133 (accessed January 25, 2012)
   Google Scholar
• Ministry of Education . 2011 . Ministry of education annual report , Wellington , , New Zealand : Ministry of Education .
   Google Scholar
• Ministry of Health. n.d.-a . Measuring district health boards’ funding of health services to Maori health providers 04/05 to 09/10 , Wellington , , New Zealand : Ministry of Health . Report of the Maori Directorate of the Ministry of Health
   Google Scholar
• Ministry of Health. n.d.-b . Ethical Review in New Zealand: History , New Zealand Health and Disability Ethics Committees . Available at: http://www.ethicscommittees.health.govt.nz/moh.nsf/indexcm/ethics-ethicalreview-history?Open&m_id=3.3 (accessed March 25, 2012)
   Google Scholar
• Ministry of Health . 2002 . He Korowai Oranga: Maori health strategy , Wellington , , New Zealan : Ministry of Health .
   Google Scholar
• Nadesu , A. 2009 . “ Reconviction patterns of released prisoners: A 60-months followup analysis ” . Wellington , , New Zealand : Department of Corrections .
   Google Scholar
• Newman , K. 2006 . “ Ratana revisited: An unfinished legacy ” . Auckland , , New Zealand : Reed Publishing .
   Google Scholar
• Ngata , A. and Jones , P. T. 2005a . Nga Moteatea: The songs part one , Auckland , , New Zealand : Auckland University Press .
   Google Scholar
• Ngata , A. and Jones , P. T. 2005b . Nga Moteatea: The songs part two , Auckland , , New Zealand : Auckland University Press .
   Google Scholar
• Ngata , A. and Jones , P. T. 2006 . Nga Moteatea: The songs part three , Auckland , , New Zealand : Auckland University Press .
   Google Scholar
• No Stomach for Cancer . 2012 . Familial Gastric Cancer, New Zealand Available at: http://www.nostomachforcancer.org/familial-gastric-cancer-new-zealand (accessed March 25, 2012)
   Google Scholar
• O’Leary , Z. 2004 . The essential guide to doing research , London , , UK : Sage .
   Google Scholar
• O’Regan , H. 2001 . Ko Tahu, Ko Au: Kai Tahu tribal identity , Christchurch , , New Zealand : Horomaka Publishing .
   Google Scholar
• Paterson , R. 2008 . The genius of New Zealand's Code of Patients’ Rights , Auckland , , New Zealand : University of Auckland . Paper presented at Twenty Years after the Cartwright Report: What Have We Learned?, 29 August
   Google Scholar
• Peavey , F. 2003 . Strategic questioning: An approach to creating personal and social change Available at: http://www.jobsletter.org.nz/vivian/stratq97.htm (accessed March 25, 2012)
   Google Scholar
• Pere , R. 1984 . “ Te Oranga o te Whanau (The health of the family). Hui Whakaoranga Maori Health Planning Workshop ” . Wellington , , New Zealand : Department of Health .
   Google Scholar
• Porritt , A. 1967 . The history of medicine in New Zealand . Medical History , 11 ( 4 ) : 334 – 344 . Available at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1033744/?page=4 (accessed March 25, 2012)
   Google Scholar
• Ramsden , I. 2002 . Cultural safety and nursing education in Aotearoa and Te Waipounamu , Wellington , , New Zealand : Unpublished PhD thesis, Victoria University of Wellington .
   Google Scholar
• Richardson , L. 2000 . New writing practices in qualitative research . Sociology of Sport Journal , 17 : 5 – 20 .
   Web of Science ®Google Scholar
• Roa , T. and Tuaupiki , J. 2005 . Tikanga Tainui: Tikanga Whare Wānanga . He Puna Kōrero: Journal of Maori and Pacific Development , 6 ( 2 ) : 3 – 8 .
   Google Scholar
• Robertson , S. , Gunn , T. , Allen , B. , Chapman , C. and Becroft , D. 1997 . Are Melnick-Needles syndrome and oto-palato-digital syndrome type II allelic? . American Journal of Medical Genetics , 71 ( 3 ) : 341 – 347 .
   Web of Science ®Google Scholar
• Robertson , S. , Walsh , S. , Oldridge , M. , Gunn , T. , Becroft , D. and Wilkie , A. 2001 . Linkage of otopalatodigital syndrome type 2 (OPD2) to distal Xq28: Evidence for allelism with OPD1 . American Journal of Human Genetics , 69 ( 1 ) : 223 – 227 .
   Web of Science ®Google Scholar
• Rolfe , G. 2006 . Validity, trustworthiness and rigour: Quality and the idea of qualitative research . Journal of Advanced Nursing , 53 ( 3 ) : 304 – 310 .
   PubMed Web of Science ®Google Scholar
• Royal Commission on Social Policy . 1988 . The April report: Report of the Royal Commission on Social Policy , Wellington , , New Zealand : Royal Commission on Social Policy .
   Google Scholar
• Salmond , A. 1985 . “ Maori epistemologies ” . In JMorality and Reason , Edited by: Overing , J. 240 – 263 . London , , UK : Tavistock .
   Google Scholar
• Sandelowski , M. 1986 . The problem of rigor in qualitative research . Advances in Nursing Science , 8 ( 3 ) : 27 – 37 .
   PubMed Web of Science ®Google Scholar
• Shaw , D. , Blair , V. Framp , A. 2005 . Chromoendoscopic surveillance in hereditary diffuse gastric cancer: An alternative to prophylactic gastotectomy? . Gut , 54 ( 4 ) : 461 – 468 .
   Web of Science ®Google Scholar
• Smith , G. 1997 . “ The development of Kaupapa Maori theory and praxis. Unpublished doctoral dissertation ” . Auckland , , New Zealand : University of Auckland .
   Google Scholar
• Smith , L. T. 2005 . Decolonizing methodologies research and indigenous peoples. , New York , NY : Zed Books, University of Otago Press .
   Google Scholar
• Smith , L. “ n.d ” . In Rangahau Available at: http://www.rangahau.co.nz/analysis/134 (accessed March 25, 2012)
   Google Scholar
• Stake , R. E. 2000 . “ Case studies. ” . In Handbook of qualitative research , 2nd ed. , Edited by: Denzin , N. K. and Lincoln , Y. S. 435 – 454 . Thousand Oaks , CA : Sage .
   Google Scholar
• Stake , R. 2008 . “ Qualitative case studies ” . In Strategies of qualitative inquiry , Edited by: Denzin , N. and Lincoln , Y. 119 – 149 . Thousand Oaks , CA : Sage .
   Google Scholar
• Statistics New Zealand . 2006 . “ Maori Ethnic Population/Te Momo Iwi Maori ” . Available at: http://www.stats.govt.nz/Census/2006CensusHomePage/QuickStats/quickstats-about-a-subject/maori/maori-ethnic-population-te-momo-iwi-maori.aspx (accessed Nov- ember 22, 2011)
   Google Scholar
• Tau , T. M. 1999 . Matauranga Maori as an epistemology . Te Pouhere Korero Maori History Maori People , 1 : 10 – 23 .
   Google Scholar
• Te Puni Kokiri . 2001 . He Tirohanga o Kawa ki Te Tiriti o Waitangi: A guide to the Treaty of Waitangi as expressed by the Courts & the Waitangi Tribunal Wellington , , New Zealand
   Google Scholar
• Tobin , G. and Begley , C. 2004 . Methodological rigour within a qualitative framework . Journal of Advanced Nursing , 48 ( 4 ) : 388 – 396 .
   PubMed Web of Science ®Google Scholar
• Tupara , H. 2009 . He Urupounamu E Whakahaerengia Ana E Te Whanau: Whanau Decision Processes , Palmerston North , , New Zealand : Massey University . Unpublished PhD thesis, public health
   Google Scholar
• Tupara , H. 2011 . Ethics, Kawa and the constitution: Transformation of the system of ethical review in Aotearoa New Zealand . Cambridge Quarterly of Healthcare Ethics , 20 ( 3 ) : 367 – 379 .
   Web of Science ®Google Scholar
• Waitangi Tribunal . 1999 . “ The Wananga Capital Establishment Report ” . Wellington : New Zealand Government . Chapter Two Available at: www.waitangi-tribunal.govt.nz/reports/viewchapter.asp?reportID=39E13093-2F4D-4971-ACA0-28E811572755&chapter=4
   Google Scholar
• Walker , R. 1989 . “ The Treaty of Waitangi as the focus of Maori protest ” . In Maori and Pakeha perspectives of the Treaty of Waitangi , Edited by: Kawharu , I. 263 – 279 . Auckland : Oxford University Press .
   Google Scholar
• Walker , R. 1990 . “ Maori identity ” . In Culture and identity in New Zealand , Edited by: Novitz , D. and Willmott , B. 32 – 52 . Wellington , , New Zealand : Government Print .
   Google Scholar
• Walker , T. 2006 . Whanau is Whanau , Wellington , , New Zealand : Komihana a Whanau: Families Commission .
   Google Scholar
• Wilmer , F. 1993 . The indigenous voice in the world of politics: Since time immemorial , Newbury Park , CA : Sage .
   Google Scholar
• Winiata , W. 1979 . “ Whakatupuranga Rua Mano: Generation 2000; An Experiment in Tribal Development ” . Wellington : New Zealand Planning Council .
   Google Scholar
• Wirihana , T. “ n.d ” . In He Korero Nehera , Wellington , , New Zealand : Alexander Turnbull Library . Ref no. 6717-023
   Google Scholar
• World Medical Association . 1964 . Declaration of Helsinki: Ethical principles for medical research involving human subjects , Helsinki , , Finland : World Medical Association . Available at: http://www.wma.net/en/30publications/10policies/b3 (accessed March 25, 2012)
   Google Scholar
• Yin , R. 2003a . Applications of case study research , 2nd ed. , Thousand Oaks , CA : Sage .
   Google Scholar
• Yin , R. 2003b . Case study research: Design and methods , Thousand Oaks , CA : Sage .
   Google Scholar
• Yin , R. 2009 . Case study research: Design and methods , Thousand Oaks , CA : Sage .
   Google Scholar