References
- Emery AE. The muscular dystrophies. Lancet 2002;359:687–95
- Papazian O, Alfonzo I. Adolescents with muscular dystrophies. Adolesc Med 2002;13:511–35
- Emery AE. Population frequencies of inherited neuromuscular diseases--a world survey. Neuromuscul Disord 1991;1:19–29
- Bradley D, Parsons E. Newborn screening for Duchenne muscular dystrophy. Semin Neonatol 1998;3:27–34
- Dooley J, Gordon KE, Dodds L, MacSween J. Duchenne muscular dystrophy: a 30-year population-based incidence study. Clin Pediatr (Phila) 2010;49:177–9
- Biggar WD. Duchenne muscular dystrophy. Pediatr Rev 2006;27:83–8
- Phillips MR, Quinlivan RC, Edwards RH, Calverley PM. Changes in spirometry over time as a prognostic marker in patients with Duchenne muscular dystrophy. Am J Respir Crit Care Med 2001;164:2191–4
- Rideau Y, Jankowski LW, Grellet J. Respiratory function in the muscular dystrophies. Muscle Nerve 1981;4:155–64
- Baydur A, Gilgoff I, Prentice W, Carlson M, Fischer DA. Decline in respiratory function and experience with long-term assisted ventilation in advanced Duchenne’s muscular dystrophy. Chest 1990;97:884–9
- Inkley SR, Oldenburg FC, Vignos PJJr. Pulmonary function in Duchenne muscular dystrophy related to stage of disease. Am J Med 1974;56:297–306
- Bushby KM, Finkel R, Birnkrant DJ, Case LE, Clemens PR, Cripe L, et al. Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management. Lancet Neurol 2010;9:77–93
- Bushby KM, Finkel R, Birnkrant DJ, Case LE, Clemens PR, Cripe L, et al. Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care. Lancet Neurol 2010;9:177–89
- Jeppesen J, Green A, Steffensen BF, Rahbek J. The Duchenne muscular dystrophy population in Denmark, 1977–2001: Prevalence, incidence and survival in relation to the introduction of ventilator use. Neuromuscul Disord 2003;13:804–12
- Landfeldt E, Lindgren P, Bell C, Schmitt C, Guglieri M, Straub V, et al. The burden of Duchenne muscular dystrophy: An international, cross-sectional study. Neurology 2014;83:529–36
- Ouyang L, Grosse SD, Kenneson A. Health care utilization and expenditures for children and young adults with muscular dystrophy in a privately insured population. J Child Neurol 2008;23:883–8
- Larkindale J, Yang W, Hogan PF, Simon CJ, Zhang Y, Jain A, et al. Cost of illness for neuromuscular diseases in the US. Muscle Nerve 2014;49:431–8
- Friedman B, De La Mare J, Andrews R, McKenzie DH. Estimating hospital cost for discharged patients: practical options in an era of data restrictions. J Health Care Finance 2002;29:1–13
- Simon TD, Berry J, Feudtner C, Stone BL, Sheng X, Bratton SL, et al. Children with complex chronic conditions in inpatient hospital settings in the United States. Pediatrics 2010;126:647–55
- Meng Q, Yuan B, Jia L, Wang J, Yu B, Gao J, et al. Expanding health insurance coverage in vulnerable groups: a systematic review of options. Health Policy Plan 2011;26:93–104
- Toussaint M, Chatwin M, Soudon P. Mechanical ventilation in Duchenne patients with chronic respiratory insufficiency: clinical implications of 20 years published experience. Chron Respir Dis 2007;4:167–77
- Thompson WW, Shay DK, Weintraub E, Brammer L, Bridges CB, Cox NJ, et al. Influenza-associated hospitalizations in the United States. JAMA 2004;292:1333–40
- Stockman LJ, Curns AT, Anderson LJ, Fischer-Langley G. Respiratory syncytial virus-associated hospitalizations among infants and young children in the United States, 1997-2006. Pediatr Infect Dis J 2012;31:5–9
- Rodillo EB, Fernandez-Bermejo E, Heckmatt JZ, Dubowitz V. Prevention of rapidly progressive scoliosis in Duchenne muscular dystrophy by prolongation of walking with orthoses. J Child Neurol 1988;3:269–74
- Finder JD, Birnkrant D, Carl J, Farber HJ, Gozal D, Iannaccone ST, et al. Respiratory care of the patient with Duchenne muscular dystrophy: ATS consensus statement. Am J Respir Crit Care Med 2004;170:456–65
- Nabukera SK, Romitti PA, Campbell KA, Meaney FJ, Caspers KM, Mathews KD, et al. Use of complementary and alternative medicine by males with Duchenne or Becker Muscular Dystrophy. J Child Neurol 2012;27:734–40