References
- McPherson M, Arango P, Fox H, et al. A new definition of children with special health care needs. Pediatrics. 1998;102(1):137–139.
- Kogan M, Strickland B, Newacheck P. Building systems of care: findings from the national survey of children with special health care needs. Pediatrics. 2009;124(Suppl 4):S333–S336.
- Murphy NA, Alvey J, Valentine KJ, et al. Children with medical complexity: the 10-year experience of a single center. Hosp Pediatr. 2020;10(8):702–708.
- Sterni LM, Collaco JM, Baker CD, et al. An official American thoracic society clinical practice guideline: pediatric chronic home invasive ventilation. Am J Respir Crit Care Med. 2016;193(8):e16–35.
- Sobotka S, Gaur D, Goodman D, et al. Pediatric patients with home mechanical ventilation: the health services landscape. Pediatr Pulmonol. 2019;54(1):40–46.
- About primary Children’s [Internet]. Salt Lake City (Ut): Intermountain Healthcare; c2021 [cited 2021 Jun 21]. Available from: https://intermountainhealthcare.org/primary-childrens/about
- Giambra B, Mangeot C, Benscoter DT, et al. Identification of hospitalized tracheostomy and ventilator dependent patients in administrative data. Pediatr Pulmonol. 2018;53(7):973–978.
- Feudtner C, Christakis DA, Connell FA. Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State. Pediatrics. 2000;106(1 pt 2):205–209.
- Feudtner C, Feinstein JA, Zhong W, et al. Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation. BMC Pediatr. 2014;14(1):199.
- Cheung NH, Napolitano LM. Tracheostomy: epidemiology, indications, timing, technique, and outcomes. Respir Care. 2014;59(6):895–919.
- Tan C, Fryer M. Home ventilators. Medical home portal [Internet]. Salt Lake City (UT): University of Utah Department of Pediatrics; c2001–2021 [updated 2020 Jun; cited 2020 Jun; cited 2021 Jun; cited 2021 Jun 28]. Available from: https://www.medicalhomeportal.org/clinical-practice/medical-technology/home-ventilators
- Escarrabill J, Giro E, Estopa R, et al. Effectiveness of the concentrator as a supply source in home oxygen therapy. An Med Interna. 1992;9(6):270–273.
- Shiner RJ, Zaretsky U, Mirali M, et al. Evaluation of domiciliary long-term oxygen therapy with oxygen concentrators. Isr J Med Sci. 1997;3(1):23–29.
- Baker BM, Blackwell PB. Adult and infant vocalization: speaking valves used in individuals with tracheostomy and ventilator dependency. J Ky Med Assoc. 2001;99(5):193–203.
- Zabih W, Holler T, Syed F, et al. The use of speaking valves in children with tracheostomy tubes. Respir Care. 2017;62(12):1594–1601.
- Shaw J. Assessment considerations for PMV candidacy in the pediatric population. Aerodigestive Health. 2017;1(1):6–10.
- Moore PE, Boyer D, O’Conner MG, et al. Pediatric chronic home invasive ventilation. Ann Am Thorac Soc. 2016;13(7):1170–1172.
- Maynard R, Christensen E, Cady R, et al. Home health care availability and discharge delays in children with medical complexity. Pediatrics. 2019;143(1):e20181951.
- Willson DF, Conaway M, Kelly R, et al. The lack of specificity of tracheal aspirates in the diagnosis of pulmonary infection in intubated children. Pediatr Crit Care Med. 2014;15(4):299–305.
- Claassen CC, Keenan WJ. Challenging the “culture” of the tracheal aspirate. Neoreviews. 2019;20(3):e145–e151.
- Japanese Respiratory Society. Diagnosis of hospital-acquired pneumonia and methods of testing for pathogens. Respirology. 2009;14(Suppl 2):S10–S22.
- Lambert RS, Vereen LE, George RB. Comparison of tracheal aspirates and protected brush catheter specimens for identifying pathogenic bacteria in mechanically ventilated patients. Am J Med Sci. 1989;297(6):377–382.
- National Healthcare Safety Network. Pneumonia (ventilator-associated [VAP] and non-ventilator-associated pneumonia [PNEU]) event. Atlanta (GA): Centers For Disease Control and Prevention; c2021 Jan. Available from: https://www.cdc.gov/nhsn/pdfs/pscmanual/6pscvapcurrent.pdf
- Ambroggio L, Mangeot C, Kurowski EM, et al. Guideline adoption for community-acquired pneumonia in the outpatient setting. Pediatrics. 2018;142(4):e20180331.
- Jackson MA, Schutze GE. Committee on infectious diseases. The use of systemic and topical fluoroquinolones. Pediatrics. 2016;138(5):e20162706.
- Badia JR, Soy D, Adrover M, et al. Disposition of instilled versus nebulized tobramycin and imipenem in ventilated intensive care unit (ICU) patients. J Antimicrob Chemother. 2004;54(2):508–514.
- Chen J, Martin-mcnew BL, Lubsch L. Nebulized gentamicin as an alternative to nebulized tobramycin for tracheitis in pediatric patients. J Pediatr Pharmacol Ther. 2017;22(1):9–14.
- Reid SM, Westbury C, Guzyz AT, et al. Anticholinergic medications for reducing drooling in children with developmental disability. Dev Med Child Neurol. 2020;62(3):346–353.
- Norderyd J, Graf J, Marcusson A, et al. Sublingual administration of atropine eyedrops in children with excessive drooling - a pilot study. Int J Paediatr Dent. 2017;27(1):22–29.
- Scofano Dias BL, Fernandes AR, de S Maia Filho H. Treatment of drooling with sublingual atropine sulfate in children and adolescents with cerebral palsy. Arq Neuropsiquiatr. 2017;75(5):282–287.
- Care Pathways: sialorrhea in Cerebral Palsy [Internet]. Milwaukee (WI): American Academy for Cerebral Palsy and Developmental Medicine; c2017 [reviewed 2020; cited 2020; cited 2021 Jun 28]. Available from: https://www.aacpdm.org/publications/care-pathways/sialorrhea
- Mosquera RA, Avritscher E, Pedroza C, et al. Hospital consultation from outpatient clinicians for medically complex children: a randomized clinical trial. JAMA Pediatr. 2021;175(1):e205026.
- Elias ER, Murphy NA. Council on Children with disabilities. Home care of children and youth with complex health care needs and technology dependencies. Pediatrics 2012;129(5):996–1005.
- Hartling C, Mann K, and Dean R, et al. Transitioning children from NICU ventilators to home ventilators via a pediatric long term acute care unity: a new pathway. Poster session presented at: American Academy of Cerebral Palsy and Developmental Medicine 73rd Annual Conference Anaheim Marriott; 2019 Sept 18-21; Anaheim, CA.
- Brinton J, Mann K, and Murphy NA. Transitioning intensive care unit patients to an extended care facility: a new model of care? Abstract presented at: Pediatric Complex Care Association 7th Annual Conference Crowne Plaza Portland Downtown Convention Center; 2018 Oct 24-26; Portland, OR.