Delivering experiential knowledge: repertoires of contention among Swedish mental health service user organisations

References

• Andersson, M. 2014. “Varför en kampanj?” In Fem år av (h)järnkoll: Kampanjen som förändrade attityderna till psykisk ohälsa i Sverige [Five years of (h)järnkoll: The campaign that changed attitudes to mental illness in Sweden], edited by M. M. Suomalainen, 13–17. Stockholm: Nationell samverkan för psykisk hälsa (NSPH).
   Google Scholar
• Archibald, M. E. 2010. “Sources of Self-Help Movement Legitimization.” In Social Movements and the Transformation of American Health Care, edited by J. Banaszak-Holl, S. Levitsky, and M. N. Zald. New York: Oxford University Press.
   Google Scholar
• Böhm, S., A. C. Dinerstein, and A. Spicer. 2010. “(Im)Possibilities of Autonomy: Social Movements in and beyond Captial, the State and Development.” Social Movement Studies 9 (1): 17–32. doi:10.1080/14742830903442485.
   Google Scholar
• Brown, L. D., M. D. Shepherd, S. A. Wituk, and G. Meissen. 2007. “Goal Achievement and the Accountability of Consumer-Run Organizations.” Journal of Behavioral Health Services and Research 34 (1): 73–82. doi:10.1007/s11414-006-9046-y.
   PubMed Web of Science ®Google Scholar
• Brown, L. D., M. D. Shepherd, S. A. Wituk, and G. Meissen. 2008. “Introduction to the Special Issue on Mental Health Self-Help.” American Journal of Community Psychology 42 (1–2): 105–109. doi:10.1007/s10464-008-9187-7.
   PubMed Web of Science ®Google Scholar
• Brown, P., R. Morello‐Frosch, S. Zavestoski, L. Senier, R. Gasior Altman, E. Hoover, S. McCormick, B. Mayer, and C. Adams. 2010. “Field Analysis and Policy Ethnography in the Study of Health Social Movements.” In Social Movements and the Transformation of American Health Care, edited by J. Banaszak-Holl, S. Levitsky, and M. N. Zald, 101–116. New York: Oxford University Press.
   Google Scholar
• Crossley, N. 2002. “Repertoires of Contention and Tactical Diversity in the UK Psychiatric Survivors Movement: The Question of Appropriation.” Social Movement Studies 1 (1): 47–71. doi:10.1080/14742830120118891.
   Google Scholar
• Crossley, N. 2006. Contesting Psychiatry: Social Movements in Mental Health. Oxford: Routledge.
   Google Scholar
• Eriksson, E. 2016. “Brukarinflytande och social mobilisering.” [Service User Influence and Social Mobilisation.] In Social mobilisering - en utmaning för socialt arbete, edited by V. Denvall, C. Heule, and A. Kristiansen, 99–116. Malmö: Gleerups.
   Google Scholar
• Eriksson, E. 2018. “Incorporation and Individualization of Collective Voices: Public Service User Involvement and the User Movement’s Mobilization for Change.” Voluntas 29: 832–843. doi:10.1007/s11266-018-9971-4.
   Web of Science ®Google Scholar
• Goldstrom, I. D., J. Campbell, J. A. Rogers, D. B. Lambert, B. Blacklow, M. J. Henderson, and R. W. Manderscheid. 2006. “National Estimates for Mental Health Mutual Support Groups, Self-Help Organizations, and Consumer-Operated Services.” Administration and Policy in Mental Health 33 (1): 92–103. doi:10.1007/s10488-005-0019-x.
   PubMed Web of Science ®Google Scholar
• Hsieh, H. F., and S. E. Shannon. 2005. “Three Approaches to Qualitative Content Analysis.” Qualitative Health Research 15 (9): 1277–1288. doi:10.1177/1049732305276687.
   PubMed Web of Science ®Google Scholar
• Hultqvist, S., and T. Salonen. 2014. “Service User Involvement in Swedish Welfare Services: In Theory and in Practice.” In Participation, Marginalization and Welfare Services, edited by A.-L. Matthies and L. Uggerhøj. Surrey: Ashgate Publishing Limited.
   Google Scholar
• Karlsson, M. 2011. “Mobilisering genom självhjälpsgrupper.” [Mobilisation through Self-Help Groups.] In Social mobilisering – En utmaning för socialt arbete, edited by V. Denvall, C. Heule, and A. Kristiansen, 119–130. Korotan: Gleerups Utbildning AB.
   Google Scholar
• Karlsson, M., and U. Markström. 2012. “Non-Profit Organizations in Mental Health: Their Roles as Seen in Research.” Voluntas 23 (2): 287–301. doi:10.1007/s11266-011-9196-2.
   Web of Science ®Google Scholar
• Laginder, A., H. Nordvall, and J. Crowther. 2013. Popular Education, Power and Democracy: Swedish Experiences and Contributions. Leicester: NIACE.
   Google Scholar
• Markström, U., and M. Karlsson. 2013. “Towards Hybridization: The Roles of Swedish Non-Profit Organizations within Mental Health.” Voluntas 24 (4): 917–934. doi:10.1007/s11266-012-9287-8.
   Web of Science ®Google Scholar
• Markström, U., and R. Lindqvist. 2015. “Establishment of Community Mental Health Systems in a Postdeinstitutional Era: A Study of Organizational Structures and Service Provision in Sweden.” Journal of Social Work in Disability & Rehabilitation 14 (2): 124–144. doi:10.1080/1536710X.2015.1014535.
   PubMed Web of Science ®Google Scholar
• McCarthy, J. D., and M. N. Zald. 1977. “Resource Mobilization and Social Movements - A Partial Theory.” American Journal of Sociology 82 (6): 1212–1241. doi:10.1086/226464.
   Web of Science ®Google Scholar
• Meeuwisse, A., and S. Sunesson. 1998. “Frivilliga organisationer, socialt arbete och expertis.” [Voluntary Organisations, Social Work and Expertise.] Socialvetenskaplig tidskrift 5 (2–3): 172–193.
   Google Scholar
• Meyer, J. W., and B. Rowan. 1977. “Institutionalized Organizations - Formal-Structure as Myth and Ceremony.” American Journal of Sociology 83 (2): 340–363. doi:10.1086/226550.
   Web of Science ®Google Scholar
• Meyer, M. 2010. “Social Movement Service Organizations: The Challanges and Consequenses of Combining Service Provision and Political Advocacy.” In Human Services as Complex Organizations, edited by Y. Hasenfeld, 533–550. London: Sage Publications.
   Google Scholar
• Myndigheten för vårdanalys. 2015. Sjukt engagerad – En kartläggning av patient- och funktionshinderrörelsen [Sickly Engaged – A Mapping of the Patient- and Disability Movement]. Stockholm: Myndigheten för vårdanalys.
   Google Scholar
• Näslund, H., U. Markström, and S. Sjöström. 2017. “Participatory Spaces of Mental Health Service User Organizations in the Post-Deinstitutional Era: Mapping Roles and Challenges.” Voluntas. doi:10.1007/s11266-017-9906-5.
   Web of Science ®Google Scholar
• Noorani, T. 2013. “Service User Involvement, Authority and the ‘Expert-By-Experience’ in Mental Health.” Journal of Political Power 6 (1): 49–68. doi:10.1080/2158379X.2013.774979.
   Google Scholar
• Nordén, H. 2008. Kunskap att hämta – Brukarmedverkan för en bättre psykiatri [Knowledge to Retrieve – Service User Involvement for Better Psychiatry]. Växjö: Gothia förlag.
   Google Scholar
• Ostrow, L., and N. Adams. 2012. “Recovery in the USA: From Politics to Peer Support.” International Review of Psychiatry 24 (1): 70–78. doi:10.3109/09540261.2012.659659.
   PubMed Web of Science ®Google Scholar
• Restall, G., J. E. Cooper, and J. M. Kaufert. 2011. “Pathways to Translating Experiential Knowledge into Mental Health Policy.” Psychiatric Rehabilitation Journal 35 (1): 29–36. doi:10.2975/35.1.2011.29.36.
   PubMed Web of Science ®Google Scholar
• Rissmiller, D. J., and J. H. Rissmiller. 2006. “Evolution of the Antipsychiatry Movement into Mental Health Consumerism.” Psychiatric Services 57 (6): 863–866. doi:10.1176/appi.ps.57.6.863.
   PubMed Web of Science ®Google Scholar
• Salem, D. A., T. M. Reischl, and K. Randall. 2010. “Helping Mutual Help: Managing the Risks of Professional Partnerships.” In Mental Health Self-Help: Consumer and Family Initiatives, edited by L. D. Brown and S. Wituk, 303–334. New York: Springer Science + Business Media.
   Google Scholar
• Salem, D. A., T. M. Reischl, and K. W. Randall. 2008. “The Effect of Professional Partnership on the Development of a Mutual-Help Organization.” American Journal of Community Psychology 42 (1–2): 179–191. doi:10.1007/s10464-008-9193-9.
   PubMed Web of Science ®Google Scholar
• Scaramuzzino, R. 2012. “Challenges When Studying Diffuse Forms of Organisations in Civil Society.” In Pondering on Methods - A Variety of Methodological Concerns, edited by K. Jacobsson and K. Sjöberg. Lund: Lund University.
   Google Scholar
• SOU. 2006. 100. Ambition och ansvar: Nationell strategi för utveckling av samhällets insatser till personer medpskiska sjukdomar och funktionshinder [Ambition and Responsibilty: National Strategy for the Development of Society’s Support to People with Mental Illnesses or Disabilities]. Stockholm: Edita Sverige AB.
   Google Scholar
• Tanenbaum, S. J. 2012. “Consumer-Operated Service Organizations: Organizational Characteristics, Community Relationships, and the Potential for Citizenship.” Community Mental Health Journal 48 (4): 397–406. doi:10.1007/s10597-011-9408-7.
   PubMed Web of Science ®Google Scholar
• Thyer, B. A., and M. Pignotti. 2011. “Evidence-Based Practices Do Not Exist.” Clinical Social Work Journal 39: 328–333. doi:10.1007/s10615-011-0358-x.
   Web of Science ®Google Scholar
• Tilly, C. 1993. “Contentious Repertoires in Great-Britain, 1758–1834.” Social Science History 17 (2): 253–280. doi:10.2307/1171282.
   Web of Science ®Google Scholar
• Tomes, N. 2006. “The Patient as a Policy Factor: A Historical Case Study of the Consumer/Survivor Movement in Mental Health.” Health Affairs 25 (3): 720–729. doi:10.1377/hlthaff.25.3.720.
   PubMed Web of Science ®Google Scholar
• Van de Bovenkamp, H. M., and M. J. Trappenburg. 2011. “Government Influence on Patient Organizations.” Health Care Analysis 19 (4): 329–351. doi:10.1007/s10728-010-0155-7.
   PubMed Web of Science ®Google Scholar
• Wijkström, F., and A. Zimmer. 2011. “Introduction: Nordic Civil Societies beyond Membership and Movements” In Nordic Civil Society at a Cross-Roads: Transforming the Popular Movement Tradition., edited by F. Wijkström and A. Zimmer, 9–24. Baden-Baden: Nomos.
   Google Scholar
• Zald, M. N., and R. A. Garner. 1994. “Social Movement Organizations: Growth, Decay and Change.” In Social Movements in an Organizational Society, edited by M. N. Zald and J. D. McCarthy, 121–142. New Jersey: Transactions.
   Google Scholar
• Zald, M. N., and J. D. McCarthy. 1994a. “Social Movement Industries: Comeptition and Conflict among SMOs.” In Social Movements in an Organizational Society., edited by M. N. Zald and J. D. McCarthy, 161–184. New Jersey: Transaction.
   Google Scholar
• Zald, M. N., and J. D. McCarthy. 1994b. Social Movements in an Organizational Society. New Jersey: Transaction.
   Google Scholar