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Article

Service users and academics: collaborators not competitors in welfare research

References

  • Alm Andreassen, T., G. I. Romsland, and H. Lundgaard Søberg. 2019. “Mellom empowerment og forskningsnytte? Refleksjoner over formål og form for brukermedvirkning i et rehabiliteringsforskningsprosjekt [Between Empowerment and the Benefit of Research. Reflctions of the Goal and Ways of Participation in a Rehabilitation Research Project].” In Samproduksjon i forskning. Forskning med nye aktører. [Co-production in Research. Research with New Actors], edited by O. P. Askheim, I. M. Lid, and S. Østensjø, 56–75. Oslo: Universitetsforlaget. doi:10.18261/9788215031675-2019-04.
  • Askheim, O. P., and J. Raak Høiseth. 2019. “Medforskerrollen – I spenningsfeltet mellom anerkjennelse, kooptering og “tokenisme” [The Co-researcher Role – In Tension between Recognition, Co-opting and Tokenism].” In Samproduksjon i forskning. Forskning med nye aktører. [Co-production in Research. Research with New Actors], red. O. P. Askheim., I. M. Lid, and S. Østensjø, 214–230. Oslo: Universitetsforlaget. doi:10.18261/9788215031675-2019-13.
  • Barnes, C., and G. Mercer. 2006. Independent Futures: Creating User-led Disability Services in a Disabling Society. Bristol: Policy Press.
  • Belcher, B. M., K. E. Rasmussen, M. R. Kemshaw, and D. A. Zornes. 2016. “Defining and Assessing Research Quality in a Transdisciplinary Context.” Research Evaluation 25 (1): 1–17. doi:10.1093/reseval/rvv025.
  • Beresford, P., and D. Rose. 2009. “Background.” In This Is Survivor Research, edited by A. Sweeny, P. Beresford, A. Faulkner, M. Nettle, and D. Rose, 11–21. Ross-on-Wye: PCCS Books.
  • Beresford, P. 2013. “From “Other” to Involved: User Involvement in Research: An Emerging Paradigm.” Nordic Social Work Research 3 (2): 139–148. doi:10.1080/2156857X.2013.835138.
  • Blackstock, K. L., G. J. Kelly, and B. L. Horsey. 2007. “Developing and Applying a Framework to Evaluate Participatory Research for Sustainability.” Ecological Economics 60 (4): 726–742. doi:10.1016/j.ecolecon.2006.05.014.
  • Boaz, A., and D. Ashby. 2003. Fit for Purpose? Assessing Research Quality for Evidence Based Policy and Practice. London: ESRC UK Centre for Evidence Based policy and Practice.
  • Boote, J., R. Telford, and C. Cooper. 2002. “Consumer Involvement in Health Research: A Review and Research Agenda.” Health Policy 61 (2): 213–236. doi:10.1016/s0168-8510(01)00214-7.
  • Brett, J., S. Staniszewska, C. Mockford, S. Herron-Marx, J. Hughes, C. Tysall, and R. Suleman. 2014. “Mapping the Impact of Patient and Public Involvement on Health and Social Care Research: A Systematic Review.” Health Expectations 17 (5): 637–650. doi:10.1111/j.1369-7625.2012.00795.x.
  • Carlsen, B. 2019. “Brukermedvirkning i forskning avkledd. [User Participation in Research Undressed].” Khrono 19 (11). https://khrono.no/a/419755.
  • Case, A. D., R. Byrd, E. Claggett, S. Deveaux, R. Perkins, C. Huang, and J. S. Kaufman. 2014. “Stakeholders’ Perspectives on Community-Based Participatory Research to Enhance Mental Health.” American Journal of Community Psychology 54 (3–4): 397–408. doi:10.1007/s10464-014-9677-8.
  • Cooklin, J. N., and B. Oldenburg. 2016. “A Scoping Review of End User Involvement in Disability Research.” Disability and Health Journal 9 (2): 189–196. doi:10.1016/j.dhjo.2015.10.001.
  • Cornwall, A. 2008. “Unpacking “Participation”: Models, Meanings and Practices.” Community Development Journal 43 (3): 269–283. doi:10.1093/cdj/bsn010.
  • Duffy, J., and P. Beresford. 2021. “Critical Issues in the Development of Service User Involvement.” In The Routledge Handbook of Service User Involvement in Human Services Research and Education, edited by H. McLaughlin, P. Beresford, C. Cameron, H. Casey, and J. Duffy, 9–16. London & New York: Rotledge.
  • Ennis, L., and T. Wykes. 2013. “Impact of Patient Involvement in Mental Health Research: Longitudinal Study.” British Journal of Psychiatry 203 (5): 381–386. doi:10.1192/bjp.bp.112.119818.
  • Fals Borda, O., and M. A. Rahman, eds. 1991. Action and Knowledge: Breaking the Monopoly with Participatory Action Research. New York: Intermediate Technology Pubs/Apex Press.
  • Fisher, M. 2016. “The Social Care Institute for Excellence and Evidence-Based Policy and Practice.” British Journal of Social Work 46 (2): 498–513. doi:10.1093/bjsw/bcu143.
  • Fleming, J., P. Beresford, C. Bewley, S. Croft, F. Branfield, K. Postle, and M. Turner. 2014. “Working Together – Innovative Collaboration in Social Care Research.” Qualitative Social Work: Research and Practice 13 (5): 706–722. doi:10.1177/1473325013506929.
  • Frankham, J. 2009. Partnership Research: A Review of Approaches and Challenges in Conducting Research in Partnership with Service Users. Manchester Metropolitan University.
  • Freire, P. 1996. Pedagogy of the Oppressed. London: Penguin Books.
  • Garrow, E. E., and Y. Hasenfeld. 2017. “The Epistemological Challenges of Social Intervention Research.” Research on Social Work Practice 27 (4): 494–502. doi:10.1177/1049731515623649.
  • Gjernes, T., and T. Bliksvær. 2011. “Nye samarbeidsformer – nye læringsformer? Sluttrapport fra evalueringen av forsøket Høgskole- og universitetssosialkontor.” [New Ways of Cooperation – New Ways of Learning. The Final Report from the Evaluation of the Project “The University and College Social Services Office”]. NF-rapport no. 7/2011. Bodø: Nordlandsforskning.
  • Glasby, J., and P. Beresford. 2006. “Who Knows Best? Evidence-based Practice and the Service User Contributions.” Critical Social Policy 26 (1): 268–284. doi:10.1177/0261018306059775.
  • Hallberg, M. 2007. “Vetenskapliga kontroverser oundvikliga i dagens samhälle. [Scientific Controversies Inevitable in To-day’s Society].” Läkartidningen 08.  https://lakartidningen.se/klinik-och-vetenskap-1/2007/02/
  • Hallberg, M., and F. Bragesjö. 2003. Konflikt eller konsensus? Om kontroversstudier som forskningsfält. [Conflict or Consensus? about Controversy Studies as Research Area]. Stockholm: Forskningsrådet för arbetsliv och socialvetenskap.
  • Hancock, N., A. Bundy, S. Tamsett, and M. McMahon. 2012. “Participation of Mental Health Consumers in Research: Training Addressed and Reliability Assessed.” Australian Occupational Therapy Journal 59 (3): 218–224. doi:10.1111/j.1440-1630.2012.01011.x.
  • Harding, S. 1986. The Science Question in Feminism. New York: Cornell University Press.
  • Harding, S. 1993. “Rethinking Standpoint Epistemology: What Is “Strong Objectivity?”.” In Feminist Epistemologies, edited by L. Alcoff and E. Potter, 49–82. London: Routledge.
  • Hartsock, N. 1983. “The Feminist Standpoint: Developing the Ground for a Specifically Feminist Historical Materialism.” In Discovering Reality. Feminist Perspectives and Epistemology, Metaphysics, Methodology and Philosophy, edited by S. Harding and M. B. Hintikka, 283–310. Dordrecht: Kluwer Academic Publishers.
  • Heaton, J., J. Day, and N. Britten. 2016. “Collaborative Research and the Co-production of Knowledge from Practice: An Illustrative Case Study.” Implementation Science 11 (1): 20. doi:10.1186/s13012-016-0383-9.
  • Hughes, M., and D. Duffy. 2018. “Public Involvement in Health and Social Sciences Research: A Concept Analysis.” Health Expectations 21 (6): 1183–1190. doi:10.1111/hex.12825.
  • International Collaboration for Participatory Health Research. 2013. “What is Participatory Health Research?” Position Paper no. 1. Berlin: International Collaboration for Participatory Health Research.
  • Kindon, S., R. Pain, and M. Kesby. 2010. “Participatory Action Research. Origins, Approaches and Methods.” In Participatory Action Research Approaches and Methods, edited by S. Kindon, R. Pain, and M. Kesby, 9–18. London and New York: Routledge.
  • Kylberg, M., M. Haak, A. Ståhl, E. Skogh, and S. Iwarsson. 2015. “Brukarmedverkan. Forskning med och om brukarmedverkan [User Participation. Research with and about User Participation].” Forskning i korthet 5.
  • Lohr, K. N. 2004. “Rating the Strength of Scientific Evidence: Relevance for Quality Improvement Programs.” International Journal of Quality in Health Care 16 (1): 9–18. doi:10.1093/intqhc/mzh005.
  • Macaulay, A. C., J. Jagosh, R. Seller, J. Henderson, M. Cargo, T. Greenhalgh, and P. Pluye. 2011. “Assessing the Benefits of Participatory Research: A Rationale for a Realist Review.” Global Health Promotion 18 (2): 45–48. doi:10.1177/1757975910383936.
  • Malterud, K., and K. T. Elvebakken. 2019. “Patients Participating in Health Research: A Systematic Review of Outcomes and Experiences.” Scandinavian Journal of Public Health 1–12. doi:10.1177/1403494819863514.
  • Mayan, M. J., and C. H. Daum. 2016. “Worth the Risk? Muddled Relationships in Community-Based Participatory Research.” Qualitative Health Research 26 (1): 69–76. doi:10.1177/1049732315618660.
  • McIntyre, A. 2008. “Participatory Action Research.” Qualitative Research Methods Series 52. Los Angles/London: SAGE publications.
  • McLaughlin, H. 2006. “Involving Young Service Users as Co-researchers: Possibilities, Benefits and Costs.” British Journal of Social Work 36: 1395–1410. doi:10.1093/bjsw/bch420.
  • McLaughlin, H. 2009. Service User Research in Health and Social Care. London: Sage.
  • McLaughlin, H. 2010. “Keeping Service User Involvement in Research Honest.” British Journal of Social Work 40 (5): 1591–1608. doi:10.1093/bjsw/bcp064.
  • Minkler, M., and A. Corage Baden. 2008. “Impacts of CBPR on Academic Researchers, Research Quality and Methodology, and Power Relations.” In Community-Based Participatory Research for Health. From Process to Outcome, edited by M. Minkler and N. Wallerstein, 243–246. San Fransisco: Jossey-Bass.
  • Moore, M. 2019. “Disability, Activity and the Academy: Time for Renewal?” Disability & Society 34 (7–8): 1025–1027. doi:10.1080/09687599.2019.1671056.
  • Moses, J. W., and T. L. Knutsen. 2012. Ways of Knowing. Competing Methodologies in Social and Political Research. Houndmills, Basingstoke, Hampshire: Palgrave Macmillan.
  • Nolan, M., E. Hanson, G. Grant, J. Keady, and L. Magnusson. 2007. “Introduction: What Counts as Knowledge, Whose Knowledge Counts? Towards Authentic Participatory Enquiry.” In User Participation in Health and Social Care Research, edited by M. Nolan, G. Hanson, G. Grant, and J. Keady, 1–13. Maidenhead: Open University Press.
  • Norges forskningsråd [The Norwegian Research Council]. 2000. Kvalitet i norsk forskning. En oversikt over begreper, metoder og virkemidler. [Quality in Norwegian Research: An Overview of Concepts, Methods and Instruments]. Oslo: Norges Forskningsråd.
  • Norges forskningsråd [The Norwegian Research Council]. 2015. Programplan 2015–2024. Gode og effektive helse- omsorg- og velferdstjenester – HELSEVEL. [Program Plan2015-2024. Good and Effective Health-, Care and Welfare Services]. Oslo: Norges Forskningsråd.
  • Nowotny, O., M. Gibbons, and P. Scott. 2001. Re-thinking Science – Knowledge and Public in an Age of Uncertainty. Cambridge: Polity Press.
  • Oliver, M. 1992. “Changing the Social Relations of Research Production.” Disability, Handicap and Society 7 (2): 101–115. doi:10.1080/02674649266780141.
  • Oliver, M. 1997. “Emancipatory Research: Realistic Goal or Impossible Dream?” In Doing Disability Research, edited by C. Barnes and G. Mercer, 15–31. Leeds: Disability Press.
  • Oliver, M. 2019. “Activism and the Academy: Losing the Ideological and Material Battles.” Disability & Society 34 (7–8): 1028–1033. doi:10.1080/09687599.2019.1612637.
  • Oliver, M., and C. Barnes. 1998. Disabled People and Social Policy. New York/London: Longman.
  • Østensjø, S., and O. P. Askheim. 2019. “Forskning med nye aktører – forskningskvalitet og nytteverdi. [Research with New Actors – Research Quality and Usefulness].” In Samproduksjon i forskning. Forskning med nye aktører. [Co-production in Research. Research with New Actors], red. O. P. Askheim., I. M. Lid, and S. Østensjø, 231–245. Oslo: Universitetsforlaget. doi:10.18261/9788215031675-2019-14.
  • Prior, L. 2003. “Belief, Knowledge and Expertise: The Emergence of the Lay Expert in Medical Sociology.” Sociology of Health & Illness 25 (1): 41–57. doi:10.1111/1467-9566.00339.
  • Rose, D. 2014. “Patient and Public Involvement in Health Research: Ethical Imperative And/or Radical Challenge?” Journal of Health Psychology 19 (1): 149–158. doi:10.1177/1359105313500249.
  • Rose, D. 2017. “Service User/survivor-led Research in Mental Health: Epistemological Possibilities.” Disability & Society 32 (6): 773–779. doi:10.1080/09687599.2017.132070.
  • Rose, D., G. Thornicroft, and M. Slade. 2006. “Who Decides What Evidence Is? Developing a Multiple Perspective Paradigm in Mental Health.” Acta Psychiatrica Scandinavia 113 (Suppl. 429): 109–114. doi:10.1111/j.1600-0447.2005.00727.x.
  • Sweeny, A., P. Beresford, A. Faulkner, M. Nettle, and D. Rose. 2009. This Is Survivor Research. Ross-on-Wye: PCCS Books.
  • Thomas, C. 1999. Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
  • Walker, D. 2010. “Debate: Do Academics Know Better or Merely Different?” Public Money & Management 30 (4): 204–206. doi:10.1080/09540962.2010.492174.
  • Wallerstein, N., and B. Duran. 2008. “The Theoretical, Historical and Practice Roots of CBPR.” In Community-Based Research For Health, edited by M. Minkler and N. Wallerstein, 25–46. San Fransisco: Jossey-Bass.