References
- IOM (Institute of Medicine). Beyond myalgic encephalomyelitis/chronic fatigue syndrome: Redefining an illness. Washington (DC): The National Academies; 2015.
- Friedberg F, Jason L. Understanding chronic fatigue syndrome: an empirical guide to assessment and treatment. Washington (DC): American Psychological Association; 1998.
- Jason LA, Holbert C, Torres-Harding S, et al. Stigma and the term chronic fatigue Syndrome. J Disabil Policy Stud. 2004;14:222–228. doi: https://doi.org/10.1177/10442073040140040401
- Nicholson L, Brown A, Jason LA, et al. Educational Priorities for Healthcare Providers and name Suggestions for chronic fatigue Syndrome: including the patient Voice. Clinical Research: Open Access (ISSN 2469-6714). 2016;2:1–6.
- Clayton EW. Redefining myalgic encephalomyelitis/chronic fatigue syndrome – reply. JAMA. 2015;314:85–86. doi: https://doi.org/10.1001/jama.2015.5760
- What’s in a name? systemic exertion intolerance disease. The Lancet. 2015; 385: 663. doi: https://doi.org/10.1016/S0140-6736(15)60270-7
- Sen MS, Sahoo S, Aggarwal S, et al. Systemic exercise intolerance disease: what’s in a name? Asian J Psychiatr. 2016;22:157–158. doi: https://doi.org/10.1016/j.ajp.2016.06.003
- MKSAP: 36-year-old man with history of fatigue [Internet]. KevinMD.com. MedPage Today; 2017. Available from: https://www.kevinmd.com/blog/2017/08/mksap-36-year-old-man-history-fatigue.html?fbclid=IwAR0fjRm9MVwAEgt0hQauZDQb_vSYiyVz04oqO_APUgX3R8BFAghnLmhOT3o.
- Department of Veterans Affairs (US). Schedule for rating disabilities: Infectious diseases, immune disorders, and nutritional deficiencies. Fed Regist. 2019 Feb 5;84(24):1678–1690.
- Tuller D. Chronic fatigue syndrome gets a new name [Internet]. New York Times blogs. ME Association; 2015. Available from: https://www.meassociation.org.uk/2015/02/chronic-fatigue-syndrome-gets-a-new-name-new-york-times-blogs-10-february-2015/.
- Jason LA. How disease names can stigmatize [Internet]. Oxford University Press Blog. 2015. Available from: https://blog.oup.com/2015/02/disease-name-chronic-fatigue-syndrome-me/.
- Petrison L. Survey Results (Pt. 1): Evaluating a Proposed Name to Replace “ME/CFS” [Internet]. Paradigm Change. 2015. Available from: https://blog.oup.com/2015/02/disease-name-chronic-fatigue-syndrome-me/.
- Jason LA, Nicholson L, Sunnquist M. Patient perceptions regarding possible changes to the name and criteria for chronic fatigue Syndrome and Myalgic Encephalomyelitis. J Family Medicine Community Health. 2016 Jul;3(4):1090.
- Name Change Poll Results: ME Wins [Internet]. CFS Treatment Guide. 2015. Available from: http://www.cfstreatmentguide.com/blog/name-change-poll-results-me-wins.
- Twisk FN. Myalgic Encephalomyelitis, chronic fatigue syndrome or systemic exercise intolerance disease: what’s in a name? Asian J Psychiatr. 2016;23:70. doi: https://doi.org/10.1016/j.ajp.2016.07.004
- SEID is killing ME [Internet]. ME Advocacy. 2019 Mar 14. Available from: https://www.meadvocacy.org/seid_is_killing_me.
- Klein G. Exposing the deception: SEID is not ME! [Internet]. Relating to ME. 2018 Nov 2. Available from: https://relatingtome.net/2018/11/02/exposing-the-deception-seid-is-not-me/.
- McLaughlin J. Comments on: “How disease names can stigmatize” 2015 Feb 16 [cited 2020 Mar 17]. In: Jason L, editor. How disease names can stigmatize [Internet]. Oxford: Oxford University Press; 2015. Available from: https://blog.oup.com/2015/02/disease-name-chronic-fatigue-syndrome-me/
- Ganiats TG. Redefining the chronic fatigue syndrome. Ann Intern Med. 2015;162(9):653–654. doi: https://doi.org/10.7326/M15-0357
- Spinhirne J. New CDC “ME/CFS” (SEID) is old Fukuda CFS in disguise [Internet]. Facebook. 2018 Nov 11. Available from: https://www.facebook.com/notes/jerrold-spinhirne/new-cdc-mecfs-seid-is-old-fukuda-cfs-in-disguise/2353630064708559/.
- FOA: RFA-NS-17-021. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) collaborative research centers (CRC). Bethesda (MD): Department of Health and Human Services [Internet]; 2017; https://grants.nih.gov/grants/guide/rfa-files/RFA-NS-17-021.html.
- Chu L, Norris JL, Valencia IJ, et al. Patients diagnosed with Myalgic encephalomyelitis/chronic fatigue syndrome also fit systemic exertion intolerance disease criteria. Fatigue: Biomedicine, Health & Behavior. 2017;5:114–128.
- Jason LA, Sunnquist M, Gleason K, et al. Mistaken conclusions about systemic exercise intolerance disease being comparable to research case definitions of CFS: A rebuttal to Chu et al. Fatigue: Biomedicine, Health & Behavior. 2017;5:231–238.
- Chu L, Valencia IJ, Montoya JG. Differences of opinion on systemic exercise intolerance disease are not ‘mistakes’: a rejoinder to Jason Sunnquist, Gleason and Fox. Fatigue: Biomedicine, Health & Behavior. 2017;5(4):239–244. doi:10.1080/21641846.2017.1362750.
- Jason LA, Sunnquist M, Brown A, et al. Reflections on the Institute of Medicine’s systemic exertion intolerance disease. Polish Archives of Internal Medicine. 2015;125:576–581. doi: https://doi.org/10.20452/pamw.2973
- Fukuda K, Straus SE, Hickie I, et al. The chronic fatigue syndrome: A comprehensive approach to its definition and study. Ann Intern Med. 1994;121:953–959. doi: https://doi.org/10.7326/0003-4819-121-12-199412150-00009
- Carruthers BM, Jain AK, De Meirleir KL, et al. Myalgic Encephalomyelitis/chronic fatigue syndrome: clinical working case definition, diagnostic and treatments protocols. J Chronic Fatigue Syndrome. 2003;11:7–115. doi: https://doi.org/10.1300/J092v11n01_02
- Carruthers BM, van de Sande MI, De Meirleir KL, et al. Myalgic encephalomyelitis: international consensus criteria. J Intern Med. 2011;270:327–338. doi: https://doi.org/10.1111/j.1365-2796.2011.02428.x
- IOM (Institute of Medicine). Beyond myalgic encephalomyelitis/chronic fatigue syndrome: Redefining an illness. report guide for clinicians. Washington (DC): The National Academies; 2015.
- Jason LA, Sunnquist M, Kot B, et al. Unintended consequences of not specifying exclusionary illnesses for systemic exertion intolerance disease. Diagnostics. 2015;5:272–286. doi: https://doi.org/10.3390/diagnostics5020272
- Diagnostic criteria: Researchers and clinicians survey results [Internet]. MEAction. 2019 Nov 21. Available from: https://www.meaction.net/2019/11/21/diagnostic-criteria-researchers-and-clinicians-survey-results/.
- Wojcik W, Armstrong D, Kanaan R. Chronic fatigue syndrome: labels, meanings and consequences. J Psychosom Res. 2011;70:500–504. doi: https://doi.org/10.1016/j.jpsychores.2011.02.002
- Jason LA, Taylor RR, Plioplys S, et al. Evaluating attributions for an illness based upon the name: chronic fatigue Syndrome, myalgic encephalopathy and Florence Nightingale disease. Am J Community Psychol. 2002;30:133–148. doi: https://doi.org/10.1023/A:1014328319297
- Lim E-J, Ahn Y-C, Jang E-S, et al. Systematic review and meta-analysis of the prevalence of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). J Transl Med. 2020;18:100. doi: https://doi.org/10.1186/s12967-020-02269-0
- Jason LA, Fox PA, Gleason KD. The importance of a research case definition. Fatigue: Biomedicine, Health & Behavior. 2018;6:52–58.
- Unger ER, Lin J-MS, Tian H, et al. Methods of applying the 1994 case definition of chronic fatigue syndrome – impact on classification and observed illness characteristics. Popul Health Metr. 2016;14(5):1–10.
- Hawk C, Jason LA, Torres-Harding S. Differential diagnosis of chronic fatigue syndrome and major depressive disorder. Int J Behav Med. 2006;13:244–251. doi: https://doi.org/10.1207/s15327558ijbm1303_8
- Geraghty K, Jason LA, Sunnquist M, et al. The ‘cognitive behavioural model’ of chronic fatigue syndrome: Critique of a flawed model. Health Psychol Open. 2019;6. doi: https://doi.org/10.1177/2055102919838907
- Green CR, Cowan P, Elk R, et al. National Institutes of Health Pathways to Prevention workshop: Advancing the research on Myalgic Encephalomyelitis/chronic fatigue Syndrome. Ann Intern Med. 2015;162:860–865. doi: https://doi.org/10.7326/M15-0338
- A report from the federal partners meeting of the National Institutes of Health Pathways to Prevention Workshop: Advancing the research on myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) [Internet]. Bethesda (MD): National Institutes of Health; 2016. Available from: https://prevention.nih.gov/sites/default/files/2018-06/mecfs-federal-partners-report.pdf.
- Whittemore V, Bergquist J, Cella D, et al. The NINDS/CDC Myalgic Encephalomyelitis/chronic fatigue Syndrome common data elements: recommendations for clinical research. Bethesda (MD): National Institute of Neurological Disorders and Stroke; Forthcoming.
- NANDSC Working Group for ME/CFS Research [Internet]. National institute of neurological disorders and Stroke. Bethesda (MD): U.S. Department of Health and Human Services; 2019; Available from: https://www.ninds.nih.gov/About-NINDS/Who-We-Are/Advisory-Council/ME-CFS-Working-Group.
- Jason LA, Mcmanimen S, Sunnquist M, et al. Case definitions integrating empiric and consensus perspectives. Fatigue: Biomedicine, Health & Behavior. 2016;4:1–23.
- Holmes GP, Kaplan JE, Gantz NM, et al. Chronic fatigue syndrome: A working case definition. Annals of Internal Medicine. 1988;108(3):387. doi: https://doi.org/10.7326/0003-4819-108-3-387
- Bansal AS. Investigating unexplained fatigue in general practice with a particular focus on CFS/ME. BMC Fam Pract. 2016;7:81. doi:10.1186/s12875-016-0493-0.