784
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population

, , , &
Pages 217-237 | Received 11 Dec 2023, Accepted 25 Mar 2024, Published online: 06 Apr 2024

References

  • Bested AC, Marshall LM. Review of myalgic encephalomyelitis/chronic fatigue syndrome: an evidence-based approach to diagnosis and management by clinicians. Rev Environ Health. 2015;30:223–249. doi:10.1515/reveh-2015-0026
  • Carruthers BM, van de Sande MI, De Meirleir KL, et al. Myalgic encephalomyelitis: international consensus criteria. J Intern Med. 2011;270:327–338. doi:10.1111/j.1365-2796.2011.02428.x
  • Clark JE, Fai Ng W, Watson S, et al. The aetiopathogenesis of fatigue: unpredictable, complex and persistent. Br Med Bull. 2016;117:139–148. doi:10.1093/bmb/ldv057
  • Nacul L, O’Boyle S, Palla L, et al. How myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) progresses: the natural history of ME/CFS. Front Neurol [Internet]. 2020;11, https://www.frontiersin.org/journals/neurology/articles/10.3389fneur.2020.00826.
  • Adamowicz JL, Caikauskaite I, Friedberg F. Defining recovery in chronic fatigue syndrome: a critical review. Qual Life Res. 2014;23:2407–2416. doi:10.1007/s11136-014-0705-9
  • NICE. NICE guideline [NG206]: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management. 2021 [cited 2023 Jun 19]; Available from: https://www.nice.org.uk/guidance/ng206.
  • Rowe PC, Underhill RA, Friedman KJ, et al. Myalgic encephalomyelitis/chronic fatigue syndrome diagnosis and management in young people: a primer. Front Pediatr [Internet]. 2017;5, Available from: https://www.frontiersin.org/articles/10.3389fped.2017.00121.
  • Crawley E, Collin SM, White PD, et al. Treatment outcome in adults with chronic fatigue syndrome: a prospective study in England based on the CFS/ME National Outcomes Database. QJM: An International Journal of Medicine. 2013;106:555–565. doi:10.1093/qjmed/hct061
  • Department of Health. A Report of the CFS/ME Working Group: Report to the Chief Medical Officer of an Independent Working Group. 2002
  • Bibby J, Kershaw A. How much is ME costing the country? Report prepared by the Survey & Statistical Research Centre. Sheffield: Sheffield Hallam University; 2006.
  • The ME Association. Me/CFS/PVFS the MEA clinical & research guide: An exploration of the key clinical issues. 13th ed. Eastbourne: Cliffe Enterprise; 2022.
  • Haywood KL, Staniszewska S, Chapman S. Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review. Qual Life Res. 2012;21:35–52. doi:10.1007/s11136-011-9921-8
  • Chalder T, Berelowitz G, Pawlikowska T, et al. Development of a fatigue scale. J Psychosom Res. 1993;37:147–153. doi:10.1016/0022-3999(93)90081-P
  • Morriss R, Wearden A, Mullis R. Exploring the validity of the Chalder Fatigue Scale in chronic fatigue syndrome. J Psychosom Res. 1998;45:411–417. doi:10.1016/S0022-3999(98)00022-1
  • Cho HJ, Costa E, Menezes PR, et al. Cross-cultural validation of the Chalder Fatigue Questionnaire in Brazilian primary care. J Psychosom Res. 2007;62:301–304. doi:10.1016/j.jpsychores.2006.10.018
  • Tanaka M, Fukuda S, Mizuno K, et al. Reliability and validity of the Japanese version of the Chalder Fatigue Scale among youth in Japan. Psychol Rep. 2008;103:682–690. doi:10.2466/pr0.103.3.682-690
  • Wong WS, Fielding R. Construct validity of the Chinese version of the Chalder Fatigue Scale in a Chinese community sample. J Psychosom Res. 2010;68:89–93. doi:10.1016/j.jpsychores.2009.05.008
  • Fong TCT, Chan JSM, Chan CLW, et al. Psychometric properties of the Chalder Fatigue Scale revisited: an exploratory structural equation modeling approach. Qual Life Res. 2015;24:2273–2278. doi:10.1007/s11136-015-0944-4
  • Goudsmit EM, Stouten B, Howes S. Fatigue in myalgic encephalomyelitis. Bulletin of IACFS/ME. 2008;16:3–10.
  • Friedberg F, Jason LA. Selecting a fatigue rating scale. CFS Res Rev. 2002;35:7–11.
  • Taylor RR, Jason LA, Torres A. Fatigue rating scales: an empirical comparison. Psychol Med. 2000;30:849–856. doi:10.1017/S0033291799002500
  • Van de Mortel TF. Faking it: social desirability response bias in self-report research. Aust. J Adv Nurs. 2008;25:40–48.
  • Dowling NM, Bolt DM, Deng S, et al. Measurement and control of bias in patient reported outcomes using multidimensional item response theory. BMC Med Res Methodol. 2016;16:1–12. doi:10.1186/s12874-016-0161-z
  • Mokkink LB, Prinsen CAC, Bouter LM, et al. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) and how to select an outcome measurement instrument. Braz J Phys Ther. 2016;20:105–113. doi:10.1590/bjpt-rbf.2014.0143
  • Willis GB. Cognitive interviewing: A “how to” guide. Research Triangle Park (NC): Research Triangle Institute; 1999.
  • Boeije H, Willis G. The cognitive interviewing reporting framework (CIRF). Methodology (Gott). 2013;9(3):87–95.
  • Collins D. Pretesting survey instruments: an overview of cognitive methods. Qual Life Res. 2003;12:229–238. doi:10.1023/A:1023254226592
  • Fukuda K, Straus SE, Hickie I, et al. The chronic fatigue syndrome: a comprehensive approach to its definition and study. Ann Intern Med. 1994;121:953–959. doi:10.7326/0003-4819-121-12-199412150-00009
  • NICE. Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management of CFS/ME in adults and children. 2007
  • Collin SM, Crawley E. Specialist treatment of chronic fatigue syndrome/ME: a cohort study among adult patients in England. BMC Health Serv Res. 2017;17:1–16. doi:10.1186/s12913-017-2437-3
  • Gotts ZM, Deary V, Newton J, et al. Are there sleep-specific phenotypes in patients with chronic fatigue syndrome? A cross-sectional polysomnography analysis. BMJ Open. 2013;3:e002999, doi:10.1136/bmjopen-2013-002999
  • Johns MW. A new method for measuring daytime sleepiness: the Epworth sleepiness scale. Sleep. 1991;14:540–545. doi:10.1093/sleep/14.6.540
  • Rutherford G, Manning P, Newton JL. Understanding muscle dysfunction in chronic fatigue syndrome. J Aging Res. 2016;2016. doi:10.1155/2016/2497348
  • Schillings ML, Kalkman JS, Van der Werf SP, et al. Diminished central activation during maximal voluntary contraction in chronic fatigue syndrome. Clin Neurophysiol. 2004;115:2518–2524. doi:10.1016/j.clinph.2004.06.007