Communication and disease management: a qualitative study on coronary disease

References

• Alm-Roijer, C., Fridlund, B., Stagmo, M., & Erhardt, L. (2006). Knowing your risk factors for coronary heart disease improves adherence to advice on lifestyle changes and medication. The Journal of Cardiovascular Nursing, 21(5), E24–E31. doi: 00005082-200609000-00015
   PubMedGoogle Scholar
• Alm-Roijer, C., Stagmo, M., Uden, G., & Erhardt, L. (2004). Better knowledge improves adherence to lifestyle changes and medication in patients with coronary heart disease. European Journal of Cardiovascular Nursing, 3(4), 321–330. doi:S1474515104000520
   PubMedGoogle Scholar
• Anand, S. S., Islam, S., Rosengren, A., Franzosi, M. G., Steyn, K., Yusufali, A. H., … INTERHEART Investigators. (2008). Risk factors for myocardial infarction in women and men: Insights from the INTERHEART study. European Heart Journal, 29(7), 932–940. doi:10.1093/eurheartj/ehn018
   PubMed Web of Science ®Google Scholar
• Ashton, K. C. (1997). Perceived learning needs of men and women after myocardial infarction. The Journal of Cardiovascular Nursing, 12(1), 93–100.
   PubMedGoogle Scholar
• Astin, F., Closs, S. J., McLenachan, J., Hunter, S., & Priestley, C. (2008). The information needs of patients treated with primary angioplasty for heart attack: An exploratory study. Patient Education and Counseling, 73(2), 325–332. doi:10.1016/j.pec.2008.06.013
   PubMed Web of Science ®Google Scholar
• Attfield, S. J., Adams, A., & Blandford, A. (2006). Patient information needs: Pre- and post-consultation. Health Informatics Journal, 12(2), 165–177. doi:10.1177/1460458206063811
   PubMedGoogle Scholar
• Baker, D. W., Wolf, M. S., Feinglass, J., & Thompson, J. A. (2008). Health literacy, cognitive abilities, and mortality among elderly persons. Journal of General Internal Medicine, 23(6), 723–726. doi:10.1007/s11606-008-0566-4
   PubMed Web of Science ®Google Scholar
• Booth, K., Beaver, K., Kitchener, H., O'Neill, J., & Farrell, C. (2005). Women's experiences of information, psychological distress and worry after treatment for gynaecological cancer. Patient Education and Counseling, 56(2), 225–232. doi:S0738399104001053
   PubMed Web of Science ®Google Scholar
• Boyde, M., Tuckett, A., Peters, R., Thompson, D. R., Turner, C., & Stewart, S. (2009). Learning style and learning needs of heart failure patients (the Need2Know-HF patient study). European Journal of Cardiovascular Nursing, 8(5), 316–322. doi:10.1016/j.ejcnurse.2009.05.003
   PubMed Web of Science ®Google Scholar
• Brezynskie, H., Pendon, E., Lindsay, P., & Adam, M. (1998). Identification of the perceived learning needs of balloon angioplasty patients. Canadian Journal of Cardiovascular Nursing = Journal Canadien En Soins Infirmiers Cardio-Vasculaires, 9(2), 8–14.
   PubMedGoogle Scholar
• Broadbent, E., Ellis, C. J., Thomas, J., Gamble, G., & Petrie, K. J. (2009). Further development of an illness perception intervention for myocardial infarction patients: A randomized controlled trial. Journal of Psychosomatic Research, 67(1), 17–23. doi:10.1016/j.jpsychores.2008.12.001
   PubMed Web of Science ®Google Scholar
• Brocki, J. M., & Wearden, A. J. (2006). A critical evaluation of the use of interpretative phenomenological analysis (IPA) in health psychology. Psychology and Health, 21(1), 87–108.
   Web of Science ®Google Scholar
• Casey, E., O'Connell, J. K., & Price, J. H. (1984). Perceptions of educational needs for patients after myocardial infarction. Patient Education and Counseling, 6(2), 77–82.
   PubMed Web of Science ®Google Scholar
• Clark, P. A., Drain, M., Gesell, S. B., Mylod, D. M., Kaldenberg, D. O., & Hamilton, J. (2005). Patient perceptions of quality in discharge instruction. Patient Education and Counseling, 59(1), 56–68. doi:S0738-3991(04)00314-3
   PubMed Web of Science ®Google Scholar
• Clarke, R., Emberson, J., Fletcher, A., Breeze, E., Marmot, M., & Shipley, M. J. (2009). Life expectancy in relation to cardiovascular risk factors: 38 year follow-up of 19,000 men in the Whitehall study. BMJ (Clinical Research Ed.), 339, b3513. doi:10.1136/bmj.b3513
   Google Scholar
• Czar, M. L., & Engler, M. M. (1997). Perceived learning needs of patients with coronary artery disease using a questionnaire assessment tool. Heart & Lung: The Journal of Critical Care, 26(2), 109–117. doi:S0147956397000186
   PubMed Web of Science ®Google Scholar
• Davis, T. C., Wolf, M. S., Bass, P. F. 3rd, Thompson, J. A., Tilson, H. H., Neuberger, M., & Parker, R. M. (2006). Literacy and misunderstanding prescription drug labels. Annals of Internal Medicine, 145(12), 887–894. doi:0000605-200612190-00144
   PubMed Web of Science ®Google Scholar
• Decker, C., Garavalia, L., Chen, C., Buchanan, D. M., Nugent, K., Shipman, A., & Spertus, J. A. (2007). Acute myocardial infarction patients’ information needs over the course of treatment and recovery. The Journal of Cardiovascular Nursing, 22(6), 459–465. doi:10.1097/01.JCN.0000297391.11324.0f
   PubMed Web of Science ®Google Scholar
• Delbanco, T. L. (1992). Enriching the doctor–patient relationship by inviting the patient's perspective. Annals of Internal Medicine, 116(5), 414–418.
   PubMed Web of Science ®Google Scholar
• Dullaghan, L., Lusk, L., McGeough, M., Donnelly, P., Herity, N., & Fitzsimons, D. (2013). “I am still a bit unsure how much of a heart attack it really was!” Patients presenting with non ST elevation myocardial infarction lack understanding about their illness and have less motivation for secondary prevention. European Journal of Cardiovascular Nursing. doi:10.1177/1474515113-191649
   PubMed Web of Science ®Google Scholar
• Dunbar, S. B., Clark, P. C., Quinn, C., Gary, R. A., & Kaslow, N. J. (2008). Family influences on heart failure self-care and outcomes. The Journal of Cardiovascular Nursing, 23(3), 258–265. doi:10.1097/01.JCN.0000305093.20012.b8
   PubMed Web of Science ®Google Scholar
• Durack-Bown, I., Giral, P., d'Ivernois, J. F., Bazin, C., Chadarevian, R., Benkritly, A., & Bruckert, E. (2003). Patients’ and physicians’ perceptions and experience of hypercholesterolaemia: A qualitative study. The British Journal of General Practice: The Journal of the Royal College of General Practitioners, 53(496), 851–857.
   PubMed Web of Science ®Google Scholar
• Ford, S., Schofield, T., & Hope, T. (2003). Are patients’ decision-making preferences being met? Health Expectations, 6(1), 72–80. doi:10.1046/j.1369-6513.2003.00211.x
   PubMedGoogle Scholar
• Forster, A., Brown, L., Smith, J., House, A., Knapp, P., Wright, J. J., & Young, J. (2012). Information provision for stroke patients and their caregivers. The Cochrane Database of Systematic Reviews, 11, CD001919. doi:10.1002/14651858.CD001919.pub3
   PubMed Web of Science ®Google Scholar
• Go, A. S., Mozaffarian, D., Roger, V. L., Benjamin, E. J., Berry, J. D., Blaha, M. J., … American Heart Association Statistics Committee and Stroke Statistics Subcommittee. (2014). Executive summary: Heart disease and stroke statistics – 2014 update: A report from the American Heart Association. Circulation, 129(3), 399–410. doi:10.1161/01.cir.0000442015.53336.12
   PubMed Web of Science ®Google Scholar
• Goodman, H. (1997). Patients’ perceptions of their education needs in the first six weeks following discharge after cardiac surgery. Journal of Advanced Nursing, 25(6), 1241–1251.
   PubMed Web of Science ®Google Scholar
• Hafsteinsdottir, T. B., Vergunst, M., Lindeman, E., & Schuurmans, M. (2011). Educational needs of patients with a stroke and their caregivers: A systematic review of the literature. Patient Education and Counseling, 85(1), 14–25. doi:10.1016/j.pec.2010.07.046
   PubMed Web of Science ®Google Scholar
• Holloway, R. G. (2010). Bringing the patient's voice into the measures we use. Neurology Today, 10(6), 3. doi:10.1097/01.NT.0000369627.50928.cc
   PubMed Web of Science ®Google Scholar
• Jaarsma, T. (2003). Heart failure management programs: How far should we go? European Journal of Heart Failure, 5(3), 215–216. doi:S1388984203000515
   PubMed Web of Science ®Google Scholar
• Jin, J., Sklar, G. E., Min Sen Oh, V., & Chuen Li, S. (2008). Factors affecting therapeutic compliance: A review from the patient's perspective. Therapeutics and Clinical Risk Management, 4(1), 269–286.
   PubMedGoogle Scholar
• Kripalani, S., Henderson, L. E., Chiu, E. Y., Robertson, R., Kolm, P., & Jacobson, T. A. (2006). Predictors of medication self-management skill in a low-literacy population. Journal of General Internal Medicine, 21(8), 852–856. doi:10.1111/j.1525-1497.2006.00536.x
   PubMed Web of Science ®Google Scholar
• Liberati, A. (2011). Need to realign patient-oriented and commercial and academic research. Lancet, 378(9805), 1777–1778. doi:10.1016/S0140-6736(11)61772-8
   PubMed Web of Science ®Google Scholar
• Lile, J. B., Buhmann, J., & Roders, S. (1999). Development of a learning needs assessment tool for patients with congestive heart failure. Home Health Care Management Practice, 11(6), 11–25. doi:10.1177/108482239901100606
   Google Scholar
• Lopez-Jaramillo, P., Silva, S. Y., Rodriguez-Salamanca, N., Duran, A., Mosquera, W., & Castillo, V. (2008). Are nutrition-induced epigenetic changes the link between socioeconomic pathology and cardiovascular diseases? American Journal of Therapeutics, 15(4), 362–372. doi:10.1097/MJT.0b013e318164bf9c
   PubMed Web of Science ®Google Scholar
• Mead, N., & Bower, P. (2000). Patient-centeredness: A conceptual framework and review of the empirical literature. Social Science and Medicine, 51(7), 1087–1010.
   PubMed Web of Science ®Google Scholar
• Morgan, M. (2003). The doctor–patient relationship. In G. Scrambler (Ed.), Sociology as applied to medicine (pp. 49–63). Edimburgh: Saunders.
   Google Scholar
• Moser, D. K., Dracup, K. A., & Marsden, C. (1993). Needs of recovering cardiac patients and their spouses: Compared views. International Journal of Nursing Studies, 30(2), 105–114.
   PubMed Web of Science ®Google Scholar
• Moynihan, M. (1984). Assessing the educational needs of post-myocardial infarction patients. The Nursing Clinics of North America, 19(3), 441–447.
   PubMed Web of Science ®Google Scholar
• Mozaffarian, D., Afshin, A., Benowitz, N. L., Bittner, V., Daniels, S. R., Franch, H. A., … American Heart Association Council on Epidemiology and Prevention, Council on Nutrition, Physical Activity and Metabolism, Council on Clinical Cardiology, Council on Cardiovascular Disease in the Young, Council on the Kidney in Cardiovasc. (2012). Population approaches to improve diet, physical activity, and smoking habits: A scientific statement from the American Heart Association. Circulation, 126(12), 1514–1563. doi:CIR.0b013e318260a20b
   PubMed Web of Science ®Google Scholar
• Nair, K., Dolovich, L., Cassels, A., McCormack, J., Levine, M., Gray, J., … Burns, S. (2002). What patients want to know about their medications. Focus group study of patient and clinician perspectives. Canadian Family Physician Medecin De Famille Canadien, 48, 104–110.
   PubMed Web of Science ®Google Scholar
• Nakano, A., Mainz, J., & Lomborg, K. (2008). Patient perception and assessment of admission to acute cardiac care unit. European Journal of Cardiovascular Nursing: Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, 7(1), 10–15. doi:S1474-5151(07)00165-X
   PubMed Web of Science ®Google Scholar
• Nichols, M., Townsend, N., Scarborough, P., Luengo-Fernandez, R., Leal, J., Gray, A., & Rayner, M. (2012). European cardiovascular disease statistics. Brussels: European Heart Network, Sophia Antipolis: European Society of Cardiology.
   Google Scholar
• Nichols-English, G., & Poirier, S. (2000). Optimizing adherence to pharmaceutical care plans. Journal of the American Pharmaceutical Association (Washington, D.C.: 1996), 40(4), 475–485.
   PubMedGoogle Scholar
• Osterberg, L., & Blaschke, T. (2005). Adherence to medication. The New England Journal of Medicine, 353(5), 487–497. doi:10.1056/NEJMra050100
   PubMed Web of Science ®Google Scholar
• Palmer, M., Larkin, M., de Visser, R., & Fadden, G. (2010). Developing an interpretative phenomenological approach to focus group data. Qualitative Research in Psychology, 7(2), 99–121.
   Google Scholar
• Prinjha, S., Chapple, A., Herxheimer, A., & McPherson, A. (2005). Many people with epilepsy want to know more: A qualitative study. Family Practice, 22(4), 435–441. doi:10.1093/fampra/cmi024
   PubMed Web of Science ®Google Scholar
• Reid, K., Flowers, P., & Larkin, M. (2005). Exploring lived experience. The Psychologist, 18(1), 20–23.
   Web of Science ®Google Scholar
• Roter, D. L., Stashefsky-Margalit, R., & Rudd, R. (2001). Current perspectives on patient education in the US. Patient Education and Counseling, 44(1), 79–86. doi:S0738-3991(01)00108-2
   PubMed Web of Science ®Google Scholar
• Schinkel, S., Schouten, B. C., & van Weert, J. C. (2013). Are GP patients’ needs being met? Unfulfilled information needs among native-Dutch and Turkish-Dutch patients. Patient Education and Counseling, 90(2), 261–267. doi:10.1016/j.pec.2012.11.013
   PubMed Web of Science ®Google Scholar
• Scott, J. T., & Thompson, D. R. (2003). Assessing the information needs of post-myocardial infarction patients: A systematic review. Patient Education and Counseling, 50(2), 167–177. doi:S073839910200126X
   PubMed Web of Science ®Google Scholar
• Shaw, R. L. (2001). Why use interpretative phenomenological analysis in Health Psychology? Health Psychology Update, 10, 48–52.
   Google Scholar
• Smith, J., & Liles, C. (2007). Information needs before hospital discharge of myocardial infarction patients: A comparative, descriptive study. Journal of Clinical Nursing, 16(4), 662–671. doi:10.1111/j.1365-2702.2006.01689.x
   PubMed Web of Science ®Google Scholar
• Smith, J. A. (1996). Beyond the divide between cognition and discourse: Using interpretative phenomenological analysis in health psychology. Psychology and Health, 11(2), 261–271.
   Web of Science ®Google Scholar
• Smith, J. A., Jarman, M., & Osborn, M. (1999). Doing interpretative phenomenological analysis. In M. Murray & K. Chamberlain (Eds.), Qualitative health psychology: Theories and methods (pp. 218–240). London: Sage Publications.
   Google Scholar
• Stromberg, A. (2005). The crucial role of patient education in heart failure. European Journal of Heart Failure, 7(3), 363–369. doi:S1388-9842(05)00004-8
   PubMed Web of Science ®Google Scholar
• Sui, X., Gheorghiade, M., Zannad, F., Young, J. B., & Ahmed, A. (2008). A propensity matched study of the association of education and outcomes in chronic heart failure. International Journal of Cardiology, 129(1), 93–99. doi:S0167-5273(07)01135-7
   PubMed Web of Science ®Google Scholar
• Timmins, F. (2008). Commentary on Smith J & Liles C (2007). Information needs before hospital discharge of myocardial infarction patients: A comparative, descriptive study. Journal of Clinical Nursing, 16, 662–671. Journal of Clinical Nursing, 17(11), 1536–1538. doi:10.1111/j.1365-2702.2007.02167.x
   Google Scholar
• Turton, J. (1998). Importance of information following myocardial infarction: A study of the self-perceived information needs of patients and their spouse/partner compared with the perceptions of nursing staff. Journal of Advanced Nursing, 27(4), 770–778.
   PubMed Web of Science ®Google Scholar
• Wachters-Kaufmann, C., Schuling, J., The, H., & Meyboom-de Jong, B. (2005). Actual and desired information provision after a stroke. Patient Education and Counseling, 56(2), 211–217. doi:S0738399104001016
   PubMed Web of Science ®Google Scholar
• van der Wal, M. H., Jaarsma, T., Moser, D. K., & van Veldhuisen, D. J. (2005). Development and testing of the Dutch heart failure knowledge scale. European Journal of Cardiovascular Nursing: Journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology, 4(4), 273–277. doi:S1474-5151(05)00096-4
   PubMedGoogle Scholar
• Wehby, D., & Brenner, P. S. (1999). Perceived learning needs of patients with heart failure. Heart & Lung: The Journal of Critical Care, 28(1), 31–40. doi:S0147956399000011
   PubMed Web of Science ®Google Scholar
• Whitty, J. A., Carrington, M. J., Stewart, S., Holliday, J., Marwick, T. H., & Scuffham, P. A. (2012). Patient preferences for the delivery of disease management in chronic heart failure: A qualitative study. The Journal of Cardiovascular Nursing, 27(3), 201–207. doi:10.1097/JCN.0b013e31821abf22
   PubMed Web of Science ®Google Scholar
• Williams, M. V., Baker, D. W., Parker, R. M., & Nurss, J. R. (1998). Relationship of functional health literacy to patients’ knowledge of their chronic disease. A study of patients with hypertension and diabetes. Archives of Internal Medicine, 158(2), 166–172.
   PubMed Web of Science ®Google Scholar
• Young, L. E., & Jillings, C. R. (2000). Qualitative methods add quality to cardiovascular science. Canadian Journal of Cardiology, 16, 793–797.
   PubMed Web of Science ®Google Scholar
• Yusuf, S., Hawken, S., Ounpuu, S., Dans, T., Avezum, A., Lanas, F., … INTERHEART Study Investigators. (2004). Effect of potentially modifiable risk factors associated with myocardial infarction in 52 countries (the INTERHEART study): Case-control study. Lancet, 364(9438), 937–952. doi:10.1016/S0140-6736(04)17018-9
   PubMed Web of Science ®Google Scholar