References
- Agence de la Biomédecine. (2016). Rapport annuel du registre REIN 2016. Registre REIN, 97. doi:https://doi.org/10.1111/epp.2605
- Berkhout-Byrne, N., Gaasbeek, A., Mallat, M. J. K., Rabelink, T. J., Mooijaart, S. P., Dekker, F. W., & Van Buren, M. (2017). Regret about the decision to start dialysis: A cross-sectional Dutch national survey. Netherlands Journal of Medicine, 75(6), 225–234.
- Bjelland, I., Dahl, A. A., Haug, T. T., & Neckelmann, D. (2002). The validity of the Hospital Anxiety and Depression Scale: An updated literature review. Journal of Psychosomatic Research, 52(2), 69–77. doi:https://doi.org/10.1016/S0022-3999(01)00296-3
- Bucci, F., & Vanheule, S. (2018). Families of adult people with disability: Their experience in the use of services run by social cooperatives in Italy. International Journal of Social Welfare, 27(2), 157–167. doi:https://doi.org/10.1111/ijsw.12283
- Chiaranai, C. (2016). The lived experience of patients receiving hemodialysis treatment for end-stage renal disease. Journal of Nursing Research, 24(2), 101–108. doi:https://doi.org/10.1097/jnr.0000000000000100
- Chilcot, J., Norton, S., Wellsted, D., Davenport, A., Firth, J., & Farrington, K. (2013). Distinct depression symptom trajectories over the first year of dialysis: Associations with illness perceptions. Annals of Behavioral Medicine, 45(1), 78–88. doi:https://doi.org/10.1007/s12160-012-9410-5
- Clarkson, K. A., & Robinson, K. (2010). Life on dialysis: A lived experience. Nephrology Nursing Journal : Journal of the American Nephrology Nurses’ Association, 37(1), 29–35.
- Creswell, J. W., & Creswell, J. D. (2018). Research design: Qualitative, quantitative, and mixed methods approaches. Newbury Park: Sage.
- Cukor, D., Coplan, J., Brown, C., Peterson, R. A., & Kimmel, P. L. (2008). Course of depression and anxiety diagnosis in patients treated with hemodialysis: A 16-month follow-up. Clinical Journal of the American Society of Nephrology : CJASN, 3(6), 1752–1758. doi:https://doi.org/10.2215/CJN.01120308
- Denoual, H., Dargentas, M., Roudaut, S., Balez, R., & Sizun, J. (2016). Father’s role in supporting breastfeeding of preterm infants in the neonatal intensive care unit: A qualitative study. BMJ Open, 6(6), e010470. doi:https://doi.org/10.1136/bmjopen-2015-010470
- Desseix, A. (2011). ‘L’hémodialyse, cette maladie’. Approche anthropologique d’un amalgame. Sciences Sociales et Santé, 29(3), 41–74.
- Edwards, T., & Holtzman, N. S. (2017). A meta-analysis of correlations between depression and first person singular pronoun use. Journal of Research in Personality, 68, 63–68. doi:https://doi.org/10.1016/j.jrp.2017.02.005
- Farrokhi, F., Abedi, N., Beyene, J., Kurdyak, P., & Jassal, S. V. (2014). Association between depression and mortality in patients receiving long-term dialysis: A systematic review and meta-analysis. American Journal of Kidney Diseases, 63(4), 623–635.
- Fukuhara, S., Lopes, A. A., Bragg-Gresham, J. L., Kurokawa, K., Mapes, D. L., Akizawa, T., … Held, P. J. (2003). Health-related quality of life among dialysis patients on three continents: The dialysis outcomes and practice patterns study. Kidney International, 64(5), 1903–1910. doi:https://doi.org/10.1046/j.1523-1755.2003.00289.x
- Gilman, E. A., Feely, M. A., Hildebrandt, D., Edakkanambeth Varayil, J., Chong, E. Y., Williams, A. W., & Mueller, P. S. (2017). Do patients receiving hemodialysis regret starting dialysis? A survey of affected patients. Clinical Nephrology, 87(3), 117–123. doi:https://doi.org/10.5414/CN109030
- Guzmán-Osorio, G. M., Chávez-Vallejo, S. L., Monzerrat Silvat, G., Parrello, S., & Ioro, I. (2017). Partners of patients with a chronic disease: Narrative enquiry of hemophilia. Revista Electrónica de Psicología Iztacala, 20(2), 548–569.
- Haute Autorité de Santé [HAS]. (2017). Dialyse péritonéale et hémodialyse: Informations comparatives.
- Jansen, D. L., Rijken, M., Kaptein, A. A., Boeschoten, E. W., Dekker, F. W., & Groenewegen, P. P. (2014). The role of social support in dialysis patients’ feelings of autonomy and self-esteem: Is support more beneficial for patients with specific illness perceptions? Families, Systems, & Health, 32(3), 313–327. doi:https://doi.org/10.1037/fsh0000028
- Karamanidou, C., Weinman, J., & Horne, R. (2014). A qualitative study of treatment burden among haemodialysis recipients. Journal of Health Psychology, 19(4), 556–569. doi:https://doi.org/10.1177/1359105313475898
- Kim, M.-H., Kim, Y. C., Lee, J. P., Kim, H., Kim, D. K., Ryu, D.-R., … Kim, Y. S. (2017). Three-year income trends in Korean adults commencing hemodialysis: A prospective cohort. Nephrology. doi:https://doi.org/10.1111/nep.13065
- Lai, A. Y., Loh, A. P. P., Mooppil, N., Krishnan, D. S. P., & Griva, K. (2012). Starting on haemodialysis: A qualitative study to explore the experience and needs of incident patients. Psychology, Health & Medicine, 17(6), 674–684. doi:https://doi.org/10.1080/13548506.2012.658819
- Lebart, L., Salem, A., & Berry, L. (1997). Exploring textual data. Berlin: Springer Science & Business Media.
- Lejeune, C. (2010). Montrer, calculer, explorer, analyser. Ce que l’informatique fait (faire) à l’analyse qualitative. 18.
- Lelorain, S., Tessier, P., Florin, A., & Bonnaud-Antignac, A. (2012). Posttraumatic growth in long term breast cancer survivors: Relation to coping, social support and cognitive processing. Journal of Health Psychology, 17(5), 627–639. doi:https://doi.org/10.1177/1359105311427475
- Lindsay, H., MacGregor, C., & Fry, M. (2014). The experience of living with chronic illness for the haemodialysis patient: An interpretative phenomenological analysis. Health Sociology Review, 23(3), 232–241. doi:https://doi.org/10.1080/14461242.2014.11081976
- Lopez Revuelta, K., Garcia Lopez, F. J., de Alvaro Moreno, F., & Alonso, J. (2004). Perceived mental health at the start of dialysis as a predictor of morbidity and mortality in patients with end-stage renal disease (CALVIDIA study). Nephrology Dialysis Transplantation, 19(9), 2347–2353. doi:https://doi.org/10.1093/ndt/gfh392
- Makaroff, K. L. S. (2012). Experiences of kidney failure: A qualitative meta-synthesis. Nephrology Nursing Journal, 39(1), 21–30.
- Molzahn, A., & Butera, E. (2006). Contemporary nephrology nursing: Principles and practice.
- Monaro, S., Stewart, G., & Gullick, J. (2014). A ‘lost life’: Coming to terms with haemodialysis. Journal of Clinical Nursing, 23(21–22), 3262–3273. doi:https://doi.org/10.1111/jocn.12577
- Moscato, A., & Varescon, I. (2018). Satisfaction and difficulties of French professional home caregivers in supporting older people with Alzheimer’s disease or alcohol misuse. Health & Social Care in the Community, 26(1), 27–34. doi:https://doi.org/10.1111/hsc.12457
- National Institutes of Health [NIH]. (2017). United States renal data system annual data report.
- Paillé, P., & Mucchielli, A. (2016). L’Analyse qualitative en Sciences humaines et sociales. Malakoff: Armand Colin.
- Palmer, S. C., Hanson, C. S., Craig, J. C., Strippoli, G. F. M., Ruospo, M., Campbell, K., … Tong, A. (2015). Dietary and fluid restrictions in CKD: A thematic synthesis of patient views from qualitative studies. American Journal of Kidney Diseases : The Official Journal of the National Kidney Foundation, 65(4), 559–573. doi:https://doi.org/10.1053/j.ajkd.2014.09.012
- Plantinga, L. C., Fink, N. E., Sadler, J. H., Levey, A. S., Levin, N. W., Rubin, H. R., … Powe, N. R. (2004). Frequency of patient-physician contact and patient outcomes in hemodialysis care. Journal of the American Society of Nephrology : JASN, 15(1), 210–218. doi:https://doi.org/10.1097/01.ASN.0000106101.48237.9D
- Radley, A. (2002). Worlds of illness. London: Routledge.
- Ratinaud, P., & Marchand, P. (2012). Application de la méthode ALCESTE aux « gros » corpus et stabilité des « mondes lexicaux »: Analyse du « CableGate » avec IRAMUTEQ. 10.
- Razavi, D., Delvaux, N., Farvacques, C., & Robaye, E. (1989). Validation de la version française du H.A.D.S. dans une population de patients cancéreux hospitalisés. Revue de Psychologie Appliquée (Paris), 39(4), 295–307.
- Reid, C., Seymour, J., & Jones, C. (2016). A thematic synthesis of the experiences of adults living with hemodialysis. Clinical Journal of the American Society of Nephrology, 11(7), 1206–1218. doi:https://doi.org/10.2215/CJN.10561015
- Reinert, M. (1983). Une méthode de classification descendante hiérarchique: Application à l’analyse lexicale par contexte. Les Cahiers de L’Analyse Des Données, 8(2), 187–198.
- Reinert, M. (1990). Alceste une méthodologie d’analyse des données textuelles et une application: Aurelia De Gerard De Nerval. Bulletin de Méthodologie Sociologique, 26. doi:https://doi.org/10.1177/075910639002600103
- Reinert, M. (1993). Les ‘mondes lexicaux’ et leur ‘logique” à travers l’analyse statistique d’un corpus de récits de cauchemars. Langage & Société, 66(1), 5–39. doi:https://doi.org/10.3406/lsoc.1993.2632
- Robinson, B. M., Zhang, J., Morgenstern, H., Bradbury, B. D., Ng, L. J., McCullough, K. P., … Pisoni, R. L. (2014). Worldwide, mortality risk is high soon after initiation of hemodialysis. Kidney International, 85(1), 158–165. doi:https://doi.org/10.1038/ki.2013.252
- Rodin, G. (1994). Depression in patients with end-stage renal disease: Psychopathology or normative response? Advances in Renal Replacement Therapy, 1(3), 219–227. doi:https://doi.org/10.1016/S1073-4449(12)80004-5
- Rubin, H. R., Jenckes, M., Fink, N. E., Meyer, K., Wu, A. W., Bass, E. B., … Powe, N. R. (1997). Patient’s view of dialysis care: Development of a taxonomy and rating of importance of different aspects of care. American Journal of Kidney Diseases, 30(6), 793–801. doi:https://doi.org/10.1016/S0272-6386(97)90084-6
- Schell, J. O., Patel, U. D., Steinhauser, K. E., Ammarell, N., & Tulsky, J. A. (2012). Discussions of the kidney disease trajectory by elderly patients and nephrologists: A qualitative study. American Journal of Kidney Diseases, 59(4), 495–503. doi:https://doi.org/10.1053/j.ajkd.2011.11.023
- Stringer, S., & Baharani, J. (2012). Why did I start dialysis? A qualitative study on views and expectations from an elderly cohort of patients with end-stage renal failure starting haemodialysis in the United Kingdom. International Urology and Nephrology, 44(1), 295–300. doi:https://doi.org/10.1007/s11255-011-0045-4
- Tan, E. G. F., Teo, I., Finkelstein, E. A., & Meng, C. C. (2019). Determinants of regret in elderly dialysis patients. Nephrology, 24(6), 622–629. doi:https://doi.org/10.1111/nep.13400
- Thomas, D. R. (2006). A general inductive approach for analyzing qualitative evaluation data. American Journal of Evaluation, 27(2), 237–246. doi:https://doi.org/10.1177/1098214005283748
- Trifu, R. N., Nemes, B., Bodea-Hațegan, C., & Cozman, D. (2017). Linguistic indicators of language in major depressive disorder (MDD). An evidence based research. Journal of Evidence-Based Psychotherapies, 17(1), 105–128. doi:https://doi.org/10.24193/jebp.2017.1.7
- Untas, A., Aguirrezabal, M., Chauveau, P., Leguen, E., Combe, C., & Rascle, N. (2009). Anxiété et dépression en hémodialyse: Validation de l’Hospital Anxiety and Depression Scale (HADS). Nephrologie et Therapeutique, 5(3), 193–200. doi:https://doi.org/10.1016/j.nephro.2009.01.007
- Untas, A., Rascle, N., Idier, L., Lasseur, C., & Combe, C. (2012). Family relations, mental health and adherence to nutritional guidelines in patients facing dialysis initiation. Psychology & Health, 27(7), 753–766. doi:https://doi.org/10.1080/08870446.2011.574699
- Untas, A., Thumma, J., Rascle, N., Rayner, H., Mapes, D., Lopes, A. A., … Combe, C. (2011). The associations of social support and other psychosocial factors with mortality and quality of life in the dialysis outcomes and practice patterns study. Clinical Journal of the American Society of Nephrology : CJASN, 6(1), 142–152.
- van Manen, J. G., Korevaar, J. C., Dekker, F. W., Reuselaars, M. C., Boeschotem, E. W., & Krediet, R. T. (2001). Changes in employment status in end-stage renal disease patients in their first year of dialysis. Peritoneal Dialysis International, 21(6), 595–601.
- Vigneau, C., Kolko, A., Stengel, B., Jacquelinet, C., Landais, P., Rieu, P., … Couchoud, C. (2017). Ten-years trends in renal replacement therapy for end-stage renal disease in mainland France: Lessons from the French Renal Epidemiology and Information Network (REIN) registry. Nephrologie et Therapeutique, 13(4), 228–235. doi:https://doi.org/10.1016/j.nephro.2016.07.453
- Watnick, S., Kirwin, P., Mahnensmith, R., & Concato, J. (2003). The prevalence and treatment of depression among patients starting dialysis. American Journal of Kidney Diseases, 41(1), 105–110. doi:https://doi.org/10.1053/ajkd.2003.50029
- Xhulia, D., Gerta, J., Dajana, Z., Koutelekos, I., Vasilopoulou, C., Skopelitou, M., & Polikandrioti, M. (2015). Needs of hemodialysis patients and factors affecting them. Global Journal of Health Science, 8(6), 109–120. doi:https://doi.org/10.5539/gjhs.v8n6p109
- Yoong, R., Mooppil, N., Khoo, E., Newman, S., Lee, V., Kang, A. W. C., & Griva, K. (2017). Prevalence and determinants of anxiety and depression in end stage renal disease (ESRD). A comparison between ESRD patients with and without coexisting diabetes mellitus. Journal of Psychosomatic Research, 94, 68–72. doi:https://doi.org/10.1016/J.JPSYCHORES.2017.01.009
- Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370. doi:https://doi.org/10.1111/j.1600-0447.1983.tb09716.x