French-language adaptation of the 16D and 17D Quality of Life measures and score description in two Canadian pediatric samples

References

• Abate, C., Lippé, S., Bertout, L., Drouin, S., Krajinovic, M., Rondeau, É., … Sultan, S. (2018). Could we use parent report as a valid proxy of child report on anxiety, depression, and distress? A systematic investigation of father-mother-child triads in children successfully treated for leukemia. Pediatric Blood & Cancer, 65(2), e26840.
   Web of Science ®Google Scholar
• Anestin, A. S., Lippé, S., Robaey, P., Bertout, L., Drouin, S., Krajinovic, M., … Sultan, S. (2018). Psychological risk in long-term survivors of childhood acute lymphoblastic leukemia and its association with functional health status: A PETALE cohort study. Pediatric Blood & Cancer, 65, e27356.
   PubMed Web of Science ®Google Scholar
• Apajasalo, M., Rautonen, J., Holmberg, C., Sinkkonen, J., Aalberg, V., Pihko, H., … Sintonen, H. (1996a). Quality of life in pre-adolescence: A 17-dimensional health-related measure (17D). Quality of Life Research, 5(6), 532–538.
   PubMed Web of Science ®Google Scholar
• Apajasalo, M., Sintonen, H., Holmberg, C., Sinkkonen, J., Aalberg, V., Pihko, H., … Rautonen, J. (1996b). Quality of life in early adolescence: A sixteen-dimensional health-related measure (16D). Quality of Life Research, 5(2), 205–211.
   PubMed Web of Science ®Google Scholar
• Boulet-Craig, A., Robaey, P., Laniel, J., Bertout, L., Drouin, S., Krajinovic, M., … Lippé, S. (2018). DIVERGT screening procedure predicts general cognitive functioning in adult long-term survivors of pediatric acute lymphoblastic leukemia: A PETALE study. Pediatric Blood & Cancer, 65(9), e27259.
   PubMed Web of Science ®Google Scholar
• Chen, G., & Ratcliffe, J. (2015). A review of the development and application of generic multi-attribute utility instruments for paediatric populations. Pharmacoeconomics, 33(10), 1013–1028.
   PubMed Web of Science ®Google Scholar
• Choo, C. C., Chew, P. K. H., Tan, P., et al. (2019). Health-related quality of life in pediatric patients with Leukemia in Singapore: A cross-sectional pilot study. International Journal of Environmental Research and Public Health, 16(12), 2069.
   Web of Science ®Google Scholar
• Drotar, D. (2004). Validating measures of pediatric health status, functional status, and health-related quality of life: Key methodological challenges and strategies. Ambulatory Pediatrics, 4(4 Suppl), 358–364.
   PubMedGoogle Scholar
• Granö, N., Karjalainen, M., Suominen, K., & Roine, M. (2011). Poor functioning ability is associated with high risk of developing psychosis in adolescents. Nordic Journal of Psychiatry, 65(1), 16–21.
   PubMed Web of Science ®Google Scholar
• Haverman, L., Limperg, P. F., Young, N. L., Grootenhuis, M. A., & Klaassen, R. J. (2017). Paediatric health-related quality of life: What is it and why should we measure it? Archives of Disease in Childhood, 102(5), 393–400.
   PubMed Web of Science ®Google Scholar
• Ho, K. W., Pong, G., Poon, W. C., Chung, K. Y., Kwok, Y. Y., & Chiu, K. H. (2020). Progression of health-related quality of life of patients waiting for total knee arthroplasty. Journal of Evaluation in Clinical Practice, 27(1), 69–74.
   PubMed Web of Science ®Google Scholar
• Huoponen, S., Eberl, A., Räsänen, P., Roine, R. P., Sipponen, T., Arkkila, P., & Blom, M. (2020). Health-related quality of life and costs of switching originator infliximab to biosimilar one in treatment of inflammatory bowel disease. Medicine (Baltimore), 99(2), e18723.
   PubMed Web of Science ®Google Scholar
• Ilmarinen, P., Juboori, H., Tuomisto, L. E., Niemela, O., Sintonen, H., & Kankaanranta, H. (2019). Effect of asthma control on general health-related quality of life in patients diagnosed with adult-onset asthma. Scientific Reports, 9(1), 16107.
   PubMedGoogle Scholar
• Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. J. H. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Outcomes QoL, 7(1), 3.
   PubMed Web of Science ®Google Scholar
• Jean, C., & Syrjala, K. (2017). Anxiety and depression in cancer survivors. Medical Clinics of North America, 101(6), 1099–1113.
   PubMed Web of Science ®Google Scholar
• Karamanakos, G., Costa-Pinel, B., Gilis-Januszewska, A., Velickiene, D., Barrio-Torrell, F., Cos-Claramunt, X., … Herder, C. (2019). The effectiveness of a community-based, type 2 diabetes prevention programme on health-related quality of life. The DE-PLAN study. PLoS One, 14(10), e0221467.
   PubMed Web of Science ®Google Scholar
• Kazak, A. E., Abrams, A. N., Banks, J., Christofferson, J., DiDonato, S., Grootenhuis, M. A., … Kupst, M. J. (2015). Psychosocial assessment as a standard of care in pediatric cancer. Pediatric Blood & Cancer, 62(S5), S426–S459.
   PubMedGoogle Scholar
• Lamore, K., Bourdeau, C., Alos, N., et al. (2020). Contributing factors of unmet needs among young adult survivors of childhood acute lymphoblastic leukemia with comorbidities. Journal of Adolescent Young Adult Oncology. https://doi.org/https://doi.org/10.1089/jayao.2020.0090
   Google Scholar
• Lemmon, M. E., Huffstetler, H. E., & Reeve, B. B. (2020). Measuring health-related quality of life in pediatric neurology. Journal of Child Neurology, 35(10), 681–689.
   PubMed Web of Science ®Google Scholar
• López-Bastida, J., López-Siguero, J. P., Oliva-Moreno, J., Vázquez, L. A., Aranda-Reneo, I., Reviriego, J., … Perez-Nieves, M. (2019). Health-related quality of life in type 1 diabetes mellitus pediatric patients and their caregivers in Spain: An observational cross-sectional study. Current Medical Research and Opinion, 35(9), 1589–1595.
   PubMed Web of Science ®Google Scholar
• Marcoux, S., Drouin, S., Laverdière, C., Alos, N., Andelfinger, G. U., Bertout, L., … Sinnett, D. (2017). The PETALE study: Late adverse effects and biomarkers in childhood acute lymphoblastic leukemia survivors. Pediatric Blood & Cancer, 64(6), e26361.
   Web of Science ®Google Scholar
• Ohnemus, D., Neighbors, K., Rychlik, K., Venick, R. S., Bucuvalas, J. C., Sundaram, S. S., … Alonso, E. M. (2020). Health-related quality of life and cognitive functioning in pediatric liver transplant recipients. Liver Transplantation, 26(1), 45–56.
   PubMedGoogle Scholar
• Ojala, A. K., Sintonen, H., Roine, R. P., Strandberg, T. E., & Schalin-Jantti, C. (2020). Impaired breathing, sleeping, vitality, and depression, and negative impact of L-T4 treatment characterize health-related quality of life in older people with stable CVD. Aging Clinical and Experimental Research, 32(10), 2041–2047.
   PubMed Web of Science ®Google Scholar
• Pépin, A. J., Lippé, S., Krajinovic, M., Laverdière, C., Michon, B., Sinnett, D., & Sultan, S. (2017). How to interpret high levels of distress when using the distress thermometer in the long-term follow-up clinic? A study with acute lymphoblastic leukemia survivors. Pediatric Hematology and Oncology, 34(3), 131–135.
   PubMed Web of Science ®Google Scholar
• Pinquart, M. (2020). Health-related quality of life of young people with and without chronic conditions. Journal of Pediatric Psychology, 45(7), 780–792.
   PubMed Web of Science ®Google Scholar
• Poder, T. G., Guertin, J. R., Touré, M., Pratte, G., Gauvin, C., Feeny, D., … Camden, C. (2021). Canadian French translation and linguistic validation of the health-related quality of life utility measure for pre-school children. Expert Review of Pharmacoeconomics & Outcomes Research, 1–7. https://doi.org/https://doi.org/10.1080/14737167.2021.1895754
   Google Scholar
• Qvist, E., Närhi, V., Apajasalo, M., Rönnholm, K., Jalanko, H., Almqvist, F., & Holmberg, C. (2004). Psychosocial adjustment and quality of life after renal transplantation in early childhood. Pediatric Transplantation, 8(2), 120–125.
   PubMed Web of Science ®Google Scholar
• Roine, E., Sintonen, H., Kellokumpu-Lehtinen, P.-L., Penttinen, H., Utriainen, M., Vehmanen, L., … Saarto, T. (2020). Health-related quality of life of breast cancer survivors attending an exercise intervention study: A five-year follow-up. In Vivo, 34(2), 667–674.
   PubMed Web of Science ®Google Scholar
• Rutishauser, C., Sawyer, S. M., & Bowes, G. (1998). Quality-of-life assessment in children and adolescents with asthma. European Respiratory Journal, 12(2), 486–494.
   PubMed Web of Science ®Google Scholar
• Shull, M. H., Ediger, T. R., Hill, I. D., & Schroedl, R. L. (2019). Health-related quality of life in newly diagnosed pediatric patients With celiac disease. Journal of Pediatric Gastroenterology & Nutrition, 69(6), 690–695.
   PubMed Web of Science ®Google Scholar
• Silverman, L. B., Stevenson, K. E., O'Brien, J. E., et al. (2010). Long-term results of Dana-Farber Cancer Institute ALL Consortium protocols for children with newly diagnosed acute lymphoblastic leukemia (1985-2000). Leukemia: Official Journal of the Leukemia Society of America, Leukemia Research Fund, UK, 24(2), 320–334.
   PubMed Web of Science ®Google Scholar
• Sintonen, H. (1995). The 15D measure of health related quality of life. II. Feasibility, reliability and validity of its valuation system. Melbourne: National Centre for Health Program Evaluation.
   Google Scholar
• Sintonen, H. (2001). The 15D instrument of health-related quality of life: Properties and applications. Annals of Medicine, 33(5), 328–336.
   PubMed Web of Science ®Google Scholar
• Sultan, S., Rondeau, É, Levasseur, M.-C., Dicaire, R., Decaluwe, H., & Haddad, É. (2017). Quality of life, treatment beliefs, and treatment satisfaction in children treated for primary immunodeficiency with SCIg. Journal of Clinical Immunology, 37(5), 496–504.
   PubMed Web of Science ®Google Scholar
• Toija, A. S., Kettunen, T. H., Leidenius, M. H. K., Vainiola, T. H. K., & Roine, R. P. A. (2019). Effectiveness of peer support on health-related quality of life in recently diagnosed breast cancer patients: A randomized controlled trial. Supportive Care in Cancer, 27(1), 123–130.
   PubMed Web of Science ®Google Scholar
• Vannas, M., Farkkila, M., Sintonen, H., Aberg, F., & Isoniemi, H. (2020). Health-related quality of life before and after liver transplantation in patients with primary sclerosing cholangitis. Scandinavian Journal of Gastroenterology, 55(3), 347–353.
   PubMed Web of Science ®Google Scholar
• WHO. (2015). World health organization process of translation and adaptation of instruments. http://www.who.int/substance_abuse/research_tools/translation/en/
   Google Scholar
• Zeng, Y., Cheng, A. S., & Chan, C. C. H. (2016). Meta-analysis of the effects of neuropsychological interventions on cognitive function in non–central nervous system cancer survivors. Integrative Cancer Therapies, 15(4), 424–434.
   PubMed Web of Science ®Google Scholar
• Zhou, E. S., & Recklitis, C. J. J. (2020). Internet-delivered insomnia intervention improves sleep and quality of life for adolescent and young adult cancer survivors. Pediatric Blood & Cancer, 67(9), e28506.
   PubMed Web of Science ®Google Scholar