References
- Abell, N. (2001). Assessing willingness to care for persons with AIDS: Validation of a new measure. Research on Social Work Practice, 11(1), 118–130. doi:https://doi.org/10.1177/104973150101100108
- Adams, J. S. (1965). Inequity in social exchange. In L. Berkowitz (Ed.), Advances in experimental social psychology (pp. 267–299). New York: Academic Press.
- Adams, J. S., Berkowitz, L., & Hatfield, E. (1976). Equity theory: Toward a general theory of social interaction. New York: Academic Press.
- Ajzen, I. (2011). The theory of planned behaviour: Reactions and reflections. Psychology & Health, 26(9), 1113–1127.
- Albertini, M., Kohli, M., & Vogel, C. (2007). Intergenerational transfers of time and money in European families: Common patterns—Different regimes? Journal of European Social Policy, 17(4), 319–334.
- Alonso, W. W., Kitko, L. A., & Hupcey, J. E. (2018). Intergenerational caregivers of parents with end-stage heart failure. Research & Theory for Nursing Practice, 32(4), 413–435. doi:https://doi.org/10.1891/1541-6577.32.4.413
- Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving: The unexpected career. San Diego: Elsevier.
- Angelo, J., & Egan, R. (2013). Family caregivers voice their needs: A photovoice study. Palliative and Supportive Care, 13(3), 701–712. doi:https://doi.org/10.1017/S1478951514000522
- Baker, G. P., Jensen, M. C., & Murphy, K. J. (1988). Compensation and incentives: Practice vs. theory. The Journal of Finance, 43(3), 593–616.
- Barber, N. (2010). Kindness in a cruel world: The evolution of altruism. Amherst, NY: Prometheus Books.
- Bateson, C. D. (1991). The altruism question: Toward a social-psychological answer. New York: Psychology Press.
- Bauer, J. M., & Sousa-Poza, A. (2015). Impacts of informal caregiving on caregiver employment, health, and family. Journal of Population Ageing, 8(3), 113–145. doi:https://doi.org/10.1007/s12062-015-9116-0
- Bettio, F., & Verashchagina, A. (2010). Long-term care for the elderly. Provisions and providers in 33 European countries. Luxembourg: Publications Office of the European Union.
- Blieszner, R., & Shifflet, P. A. (1989). Affection, communication, and commitment in adult-child caregiving for parents with Alzheimer’s disease. In J. A. Mancini (Ed.), Aging parents and adult children (pp. 231–242). Lexington: Lexington Books.
- Boeije, H. R., Duijnstee, M. S. H., & Grypdonck, M. H. F. (2003). Continuation of caregiving among partners who give total care to spouses with multiple sclerosis. Health and Social Care in the Community, 11(3), 242–252. doi:https://doi.org/10.1046/j.1365-2524.2003.00422.x
- Börsch-Supan, A. (2019). Survey of health, ageing and retirement in Europe (SHARE) wave 7 (Release version: 7.0.0). SHARE-ERIC. doi:https://doi.org/10.6103/SHARE.w7.700
- Bouget, D., Spasova, S., & Vanhercke, B. (2016). Work-life balance measures for persons of working age with dependent relatives in Europe. A study of national policies (Vol. 74, Issue June). European Social Protection Network (ESPN). Retrieved from https://www.researchgate.net/publication/305115112
- Brayley, N., Obst, P. L., White, K. M., Lewis, I. M., Warburton, J., & Spencer, N. M. (2015). Examining the predictive value of combining the theory of planned behaviour and the volunteer functions inventory. Australian Journal of Psychology, 67(3), 149–156.
- Brown, L. J., & Bond, M. J. (2016). Transition from the spouse dementia caregiver role: A change for the better? Dementia (Basel, Switzerland), 15(4), 756–773. doi:https://doi.org/10.1177/1471301214539337
- Browne Sehy, Y. A. (1998). Moral decision-making by elderly women caregivers: A feminist perspective on justice and care. doi:https://doi.org/10.1017/CBO9781107415324.004
- Burridge, L., Winch, S., & Clavarino, A. (2007). Reluctance to care. Cancer Nursing, 30(2), E9–E19. doi:https://doi.org/10.1097/01.ncc.0000265298.17394.e0
- Cameron, J., & Pierce, W. D. (1994). Reinforcement, reward, and intrinsic motivation: A meta-analysis. Review of Educational Research, 64(3), 363–423.
- Campbell, L. D., & Martin-Matthews, A. (2000). Caring sons: Exploring men’s involvement in filial care. Canadian Journal on Aging, 19(1), 57–79. doi:https://doi.org/10.1017/S0714980800016597
- Campbell, L. D., & Martin-Matthews, A. (2003). The gendered nature of men’s filial care. The Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 58(6), S358. doi:https://doi.org/10.1093/geronb/58.6.S350
- Caputo, R. K. (2002). Adult daughters as parental caregivers: Rational actors versus rational agents. Journal of Family and Economic Issues, 23(1), 27–50. doi:https://doi.org/10.1023/A:1014225613362
- Carers UK. (2019). Facts about carers 2019 (Policy briefing, August, pp. 1–11). Retrieved from https://www.carersuk.org/images/Facts_about_Carers_2019.pdf
- Carruth, A. K. (1996). Motivating factors, exchange patterns, and reciprocity among caregivers of parents with and without dementia. Research in Nursing & Health, 19(5), 409–419. Retrieved from http://ezproxy.bangor.ac.uk/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=rzh&AN=107317524&site=ehost-live
- Cash, B., Hodgkin, S., & Warburton, J. (2013). Till death us do part? A critical analysis of obligation and choice for spousal caregivers. Journal of Gerontological Social Work, 56(8), 657–674. doi:https://doi.org/10.1080/01634372.2013.823472
- Cerasoli, C. P., Nicklin, J. M., & Ford, M. T. (2014). Intrinsic motivation and extrinsic incentives jointly predict performance: A 40-year meta-analysis. Psychological Bulletin, 140(4), 980–1008. doi:https://doi.org/10.1037/a0035661
- Chappell, N. L., Funk, L., Chappell, N. L., & Funk, L. (2011). Filial caregivers; diasporic Chinese compared with homeland and hostland caregivers. Journal of Cross-Cultural Gerontology, 26(4), 315–329. doi:https://doi.org/10.1007/s10823-011-9154-x
- Chiao, C. Y., Wu, H. S., & Hsiao, C. Y. (2015). Caregiver burden for informal caregivers of patients with dementia: A systematic review. International Nursing Review, 62(3), 340–350. doi:https://doi.org/10.1111/inr.12194
- Clark, M. S., & Mills, J. R. (2011). A theory of communal (and exchange) relationships. In P. A. M. Van Lange & A. W. Kruglanski (Eds.), Handbook of theories of social psychology (Vol. 2, pp. 232–250). Thousand Oaks, CA: Sage.
- Clissett, P., Porock, D., Harwood, R. H., & Gladman, J. R. F. (2013). The challenges of achieving person-centred care in acute hospitals: A qualitative study of people with dementia and their families. International Journal of Nursing Studies, 50(11), 1495–1503. doi:https://doi.org/10.1016/j.ijnurstu.2013.03.001
- Collins, C., & Jones, R. (1997). Emotional distress and morbidity in dementia carers: A matched comparison of husbands and wives. International Journal of Geriatric Psychiatry, 12(12), 1168–1173. doi:https://doi.org/10.1002/(SICI)1099-1166(199712)12:12<1168::AID-GPS711>3.0.CO;2-F
- Cook, D. A., & Artino, A. R., Jr. (2016). Motivation to learn: An overview of contemporary theories. Medical Education, 50(10), 997–1014.
- Corey, K. L., & McCurry, M. K. (2017). An exploration of caregiver choice through the lens of Sartrean existentialism. Nursing Philosophy, 18(4), 1–7. doi:https://doi.org/10.1111/nup.12170
- Cowdell, F. (2010). The care of older people with dementia in acute hospitals. International Journal of Older People Nursing, 5(2), 83–92. doi:https://doi.org/10.1111/j.1748-3743.2010.00208.x
- Deci, E., Koestner, R., & Ryan, R. (2001). Extrinsic rewards and intrinsic motivation in education: Reconsidered once again. Review of Educational Research, 71(1), 1–27.
- Deci, E. L., Koestner, R., & Ryan, R. M. (1999). The undermining effect is a reality after all—Extrinsic rewards, task interest, and self-determination: Reply to Eisenberger, Pierce, and Cameron (1999) and Lepper, Henderlong, and Gingras (1999). Psychological Bulletin, 125, 692–700.
- Di Domenico, S. I., & Ryan, R. M. (2017). The emerging neuroscience of intrinsic motivation: A new frontier in self-determination research. Frontiers in Human Neuroscience, 11(March), 1–14. doi:https://doi.org/10.3389/fnhum.2017.00145
- Donorfio, L. K. M., & Kellett, K. (2006). Filial responsibility and transitions involved: A qualitative exploration of caregiving daughters and frail mothers. Journal of Adult Development, 13(3–4), 158–167. doi:https://doi.org/10.1007/s10804-007-9025-4
- Doty, P. (1986). Family care of the elderly: The role of public policy. The Milbank Quarterly, 64(1), 34–75. Retrieved from http://www.jstor.org/stable/3350005
- Dumit, N. Y., Abboud, S., Massouh, A., & Magilvy, J. K. (2015). Role of the Lebanese family caregivers in cardiac self-care: A collective approach. Journal of Clinical Nursing, 24(21–22), 3318–3326. doi:https://doi.org/10.1111/jocn.12949
- Dykstra, P. A., & Fokkema, T. (2012). Norms of filial obligation in the Netherlands. Population, 67(1), 97–122.
- Eggebeen, D. J., & Davey, A. (1998). Do safety nets work? The role of anticipated help in times of need. Journal of Marriage and the Family, 60(4), 939. doi:https://doi.org/10.2307/353636
- Family Caregiver Alliance. (2015). Selected caregiver statistics (Fact sheet). Retrieved from https://www.caregiver.org/caregiver-statistics-demographics
- Faronbi, J. O., Faronbi, G. O., Ayamolowo, S. J., & Olaogun, A. A. (2019). Caring for the seniors with chronic illness: The lived experience of caregivers of older adults. Archives of Gerontology and Geriatrics, 82(December 2018), 8–14. doi:https://doi.org/10.1016/j.archger.2019.01.013
- Faucher, M. A., & Garner, S. L. (2015). A method comparison of photovoice and content analysis: Research examining challenges and supports of family caregivers. Applied Nursing Research, 28(4), 262–267. doi:https://doi.org/10.1016/j.apnr.2015.02.005
- Feeney, B. C., & Collins, N. L. (2003). Motivations for caregiving in adult intimate relationships: Influences on caregiving behavior and relationship functioning. Personality and Social Psychology Bulletin, 29(8), 950–968. doi:https://doi.org/10.1177/0146167203252807
- Fisher, W. A., Fisher, J. D., & Harman, J. (2003). The information-motivation-behavioral skills model: A general social psychological approach to understanding and promoting health behavior. In J. Suis & K. A. Wallston (Eds.), Social psychological foundations of health and illness (pp. 82–106). doi:https://doi.org/10.1002/9780470753552.ch4
- Foster, L. (2012). An investigation into the impact of dementia on couples and how they cope with this (Doctoral dissertation). University of Bath. doi:https://doi.org/10.1007/s13398-014-0173-7.2
- Franco, L. M., Bennett, S., & Kafner, R. (2002). Health sector reform and public sector health worker motivation: A conceptual framework. Social Science & Medicine, 54(8), 1255–1266. Retrieved from http://www.hrhresourcecenter.org/node/1095
- Frank, R. H. (2002). Altruism in competitive environments. In R. J. D. A. Harrington, D. L. X. Bstan, & T. Gyatsho (Eds.), Visions of compassion: Western scientists and Tibetan Buddhists examine human nature (pp. 182–210). Oxford: Oxford University Press.
- Frankl, V. E. (2011). Man’s search for ultimate meaning. London: Random House.
- Ganong, L., & Coleman, M. (2005). Measuring intergenerational obligations. Journal of Marriage and Family, 67(4), 1003–1011. doi:https://doi.org/10.1111/j.1741-3737.2005.00190.x
- Gerdner, L. A., Tripp-Reimer, T., & Simpson, H. C. (2007). Hard lives, god’s help, and struggling through: Caregiving in Arkansas delta. Journal of Cross-Cultural Gerontology, 22(4), 355–374. doi:https://doi.org/10.1007/s10823-007-9047-1
- Goldberg-Looney, L., Perrin, P. B., Morlett-Paredes, A., & Mickens, M. N. (2017). College-age adults’ religiosity, family functioning and values, and willingness to provide care for a relative with a chronic health condition. Rehabilitation Psychology, 62(2), 100–109. doi:https://doi.org/10.1037/rep0000148
- Goldsteen, M. (2008). Empirical ethics in action in practices of dementia care. In G. A. M. Widdershoven (Ed.), Empirical ethics in psychiatry (pp. 95–106). New York: Oxford University Press.
- Green, K. J., Greenberg, M. S., & Willis, R. H. (1980). Social exchange: Advances in theory and research. New York: Plenum.
- Greenberg, J. (1990). Organizational justice: Yesterday, today, and tomorrow. Journal of Management, 16(2), 399–432.
- Greenwood, N., & Smith, R. (2019). Motivations for being informal carers of people living with dementia: A systematic review of qualitative literature. BMC Geriatrics, 19(1). doi:https://doi.org/10.1186/s12877-019-1185-0
- Gupta, R., Rowe, N., & Pillai, V. K. (2009). Perceived caregiver burden in India: Implications for social services. Affilia: Journal of Women & Social Work, 24(1), 69–79.
- Han, H. R., Choi, Y. J., Kim, M. T., Lee, J. E., & Kim, K. B. (2008). Experiences and challenges of informal caregiving for Korean immigrants. Journal of Advanced Nursing, 63(5), 517–526. doi:https://doi.org/10.1111/j.1365-2648.2008.04746.x
- Hermans-Jansen, E., van Gilst, W., Hermans, H. J. M., Hermans-Jansen, E., & van Gilst, W. (1987). The fugit amor experience in the process of valuation: A self-confrontation with an unreachable other. British Journal of Psychology, 78(4), 465–481. doi:https://doi.org/10.1111/j.2044-8295.1987.tb02263.x
- Hermans, H. J. M. (1999). Self-narrative as meaning construction: The dynamics of self-investigation. Journal of Clinical Psychology, 55(10), 1193–1211.
- Hidi, S., & Harackiewicz, J. M. (2000). Motivating the academically unmotivated: A critical issue for the 21st century. Review of Educational Research, 70(2), 151–179. doi:https://doi.org/10.3102/00346543070002151
- Ho, B., Friedland, J., Rappolt, S., & Noh, S. (2003). Caregiving for relatives with Alzheimer’s disease: Feelings of Chinese-Canadian women. Journal of Aging Studies, 17(3), 301–321. doi:https://doi.org/10.1016/S0890-4065(03)00028-8
- Holroyd, E. (2001). Hong Kong Chinese daughters’ intergenerational caregiving obligations: A cultural model approach. Social Science & Medicine, 53(9), 1125–1134. doi:https://doi.org/10.1016/S0277-9536(00)00406-8
- Homans, G. C. (1961). Social behavior: Its elementary forms. New York: Harcourt.
- Horwitz, A. V. (1993). Siblings as caregivers for the seriously mentally ill. The Milbank Quarterly, 71(2), 323. doi:https://doi.org/10.2307/3350402
- Hsu, H. C., & Shyu, Y. L. I. L. (2003). Implicit exchanges in family caregiving for frail elders in Taiwan. Qualitative Health Research, 13(8), 1078–1093. doi:https://doi.org/10.1177/1049732303256370
- Hsueh, K. H., Hu, J., & Clarke-Ekong, S. (2008). Acculturation in filial practices among US Chinese caregivers. Qualitative Health Research, 18(6), 775–785.
- Humphrey, N. (1997). Varieties of altruism—And the common ground between them. Social Research, 64(2), 199–209.
- Ikkink, K. K., Van Tilburg, T., & Knipscheer, K. C. P. M. (1999). Perceived instrumental support exchanges in relationships between elderly parents and their adult children: Normative and structural explanations. Journal of Marriage and the Family, 61(4), 831–844. doi:https://doi.org/10.2307/354006
- Johnson, M. J., Allgar, V., Macleod, U., Jones, A., Oliver, S., & Currow, D. (2016). Family caregivers who would be unwilling to provide care at the end of life again: Findings from the Health Survey for England population survey. PloS One, 11(1), e0146960. doi:https://doi.org/10.1371/journal.pone.0146960
- Johnson, M. P., Caughlin, J. P., & Huston, T. L. (1999). The tripartite nature of marital commitment: Personal, moral, and structural reasons to stay married. Journal of Marriage and the Family, 61(1), 160–177.
- Kabitsi, N., & Powers, D. V. (2002). Spousal motivations of care for demented older adults: A cross-cultural comparison of Greek and American female caregivers. Journal of Aging Studies, 16(4), 383–399. doi:https://doi.org/10.1016/S0890-4065(02)00072-5
- Kanfer, R., Chen, G., & Pritchard, R. D. (2008). Work motivation: Past, present and future. New York: Routledge.
- Katz, R., Gur-Yaish, N., & Lowenstein, A. (2010). Motivation to provide help to older parents in Norway, Spain, and Israel. International Journal of Aging & Human Development, 71(4), 283–303. doi:https://doi.org/10.2190/AG.71.4.b
- Keefe, J., Rosenthal, C., & Beland, F. (2000). The impact of ethnicity on helping older relatives: Findings from a sample of employed Canadians. Canadian Journal on Aging-Revue Canadienne Du Vieillissement, 19(3), 317–342. doi:https://doi.org/10.1017/S0714980800015026
- Kemper, P., Komisar, H. L., & Alecxih, L. (2005). Long-term care over an uncertain future: What can current retirees expect? INQUIRY: The Journal of Health Care Organization, Provision, and Financing, 42(4), 335–350.
- Kietzman, K. G., Benjamin, A. E., & Matthias, R. E. (2013). Whose choice? Self-determination and the motivations of paid family and friend caregivers. Journal of Comparative Family Studies, 44(4), 519–540. doi: 1544981790?accountid=14874
- Kim, Y. (2009). Korean-American family postcaregivers on dementia caregiving: A phenomenological inquiry. Journal of Gerontological Social Work, 52(6), 600–617. doi:https://doi.org/10.1080/01634370903048352
- Kim, Y., Carver, C. S., & Cannady, R. S. (2015). Caregiving motivation predicts long-term spirituality and quality of life of the caregivers. Annals of Behavioral Medicine, 49(4), 500–509. doi:https://doi.org/10.1007/s12160-014-9674-z
- Knight, B. G., & Sayegh, P. (2010). Cultural values and caregiving: The updated sociocultural stress and coping model. The Journals of Gerontology: Series B, 65(1), 5–13.
- Kodwo-Nyameazea, Y., & Nguyen, P. V. (2008). Immigrants and long-distance elder care: An exploratory study. Ageing International, 32(4), 279–297. doi:https://doi.org/10.1007/s12126-008-9013-4
- Kohli, M., & Künemund, H. (2003). Intergenerational transfers in the family. What motivates giving?. In V. L. Bengtson & A. Lowenstein (Eds.), Global aging and challenges to families (pp. 123–142). New York: Walter de Gruyter Inc.
- Kong, E. H., Deatrick, J. A., & Evans, L. K. (2010). The experiences of Korean immigrant caregivers of non-English-speaking older relatives with dementia in American nursing homes. Qualitative Health Research, 20(3), 319–329. doi:https://doi.org/10.1177/1049732309354279
- Lawton, M. P., Moss, M., Hoffman, C., Perkinson, M., Powell Lawton, M. P., Moss, M., … Perkinson, M. (2000). Two transitions in daughters’ caregiving careers. The Gerontologist, 40(4), 437–448. doi:https://doi.org/10.1093/geront/40.4.437
- Le, B. M., Impett, E. A., Lemay, E. P., Muise, A., & Tskhay, K. O. (2018). Communal motivation and well-being in interpersonal relationships: An integrative review and meta-analysis. Psychological Bulletin, 144(1), 1–25. doi:https://doi.org/10.1037/bul0000133
- Lee, H., Lee, J., & Lee, J.-E. (2019). Bereaved families’ experiences of end-of-life care at home for older adults with non-cancer in South Korea. Journal of Community Health Nursing, 36(1), 42–53. doi:https://doi.org/10.1080/07370016.2018.1554768
- Lee, Y.-R., & Sung, K.-T. (1997). Cultural differences in caregiving motivations for demented parents: Korean caregivers versus American caregivers. The International Journal of Aging and Human Development, 44(2), 115–127. doi:https://doi.org/10.2190/BLY5-07M1-6VVY-XJMX
- Lewis, M. B., Curtis, M. P., & Saucier Lundy, K. (1995). He calls me his angel of mercy: The experience of caring for elderly parents in the home. Holistic Nursing Practice, 9(4), 54–65. doi:https://doi.org/10.1097/00004650-199507000-00008
- Lieberman, M. A., & Fisher, L. (1999). The effects of family conflict resolution and decision making on the provision of help for an elder with Alzheimer’s disease. The Gerontologist, 39(2), 159–166. doi:https://doi.org/10.1093/geront/39.2.159
- Lin, M. C., Macmillan, M., & Brown, N. (2012). A grounded theory longitudinal study of carers’ experiences of caring for people with dementia. Dementia (Basel, Switzerland), 11(2), 181–197. doi:https://doi.org/10.1177/1471301211421362
- Lind, E. A., & Tyler, T. R. (1988). Critical issues in social justice. The social psychology of procedural justice. Plenum Press. doi:https://doi.org/10.1007/978-1-4899-2115-4.
- Lu, Q., Mårtensson, J., Zhao, Y., & Johansson, L. (2019). Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study. International Journal of Nursing Studies, 94(22), 1–8. doi:https://doi.org/10.1016/j.ijnurstu.2019.02.016
- Lyonette, C., & Yardley, L. (2003). The influence on carer wellbeing of motivations to care for older people and the relationship with the care recipient. Ageing and Society, 23(4), 487–506. doi:https://doi.org/10.1017/S0144686X03001284
- MacNeil, G., Kosberg, J. I., Durkin, D. W., Dooley, W. K., Decoster, J., & Williamson, G. M. (2010). Caregiver mental health and potentially harmful caregiving behavior: The central role of caregiver anger. The Gerontologist, 50(1), 76–86. doi:https://doi.org/10.1093/geront/gnp099
- Maslow, A. H. (1943). A theory of human motivation. Psychological Review, 50(4), 370.
- McDonell, J. R., Abell, N., & Miller, J. (1991). Family members’ willingness to care for people with AIDS: A psychosocial assessment model. Social Work, 36(1), 43–53. doi:https://doi.org/10.1093/sw/36.1.43
- McDonnell, E., & Ryan, A. A. (2014). The experience of sons caring for a parent with dementia. Dementia (Basel, Switzerland), 13(6), 788–802. doi:https://doi.org/10.1177/1471301213485374
- Mills, J., Clark, M. S., Ford, T. E., & Johnson, M. (2004). Measurement of communal strength. Personal Relationships, 11(2), 213–230. doi:https://doi.org/10.1111/j.1475-6811.2004.00079.x
- Mok, E., Chan, F., Chan, V., & Yeung, E. (2003). Family experience caring for terminally ill patients with cancer in Hong Kong. Cancer Nursing, 26(4), 267–275. Retrieved from http://ezproxy.bangor.ac.uk/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=rzh&AN=106880188&site=ehost-live
- Morrison, V., & Williams, K. (2020). Gaining longitudinal accounts of carers’ experiences using IPA and photograph elicitation. Frontiers in Psychology, 11, 2429–2444.
- Murphy, M. R. (2005). Positive aspects of family caregiving of patients with Alzheimer’s disease: A qualitative study. Our Lady of the Lake University in Texas. Retrieved from https://search.proquest.com/docview/220297257?accountid=12834
- Neufeld, A., & Harrison, M. J. (1998). Men as caregivers: Reciprocal relationships or obligation? Journal of Advanced Nursing, 28(5), 959–968. doi:https://doi.org/10.1046/j.1365-2648.1998.00818.x
- Öhman, M., & Söderberg, S. (2004). The experiences of close relatives living with a person with serious chronic illness. Qualitative Health Research, 14(3), 396–410. Retrieved from http://ezproxy.bangor.ac.uk/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=rzh&AN=106760470&site=ehost-live
- Opie, A. (1994). The instability of the caring body: Gender and caregivers of confused older people. Qualitative Health Research, 4(1), 31–50. doi:https://doi.org/10.1177/1948550611411929
- Parveen, S., & Morrison, V. (2012). Predicting caregiver gains: A longitudinal study. British Journal of Health Psychology, 17(4), 711–723. doi:https://doi.org/10.1111/j.2044-8287.2012.02067.x
- Parveen, S., Morrison, V., & Robinson, C. A. (2011). Ethnic variations in the caregiver role: A qualitative study. Journal Of Health Psychology, 16(6), 862–872. doi:https://doi.org/10.1177/1359105310392416
- Parveen, S., Morrison, V., & Robinson, C. A. (2013). Ethnicity, familism and willingness to care: Important influences on caregiver mood? Aging and Mental Health, 17(1), 115–124. doi:https://doi.org/10.1080/13607863.2012.717251
- Parveen, S., Morrison, V., & Robinson, C. A. (2014). Does coping mediate the relationship between familism and caregiver outcomes? Aging and Mental Health, 18(2), 255–259. doi:https://doi.org/10.1080/13607863.2013.827626
- Pearlin, L. I. (1994). Conceptual strategies for the study of caregiver stress. In Stress effects on family caregivers of Alzheimer’s patients: Research and interventions (pp. 3–21). Springer. Retrieved from https://psycnet.apa.org/record/1994-98247-001
- Phillips, L. S., Branch, W. T., Jr., Cook, C. B., Doyle, J. P., El-Kebbi, I. M., Gallina, D. L., … Barnes, C. S. (2001). Clinical inertia. Annals of Internal Medicine, 135(9), 825–834.
- Porter, L. W., & Lawler, E. E. (1968). Managerial attitudes and performance. Homewood, IL: R.D. Irwin.
- Powers, S. M., & Whitlatch, C. J. (2016). Measuring cultural justifications for caregiving in African American and White caregivers. Dementia, 15(4), 629–645. doi:https://doi.org/10.1177/1471301214532112
- Qiu, X., Sit, J. W. H., & Koo, F. K. (2018). The influence of Chinese culture on family caregivers of stroke survivors: A qualitative study. Journal of Clinical Nursing, 27(1–2), e309–e319. doi:https://doi.org/10.1111/jocn.13947
- Quinn, C. (2009). Relationships, motivations and meanings in informal caregiving for people with dementia. Bangor: Bangor University.
- Quinn, C., Clare, L., McGuinness, T., & Woods, R. T. (2012). The impact of relationships, motivations, and meanings on dementia caregiving outcomes. International Psychogeriatrics, 24(11), 1816–1826. doi:https://doi.org/10.1017/S1041610212000889
- Quinn, C., Clare, L., & Woods, R. T. (2010). The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: A systematic review. International Psychogeriatrics, 22(1), 43–55. doi:https://doi.org/10.1017/S1041610209990810
- Quinn, C., & Toms, G. (2019). Influence of positive aspects of dementia caregiving on caregivers’ well-being: A systematic review. The Gerontologist, 59(5), 584–596. doi:https://doi.org/10.1093/geront/gny168
- Raveis, V. H., Karus, D. G., & Siegel, K. (1998). Correlates of depressive symptomatology among adult daughter caregivers of a parent with cancer. Cancer, 83(8), 1652–1663. doi:https://doi.org/10.1002/(SICI)1097-0142(19981015)83:8<1652::AID-CNCR22>3.0.CO;2-Q
- Reuveni, Y., & Werner, P. (2015). Factors associated with teenagers’ willingness to volunteer with elderly persons: Application of the theory of planned behavior (TPB). Educational Gerontology, 41(9), 623–634.
- Revenson, T., Griva, K., Luszczynska, A., Morrison, V., Panagopoulou, E., Vilchinsky, N., … Hagedoorn, M. (2016). Caregiving in the illness context. London: Springer.
- Rohr, M. K., & Lang, F. R. (2016). The role of anticipated gains and losses on preferences about future caregiving. Journals of Gerontology – Psychological Sciences and Social Sciences, 71(3), 405–414. doi:https://doi.org/10.1093/geronb/gbu145
- Romero-Moreno, R., Gallego-Alberto, L., Márquez-González, M., & Losada, A. (2017). Psychometric properties of the valued living questionnaire adapted to dementia caregiving. Aging and Mental Health, 21(9), 983–990. doi:https://doi.org/10.1080/13607863.2016.1191055
- Russell, R. (2001). In sickness and in health a qualitative study of elderly men who care for wives with dementia. Journal of Aging Studies, 15(4), 351–367. doi:https://doi.org/10.1016/S0890-4065(01)00028-7
- Ryan, R. M., & Deci, E. L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55(1), 68–78. doi:https://doi.org/10.1037/0003-066X.55.1.68
- Sasat, S. (1998). Caring for dementia in Thailand: A study of family care for demented elderly relatives in Thai Buddhist society. Hull: University of Hull.
- Schulz, R., Biegel, D., Morycz, R., & Visintainer, P. (1989). Psychological paradigms for understanding caregiving. In E. Light & B. D. Lebowitz (Eds.), Alzheimer’s disease treatment and family stress: Directions for research (pp. 106–121). Rockville: U.S. Department of Health and Human Services, National Institute of Mental Health.
- Schwarz, N., & Bohner, G. (2001). The construction of attitudes. In A. Tesser & N. Schwarz (Eds.), Blackwell handbook of social psychology: intraindividual processes (Vol. 1, pp. 436–457). Oxford, UK: Blackwell.
- Schwarzkopf, L., Menn, P., Leidl, R., Wunder, S., Mehlig, H., Marx, P., … Holle, R. (2012). Excess costs of dementia disorders and the role of age and gender-an analysis of German health and long-term care insurance claims data. BMC Health Services Research, 12(1), 165.
- Seddon, D., & Robinson, C. (2015). Carer assessment: Continuing tensions and dilemmas for social care practice. Health and Social Care in the Community, 23(1), 14–22. doi:https://doi.org/10.1111/hsc.12115
- Silverstein, M., Gans, D., & Yang, F. M. (2006). Intergenerational support to aging parents: The role of norms and needs. Journal of Family Issues, 27(8), 1068–1084. doi:https://doi.org/10.1177/0192513X06288120
- Sniehotta, F. F., Presseau, J., & Araújo-Soares, V. (2014). Time to retire the theory of planned behaviour. Health Psychology Review, 8(1), 1–7. doi:https://doi.org/10.1080/17437199.2013.869710
- Stajduhar, K. I., Funk, L., Toye, C., Grande, G. E., Aoun, S., & Todd, C. J. (2010). Part 1: Home-based family caregiving at the end of life: A comprehensive review of published quantitative research (1998–2008). Palliative Medicine, 24(6), 573–593.
- Stajduhar, K. I., Martin, W. L., Barwich, D., & Fyles, G. (2008). Factors influencing family caregivers’ ability to cope with providing end-of-life cancer care at home. Cancer Nursing, 31(1), 77–85. Retrieved from http://ezproxy.bangor.ac.uk/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=rzh&AN=106012784&site=ehost-live
- Statham, J. (2003). A day at a time: A study of unsupported family carers of older people. Glasgow: University of Glasgow.
- Stenwall, E., Jönhagen, M. E., Sandberg, J., & Fagerberg, I. (2008). The older patient’s experience of encountering professional carers and close relatives during an acute confusional state: An interview study. International Journal of Nursing Studies, 45(11), 1577–1585. doi:https://doi.org/10.1016/j.ijnurstu.2008.02.001
- Sterritt, P. F., & Pokorny, M. E. (1998). African-American caregiving for a relative with Alzheimer’s disease. Geriatric Nursing, 19(3), 127–128. doi:https://doi.org/10.1016/S0197-4572(98)90056-8
- Tang, S. T., Li, C. Y., & Liao, Y. C. (2007). Factors associated with depressive distress among Taiwanese family caregivers of cancer patients at the end of life. Palliative Medicine, 21(3), 249–257. doi:https://doi.org/10.1177/0269216307077334
- Tretteteig, S., Vatne, S., & Rokstad, A. M. M. (2017). Meaning in family caregiving for people with dementia: A narrative study about relationships, values, and motivation, and how day care influences these factors. Journal of Multidisciplinary Healthcare, 10, 445–455. doi:https://doi.org/10.2147/JMDH.S151507
- Tretteteig, S., Vatne, S., Rokstad, A. M. M., & Rokstad, A. M. M. (2017). The influence of day care centres designed for people with dementia on family caregivers – A qualitative study. BMC Geriatrics, 17, 1–11. doi:https://doi.org/10.1186/s12877-016-0403-2
- Valencia, W. M., Florez, H. J., & Palacio, A. M. (2019). Suitable use of injectable agents to overcome hypoglycemia risk, barriers, and clinical inertia in community-dwelling older adults with type 2 diabetes mellitus. Drugs & Aging, 36(12), 1083–1096.
- Vallerand, R. J. (1997). Toward a hierarchical model of intrinsic and extrinsic motivation. Advances in Experimental Social Psychology, 29, 271–360.
- Viitanen, M., Winblad, B., Tuomilehto, J., Rovio, S., & Ka, I. (2007). Work-related physical activity and the risk of dementia and Alzheimer’s disease. International Journal of Geriatric Psychiatry, 22, 874–882. doi:https://doi.org/10.1002/gps.1755
- Vroman, K., & Morency, J. (2011). “I do the best I can”: Caregivers’ perceptions of informal caregiving for older adults in Belize. International Journal of Aging and Human Development, 72(1), 1–25. doi:https://doi.org/10.2190/AG.72.1.a
- Vroom, V. H. (1964). Work and motivation. In Inc. US Department of Education. New York: Jolm Wiley and Sons.
- Walker, A. J., Pratt, C. C., Shin, H., Jones, L. L., Walker, A. J., Pratt, C. C., … Jones, L. L. (2019). Motives for parental caregiving and relationship quality. Family Relations, 39(1), 51–56. Retrieved from https://www.jstor.org/stable/584948
- Wallroth, V. (2016). Men do care!: A gender-aware and masculinity-informed contribution to caregiving scholarship. Linköping: Linköping University.
- Wells, Y. D., & Johnson, T. M. (2001). Impact of parental divorce on willingness of young adults to provide care for parents in the future. Journal of Family Studies, 7(2), 160–170. doi:https://doi.org/10.5172/jfs.7.2.160
- Wells, Y. D., & Over, R. (1994). Willingness to provide spousal care if needed in the future. Australian Journal of Marriage and Family, 15(2), 76–85.
- Williams, K. L., Morrison, V., & Robinson, C. A. (2014). Exploring caregiving experiences: Caregiver coping and making sense of illness. Aging & Mental Health, 18(5), 600–609. doi:https://doi.org/10.1080/13607863.2013.860425
- Wilson, T. D., & Hodges, S. D. (1992). Attitudes as temporary constructions. The Construction of Social Judgments, 10, 37–65.
- Woolfolk, A. (2013). Educational psychology. Upper Saddle River, NJ: Pearson Education, Inc.
- Youn, G., Knight, B. G., Jeong, H.-S., & Benton, D. (1999). Differences in familism values and caregiving outcomes among Korean, Korean American, and white American dementia caregivers. Psychology and Aging, 14(3), 355.
- Yu, D. S. F., Cheng, S. T., & Wang, J. (2018). Unravelling positive aspects of caregiving in dementia: An integrative review of research literature. International Journal of Nursing Studies, 79, 1–26. doi:https://doi.org/10.1016/j.ijnurstu.2017.10.008
- Zhan, H. J. (2006). Joy and sorrow: Explaining Chinese caregivers’ reward and stress. Journal of Ageing Studies, 20(1), 27–38.