Quality of life in patients with inflammatory bowel disease: the role of positive psychological factors

References

• Agostini, A., Moretti, M., Calabrese, C., Rizzello, F., Gionchetti, P., Ercolani, M., & Campieri, M. (2014). Attachment and quality of life in patients with inflammatory bowel disease. International Journal of Colorectal Disease, 29(10), 1291–1296.
   PubMed Web of Science ®Google Scholar
• Agostini, A., Rizzello, F., Ravegnani, G., Gionchetti, P., Tambasco, R., Straforini, G., … Campieri, M. (2010). Adult attachment and early parental experiences in patients with Crohn’s disease. Psychosomatics, 51(3), 208–215.
   PubMed Web of Science ®Google Scholar
• Agostini, A., Scaioli, E., Belluzzi, A., & Campieri, M. (2019). Attachment and mentalizing abilities in patients with inflammatory bowel disease. Gastroenterology Research and Practice, 2019, 1–7. doi:https://doi.org/10.1155/2019/7847123
   Web of Science ®Google Scholar
• Agostini, A., Spuri-Fornarini, G., Ercolani, M., & Campieri, M. (2016). Attachment and perceived stress in patients with ulcerative colitis, a case–control study. Journal of Psychiatric and Mental Health Nursing, 23(9-10), 561–567.
   PubMed Web of Science ®Google Scholar
• Allison, M., Lindsay, J., Gould, D., & Kelly, D. (2013). Surgery in young adults with inflammatory bowel disease: A narrative account. International Journal of Nursing Studies, 50(11), 1566–1575.
   PubMed Web of Science ®Google Scholar
• Amorim, R., & Guerra, M. P. (2018). Influence of type D personality in quality of life of inflammatory bowel disease. Revista Iberoamericana de diagnostico y evaluacion e avaliação psicológica, 2(47), 53–69.
   Web of Science ®Google Scholar
• Azevedo, L. F., Magro, F., Portela, F., Lago, P., Deus, J., Cotter, J., … Costa-Pereira, A. (2010). Estimating the prevalence of inflammatory bowel disease in Portugal using a pharmaco-epidemiological approach. Pharmacoepidemiology and Drug Safety, 19(5), 499–510. doi:https://doi.org/10.1002/pds.1930
   PubMed Web of Science ®Google Scholar
• Bączyk, G., Formanowicz, D., Gmerek, Ł, & Krokowicz, P. (2017). Health-related quality of life assessment among patients with inflammatory bowel diseases after surgery–review. Przeglad Gastroenterologiczny, 12(1), 6–16.
   PubMed Web of Science ®Google Scholar
• Bailey, K. A., Gammage, K. L., van Ingen, C., & Ditor, D. S. (2015). “It’s all about acceptance”: A qualitative study exploring a model of positive body image for people with spinal cord injury. Body Image, 15, 24–34. doi:https://doi.org/10.1016/j.bodyim.2015.04.010
   PubMed Web of Science ®Google Scholar
• Barbosa, M. R., Matos, P. M., & Costa, M. E. (2011). As relações de vinculação e a imagem corporal: exploração de um modelo. Psicologia: Teoria e Pesquisa, 27(3), 273–282.
   Google Scholar
• Barbosa, R., Vieira, F., Brandão, M., Meneses, L., Fernandes, R., & Torres, S. (2018). Measurement of positive body image’s facets: Psychometric properties of the BESAA and BAOS in Portuguese adolescents and adults. Poster Session Presentation at the Appearance Matters 8 Conference, Bath, UK.
   Google Scholar
• Bowlby, J. (1973). Attachment and loss: Volume II: Separation, anxiety and anger. In Attachment and loss: Volume II: Separation, anxiety and anger (pp. 1–429). London: The Hogarth Press and the Institute of Psycho-Analysis.
   Google Scholar
• Canavarro, M. C., Dias, P., & Lima, V. (2006). A avaliação da vinculação do adulto: Uma revisão crítica a propósito da aplicação da Adult Attachment Scale-R (AAS-R) na população portuguesa. Psicologia, 20(1), 155–186.
   Google Scholar
• Casellas, F., López-Vivancos, J., Casado, A., & Malagelada, J.-R. (2002). Factors affecting health related quality of life of patients with inflammatory bowel disease. Quality of Life Research, 11(8), 775–781.
   PubMed Web of Science ®Google Scholar
• Cohen, J. (1988). Statistical power analysis for the behavioural sciences (2nd ed.). Hillsdale, NJ: Academic Press.
   Google Scholar
• Dezutter, J., Casalin, S., Wachholtz, A., Luyckx, K., Hekking, J., & Vandewiele, W. (2013). Meaning in life: An important factor for the psychological well-being of chronically ill patients? Rehabilitation Psychology, 58(4), 334–341. doi:https://doi.org/10.1037/a0034393
   PubMed Web of Science ®Google Scholar
• Drossman, D. A., Camilleri, M., Mayer, E. A., & Whitehead, W. E. (2002). AGA technical review on irritable bowel syndrome. Gastroenterology, 123(6), 2108–2131.
   PubMed Web of Science ®Google Scholar
• Ercolani, M., Farinelli, M., Agostini, A., Baldoni, F., Baracchini, F., Ravegnani, G., & Bortolotti, M. (2010). Gastroesophageal reflux disease (GERD) and inflammatory bowel disease (IBD): Attachment styles and parental bonding. Perceptual and Motor Skills, 111(2), 625–630.
   PubMed Web of Science ®Google Scholar
• Feitosa, M., Parra, R., Camargo, H., Ferreira, S., Troncon, L., Rocha, J., & Féres, O. (2021). COVID-19 quarantine measures are associated with negative social impacts and compromised follow-up care in patients with inflammatory bowel disease in Brazil. Annals of Gastroenterology, 34(1), 39–45.
   PubMed Web of Science ®Google Scholar
• Gasparetto, M., & Guariso, G. (2013). Highlights in IBD epidemiology and its natural history in the paediatric age. Gastroenterology Research and Practice, 2013, 829040. doi:https://doi.org/10.1155/2013/829040
   PubMed Web of Science ®Google Scholar
• Gavrilescu, O., Mihai, C., Anton-Paduraru, D. T., Moisa, S., Ciubara, A., & Cijevschi-Prelipcean, C. (2015). Impact of inflammatory bowel diseases on quality of life. Revista de Cercetare si Interventie Sociala, 50, 80–95.
   Web of Science ®Google Scholar
• Gil, L. M. T. S., & Fernandes, I. M. R. (2019). Quality of life of patients with inflammatory bowel disease. Revista de Enfermagem Referência, 4(23), 89–98.
   Google Scholar
• Goodhand, J. R., Wahed, M., Mawdsley, J. E., Farmer, A. D., Aziz, Q., & Rampton, D. S. (2012). Mood disorders in inflammatory bowel disease: Relation to diagnosis, disease activity, perceived stress, and other factors. Inflammatory Bowel Diseases, 18(12), 2301–2309. doi:https://doi.org/10.1002/ibd.22916
   PubMed Web of Science ®Google Scholar
• Gracie, D., Hamlin, J., & Ford, A. (2019). The influence of the brain–gut axis in inflammatory bowel disease and possible implications for treatment. Lancet Gastroenterology & Hepatology, 4(8), 632–642. doi:https://doi.org/10.1016/S2468-1253(19)30089-5
   PubMed Web of Science ®Google Scholar
• Grogan, S., Mechan, J., Persson, S., Finlay, S., & Hall, M. (2019). ‘I’ve got a very dichotomous difference in the way that I perceive myself’: Positive and negative constructions of body image following cancer treatment. Journal of Health Psychology, 24(10), 1368–1377.
   PubMed Web of Science ®Google Scholar
• Guerra, M., Lencastre, L., Silva, E., & Teixeira, P. (2017). Meaning in life in medical settings: A new measure correlating with psychological variables in disease. Cogent Psychology, 4(1), 1286747. doi:https://doi.org/10.1080/23311908.2017.1286747
   Web of Science ®Google Scholar
• Haapamäki, J., Turunen, U., Roine, R. P., Färkkilä, M. A., & Arkkila, P. E. (2009). Impact of demographic factors, medication and symptoms on disease-specific quality of life in inflammatory bowel disease. Quality of Life Research, 18(8), 961–969.
   PubMed Web of Science ®Google Scholar
• Jäghult, S., Saboonchi, F., Johansson, U. B., Wredling, R., & Kapraali, M. (2011). Identifying predictors of low health-related quality of life among patients with inflammatory bowel disease: Comparison between Crohn’s disease and ulcerative colitis with disease duration. Journal of Clinical Nursing, 20(11–12), 1578–1587.
   PubMed Web of Science ®Google Scholar
• Keeton, R. L., Mikocka-Walus, A., & Andrews, J. M. (2015). Concerns and worries in people living with inflammatory bowel disease (IBD): A mixed methods study. Journal of Psychosomatic Research, 78(6), 573–578. doi:https://doi.org/10.1016/j.jpsychores.2014.12.004
   PubMed Web of Science ®Google Scholar
• Kline, R. B. (2005). Principles and practice of structural equation modeling (2nd ed.). New York, NY: The Guilford Press.
   Google Scholar
• Knowles, S. R., Graff, L. A., Wilding, H., Hewitt, C., Keefer, L., & Mikocka-Walus, A. (2018a). Quality of life in inflammatory bowel disease: A systematic review and meta-analyses—Part I. Inflammatory Bowel Diseases, 24(4), 742–751.
   PubMed Web of Science ®Google Scholar
• Knowles, S. R., Keefer, L., Wilding, H., Hewitt, C., Graff, L. A., & Mikocka-Walus, A. (2018b). Quality of life in inflammatory bowel disease: A systematic review and meta-analyses—Part II. Inflammatory Bowel Diseases, 24(5), 966–976.
   PubMed Web of Science ®Google Scholar
• Lemoine, J. E., Konradsen, H., Lunde Jensen, A., Roland-Lévy, C., Ny, P., Khalaf, A., & Torres, S. (2018). Factor structure and psychometric properties of the body appreciation scale-2 among adolescents and young adults in Danish, Portuguese, and Swedish. Body Image, 26, 1–9. doi:https://doi.org/10.1016/j.bodyim.2018.04.004
   PubMed Web of Science ®Google Scholar
• Matos, P. M., Barbosa, S., & Costa, M. E. (2001). Avaliação da vinculação amorosa em adolescentes e jovens adultos: construção de um instrumento e estudo de validação. Revista Iberoamericana de Diagnostico y Evaluacion-e Avaliação Psicológica, 11, 93–109.
   Google Scholar
• McWilliams, L. A., & Bailey, S. J. (2010). Associations between adult attachment ratings and health conditions: Evidence from the national comorbidity survey replication. Health Psychology, 29(4), 446–453.
   PubMed Web of Science ®Google Scholar
• Meneses, L., Torres, S., Miller, K. M., & Barbosa, M. R. (2019). Extending the use of the body appreciation scale-2 in older adults: A Portuguese validation study. Body Image, 29, 74–81.
   PubMed Web of Science ®Google Scholar
• Moradkhani, A., Beckman, L. J., & Tabibian, J. H. (2013). Health-related quality of life in inflammatory bowel disease: Psychosocial, clinical, socioeconomic, and demographic predictors. Journal of Crohn’s and Colitis, 7(6), 467–473.
   PubMed Web of Science ®Google Scholar
• Moreira, H., & Canavarro, M. C. (2010). A longitudinal study about the body image and psychosocial adjustment of breast cancer patients during the course of the disease. European Journal of Oncology Nursing, 14(4), 263–270.
   PubMed Web of Science ®Google Scholar
• Pallant, J. (2013). SPSS survival manual. New York, NY: McGraw-Hill Education.
   Google Scholar
• Parra, R., Chebli, J., Amarante, H., Flores, C., Parente, J., Ramos, O., … Ferrari, M. (2019). Quality of life, work productivity impairment and healthcare resources in inflammatory bowel diseases in Brazil. World Journal of Gastroenterology, 25(38), 5862–5882. doi:https://doi.org/10.3748/wjg.v25.i38.5862
   PubMed Web of Science ®Google Scholar
• Pinto, C. R., & Guerra, M. (2018). A influência do sentido de vida e de fatores psicossociais na qualidade de vida de doentes com esclerose múltipla. Análise Psicológica, 36(4), 439–453.
   Google Scholar
• Purc-Stephenson, R., Bowlby, D., & Qaqish, S. T. (2015). “A gift wrapped in barbed wire” positive and negative life changes after being diagnosed with inflammatory bowel disease. Quality of Life Research, 24(5), 1197–1205. doi:https://doi.org/10.1007/s11136-014-0843-0
   PubMed Web of Science ®Google Scholar
• Razmus, M., & Razmus, W. (2017). Evaluating the psychometric properties of the Polish version of the body appreciation scale-2. Body Image, 23, 45–49. doi:https://doi.org/10.1016/j.bodyim.2017.07.004
   PubMed Web of Science ®Google Scholar
• Regueiro, M., Greer, J. B., & Szigethy, E. (2017). Etiology and treatment of pain and psychosocial issues in patients with inflammatory bowel diseases. Gastroenterology, 152(2), 430–439.e4. doi:https://doi.org/10.1053/j.gastro.2016.10.036
   PubMed Web of Science ®Google Scholar
• Reis, A., Lencastre, L., Jonsson, C., & Guerra, M. P. (2020). Treatment adherence, meaning in life and affects in quality of life of HIV/AIDS patients. Journal of Happiness Studies, 21(27), 2405–2417. doi:https://doi.org/10.1007/s10902-019-00182-y
   Google Scholar
• Ribeiro, I. D. (2014). Adaptação à doença inflamatória intestinal: a influência do stress, sentido de vida e coping na qualidade de vida [Unpublished master’s thesis]. University of Porto.
   Google Scholar
• Roda, G., Ng, S., Kotze, P., Argollo, M., Panaccione, R., Spinelli, A., … Danese, S. (2020). Chron’s disease. Nature Reviews Disease Primers, 6(1), 1–19. doi:https://doi.org/10.1038/s41572-020-0156-2.
   PubMedGoogle Scholar
• Salvioli, B., & Bazzocchi, G. (2006). Colonic and anorectal motility in inflammatory bowel disease. In G. G. Delaini (Ed.), Inflammatory bowel disease and familial adenomatous polyposis: Clinical management and patients’ quality of life (pp. 51–59). Milan: Springer.
   Google Scholar
• Shaver, P. R., & Mikulincer, M. (2010). An overview of adult attachment theory. In J. H. Obegi, & E. Berant (Eds.), Attachment theory and research in clinical work with adults (pp. 51–80). New York, NY: Guilford press.
   Google Scholar
• Sherman, A. C., & Simonton, S. (2012). Effects of personal meaning among patients in primary and specialized care: Associations with psychosocial and physical outcomes. Psychology & Health, 27(4), 475–490. doi:https://doi.org/10.1080/08870446.2011.592983
   PubMed Web of Science ®Google Scholar
• Sommerhalder, C. (2010). Sentido de vida na fase adulta e velhice. Psicologia: Reflexão e Crítica, 23, 270–277.
   Google Scholar
• Souza, M. M., Barbosa, D. A., Espinosa, M. M., & Belasco, A. G. S. (2011). Qualidade de vida de pacientes portadores de doença inflamatória intestinal. Acta Paulista de Enfermagem, 24(4), 479–484. doi:https://doi.org/10.1590/S0103-21002011000400006
   Google Scholar
• Swami, V., Tudorel, O., Goian, C., Barron, D., & Vintila, M. (2017). Factor structure and psychometric properties of a Romanian translation of the body appreciation scale-2. Body Image, 23, 61–68. doi:https://doi.org/10.1016/j.bodyim.2017.08.001
   PubMed Web of Science ®Google Scholar
• Thirlby, R. C., Land, J. C., Fenster, L. F., & Lonborg, R. (1998). Effect of surgery on health-related quality of life in patients with inflammatory bowel disease: A prospective study. Archives of Surgery, 133(8), 826–832.
   PubMedGoogle Scholar
• Thomas, G. (2009). Counselling and reflexive research in healthcare: Working therapeutically with clients with inflammatory bowel disease. Chronic Illness, 5(2), 147–148. doi:https://doi.org/10.1177/1742395309102885
   Google Scholar
• Torres, S., Barbosa, R., Meneses, L., Tylka, T., & Vieira, F. (2018). Psychometric evaluation and sex invariance of the Portuguese version of the Body Appearance Scale-2 in a community sample of adults [Poster Session Presentation]. Appearance Matters 8 Conference, Bath, UK.
   Google Scholar
• Trindade, I. A., Ferreira, C., Duarte, C., & Pinto-Gouveia, J. (2019). Gender differences in inflammatory bowel disease: Explaining body image dissatisfaction. Journal of Health Psychology, 24(7), 847–856.
   PubMed Web of Science ®Google Scholar
• Trindade, I. A., Ferreira, C., & Pinto-Gouveia, J. (2017). The effects of body image impairment on the quality of life of non-operated Portuguese female IBD patients. Quality of Life Research, 26(2), 429–436. doi:https://doi.org/10.1007/s11136-016-1378-3
   PubMed Web of Science ®Google Scholar
• Tylka, T. L., & Wood-Barcalow, N. L. (2015). What is and what is not positive body image? Conceptual foundations and construct definition. Body Image, 14, 118–129. doi:https://doi.org/10.1016/j.bodyim.2015.04.001
   PubMed Web of Science ®Google Scholar
• van den Brink, G., Stapersma, L., Vlug, L. E., Rizopolous, D., Bodelier, A. G., Van Wering, H., … van der Burg, J. A. (2018). Clinical disease activity is associated with anxiety and depressive symptoms in adolescents and young adults with inflammatory bowel disease. Alimentary Pharmacology & Therapeutics, 48(3), 358–369.
   PubMed Web of Science ®Google Scholar
• Vaz Serra, A., Canavarro, M. C., Simões, M., Pereira, M., Gameiro, S., Quartilho, M. J., … Paredes, T. (2006). Estudos psicométricos do instrumento de avaliação da qualidade de vida da Organização Mundial de Saúde (WHOQOL-Bref) para Português de Portugal. Psiquiatria clínica, 27(1), 41–49.
   Google Scholar
• WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28(3), 551–558.
   PubMed Web of Science ®Google Scholar