Advanced search
Publication Cover
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 22, 2021 - Issue sup1: Assessments of Pulmonary Function in patients with Amyotrophic Lateral Sclerosis: Options and Applicability in both the clinical care and clinical trial settings
Submit an article Journal homepage
1,575
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Use of a new ALS specific respiratory questionnaire: the ARES score

Terry D. Heiman-Patterson1 Department of Neurology, Lewis Katz School of Medicine, Temple University, Philadelphia, PA, USACorrespondence[email protected]
View further author information
,
Michael S. Sherman2 MCG-Hearst Health and Department of Medicine, Drexel University College of Medicine, Philadelphia, PA, USAView further author information
,
Daohai Yu1 Department of Neurology, Lewis Katz School of Medicine, Temple University, Philadelphia, PA, USA;3 Department of Clinical Sciences, Lewis Katz School of Medicine, Temple University, Philadelphia, PA, USAView further author information
,
Carlayne E. Jackson3 Department of Clinical Sciences, Lewis Katz School of Medicine, Temple University, Philadelphia, PA, USA;4 Department of Neurology, University of Texas, San Antonio, TX, USAView further author information
,
Asha George5 Innovative Research Associates, Sharon Hill, Pa., USAView further author information
,
Edward J. Kasarskis4 Department of Neurology, University of Texas, San Antonio, TX, USA;6 Department of Neurology, University of Kentucky, Lexington, KY, USAView further author information
& THE NUTRITION/NIV STUDY GROUP show all
Pages 48-53 | Received 04 Jan 2021, Accepted 23 Mar 2021, Published online: 04 Aug 2021

References

  • Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology 2009;73:1227–33.
  • Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology 2009;73:1218–26.
  • Bestall JC, Paul EA, Garrod R, Garnham R, Jones PW, Wedzicha JA. Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax 1999;54:581–6.
  • Burdon JG, Juniper EF, Killian KJ, Hargreave FE, Campbell EJ. The perception of breathlessness in asthma. Am Rev Respir Dis. 1982;126:825–8.
  • Kasarskis EJ, Mendiondo MS, Wells S, Malguizo MS, Thompson M, Healey M, et al. The ALS Nutrition/NIV study: design, feasibility, and initial results. Amyotroph Lateral Scler.2011;12:17–25.
  • Boentert M. Sleep and sleep disruption in amyotrophic lateral sclerosis. Curr Neurol Neurosci Rep. 2020;20:25–33.
  • Pinto S, de Carvalho M. The R of ALSFRS-R: does it really mirror functional respiratory involvement in amyotrophic lateral sclerosis? Amyotroph Lateral Scler Frontotemporal Degener. 2015; 16:120–3.
  • Parshall MB, Schwartzstein RM, Adams L, Banzett RB, Manning HL, Bourbeau J, et al. An official American Thoracic Society statement: update on the mechanisms, assessment, and management of dyspnea. Am J Respir Crit Care Med. 2012;185:435–52.
  • Garrod R, Bestall JC, Paul EA, Wedzicha JA, Jones PW. Development and validation of a standardized measure of activity of daily living in patients with severe COPD: the London Chest Activity of Daily Living scale (LCADL). Respir Med. 2000;94:589–96. Jun

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.