Pain in children with cerebral palsy – adolescent siblings’ awareness of pain and perceived influence on their family

References

• Himmelmann K. Epidemiology of cerebral palsy. In: Dulac O, Lassonde M, Sarnat HB, editors. Handbook of clinical neurology, vol. 111. New York: Elsevier; 2013.
   Google Scholar
• Stanley F, Blair E, Alberman E. Cerebral palsies: epidemiology and causal pathways. London: MacKeith; 2000.
   Google Scholar
• Parkinson KN, Gibson L, Dickinson HO. Pain in children with cerebral palsy: a cross-sectional multicentre European study. Acta Paediatr. 2010;99:446–451.
   PubMed Web of Science ®Google Scholar
• Ramstad K, Jahnsen R, Skjeldal OH, et al. Characteristics of recurrent musculoskeletal pain in children with cerebral palsy aged 8 to 18 years. Dev Med Child Neurol. 2011;53:1013–1018.
   PubMed Web of Science ®Google Scholar
• IASP. Pain – IASP taxonomy 2017; [cited 2018 Mar 23]. Available from: https://www.iasp-pain.org/Taxonomy?navItemNumber=576#Pain
   Google Scholar
• Borg J, Forssberg H. Cerebral pares. In: Fagius J, Aquilonius SM, editors. Neurologi. 4th ed. Falköping: Liber; 2006. p. 337–343.
   Google Scholar
• Zhao X, Chen M, Du S, et al. Evaluation of stress and pain in young children with cerebral palsy during early developmental intervention programs. A descriptive study. Am J Phys Med Rehabil. 2015;94:169–175.
   PubMed Web of Science ®Google Scholar
• Kibele A. Occupational therapy’s role in improving the quality of life for persons with cerebral palsy. Am J Occup Ther. 1989;43:371–377.
   PubMed Web of Science ®Google Scholar
• Hadden KL, Baeyer CLv. Pain in children with cerebral palsy: common triggers and expressive behaviors. Pain. 2002;99:281–288.
   PubMed Web of Science ®Google Scholar
• Lauder GR, White MC. Neuropathic pain following multilevel surgery in children with cerebral palsy: a case series and review. Paediatr Anaesth. 2005;15:412–420.
   PubMed Web of Science ®Google Scholar
• Houlihan CM, O'Donnell M, Conaway M, et al. Bodily pain and health-related quality of life in children with cerebral palsy. Dev Med Child Neurol. 2004;46:305–310.
   PubMed Web of Science ®Google Scholar
• Tervo RC, Symons F, Stout J, et al. Parental report of pain and associated limitations in ambulatory children with cerebral palsy. Arch Phys Med Rehabil. 2006;87:928–934.
   PubMed Web of Science ®Google Scholar
• Stahle-Oberg L, Fjellman-Wiklund A. Parents’ experience of pain in children with cerebral palsy and multiple disabilities – an interview study. Adv Physiother. 2009;11:137–144.
   Google Scholar
• Davis E, Shelly A, Waters E, et al. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child Care Health Dev. 2010;36:63–73.
   PubMed Web of Science ®Google Scholar
• Kao B, Plante W, Lobato D. The use of the impact on sibling scale with families of children with chronic illness and developmental disability. Child Care Health Dev. 2009;35:505–509.
   PubMed Web of Science ®Google Scholar
• Dauz Williams P, Piamjariyakul U, Graff JC, et al. Developmental disabilities: effects on well siblings. Issues Compr Pediatr Nurs. 2010;33:39–55.
   PubMedGoogle Scholar
• Fanurik D, Koh JL, Schmitz ML, et al. Children with cognitive impairment: parent report of pain and coping. J Dev Behav Pediatr. 1999;20:228–234.
   PubMed Web of Science ®Google Scholar
• Barr J, McLeod S. They never see how hard it is to be me: siblings’ observations of strangers, peers and family. Int J Speech Lang Pathol. 2010;12:162–171.
   PubMed Web of Science ®Google Scholar
• Kvale S. Interviews. An introduction to qualitative research interviewing. London: Sage; 1996.
   Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24:105–112.
   PubMed Web of Science ®Google Scholar
• Dahlgren L, Emmelin M, Winkvist A. Qualitative methodology for international public health. 2nd ed. Umeå: Print and Media, Umeå University; 2007.
   Google Scholar
• Bryant A, Charmaz K, editors. The SAGE handbook of grounded theory. Thousand Oaks (CA): SAGE Publications Inc.; 2010.
   Google Scholar
• Graneheim UH, Lindgren BM, Lundman B. Methodological challenges in qualitative content analysis: a discussion paper. Nurse Educ Today. 2017;56:29–34.
   PubMed Web of Science ®Google Scholar
• Lincoln YS, Guba EG. Naturalistic inquiry. London: SAGE Publications; 1985.
   Google Scholar
• Shikako-Thomas K, Bogossian A, Lach LM, et al. Parents’ perspectives on the quality of life of adolescents with cerebral palsy: trajectory, choices and hope. Disabil Rehabil. 2013;35:2113–2122.
   PubMed Web of Science ®Google Scholar
• Raina P, O'Donnell M, Rosenbaum P, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115:e626–e636.
   PubMed Web of Science ®Google Scholar
• Nixon CL, Cummings ME. Sibling disability and children’s reactivity to conflicts involving family members. J Fam Psychol. 1999;13:274–285.
   Web of Science ®Google Scholar
• Blomgren F. Annorlunda syskon – syskon med funktionshinder [Odd siblings – siblings with developmental disabilities]. Swedish: Ica bokförlag, Forma Books AB; 2010.
   Google Scholar
• Smith AA, Friedemann ML. Perceived family dynamics of persons with chronic pain. J Adv Nurs. 1999;30:543–551.
   PubMed Web of Science ®Google Scholar
• Stikkelbroek Y, Bodden DH, Kleinjan M, et al. Adolescent depression and negative life events, the mediating role of cognitive emotion regulation. PLoS One. 2016;11:e0161062.
   PubMed Web of Science ®Google Scholar
• Wiklund M, Malmgren-Olsson EB, Ohman A, et al. Subjective health complaints in older adolescents are related to perceived stress, anxiety and gender – a cross-sectional school study in Northern Sweden. BMC Public Health. 2012;12:993.
   PubMed Web of Science ®Google Scholar
• Patel V, Flisher AJ, Hetrick S, et al. Mental health of young people: a global public-health challenge. Lancet. 2007;369:1302–1313.
   PubMed Web of Science ®Google Scholar
• Edwards M, Lawson C, Rahman S, et al. What does quality healthcare look like to adolescents and young adults? Ask the experts!. Clin Med (Lond). 2016;16:146–151.
   PubMed Web of Science ®Google Scholar
• Dew A, Llewellyn G, Balandin S. Exploring the later life relationship between adults with cerebral palsy and their non-disabled siblings. Disabil Rehabil. 2014;36:756–764.
   PubMed Web of Science ®Google Scholar
• Brunner E, De Herdt A, Minguet P, et al. Can cognitive behavioural therapy based strategies be integrated into physiotherapy for the prevention of chronic low back pain? A systematic review. Disabil Rehabil. 2013;35:1–10.
   PubMed Web of Science ®Google Scholar
• Bougea A, Spantideas N, Chrousos GP. Stress management for headaches in children and adolescents: a review and practical recommendations for health promotion programs and well-being. J Child Health Care. 2018;22:19–33.
   PubMed Web of Science ®Google Scholar
• Burckhardt R, Manicavasagar V, Batterham PJ, et al. Acceptance and commitment therapy universal prevention program for adolescents: a feasibility study. Child Adolesc Psychiatry Ment Health. 2017;11:27.
   PubMed Web of Science ®Google Scholar
• Biddle SJ, Asare M. Physical activity and mental health in children and adolescents: a review of reviews. Br J Sports Med. 2011;45:886–895.
   PubMed Web of Science ®Google Scholar
• Strömbäck M, Malmgren-Olsson EB, Wiklund M. ‘Girls need to strengthen each other as a group’: experiences from a gender-sensitive stress management intervention by youth-friendly Swedish health services – a qualitative study. BMC Public Health. 2013;13:907.
   PubMed Web of Science ®Google Scholar
• Strömbäck M, Wiklund M, Salander Renberg E, et al. Gender-sensitive and youth-friendly physiotherapy: steps toward a stress management intervention for girls and young women. Physiother Theory Pract. 2016;32:20–33.
   PubMed Web of Science ®Google Scholar