86
Views
0
CrossRef citations to date
0
Altmetric
Research Article

“But What do they Want?” Communication and Supported Decision-Making for People with Complex Communication Needs. Ethical Considerations for SLPs.

References

  • Arstein-Kerslake, A., Watson, J., Browning, M., Martinis, J., & Blanck, P. (2017). Future directions in supported decision-making. Disability Studies Quarterly, 37. https://doi.org/10.18061/dsq.v37i1.5070
  • Beauchamp, T. & Childress, J. (2001). Principles of biomedical ethics (5th ed.). Oxford University Press.
  • Bigby, C., & Douglas, J. (2020). Supported decision making. In R. Stancliffe, M. Wehmeyer, K. Shogren, & B. Abery (Eds.). Choice, preference, and disability, positive psychology and disability Series (pp. 45–66). Springer Nature. https://doi.org/10.1007/978-3-030-35683-5_3
  • Brayley, J. (2009, December 14). Supported decision making in Australia: Presentation notes. Office of the Public Advocate. https://bit.ly/SupportedDecisionMakinginAus
  • Browne, M., & Millar, M. (2016). A rights-based conceptual framework for the social inclusion of children and young persons with an intellectual disability. Disability & Society, 31(8), 1064–1080. https://doi.org/10.1080/09687599.2016.1232190
  • Carey, E. (2020). Aligning with the flow of control: A grounded theory study of choice and autonomy in decisionmaking practices of people with intellectual disabilities. International Journal of Qualitative Studies on Health and Well-being, 16(1). https://doi.org/10.1080/17482631.2020.1857053
  • Carlson, K., & Kittay, E. (2010). Introduction: Rethinking philosophical presumptions in light of cognitive disability. In E. Kittay & K. Carlson (Eds.), Cognitive disability and its challenge to moral philosophy (pp. 2-26). Wiley-Blackwell.
  • Chartres, D., & Brayley, J. (2010). Office of the Public Advocate South Australia: Submission to the productivity commission inquiry into disability care and support. Office of the Public Advocate. https://bit.ly/sub0325
  • Commonwealth of Australia. (2020). National Disability Insurance Scheme Act 2013. https://www.legislation.gov.au/Details/C2013A00020
  • Davidson, G., Kelly, B., Macdonald, G., Rizzo, M., Lombard, L., Abogunrin, O., Clift-Matthews, V., & Martin, A. (2015). Supported decision making: A review of the international literature. International Journal of Law and Psychiatry, 38, 61–67. https://doi.org/10.1016/j.ijlp.2015.01.008
  • Davy, L. (2019). Between an ethic of care and an ethic of autonomy. Angelaki, 24(3), 101–114. http://doi.org/10.1080/0969725X.2019.1620461
  • Dewing, J. (2007). Participatory research: A method for process consent with persons who have dementia. Dementia, 6(1), 11–25. https://doi.org/10.1177/1471301207075625
  • Guardianship and Administration Act 1990 (WA). https://bit.ly/WALWGAA1990
  • Guillemin, M., & Gillam, L. (2008). Ethical mindfulness: Narrative analysis and everyday ethics in health care. In B. Katz Rothman, E. Mitchell Armstrong, & R. Tiger (Eds.), Bioethical issues, sociological perspectives ( Advances in medical sociology, Vol. 9), (pp. 157–178). Emerald Group Publishing Limited. https://doi.org/10.1016/S1057-6290(07)09006-7
  • Johnson, J., Inglebret, E., Jones, C., & Ray, J. (2006). Perspectives of speech language pathologists regarding success versus abandonment of AAC. Augmentative and Alternative Communication, 22(2), 85–99. https://doi.org/10.1080/07434610500483588
  • Kendrick, M. (2012). As the years pass: Reflections on the last twenty-five years and looking forward. Interaction: The Australian Magazine on Intellectual Disability, 25(3), 6–15.
  • Kendrick, M., Ward, M., & Chenoweth, L. (2017). Australia’s national disability insurance scheme: Looking back to shape the future. Disability & Society, 32(9), 1333–1350. https://doi.org/10.1080/09687599.2017.1322493
  • Kenny, B., Lincoln, M., & Balandin, S. (2007). A dynamic model of ethical reasoning in speech pathology. Journal of Medical Ethics, 33, 508–513. https://doi.org/10.1136/jme.2006.017715
  • Kenny, B., Lincoln, M., Blyth, K., & Balandin, S. (2009). Ethical perspectives on quality of care: The nature of ethical dilemmas identified by new graduate and experienced speech pathologists. Internal Journal of Language and Communication Disorders, 44(4), 421–439. https://doi.org/10.1080/13682820902928711
  • Kent-Walsh, J., Murza, K., Malani, M., & Binger, C. (2015). Effects of communication partner instruction on the communication of individuals using AAC: A meta-analysis. Augmentative and Alternative Communication, 31(4), 271–284. https://doi.org/10.3109/07434618.2015.1052153
  • Light, J., & Mcnaughton, D. (2015). Designing AAC research and intervention to improve the outcomes for individuals with complex communication needs. Augmentative and Alternative Communication, 31(2), 85–96. https://doi.org/10.3109/07434618.2015.1036458
  • Morris, C., Detrick, J., & Peterson, S. (2021). Participant assent in behavior analytic research: Considerations for participants with autism and developmental disabilities. Journal of Applied Behavior Analysis, 54(4), 1300–1316. https://doi.org/10.1002/jaba.859
  • NDIS Quality and Safeguards Commission. (2020). Regulated Restrictive Practices Guide. https://bit.ly/RegulatedRestrictivePracticesGuide
  • Nota, L., Ferrari, L, Soresi, S., & Wehmeyer, M. (2007). Self-determination, social abilities and the quality of life of people with intellectual disability. Journal of Intellectual Disability Research, 51(2), 850–865. https://doi.org/10.1111/j.1365-2788.2006.00939.x
  • Olney, M., & Kim, A. (2001). Beyond adjustment: Integration of cognitive disability into identity. Disability & Society, 16(1), 563–583. https://doi.org/10.1080/09687590120059540
  • Porter, G., & Kirkland, J. (1995). Integrating augmentative and alternative communication into groups programs: Utilising the principles of conductive education. Spastic Society of Victoria.
  • Sevenhuijsen, S. (2003). The place of care: The relevance of the feminist ethic of care for social policy. Feminist Theory, 4(2), 179–197. https://doi.org/10.1177/14647001030042006
  • Stancliffe, R. (2020). Choice availability and people with intellectual disability. In R. Stancliffe, M. Wehmeyer, K. Shogren, – B, Abery (Eds.), Choice, preference, and disability (pp. 3–26). Springer International Publishing: Imprint: Springer. https://doi.org/10.1007/978-3-030-35683-5
  • United Nations (UN). (2006). Convention on the rights of persons with disabilities. https://www.un.org/en/universal-declaration-human-rights/
  • Verdon, S., McLeod, S., & Wong, S. (2015). Supporting culturally and linguistically diverse children with speech, language and communication needs: Overarching principles, individual approaches. Journal of Communication Disorders, 58, 74–90. https://doi.org/10.1016/j.jcomdis.2015.10.002
  • Watson, J. (2016). Assumptions of decision-making capacity: The role supporter attitudes play in the realisation of Article 12 for people with severe or profound intellectual disability. Laws, 5(1), 6. https://doi.org/10.3390/laws5010006
  • Watson J. (2019). The role of speech-language pathology in supporting legal capacity. Journal of Clinical Practice in Speech-Language Pathology, 21(1).
  • Watson, J., Anderson, J., Wilson, E., & Anderson, K. (2020). The impact of the United Nations convention on the rights of persons with disabilities (CRPD) on Victorian guardianship practice. Disability and Rehabilitation, 44(12), 2806–2814. https://doi.org/10.1080/09638288.2020.1836680