Perspectives of Nunavut patients and families on their cancer and end of life care experiences

References

• Statistics Canada. Focus on geography series, 2016 census. Ottawa, Ontario: Statistics Canada Catalogue no. 98-404-X2016001, Data products, 2016 Census; 2017.
   Google Scholar
• Statistics Canada. Nunavut [Territory] and Canada [Country] (table). Census profile. 2016 census. Ottawa, Ontario: Statistics Canada Catalogue no. 98-316-X2016001; 2017 Nov 29.
   Google Scholar
• Government of Nunavut. Cancer in Nunavut, 1999–2011. Iqaluit, Nunavut: Population Health Information. Yellowknife Northwest Territories, Department of Health; 2014 Fall cited 2019 Oct 15. Available at: https://www.gov.nu.ca/health/information/health-statistics
   Google Scholar
• Asmis TR, Febbraro M, Alvarez GG, et al. A retrospective review of cancer treatments and outcomes among Inuit referred from Nunavut, Canada. Current Oncol. 2015;22(4):246–12.
   Web of Science ®Google Scholar
• Carrière GM, Tjepkema M, Pennock J, et al. Cancer patterns in Inuit Nunangat: 1988–2007. Int J Circumpolar Health. 2012;71(1):18581.
   PubMed Web of Science ®Google Scholar
• Circumpolar Inuit Cancer Review Working Group, Kelly J, Lanier A, Santos M, et al. Cancer among the circumpolar Inuit, 1989–2003. II. Patterns and trends. Int J Circumpolar Health. 2008;67(5):408–420.
   Web of Science ®Google Scholar
• Tungasuvvingat Inuit and Cancer Care Ontario. Cancer risk factors and screening among Inuit in Ontario and Other Canadian regions. 2017 cited 2019 Oct 15. Available from: http://www.cancercare.on.ca/InuitRiskFactors
   Google Scholar
• Peters PA. An age- and cause-decomposition of differences in life expectancy between residents of Inuit Nunangat and residents of the rest of Canada, 1989 to 2008. Ottawa (Ontario): statistics Canada, Catalogue no. 82-003-X. Health Rep. 2013;24(12):3–9.
   Web of Science ®Google Scholar
• Office of the Auditor General of Canada. 2017 March Report of the auditor general of Canada: health Care services – Nunavut. Ottawa (Ontario): Office of the Auditor General of Canada; 2017 Mar. cited 2019 Oct 15 Available from: http://www.oag-bvg.gc.ca/internet/English/nun_201703_e_41998.html
   Google Scholar
• Pauktuutit Inuit Women of Canada. Kaggutiq Inuit cancer glossary. 2020 cited 2020 Apr 13. Available from: https://www.pauktuutit.ca/health/cancer/kaggutiq-inuit-cancer-glossary/
   Google Scholar
• Pauktuutit Inuit Women of Canada. Inuusinni aqqusaaqtara - My journey. 2020 cited 2020 Apr 13. Available from: https://www.pauktuutit.ca/health/cancer/inuusinni-aqqusaaqtara-journey/
   Google Scholar
• Kirk LG, Hammond A, Nwafor A, et al. Improving treatment experience for Nunavut patients with lung cancer. Radiat Oncol. 2019;104(1):247.
   Web of Science ®Google Scholar
• Chan J, Linden K, McGrath C, et al. Time to diagnosis and treatment with palliative radiotherapy among Inuit patients with cancer from the arctic territory of Nunavut. Clin Oncol. 2019;2019. [E-pub ahead of print]. DOI:https://doi.org/10.1016/j.clon.2019.07.001.
   Google Scholar
• Healey GK, Tagak SA. Piliriqatigiinniq ‘working in a collaborative way for the common good’: A perspective on the space where health research methodology and Inuit epistemology come together.”. Int J Crit Indigenous Stud. 2014;7(1):1–8.
   Google Scholar
• Hseih HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15:1277.
   PubMed Web of Science ®Google Scholar
• Kelley ML, Prince H, Nadin S, et al. Developing palliative care programs in Indigenous communities using participatory action research: a Canadian application of the public health approach to palliative care. Ann Palliat Med. 2018;7(Suppl. 2):S52–S72.
   Google Scholar
• Koski J, Kelley ML, Nadin S, et al. An analysis of journey mapping to create a palliative care pathway in a Canadian First nations community: implications for service integration and policy development. Palliat Care. 2017;10:1–16.
   Google Scholar
• McDonnell L, Lavoie JG, Healey G, et al. Non-clinical determinants of Medevacs in Nunavut: perspectives from northern health service providers and decision-makers. Int J Circumpolar Health. 2019;78:1571384.
   PubMed Web of Science ®Google Scholar
• Young TK, Tabish TB, Young SK, et al. Patient transportation in Canada’s northern territories: patterns, costs and providers’ perspectives. Rural Remote Health. 2019;19(2):5113.
   Web of Science ®Google Scholar
• McDonald JT, Trenholm R. Cancer-related health behaviour and health service use among Inuit and other residents of Canada’s north. Soc Sci Med. 2010;70:1396–1403.
   PubMed Web of Science ®Google Scholar
• Singh H, Bernstein CN, Samadder JN, et al. Screening rates for colorectal cancer in Canada: a cross-sectional study. Can Med Assoc J. 2015;3(2):E149–157.
   Google Scholar
• Doering P, DeGrasse C. Enhancing access to cancer care for the Inuit. Current Oncol. 2015;22(4):244–245.
   Web of Science ®Google Scholar
• Jull J, Mazereeuw M, Sheppard A, et al. Tailoring and field-testing the use of a knowledge translation peer support shared decision-making strategy with First nations, Inuit and Métis people making decisions about their cancer care: a study protocol. Res Involv Engagem. 2018;4:6.
   Google Scholar
• Jull J, Hizaka A, Sheppard AJ, et al. The Inuit medical interpreter team, Rand M, Habash M, Graham ID. An integrated knowledge translation approach to develop a shared decision-making strategy for use by Inuit in cancer care: a qualitative study. Current Oncol. 2019;26(3):192–204.
   Web of Science ®Google Scholar
• Higgins PC, Garrido MM, Prigerson HG. Factors predicting bereaved caregiver perception of quality of care in the final week of life: implications for health care providers. J Palliat Med. 2015;18(10):849–857.
   Web of Science ®Google Scholar
• Moeke-Maxwell T, Wharemate R, Black S, et al. Toku toa, he toa rangatira: a qualitative investigation of New Zealand Māori end-of- life care customs. Death Dying. 2018;13(2):30–46.
   Google Scholar
• Fruch V, Monture L, Prince H, et al. Coming home to die: six nations of the grand river territory develops community-based palliative care. Int J Indigenous Health. 2016;11(1):50–74.
   Web of Science ®Google Scholar
• Anderson M, Woticky G. The end of life is an auspicious opportunity for healing: decolonizing death and dying for urban Indigenous people. Int J Indigenous Health. 2018;13(2):48–60.
   Web of Science ®Google Scholar
• Hordyk SR, Macdonald ME, Brassard P. End-of-life care in Nunavik, Quebec: Inuit experiences, current realities, and ways forward. J Palliat Med. 2017;20(6):647–655.
   Web of Science ®Google Scholar
• Donnelly S, Prizeman G, Ó Coimín D, et al. Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives. BMC Palliat Care. 2018;17:117.
   PubMed Web of Science ®Google Scholar
• Heyland DK. What matters most in end-of-life care: perceptions of seriously ill patients and their family members. Can Med Assoc J. 2006;174(5):627–633.
   PubMed Web of Science ®Google Scholar
• Cain CL, Surbone A, Elk R, et al. Culture and palliative care: preferences, communication, meaning, and mutual decision making. J Pain Symptom Manage. 2018;55(5):1408–1419.
   PubMed Web of Science ®Google Scholar
• Cancer Care Ontario. Palliative care toolkit for aboriginal communities.cited 2019 Nov 11 Available from: https://www.cancercareontario.ca/en/guidelines-advice/treatment-modality/palliative-care/toolkit-aboriginal-communities
   Google Scholar
• Bowen S Language barriers in access to health care. Ottawa: Health Canada; 2001. (Report, Cat. No H39-578/2001E).
   Google Scholar
• Hordyk SR, Macdonald ME, Brassard P. Inuit interpreters engaged in end-of-life care in Nunavik, Northern Quebec. Int J Circumpolar Health. 2017b;76(1):1291868.
   PubMed Web of Science ®Google Scholar
• Beben N, Muirhead A. Improving cancer control in First Nations, Inuit and Métis communities in Canada. Eur J Cancer Care (Engl). 2016;25:219–221.
   Web of Science ®Google Scholar
• Fraser SL, Nadeau L. Experience and representations of health and social services in a community of Nunavik. Contemp Nurse. 2015;2–3:286–300.
   Google Scholar
• Government of Nunavut. Continuing Care in Nunavut 2015 to 2035. Iqaluit (Nunavut): Department of Health; 2015 Apr.
   Google Scholar
• Lavoie JG, Kaufert J, Browne AJ, et al. Managing Matajoosh: determinants of First Nations’ cancer care decisions. BMC Health Serv Res. 2016;16:402.
   Web of Science ®Google Scholar
• Aherne M, Pereira J. A generative response to palliative service capacity in Canada. Int J Health Care Qual Assur. 2005;18(1):iii–xxi.
   Google Scholar
• Carstairs S, MacDonald ML. The PRISMA symposium 2: lessons from beyond Europe. Reflections on the evolution of palliative care research and policy in Canada. J Pain Symptom Manage. 2011;42(4):501–504.
   Web of Science ®Google Scholar
• Canadian Partnership Against Cancer. Canadian strategy for cancer control. Toronto: Canadian Partnership Against Cancer; 2019 cited 2019 Oct 16. Available from: https://www.partnershipagainstcancer.ca/cancer-strategy/
   Google Scholar
• McKay J Nunavut government hopes to streamline cancer care in the territory. Iqaluit (Nunavut). CBC News Online; 2019 Sept 10 cited 2019 Oct 15. Available at: https://www.cbc.ca/news/canada/north/health-nunavut-cancer-1.5276756
   Google Scholar
• Government of Northwest Territories. Stanton territorial hospital chemotherapy services update. Report, department of health. 2018 Apr cited 2019 Oct 15 Available from: https://www.nthssa.ca/en/stanton-territorial-hospital-chemotherapy-services-update-april-2018
   Google Scholar