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Theory and Methods Article

The challenges of decolonising participatory research in indigenous contexts: the Atautsikut community of practice experience in Nunavik

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Article: 2087846 | Accepted 06 Jun 2022, Published online: 17 Aug 2022

References

  • Cochran PA, Marshall CA, Garcia-Downing C, et al. Indigenous ways of knowing: implications for participatory research and community. Am J Public Health. 2008;98(1):22–14.
  • Smith LT. Decolonizing methodologies: research and indigenous peoples. London: Zed Books Ltd; 2012.
  • Tuck E, Yang KW. R-words: refusing research. Humanizing Research. 2014;223:248.
  • Tuck E, Guishard M. Uncollapsing ethics: racialized sciencism, settler coloniality, and an ethical framework of decolonial participatory action research. In: Kress TM, Malott CS, Portfilio BJ, editors. Challenging status quo retrenchment: new directions in critical qualitative research. Charlotte NC: Information Age Publishing; 2013. p. 3–27.
  • Smith LT, Tuck E, Yang KW, Eds. Indigenous and decolonizing studies in education. New York NY: Routledge; 2018.
  • Simpson L. Aboriginal peoples and knowledge: decolonizing our processes. Can J Native Stud. 2001;21(1):137–148.
  • Kovach M. Conversation method in Indigenous research. First Peoples Child & Family Review: An Interdisciplinary Journal Honouring the Voices, Perspectives, and Knowledges of First Peoples through Research, Critical Analyses, Stories, Standpoints and Media Reviews. 2010;5(1):40–48.
  • Canadian Institutes of Health Research December 2018. Natural sciences and engineering research council of Canada, and social sciences and humanities research council, Tri-council policy statement: Ethical Conduct for Research Involving Humans. https://ethics.gc.ca/eng/tcps2-eptc2_2018_chapter9-chapitre9.html
  • Quijano A. Coloniality and modernity/rationality. Cultural Studies. 2007;21(2–3):168–178.
  • Commission d’enquête sur les relations entre les autochtones et certains services publics. 2019. ou commission viens. Commission d’enquête sur les relations entre les autochtones et certains services publics: écoute, réconciliation et progrès: rapport final. Québec: Commission d’enquête sur les relations entre les autochtones et certains services publics. Accessed 4 June 2022. http://www.bibliotheque.assnat.qc.ca/guides/fr/les-commissions-d-enquete-au-quebec-depuis-1867/7738-commission-viens
  • Inuit Tapiriit Kanatami. (2015). Social determinants of Inuit health in Canada. Inuit Tapiriit Kanatami. Accessed 4 June 2022. https://www.itk.ca/wp-content/uploads/2016/07/ITK_Social_Determinants_Report.pdf
  • Wilson S. Research is ceremony: indigenous research methods. Halifax: Fernwood Publishing; 2008.
  • Wilson S. What is an indigenous research methodology? Can J Native Educ. 2001;25(2):175–179.
  • Datta R. Decolonizing both researcher and research and its effectiveness in Indigenous research. Res Ethics. 2018;14(2):1–24.
  • Battiste M. Indigenous knowledge and pedagogy in First Nations education: a literature review with recommendations. Ottawa Canada: National Working Group on Education; 2002. p. 1–69.
  • Simpson LB. Dancing on our turtle’s back: stories of Nishnaabeg re-creation, resurgence and a new emergence. Winnipeg: Arbeiter Ring Pub; 2011.
  • Kovach M. Emerging from the margins: indigenous methodologies. Research as Resistance: Revisiting Critical, Indigenous, and anti-oppressive Approaches. 2015;2:43–64.
  • Nickels S, Knotsch C. Inuit perspectives on research ethics: the work of Inuit Nipingit. Études/Inuit/Studies. 2011;35(1–2):57–81.
  • Fraser SL, Hordyk SR, Etok N, et al. Exploring community mobilization in northern Quebec: motivators, challenges, and resilience in action. Am J Community Psychol. 2019;64(1–2):159–171.
  • Canadian Institute for Health and Research. Network Environments for Indigenous Health Research (NEIHR) Ottawa: Government of Canada; n.d. Accessed 4 June 2022. https://cihr-irsc.gc.ca/e/51161
  • Vaughn LM, Jacquez F, Deters A. Group-Level Assessment (GLA) as a methodological tool to facilitate science education. Res Sci Educ. 2020;1–13.
  • Cornwall A, Jewkes R. What is participatory research? Soc Sci Med. 1995;41(12):1667.
  • Reason P, Torbert W. The action turn: toward a transformational social science. Concepts Transform. 2001;6(1):1–37.
  • Weber-Pillwax C. When research becomes a revolution: participatory action research with indigenous peoples. In Kapoor, D., Jordan, S. (eds): Education, participatory action research, and social change. New York: Palgrave Macmillan; 2009. p. 45–58.
  • Wallerstein NB, Duran B. Using community-based participatory research to address health disparities. Health Promot Pract. 2006;7(3):312–323.
  • Zavala M. What do we mean by decolonizing research strategies? Lessons from decolonizing, indigenous research projects in New Zealand and Latin America. Decolon Indigen Educ Soc. 2013;2(1):55–71.
  • Morris M. Inuit involvement in developing a participatory action research project on youth, violence prevention, and health promotion. études/inuit/studies. 2016;40(1):105–125.
  • Statistique Canada. 2016. Les Inuits: feuillet d’information du Nunavik. Accessed 4 June 2022. http://www.statcan.gc.ca/pub/89-656-x/89-656-x2016016-fra.htm.
  • Lessard L, Bergeron O, and Fournier L, et al. 2008. Étude contextuelle sur les services de santé mentale au Nunavik. Accessed 4 June 2022. Repéréà https://www.inspq.qc.ca/pdf/publications/868_SanteMentalNunavik.pdf
  • Kirmayer LJ, Paul KW, and Rochette L. Qanuippitaa? How are we. In Nunavik Regional Board of health and Social Services and Government of Quebec (Eds.) : Mental health, social support and community wellness. Nunavik regional board of health and social services. Quebec: Government of Quebec; 2007. Accessed 4 June 2022. https://www.researchgate.net/publication/238772367_Mental_Health_Social_Support_and_Community_Wellness
  • Kirmayer LJ, Sheiner E, and Geoffroy D. Mental health promotion for indigenous youth. In Hodes, M. & Gau, S.(Eds.): Positive mental health, fighting stigma and promoting resiliency for children and adolescents. Amsterdam: Academic Press; 2016. p. 111–140.
  • Makivik Corporation. 2014. Kativik regional government, Nunavik regional board of health and social services, Kativik School Board, Nunavik Landholding Corporations Association. Parnasimautik, Consultation Report Avataq Cultural Institute, and Saputiit Youth Association. Accessed 4 June 2022. https://www.makivik.org/parnasimautik-consultation-report-to-the-plan-nord-ministerial-committee-in-quebec-city
  • Brunelle N, Plourde C, Landry M, et al. Regards de Nunavimmiuts sur les raisons de la consommation et ses effets. Criminologie. 2009;42(2):9–29.
  • Oliver LN, Peters PA, Kohen DE. Mortality rates among children and teenagers living in Inuit Nunangat, 1994 to 2008. Health Rep. 2012;23(3):17–22.
  • Fraser SL, Geoffroy D, Chachamovich E, et al. Changing rates of suicide ideation and attempts among i nuit youth: a gender‐based analysis of risk and protective factors. Suicide and Life-Threatening Behav. 2015;45(2):141–156.
  • Kirmayer LJ, Boothroyd LJ, Tanner A, et al. Psychological distress among the Cree of James Bay. Transcult Psychiatry. 2000;37(1):35–56.
  • Sullivan GP, Vrakas G. Étude qualitative de la vision et des besoins des jeunes du Nunavik en matière de santé mentale et aperçu de la réponse fournie par les organismes du milieu. Can J Community Mental Health. 2020;38(3):1–17.
  • Tester FJ, McNicoll P. Isumagijaksaq: mindful of the state: social constructions of Inuit suicide. Soc Sci Med. 2004;58(12):2625–2636.
  • Gaulin D. Des savoirs en tension: la construction des savoirs en santé mentale et la place des savoirs autochtone dans l’organisation des services. Rev Canadienne de Serv Social. 2021.38:87-111.
  • King M, Smith A, Gracey M. Indigenous health part 2: the underlying causes of the health gap. Lancet. 2009;374(9683):76–85.
  • Reading C, and Wien F (2009). Inégalités en matière de santé et déterminants sociaux de la santé des peuples autochtones.Accessed 4 June 2022. Repéré à. : http://wvvw.nccah-ccnsa.ca/
  • Fraser SL, Nadeau L. Experience and representations of health and social services in a community of Nunavik. Contemp Nurse. 2015;51(2–3):286–300.
  • Cotton ME, Nadeau L, and Kirmayer LJ. Consultation to remote and Indigenous communities. In Kirmayer, L., Guzder, J., Rousseau, C. (eds.): Cultural consultation. New York: Springer; 2014. p. 223–244.
  • Fraser S, Plourde-Léveillé L, Kirmayer LJ. Exploring the potential roles of community-university partnerships in northern suicide prevention implementation research. Int J Circumpolar Health. 2020;79(1):1835271.
  • Auclair G, Sappa M. Mental health in Inuit youth from Nunavik: clinical considerations on a transcultural, interdisciplinary, community-oriented approach. J Can Acad Child Adolesc Psychiatry. 2012;21(2):124.
  • Fraser SL, Gaulin D, Fraser WD. Dissecting systemic racism: policies, practices and epistemologies creating racialized systems of care for Indigenous peoples. Int J Equity Health. 2021;20(1):1–5.
  • Nunavik Regional Board of Health and Social Services. Rapport du sondage sur l’expérience usager. 2019. Accessed 4 June 2022. https://nrbhss.ca/sites/default/files/health_services_clinical_plan_report_fr.pdf
  • Nunavik Regional Board of Health and Social Services. Eval of the Health and Social Serv Syst in Nunavik: The Users Perspect. 2021. Accessed 4 June 2022. http://nrbhss.ca/sites/default/files/documentations/corporatives/UserPerspective_Report_EN_digital.pdf
  • Commission des droits de la personne et des droits de la jeunesse. 2021. Enquête sur la situation des enfants Inuit hébergés dans des Centres de réadaptations du CIUSSS de l’Ouest de l’ile de Montréal et du Centre de santé Tullataviq de l’Ungava. Accessed 4 June 2022. https://www.cdpdj.qc.ca/fr/publications/enquete-inuit-jeunes-DPJ_resume
  • Fraser SL, Moulin L, Gaulin D, et al. On the move: exploring Inuit and non-Inuit health service providers’ perspectives about youth, family and community participation in care in Nunavik. BMC Health Serv Res. 2021;21(1):1–18.
  • Lauzière J (2021). La sécurité culturelle dans les programmes de santé pour les Inuit: une étude de cas en contexte de traitement pour des problèmes de consommation de substances psychoactives (Doctoral dissertation, Université de Sherbrooke). Accessed 4 June 2022. https://savoirs.usherbrooke.ca/bitstream/handle/11143/18421/lauziere_julie_PhD_2021.pdf?sequence=10
  • Wylie L, McConkey S. Insiders’ insight: discrimination against indigenous peoples through the eyes of health care professionals. J Racial Ethn Health Disparities. 2019;6(1):37–45.
  • Browne AJ, Varcoe C, Lavoie J, et al. Enhancing health care equity with Indigenous populations: evidence-based strategies from an ethnographic study. BMC Health Serv Res. 2016;16(1):1–17.
  • Fraser S, Rouillard R, Nadeau L, et al. Collaborating to improve child and youth mental health in Nunavik. études/inuit/studies. 2016;40(1):23–41.
  • Briggs J. Conflict management in a modern Inuit community. In: Dans PP, Schweitzer M, Biesele Et R, et al., editors. Hunters and gatherers in the modern world: conflict, resistance and self-determination. New York, Oxford: Berghahn Books; 2000. p. 110–124.
  • Koperqualuk LQ. ᐱᕐᕈᓯᑐᖃᑦᓴᔭᒥᑎᒍᑦ ᐱᖁᔭᖃᕈᓯᖏᑦ ᓄᓇᕕᒻᒥᐅᑦ (Les traditions liées au droit coutumier au Nunavik/Traditions Relating to Customary Law in Nunavik). Westmount: Publications Nunavik; 2015.
  • Nadeau L, Johnson-Lafleur J, and Annahatak J, et al. 2019. Imagining continuing education, interprofessional collaboration and support in a trilingual environment: the case of a community of practice in youth mental health and wellness in Nunavik. In Cantin-Savoie G, Schuurman M, Compton R, (eds.), Proceedings of the 21st Inuit Studies Conference. Montreal, Quebec, Canada. Accessed 4 June 2022. https://archipel.uqam.ca/13845/
  • Blackstock C, Trocmé N. Community-based child welfare for Aboriginal children: supporting resilience through structural change. Social Policy J N Z. 2005;24(12):12–33.
  • Wenger E. Communities of practice: learning as a social system. Syst Thinker. 1998;9(5):2–3.
  • Seibert S. The meaning of a healthcare community of practice. Nurs Forum. 2015 April;50(2):69–74.
  • Soubhi H, Bayliss EA, Fortin M, et al. Learning and caring in communities of practice: using relationships and collective learning to improve primary care for patients with multimorbidity. Anna Family Med. 2010;8(2):170–177.
  • Ranmuthugala G, Cunningham FC, Plumb JJ, et al. A realist evaluation of the role of communities of practice in changing healthcare practice. Implement Sci. 2011;6(1):1–6.
  • Government of Nunavut. 2013. Incorporating Inuit Societal Values. Accessed 4 June 2022. Retrieved from http://www.gov.nu.ca/culture-and-heritage/information/inuit-societal-values-project.
  • Government of Nunavut (n.d.). Inuit Qaujimajatuqangit. Accessed 4 June 2022. https://www.gov.nu.ca/fr/culture-et-du-patrimoine/information/linuit-qaujimajatuqangit.
  • Hamzeh J, Johnson-Lafleur J, Ouellet C, et al.$3$2 The Community of Practice evaluation questionnaire (CoPeval): origin and development. McGill Family Med Stud Online. 2019;14:e01.
  • Plourde-Léveillé L, and Fraser S. Vers une décolonisation des ressources de soins et services sociaux: les travailleurs communautaires locaux au Nunavik. Can J Public Health. 2021; 112 :676–684.
  • Toombs E, Kowatch KR, and Dalicandro L, et al. A systematic review of electronic mental health interventions for Indigenous youth: results and recommendations. J Telemed Telecare. 2020; 27(9) :539–552.
  • Ferrazzi P, Tagalik S, Christie P, et al. Aajiiqatigiingniq: an Inuit consensus methodology in qualitative health research. Int J Qual Methods. 2019;18:1609406919894796.
  • Tagalik S. Inuit Qaujimajatuqangit: the role of Indigenous knowledge in supporting wellness in Inuit communities in Nunavut. Prince George, BC: National Collaborating Centre for Aboriginal Health= Centre de collaboration nationale de la santé autochtone; 2010. Accessed 4 June 2022. https://www.ccnsa-nccah.ca/docs/health/FS-InuitQaujimajatuqangitWellnessNunavut-Tagalik-EN.pdf
  • Tagalik S. Inuit knowledge systems, Elders, and determinants of health: harmony, balance, and the role of holistic thinking. Determinants of Indigenous Peoples’ Health: beyond the Social. 2018;10:93–101.
  • Tester FJ, Irniq P. Inuit Qaujimajatuqangit: social history, politics and the practice of resistance. Arctic. 2008;48–61.
  • Tuck E, and Yang KW. Decolonization is not a metaphor. Decolon Indigen Educ Soc. 2012;1(1):1–40.
  • Fraser S, Vrakas G, Laliberté A, et al. Everyday ethics of participation: a case study of a CBPR in Nunavik. Glob Health Promot. 2018;25(1):82–90.
  • Anang P, Gottlieb N, Putulik S, et al. Learning to fail better: reflections on the challenges and risks of community-based participatory mental health research with Inuit youth in Nunavut. Front Public Health. 2021;9:194.
  • Goodman KJ, Geary J, Walker E, et al.; CANHelp Working Group. Community-driven epidemiologic research: guiding principles. Global Epidemiol. 2019;1:100013.
  • Harris M, Fallot RD. Using trauma theory to design service systems. San Francisco CA: Jossey Bass; 2001.
  • Birnbaum J. Le courage de la nuance. Paris: Éditions du Seuil; 2021.
  • Brown LA, Strega S, Eds. Research as resistance: critical, indigenous and anti-oppressive approaches. Canadian Scholars’: Press; 2005.
  • Cotton ME. Maîtres chez nous? Racisme envers les peuples autochtones au Québec et au Canada. L’Autre. 2008;9(3):361–371.
  • Truth & Reconciliation Commission of Canada. Canada’s residential schools: the final report of the truth and reconciliation commission of Canada. Vol. 1. Montreal: McGill-Queen’s Press-MQUP; 2015.
  • Tervalon M, Murray-Garcia J. Cultural humility versus cultural competence: a critical distinction in defining physician training outcomes in multicultural education. J Health Care Poor Underserved. 1998;9(2):117–125.