293
Views
0
CrossRef citations to date
0
Altmetric
Original Research Article

Systematic synthesis of intersectional best practices: knowledge translation for circumpolar indigenous disability

ORCID Icon
Article: 2333075 | Received 17 Jan 2024, Accepted 15 Mar 2024, Published online: 08 Apr 2024

References

  • McKibbon KA, Lokker C, Wilczynski NL, et al. A cross-sectional study of the number and frequency of terms used to refer to knowledge translation in a body of health literature in 2006: a tower of Babel? Implement Sci. 2010;5(1). Scopus. doi: 10.1186/1748-5908-5-16
  • Esmail R, Hanson HM, Holroyd-Leduc J, et al. A scoping review of full-spectrum knowledge translation theories, models, and frameworks. Implement Sci. 2020;15(1):11. doi: 10.1186/s13012-020-0964-5
  • Minogue V, Matvienko-Sikar K, Hayes C, et al. The usability and applicability of knowledge translation theories, models, and frameworks for research in the context of a national health service. Health Res Policy Sys. 2021;19(1):105. doi: 10.1186/s12961-021-00747-5
  • Dewailly E, Furgal C. Knowledge translation in Arctic environmental health. Int J Circumpolar Health. 2012;71(1):19265. doi: 10.3402/ijch.v71i0.19265
  • McDonald ME, Papadopoulos A, Edge VL, et al. What do we know about health-related knowledge translation in the circumpolar north? Results from a scoping review. Int J Circumpolar Health. 2016;75(1):31223. doi: 10.3402/ijch.v75.31223
  • Dew A, Boydell KM. Knowledge translation: bridging the disability research-to-practice gap. Res Pract Intellectual Develop Disabilities. 2017;4(2):142–17. doi: 10.1080/23297018.2017.1315610
  • Smylie J Dr., Martin CM, Kaplan-Myrth N, et al. Knowledge translation and indigenous knowledge. Int J Circumpolar Health. 2004;63(sup2):139–143. doi: 10.3402/ijch.v63i0.17877
  • Baah FO, Teitelman AM, Riegel B. Marginalization: conceptualizing patient vulnerabilities in the framework of social determinants of health—an integrative review. Nurs Inq. 2019;26(1):e12268. doi: 10.1111/nin.12268
  • Lehmiller JJ. Perceived marginalization and its association with physical and psychological health. J Social Pers Relat. 2012;29(4):451–469. doi: 10.1177/0265407511431187
  • Crenshaw K. On intersectionality: essential writings. Faculty Books; 2017. https://scholarship.law.columbia.edu/books/255
  • Hooks B. Feminism is for everybody: passionate politics. Pluto Press; 2000.
  • Hahn DL, Hoffmann AE, Felzien M, et al. Tokenism in patient engagement. Fam Pract. 2017;34(3):290–295. https://academic.oup.com/fampra/article-abstract/34/3/290/2503177
  • Ocloo J, Matthews R. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ Qual Saf. 2016;25(8):626–632. https://qualitysafety.bmj.com/content/qhc/early/2016/03/18/bmjqs-2015-004839.full.pdf
  • Young TK, Bjerregaard P. Towards estimating the indigenous population in circumpolar regions. Int J Circumpolar Health. 2019;78(1):1653749. doi: 10.1080/22423982.2019.1653749
  • Sumarokov YA, Brenn T, Kudryavtsev AV, et al. Suicides in the indigenous and non-indigenous populations in the Nenets Autonomous Okrug, Northwestern Russia, and associated socio-demographic characteristics. Int J Circumpolar Health. 2014;73(1):24308. doi: 10.3402/ijch.v73.24308
  • Gjertsen H. Mental health among Sami people with intellectual disabilities. Int J Circumpolar Health. 2019;78(1):1565860. doi: 10.1080/22423982.2019.1565860
  • Brynjolfsdottir M, Palmadottir G, Arnadottir SA. Activities and participation of 65-91-year-old adults: population-based study among residents of a sparsely populated and remote area in Iceland. Int J Circumpolar Health. 2021;80(1):1903778. doi: 10.1080/22423982.2021.1903778
  • Timonen T. Elements of effective strategies to enhance self-determination in people with autism and severe learning disabilities. Int J Circumpolar Health. 2001;60(sup1):50–50. doi: 10.1080/22423982.2001.12113129
  • Devlin RE. Suicide prevention training for aboriginal young adults with learning disabilities from fetal alcohol syndrome/fetal alcohol effects (FAS/FAE). Int J Circumpolar Health. 2001;60(4):564–579. doi: 10.1080/25761900.2022.12220634
  • Lauer EA, Henly M, Coleman R. Comparing estimates of disability prevalence using federal and international disability measures in national surveillance. Disabil Health J. 2019;12(2):195–202. https://www.sciencedirect.com/science/article/pii/S1936657418301833
  • Borderon M, Best KB, Bailey K, et al. The risks of invisibilization of populations and places in environment-migration research. Humanit Soc Sci Commun. 2021;8(1. Article 1. doi: 10.1057/s41599-021-00999-0
  • Yancey AK, Ortega AN, Kumanyika SK. Effective recruitment and retention of minority research participants. Ann Rev Public Health. 2006;27(1):1–28. doi: 10.1146/annurev.publhealth.27.021405.102113
  • Bjørk IT, Lomborg K, Nielsen CM, et al. From theoretical model to practical use: an example of knowledge translation. J Adv Nurs. 2013;69(10):2336–2347. doi: 10.1111/jan.12091
  • Hu JC. Access to health knowledge for health equality: a multi-phase review focused on disability-health. Int J Equity Health. 2024;23(1):6.
  • Adamou TY, Riva M, Muckle G, et al. Socio-economic inequalities in blood mercury (hg) and serum polychlorinated biphenyl (PCB) concentrations among pregnant Inuit women from Nunavik, Canada. Can J Public Health. 2018;109(5–6):671–683.
  • Allerton LA, Welch V, Emerson E. Health inequalities experienced by children and young people with intellectual disabilities: a review of literature from the United Kingdom. J Intellect Disabil. 2011;15(4):269–278. doi: 10.1177/1744629511430772
  • Lavoie JG, Kornelsen D, Wylie L, et al. Responding to health inequities: indigenous health system innovations. Glob Health Epidemiol. 2016;1:e14. https://www.cambridge.org/core/journals/global-health-epidemiology-and-genomics/article/responding-to-health-inequities-indigenous-health-system-innovations/A40483538BC2EAD8EB3F9A4ECE69676A. doi: 10.1017/gheg.2016.12
  • Snell-Rood C, Jaramillo ET, Hamilton AB, et al. Advancing health equity through a theoretically critical implementation science. Transl Behav Med. 2021;11(8):1617–1625. doi: 10.1093/tbm/ibab008
  • Murrell JE, Pisegna JL, Juckett LA. Implementation strategies and outcomes for occupational therapy in adult stroke rehabilitation: a scoping review. Implement Sci. 2021;16(1):105. doi: 10.1186/s13012-021-01178-0
  • Romney W, Bellows DM, Tavernite JP, et al. Knowledge translation research to promote behavior changes in rehabilitation: use of theoretical frameworks and tailored interventions: a scoping review. Arch Phys Med Rehabil. 2022;103(7):S276–S296. doi: 10.1016/j.apmr.2021.01.076
  • Taff SD, Putnam L. Northern philosophies and professional neocolonialism in occupational therapy: a historical review and critique. Cad Bras Ter Ocup. 2022;30:e2986. doi: 10.1590/2526-8910.ctoAO22642986
  • Franche RL, Murray EJ, Ostry A, et al. Work disability prevention in rural healthcare workers. Rural Remote Health. 2010;10(4):1502.
  • Hernández-Saca DI, Voulgarides CK, Etscheidt SL. A critical systematic literature review of global inclusive education using an affective, intersectional, discursive, emotive and material lens. Educ Sci. 2023;13(12):1212, Article 12. doi: 10.3390/educsci13121212.
  • Hikaka J, Hughes C, Jones R, et al. A pharmacist-led medicines review intervention in community-dwelling Māori older adults– a feasibility study protocol. Res Social Administrative Pharm. 2020;16(9):1264–1271. doi: 10.1016/j.sapharm.2019.12.004
  • Soares L, Cockle KL, Ruelas Inzunza E, et al. Neotropical ornithology: reckoning with historical assumptions, removing systemic barriers, and reimagining the future. Ornithol Appl. 2023;125(1):duac046. doi: 10.1093/ornithapp/duac046
  • Kalina P. Performative allyship sociology. Technium Social Sci J. 2020;11:478–481. https://heinonline.org/HOL/P?h=hein.journals/techssj11&i=521. doi: 10.47577/tssj.v11i1.1518
  • Kutlaca M, Radke HRM. Towards an understanding of performative allyship: definition, antecedents and consequences. Soc Personal Psychol Compass. 2023;17(2):e12724. doi: 10.1111/spc3.12724
  • Spielmann N, Dobscha S, Shrum LJ. Brands and social justice movements: the effects of true versus performative allyship on brand evaluation. J Assoc Consum Res. 2023;8(1):83–94. doi: 10.1086/722697
  • Thimsen AF. What is performative activism? Philos Rhetoric. 2022;55(1):83–89. doi: 10.5325/philrhet.55.1.0083
  • Wingood GM, DiClemente RJ. The ADAPT-ITT model: a novel method of adapting evidence-based HIV interventions. J Acquir Immune Defic Syndr. 2008;47(Supplement 1):S40–S46. doi: 10.1097/QAI.0b013e3181605df1
  • Michie S, Van Stralen MM, West R. The behaviour change wheel: a new method for characterising and designing behaviour change interventions. Implement Sci. 2011;6(1):42. doi: 10.1186/1748-5908-6-42
  • Kagawa-Singer M, Dressler WW, George SM, et al. (2014). The cultural framework for health: An integrative approach for research and program design and evaluation. National Institutes of Health, Office of Behavioral and Social Sciences Research.
  • Damschroder LJ, Aron DC, Keith RE, et al. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4(1):50. doi: 10.1186/1748-5908-4-50
  • Powell BJ, Beidas RS, Rubin RM, et al. Applying the policy ecology framework to Philadelphia’s behavioral health transformation efforts. Adm Policy Mental Health Mental Health Serv Res. 2016;43(6):909–926. doi: 10.1007/s10488-016-0733-6
  • McEwen S, Szurek K, Polatajko HJ, et al. Rehabilitation education program for stroke (REPS): learning and practice outcomes. J Contin Educ Health Prof. 2005;25(2):105–115. doi: 10.1002/chp.15
  • Kristensen H, Hounsgaard L. Evaluating the impact of audits and feedback as methods for implementation of evidence in stroke rehabilitation. Br J Occup Ther. 2014;77(5):251–259. doi: 10.4276/030802214X13990455043520
  • Nikopoulou-Smyrni P, Nikopoulos CK. A new integrated model of clinical reasoning: development, description and preliminary assessment in patients with stroke. Disabilit Rehabilitat. 2007;29(14):1129–1138. doi: 10.1080/09638280600948318
  • Christensen C, Wessells D, Byars M, et al. The impact of a unique knowledge translation programme implemented in a large multisite paediatric hospital. J Eval Clin Pract. 2017;23(2):344–353. doi: 10.1111/jep.12617
  • Navabi M. The power of oral tradition: critically resisting the colonial footprint. In: Anti-colonialism and education (pp. 175–192). Brill; 2006. https://brill.com/downloadpdf/book/edcoll/9789087901110/BP000010.pdf
  • Struthers R, Peden-McAlpine C. Phenomenological research among Canadian and United States indigenous populations: oral tradition and quintessence of time. Qual Health Res. 2005;15(9):1264–1276. doi: 10.1177/1049732305281329
  • Huckaby MF. Researcher/Researched: relations of vulnerability/relations of power. Int J Qual Stud Educ. 2011;24(2):165–183. doi: 10.1080/09518398.2010.529851
  • Fontaine LS, Wood S, Forbes L, et al. Listening to First Nations women’ expressions of heart health: mite achimowin digital storytelling study. Int J Circumpolar Health. 2019;78(1):1630233. doi: 10.1080/22423982.2019.1630233
  • Ford T, Rasmus S, Allen J. Being useful: achieving indigenous youth involvement in a community-based participatory research project in Alaska. Int J Circumpolar Health. 2012;71(1):18413. doi: 10.3402/ijch.v71i0.18413
  • Jardine CG, James A. Youth researching youth: benefits, limitations and ethical considerations within a participatory research process. Int J Circumpolar Health. 2012;71(1):18415. doi: 10.3402/ijch.v71i0.18415
  • Kemmis S, McTaggart R, Nixon R. Introducing critical participatory action research. In: Kemmis S, McTaggart R, and Nixon R, editors. The action research planner: doing critical participatory action research. Singapore: Springer; 2014. pp. 1–31. doi: 10.1007/978-981-4560-67-2_5.
  • Hild CM. Engaging Inupiaq values in land management for health through an action research appreciative inquiry process. Int J Circumpolar Health. 2007;66(5):460–461. doi: 10.3402/ijch.v66i5.18318
  • Kemmis S. Participatory action research and the public sphere. Educ Action Res. 2006;14(4):459–476. doi: 10.1080/09650790600975593
  • Cullen R. Addressing the digital divide. Online Inf Rev. 2001;25(5):311–320. doi: 10.1108/14684520110410517
  • Van Dijk JA. Digital divide research, achievements and shortcomings. Poetics. 2006;34(4–5):221–235. https://www.sciencedirect.com/science/article/pii/S0304422X06000167