Bridging the gap: Identifying diverse stakeholder needs and barriers to accessing evidence and resources for children’s pain

References

• Stevens BJ, Abbott LK, Yamada J, Harrison D, Stinson J, Taddio A, Barwick M, Latimer M, Scott SD, Rashotte J, et al. Epidemiology and management of painful procedures in children in Canadian hospitals. Can Med Assoc J. 2011;183(7):E403–10. doi:10.1503/cmaj.101341.
   Web of Science ®Google Scholar
• Birnie KA, Chambers CT, Fernandez CV, Forgeron PA, Latimer MA, McGrath PJ, Cummings EA, Finley GA. Hospitalized children continue to report undertreated and preventable pain. Pain Res Manage. 2014;19:614784. doi:10.1155/2014/614784.
   Web of Science ®Google Scholar
• King S, Chambers CT, Huguet A, MacNevin RC, McGrath PJ, Parker L, MacDonald AJ. The epidemiology of chronic pain in children and adolescents revisited: a systematic review. PAIN. 2011;152(12):2729–38. doi:10.1016/j.pain.2011.07.016.
   PubMed Web of Science ®Google Scholar
• Fitzgerald M, Walker SM. Infant pain management: a developmental neurobiological approach. Nat Clin Pract Neurol. 2009;5(1):35–50. doi:10.1038/ncpneuro0984.
   Google Scholar
• Noel M, McMurtry CM, Pavlova M, Taddio A. Brief clinical report: a systematic review and meta-analysis of pain memory-reframing interventions for children’s needle procedures. Pain Pract. 2017;18(1):123–29. doi:10.1111/papr.12572.
   Web of Science ®Google Scholar
• Taddio A, McMurtry CM, Shah V, Riddell RP, Chambers CT, Noel M, MacDonald NE, Rogers J, Bucci LM, Mousmanis P, et al. Reducing pain during vaccine injections: clinical practice guideline. CMAJ. 2015;187(13):975–82 [ accessed 2018 Oct 11]. http://www.ncbi.nlm.nih.gov/pubmed/26303247.
   PubMed Web of Science ®Google Scholar
• Loeffen EAH, Mulder RL, Font-Gonzalez A, Leroy PLJM, Dick BD, Taddio A, Ljungman G, Jibb LA, Tutelman PR, Liossi C, et al. Reducing pain and distress related to needle procedures in children with cancer: a clinical practice guideline. Eur J Cancer. 2020;131:53–67. http://www.sciencedirect.com/science/article/pii/S0959804920301131
   Web of Science ®Google Scholar
• Networks of Centres of Excellence of Canada. NCE glossary. 2016 [ accessed 2021 Sep 11]. https://www.nce-rce.gc.ca/Grantees-Titulaires/Glossary-Glossaire_eng.asp
   Google Scholar
• Chambers CT. From evidence to influence: dissemination and implementation of scientific knowledge for improved pain research and management. Pain. 2018;159 Suppl:S56–S64. doi:10.1097/j.pain.0000000000001327.
   Web of Science ®Google Scholar
• Higgins KS, Tutelman PR, Chambers CT, Witteman HO, Barwick M, Corkum P, Grant D, Stinson JN, Lalloo C, Robins S, et al. Availability of researcher-led eHealth tools for pain assessment and management: barriers, facilitators, costs, and design. Pain Rep. 2018;3(Suppl 1):e686–e686. https://www.ncbi.nlm.nih.gov/pubmed/30324177
   PubMedGoogle Scholar
• Sibbald SL, Kang H, Graham ID. Collaborative health research partnerships: a survey of researcher and knowledge-user attitudes and perceptions. Health Res Policy Syst. 2019;17(1):92. doi:10.1186/s12961-019-0485-3.
   Web of Science ®Google Scholar
• Damschroder LJ, Aron DC, Keith RE, Kirsh SR, Alexander JA, Lowery JC. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4(1):50. doi:10.1186/1748-5908-4-50.
   PubMed Web of Science ®Google Scholar
• Harrison MB, Graham ID. Knowledge translation in nursing and healthcare: a roadmap to evidence-infomred practice. Hoboken (NJ): Wiley Blackwell; 2021.
   Google Scholar
• Registered Nurses Association of Ontario. Toolkit: implementation of best practice guidelines. 2nd ed. Toronto (ON); 2012. https://rnao.ca/sites/rnao-ca/files/RNAO_ToolKit_2012_rev4_FA.pdf.
   Google Scholar
• Twycross A. Nurses’ views about the barriers and facilitators to effective management of pediatric pain. Pain Manage Nurs. 2013;14(4):e164–e172. doi:10.1016/j.pmn.2011.10.007.
   Web of Science ®Google Scholar
• Czarnecki ML, Guastello A, Turner HN, Wrona SK, Hainsworth KR. Barriers to pediatric pain management: a brief report of results from a multisite study. Pain Manage Nurs. 2019;20(4):305–08. doi:10.1016/j.pmn.2019.01.008.
   Web of Science ®Google Scholar
• Alotaibi K, Higgins I, Day J, Chan S. Paediatric pain management: knowledge, attitudes, barriers and facilitators among nurses – integrative review. Int Nurs Rev. 2018;65(4):524–33. doi:10.1111/inr.12465.
   PubMed Web of Science ®Google Scholar
• Ali S, Chambers A, Johnson DW, Newton AS, Vandermeer B, Williamson J, Curtis SJ. Reported practice variation in pediatric pain management: a survey of Canadian pediatric emergency physicians. Can J Emergency Med. 2014;16(5):352–60. doi:10.2310/8000.2013.131261.
   Web of Science ®Google Scholar
• Stevens BJ, Yamada J, Promislow S, Stinson J, Harrison D, Victor JC. Implementation of multidimensional knowledge translation strategies to improve procedural pain in hospitalized children. Implement Sci. 2014;9(1):120. doi:10.1186/s13012-014-0120-1.
   Google Scholar
• Taddio A, Chambers CT, Halperin SA, Ipp M, Lockett D, Rieder MJ, Shah V. Inadequate pain management during routine childhood immunizations: the nerve of it. Clin Ther. 2009;31(2):S152–67. doi:10.1016/j.clinthera.2009.07.022.
   Google Scholar
• O’Donnell E. Seven steps for conducting a successful needs assessment. [ accessed 2022 Jan 18]. https://www.nichq.org/insight/seven-steps-conducting-successful-needs-assessment
   Google Scholar
• Levac D, Glegg SMN, Camden C, Rivard LM, Missiuna C. Best practice recommendations for the development, implementation, and evaluation of online knowledge translation resources in rehabilitation. Phys Ther. 2015;95(4):648–62. doi:10.2522/ptj.20130500.
   PubMed Web of Science ®Google Scholar
• Solutions for Kids in Pain. Solutions for kids in pain. 2021. https://kidsinpain.ca
   Google Scholar
• Government of Canada. Tri-council policy statement: ethical conduct for research involving humans – TCPS 2. 2018. https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html
   Google Scholar
• Pan Y, Fond M. Evaluating multilingual questionnaires: a sociolinguistic perspective. Surv Res Methods. 2014;8(3):SE–Articles. doi:10.18148/srm/2014.v8i3.5483.
   Web of Science ®Google Scholar
• Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88. doi:10.1177/1049732305276687.
   PubMed Web of Science ®Google Scholar
• Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–15. doi:10.1111/j.1365-2648.2007.04569.x.
   PubMed Web of Science ®Google Scholar
• QSR International Pty Ltd. (2018) NVivo (Version 12), https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home
   Google Scholar
• Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. 3rd ed. Thousand Oaks (CA): SAGE Publications; 2017.
   Google Scholar
• Naitre et Grandir. Naitre et Grandir AU: The reference [30] is listed in the references list but is not cited in the text. Please either cite the reference or remove it from the references list. 2021. https://naitreetgrandir.com
   Google Scholar
• Schechter N, Finley A, Bright N, Laycock M, Forgeron P. ChildKind: a global initiative to reduce pain in children. Ped Pain Lett. 2010;12(3). http://ppl.childpain.org/issues/v12n3_2010/v12n3_schechter.shtml
   Google Scholar
• ChildKind International. ChildKind international. https://childkindinternational.org/
   Google Scholar
• Moja L, Kwag KH. Point of care information services: a platform for self-directed continuing medical education for front line decision makers. Postgrad Med J. 2015;91(1072): 83 LP – 91. doi:10.1136/postgradmedj-2014-132965.
   Web of Science ®Google Scholar
• Collins E, Jubb M. How do researchers in the humanities use information resources? Liber Q. 2012;21(2):176–87. doi:10.18352/lq.8017.
   Google Scholar
• Antheunis ML, Tates K, Nieboer TE. Patients’ and health professionals’ use of social media in health care: motives, barriers and expectations. Patient Educ Couns. 2013;92(3):426–31. doi:10.1016/j.pec.2013.06.020.
   PubMed Web of Science ®Google Scholar
• Bryan MA, Evans Y, Morishita C, Midamba N, Moreno M. Parental perceptions of the internet and social media as a source of pediatric health information. Acad Pediatr. 2020;20(1):31–38. doi:10.1016/j.acap.2019.09.009.
   PubMed Web of Science ®Google Scholar
• Schwartz K, Northrup J, Israel N, Crowell K, Lauder N, Neale AV. Use of on-line evidence-based resources at the point of care. Fam Med. 2003; 35(4): 251–56. https://fammedarchives.blob.core.windows.net/imagesandpdfs/pdfs/FamilyMedicineVol35Issue4Schwartz251.pdf
   PubMed Web of Science ®Google Scholar
• Ugolini D, Casanova G, Ceppi M, Mattei F, Neri M. Familiarity of physicians, translational researchers, nurses, and other health professionals with evidence-based medicine terms and resources. J Can Edu. 2014;29(3):514–21. doi:10.1007/s13187-014-0631-0.
   Web of Science ®Google Scholar
• Evans YN, Gridley SJ, Crouch J, Wang A, Moreno MA, Ahrens K, Breland DJ. Understanding online resource use by transgender youth and caregivers: a qualitative study. Transgender Health. 2017;2(1):129–39. doi:10.1089/trgh.2017.0011.
   PubMedGoogle Scholar
• Ali H, Kircher J, Meyers C, MacLellan J, Ali S. Canadian emergency medicine residents’ perspectives on pediatric pain management. CJEM. 2015;17(5):507–15. doi:10.1017/cem.2015.2.
   Google Scholar
• Ross-Hellauer T, Tennant JP, Banelytė V, Gorogh E, Luzi D, Kraker P, Pisacane L, Ruggieri R, Sifacaki E, Vignoli M. Ten simple rules for innovative dissemination of research. PLoS Comput Biol. 2020;16(4):e1007704. doi:10.1371/journal.pcbi.1007704.
   PubMed Web of Science ®Google Scholar
• Anzinger H, Elliott SA, Hartling L. Comparative usability analysis and parental preferences of three web-based knowledge translation tools: multimethod study. J Med Internet Res. 2020;22(3):e14562. doi:10.2196/14562.
   Web of Science ®Google Scholar
• Law E, Harrington R, Alexander GC, Saha S, Oehrlein E, Perfetto EM. Increasing uptake of comparative effectiveness and patient-centered outcomes research among stakeholders: insights from conference discussion. J Comp Eff Res. 2018;7(2):181–91. doi:10.2217/cer-2017-0060.
   Web of Science ®Google Scholar
• Albers B, Metz A, Burke K, Bührmann L, Bartley L, Driessen P, Varsi C. Implementation support skills: findings from a systematic integrative review. Res Soc Work Pract. 2020;31(2):147–70. doi:10.1177/1049731520967419.
   Web of Science ®Google Scholar
• Sarkies MN, Bowles K-A, Skinner EH, Haas R, Lane H, Haines TP. The effectiveness of research implementation strategies for promoting evidence-informed policy and management decisions in healthcare: a systematic review. Implement Sci. 2017;12(1):132. doi:10.1186/s13012-017-0662-0.
   PubMedGoogle Scholar
• Barwick M, Dubrowski R, Petricca K. Knowledge translation: the rise of implementation. Washington (DC): American Institutes for Research; 2020. https://ktdrr.org/products/kt-implementation/index.html
   Google Scholar
• Gagnon ML. Moving knowledge to action through dissemination and exchange. J Clin Epidemiol. 2011;64(1):25–31. doi:10.1016/j.jclinepi.2009.08.013.
   PubMed Web of Science ®Google Scholar
• Hartling L, Elliott SA, Buckreus K, Leung J, Scott SD. Development and evaluation of a parent advisory group to inform a research program for knowledge translation in child health. Res Involvement Engagement. 2021;7(1):38. doi:10.1186/s40900-021-00280-3.
   Google Scholar
• Kothari A, Sibbald SL, Wathen CN. Evaluation of partnerships in a transnational family violence prevention network using an integrated knowledge translation and exchange model: a mixed methods study. Health Res Policy Syst. 2014;12(1):25. doi:10.1186/1478-4505-12-25.
   Google Scholar
• Mathieson A, Grande G, Luker K. Strategies, facilitators and barriers to implementation of evidence-based practice in community nursing: a systematic mixed-studies review and qualitative synthesis. Prim Health Care Res Dev. 2019;20:e6. doi:10.1017/S1463423618000488.
   PubMed Web of Science ®Google Scholar
• Mathieson A, Luker K, Grande G. ‘It’s like trying to ice a cake that’s not been baked’: a qualitative exploration of the contextual factors associated with implementing an evidence-based information intervention for family carers at the end of life. Prim Health Care Res Dev. 2020;21:e52. doi:10.1017/S146342362000050X.
   Web of Science ®Google Scholar
• Tutelman PR, Chambers CT, Barwick M. Knowledge translation strategies for mobilizing individuals to implement pain evidence to practice. In: Stevens BJ, Hathway G, Zempsky WT, editors. Oxford textbook of pediatric pain. 2nd ed. Oxford, UK: Oxford University Press; 2021:617–626. doi:10.1093/med/9780198818762.003.0058
   Google Scholar
• Nilsen P, Bernhardsson S. Context matters in implementation science: a scoping review of determinant frameworks that describe contextual determinants for implementation outcomes. BMC Health Serv Res. 2019;19(1):189. doi:10.1186/s12913-019-4015-3.
   PubMed Web of Science ®Google Scholar
• Altschuld JW, Watkins R. A primer on needs assessment: more than 40 years of research and practice. New Directions for Eval. 2014;2014(144):5–18. doi:10.1002/ev.20099.
   Google Scholar
• Gupta K. A practical guide to needs assessment. San Francisco, CA: John Wiley & Sons; 2011.
   Google Scholar