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Pediatric Home Mechanical Ventilation: A Canadian Thoracic Society Clinical Practice Guideline

Section 2: Initiation of in-hospital long-term mechanical ventilation and transition to home

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References

  • Appierto L, Cori M, Bianchi R, et al. Home care for chronic respiratory failure in children: 15 Years experience. Paediatric Anaesthesia. 2002;12(4):345–350.
  • Graf JM, Montagnino BA, Hueckel R, McPherson ML. Pediatric tracheostomies: A recent experience from one academic center. Pediatric Critical Care Medicine. 2008;9(1):96–100.
  • De Witt PK, Jansen MT, Ward SL, et al. Obstacles to discharge of ventilator-assisted children from the hospital to home. Chest 1993;103(5):1560–1565.
  • Edwards EA, Hsiao K, Nixon GM. Paediatric home ventilatory support: the Auckland experience. J Paediatr Child Health. 2005;41(12):652–658. Dec
  • Fraser J, Henrichsen T, Mok Q, et al. Prolonged mechanical ventilation as a consequence of acute illness. Arch Dis Child. 1998;78(3):253–256.
  • Oktem S, Ersu R, Uyan ZS, et al. Home ventilation for children with chronic respiratory failure in Istanbul. Respiration. 2008;76(1):76–81.
  • Tearl DK, Cox TJ, Hertzog H. Hospital discharge of respiratory technology-dependent children. Role of a dedicated respiratory care discharge coordinator. Respir Care 2006;517:744–749.
  • Amin R, Sayal A, Syed F, et al. How long does it take to initiate a child on long-term invasiv ventilation? Results from a Canadian pediatric home ventilation program. Can Respir J. 2015;22(2):103–108.
  • Noyes J. Barriers that delay children and young people who are dependent on mechanical ventilators from being discharged from hospital. J Clin Nurs. 2002;11(1):2–11.
  • Goldberg AI, Frownfelter D. The Ventilator-assisted Individuals Study. Chest 1990;98(2):428–433.
  • McDougall CM, Adderley RJ, Wensley DF, Seear MD. Long-term ventilation in children: longitudinal trends and outcomes. Arch Dis Child. 2013;98(9):660–665.
  • Gregoretti C, Ottonello G, Chiarini Testa MB, et al. Survival of patients with spinal muscular atrophy type 1. Pediatrics 2013;131(5):e1509–e1514.
  • Ishikawa Y, Miura T, Ishikawa Y, et al. Duchenne muscular dystrophy: survival by cardio-respiratory interventions. Neuromuscul Disord. 2011;21(1):47–51.
  • Eagle M, Baudouin SV, Chandler C, Giddings DR, Bullock R, Bushby K. Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation. Neuromuscul Disord. 2002;12(10):926–929.
  • Ward S, Chatwin M, Heather S, Simonds AK. Randomised controlled trial of non-invasive ventilation (NIV) for nocturnal hypoventilation in neuromuscular and chest wall disease patients with daytime normocapnia. Thorax 2005;60(12):1019–1024.
  • Raphael JC, Chevret S, Chastang C, Bouvet F. Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy. French Multicentre Cooperative Group on Home Mechanical Ventilation Assistance in Duchenne de Boulogne Muscular Dystrophy. Lancet. 1994;343(8913):1600–1604.
  • Mellies U, Ragette R, Dohna Schwake C, Boehm H, Voit T, Teschl H. Long-term noninvasive ventilation in children and adolescents with neuromuscular disorders. Eur Respir J. 2003;22:631–636.
  • Katz S, Selvadurai H, Keilty K, Mitchell M, MacLusky I. Outcome of non-invasive positive pressure ventilation in paediatric neuromuscular disease. Arch Dis Child. 2004;89(2):121–124.
  • Quint RD, Chesterman E, Crain LS, Winkleby M, Boyce WT. Home care for ventilator-dependent children: psychosocial impact on the family. Am J Dis Child. 1990;144(11):1238–1241.
  • Dybwik K, Nielsen EW, Brinchmann BS. Ethical challenges in home mechanical ventilation: a secondary analysis. Nurs Ethics. 2012;19(2):233–244.
  • Carnevale FA, Alexander E, Davis M, Rennick J, Troini R. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics 2006;117(1):e48–e60.
  • Bourke SC, Gibson GJ. Sleep and breathing in neuromuscular disease. Eur Respir J. 2002;19(6):1194–1201.
  • Laub M, Berg S, Midgren B. Symptoms, clinical and physiological findings motivating home mechanical ventilation in patients with neuromuscular diseases. J Rehabil Med. 2006;38(4):250–254.
  • Chatwin M, Nickol AH, Morrell MJ, Polkey MI, Simonds AK. Randomised trial of inpatient versus outpatient initiation of home mechanical ventilation in patients with nocturnal hypoventilation. Respir Med. 2008;102(11):1528–1535.
  • Jardine E, O'Toole M, Paton JY, Wallis C. Current status of long term ventilation of children in the United Kingdom: questionnaire survey. BMJ. 1999;318(7179):295–299.
  • Edwards JD, Kun SS, Graham RJ, Keens TG. End-of-life discussions and advance care planning for children on long-term assisted ventilation with life-limiting conditions. J Palliat Care. 2012;28(1):21–27.
  • Sritippayawan S, Kun SS, Keens TG, Davidson Ward SL. Initiation of home mechanical ventilation in children with neuromuscular diseases. J Pediatr. 2003;142(5):481–485.
  • Edwards JD, Kun SS, Keens TG. Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review. J Pediatr. 2010;157(6):955–959.
  • Mitchell RB, Hussey HM, Setzen G, et al. Clinical consensus statement: tracheostomy care. Otolaryngol Head Neck Surg. 2013;148(1):6–20.
  • Lewarski JS. Long-term care of the patient with a tracheostomy. Respir Care. 2005;50(4):534–537.
  • Sterni LM, Collaco JM, Baker CD, et al. An official American Thoracic Society Clinical Practice Guideline: pediatric chronic home invasive ventilation. Am J Respir Crit Care Med. 2016;193(8):e16–e35.
  • Cohen E, Bruce-Barrett C, Kingsnorth S, Keilty K, Cooper A, Daub S. Integrated complex care model: lessons learned from inter-organizational partnership. Healthc Q. 2011;14sp(3):64–70.
  • Kun SS, Davidson-Ward SL, Huise LM, Keens TG. How much do primary care givers know about tracheostomy and home ventilator emergency care? Pediatr Pulmonol. 2010;45(3):270–274.

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