“Not just the asthma”: Understanding the acute asthma experiences of adult women with asthma presenting to the emergency department through photovoice

References

• Public Health Agency of Canada. Report from the Canadian Chronic Disease Surviellance System: Asthma and chronic obstructive pulmonary disease (COPD) in Canada, 2018. https://publications.gc.ca/collections/collection_2018/aspc-phac/HP35-90-2018-eng.pdf. Accessed September 20, 2022.
   Google Scholar
• Zafari Z, Sadatsafavi M, Chen W, FitzGerald JM. The projected economic and health burden of sub-optimal asthma control in Canada. Respir Med. 2018;138:7–12. doi:10.1016/j.rmed.2018.03.018.
   Google Scholar
• Postma JM, Evans-Agnew R, Capouya J. Mexican-American caregivers’ perceptions about asthma management: a photovoice study. J Asthma. 2015;52(6):593–599. doi:10.3109/02770903.2014.996651.
   Google Scholar
• Young B, Fitch GE, Dixon-Woods M, Lambert PC, Brooke AM. Parents’ accounts of wheeze and asthma related symptoms: a qualitative study. Arch Dis Child. 2002;87(2):131–134. doi:10.1136/adc.87.2.131.
   Google Scholar
• Yawn B. The impact of childhood asthma on daily life of the family: A qualitative study using recurrent thematic analysis. Prim Care Respir J. 2003;12(3):82–85. doi:10.1038/pcrj.2003.52.
   Google Scholar
• Jones A, Pill R, Adams S. Qualitative study of view of health professionals and patients on guided self management plans for asthma. BMJ. 2000;321(7275):1507–1510. doi:10.1136/bmj.321.7275.1507.
   Google Scholar
• Douglass J, Aroni R, Goeman D, et al. A qualitative study of action plans for asthma. BMJ. 2002;324(7344):1003–1005. doi:10.1136/bmj.324.7344.1003.
   Google Scholar
• Goeman DP, Aroni RA, Sawyer SM, et al. Back for more: A qualitative study of emergency department reattendance for asthma. Med J Aust. 2004;180(3):113–117. doi:10.5694/j.1326-5377.2004.tb05831.x.
   Google Scholar
• Hartmann CW, Sciamanna CN, Blanch DC, et al. A website to improve asthma care by suggesting patient questions for physicians: Qualitative analysis of user experiences. J Med Internet Res. 2007;9(1):e3. doi:10.2196/jmir.9.1.e3.
   Google Scholar
• Gupta RS, Lau CH, Springston EE, et al. Perceived factors affecting asthma among adolescents: Experiences and findings from the student asthma research team pilot study. J Asthma Allergy Educ. 2013;4(5):226–234. doi:10.1177/2150129712472342.
   Google Scholar
• Goeman DP, Aroni RA, Stewart K, et al. Patients’ view of the burden of asthma: a qualitative study. Med J Aust. 2002;177(6):295–299. doi:10.5694/j.1326-5377.2002.tb04786.x.
   Google Scholar
• Fredrickson DD, Molgaard CA, Edwards Dismuke A, Schukman JS, Walling A. Understanding frequent emergency room use by Medicaid-insured children with asthma: A combined quantitative and qualitative study. J Am Board Fam Pract. 2004;17(2):96–100. doi:10.3122/jabfm.17.2.96.
   Google Scholar
• Oliffe J, Bottorff J. Further than the eye can see? Photo elicitation and research with men. Qual Health Res. 2007;17(6):850–858. doi:10.1177/1049732306298756.
   Google Scholar
• Sutton-Brown CA. Photovoice: A methodological guide. Photogr Cult. 2014;7(2):169–185. doi:10.2752/175145214X13999​922103165.
   Google Scholar
• Foster-Fishman P, Nowell B, Deacon Z, Nievar AM, McCann P. Using methods that matter: The impact of reflection, dialogue, and voice. Am J Community Psychol. 2005;36(3-4):275–291. doi:10.1007/s10464-005-8626-y.
   Google Scholar
• Beveridge R, Clarke B, Janes L, et al. Canadian emergency department triage and acuity scale: implementation guidelines. CJEM. 1999;1:S1–S24.
   Google Scholar
• Lozowy A, Shields R, Dorow S. Where is Fort McMurray? The camera as a tool for assembling “community. Can J Soc. 2013;38(2):191–210. doi:10.29173/cjs19925.
   Google Scholar
• Wang C. Photovoice: A participatory action research strategy applied to women’s health. J Womens Health. 1999;8(2):185–192. doi:10.1089/jwh.1999.8.185.
   Google Scholar
• Bogdan R, Biklen S. Qualitative Research for Education: An Introduction to Theories and Methods. Boston, USA: Pearson Education; 2007.
   Google Scholar
• Gale N, Heath G, Cameron E, Rashid S, Redwood S. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13:117. doi:10.1186/1471-2288-13-117.
   Google Scholar
• Rising KL, Hudgins A, Reigle M, Hollander JE, Carr BG. “I’m just a patient”: Fear and uncertainty as drivers of emergency department use in patients with chronic disease. Ann Emerg Med. 2016;68(5):536–543. doi:10.1016/j.annemergmed.2016.03.053.
   Google Scholar
• Gordon J, Sheppard LA, Anaf S. The patient experience in the emergency department: A systematic synthesis of qualitative research. Int Emerg Nurs. 2010;18(2):80–88. doi:10.1016/j.ienj.2009.05.004.
   Google Scholar
• Wagley LK, Newton SE. Emergency nurses’ use of psychosocial nursing interventions for management of ED patient fear and anxiety. J Emerg Nurs. 2010;36(5):415–419. doi:10.1016/j.jen.2009.07.022.
   Google Scholar
• Kerse N, Buetow S, Mainous A, Young G, Coster G, Arroll B. Physician-patient relationship medication compliance: A primary care investigation. Ann Fam Med. 2004;2(5):455–461. doi:10.1370/afm.139.
   Google Scholar
• Decty J, Fotopoulou A. Empathy has a beneficial impact on others in medicine: unifying theories. Front Behav Neurosci. 2015;8:457. DOI: 10.3389/fnbeh.2014.00457.
   Google Scholar
• Rhodes KV, Vieth T, He T, et al. Resuscitating the physician-patient relationship: Emergency department communication in an academic medical center. Ann Emerg Med. 2004;44(3):262–267. doi:10.1016/j.annemergmed.2004.02.035.
   Google Scholar
• Hermans L, Olde Hartman T, Dielissen PW. Differences between GP perception of delivered empathy and patient-perceived empathy: a cross-sectional study in primary care. Br J Gen Pract. 2018;68(674):e621–e626. doi:10.3399/bjgp18X698381.
   Google Scholar
• Hannan J, Sanchez G, Musser E, et al. Role of empathy in the perception of medical errors in patient encounters: a preliminary study. BMC Res Notes. 2019;12(1):327. doi:10.1186/s13104-019-4365-2.
   Google Scholar
• Maunder RG, Panzer A, Viljoen M, Owen J, Human S, Hunter JJ. Physicians’ difficulty with emergency department patients is related to patients’ attachment style. Soc Sci Med. 2006;63(2):552–562. doi:10.1016/j.socscimed.2006.01.001.
   Google Scholar
• Weston WW. Informed and shared decision-making: the crux of patient-centred care. CMAJ. 2001;165:438–439.
   Google Scholar