Assessing disutility associated with diabetic retinopathy, diabetic macular oedema and associated visual impairment using the Vision and Quality of Life Index

REFERENCES

• Cheung N, Wong T. Diabetic retinopathy and systemic complications. In: Duh E, ed. Diabetic Retinopathy. New Jersey: Humana Press, 2009. p 465–482.
   Google Scholar
• Wong T, Klein K. The epidemiology of eye diseases in diabetes. In: Ekoé J, Rewers M, Williams R, Zimmet P, eds. The Epidemiology of Diabetes Mellitus, 2nd ed. Oxford: John Wiley and Sons, 2008. p 475–497.
   Google Scholar
• Cheung N, Mitchell P, Wong T. Diabetic retinopathy. Lancet 2010; 376: 124–136.
   PubMed Web of Science ®Google Scholar
• Fenwick E, Pesudovs K, Rees G, Dirani M, Kawasaki R, Wong T, Lamoureux E. The impact of diabetic retinopathy: understanding the patient's perspective. Br J Ophthalmol 2010; 95: 774–782.
   Web of Science ®Google Scholar
• Fenwick E, Rees G, Pesudovs K, Dirani M, Kawasaki R, Wong T, Lamoureux E. Social and emotional impact of diabetic retinopathy: a review. Clin Experiment Ophthalmol 2011; 40: 27–38.
   Web of Science ®Google Scholar
• Brown MM, Brown GC, Sharma S, Shah G. Utility values and diabetic retinopathy. Am J Ophthalmol 1999; 128: 324–330.
   PubMed Web of Science ®Google Scholar
• Brown MM, Brown GC, Sharma S, Landy J, Bakal J. Quality of life with visual acuity loss from diabetic retinopathy and age‐related macular degeneration. Arch Ophthalmol 2002; 120: 481–484.
   PubMedGoogle Scholar
• Sharma S, Brown GC, Brown MM, Hollands H, Robins R, Shah GK. Validity of the time trade‐off and standard gamble methods of utility assessment in retinal patients. Br J Ophthalmol 2002; 86: 493–496.
   PubMed Web of Science ®Google Scholar
• Sharma S, Oliver‐fernandez A, Bakal J, Hollands H, Brown GC, Brown MM. Utilities associated with diabetic retinopathy: results from a Canadian sample. Br J Ophthalmol 2003; 87: 259–261.
   PubMed Web of Science ®Google Scholar
• Shah VA, Gupta SK, Shah KV, Vinjamaram S, Chalam KV. TTO utility scores measure quality of life in patients with visual morbidity due to diabetic retinopathy or ARMD. Ophthalmic Epidemiol 2004; 11: 43–51.
   PubMed Web of Science ®Google Scholar
• Huang ES, Brown SFS, Ewigman BG, Foley EC, Meltzer DO. Patient perceptions of quality of life with diabetes‐related complications and treatments. Diabetes Care 2007; 30: 2478–2483.
   PubMed Web of Science ®Google Scholar
• Tung TH, Chen SJ, Lee FL, Liu JH, Lin CH, Chou P. A community‐based study for the utility values associated with diabetic retinopathy among type 2 diabetics in Kinmen, Taiwan. Diabetes Res Clin Pract 2005; 68: 265–273.
   PubMed Web of Science ®Google Scholar
• Lee BS, Kymes SM, Nease RF, Sumner W, Siegfried CJ, Gordon MO. The impact of anchor point on utilities for 5 common ophthalmic diseases. Ophthalmology 2008; 115: 898–903.
   PubMed Web of Science ®Google Scholar
• Lloyd A, Nafees B, Gavriel S, Rousculp MD, Boye KS, Ahmad A. Health utility values associated with diabetic retinopathy. Diabet Med 2008; 25: 618–624.
   PubMed Web of Science ®Google Scholar
• Brazier JE, Ratcliffe J, Salomon J, Tsuchiya A. Measuring and Valuing Health Benefits for Economic Evaluation. Oxford, UK: Oxford University Press, 2007.
   Google Scholar
• Torrence G. Utility approach to measuring health‐related quality of life. J Chronic Dis 1987; 40: 593–600.
   Google Scholar
• Williams A. EuroQol—a new facility for the measurement of health‐related quality of life. Health Policy 1990; 16: 199–208.
   PubMed Web of Science ®Google Scholar
• Furlong WJ, Feeny DH, Torrance GW, Barr RD. The Health Utilities Index (HUI (R)) system for assessing health‐related quality of life in clinical studies. Ann Med 2001; 33: 375–384.
   PubMed Web of Science ®Google Scholar
• Sintonen H. The 15D instrument of health‐related quality of life: properties and applications. Ann Med 2001; 33: 328–336.
   PubMed Web of Science ®Google Scholar
• Brazier JE, Roberts J. The estimation of a preference‐based measure of health from the SF‐12. Med Care 2004; 42: 851–859.
   PubMed Web of Science ®Google Scholar
• Hawthorne G, Richardson J, Osborne R. The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health‐related quality of life. Qual Life Res 1999; 8: 209–224.
   PubMed Web of Science ®Google Scholar
• Bagust A, Beale S. Modelling EuroQol health‐related utility values for diabetic complications fromCODE‐2 data. Health Econ 2005; 14: 217–230.
   PubMed Web of Science ®Google Scholar
• Clarke P, Gray A, Holman R. Estimating utility values for health states of type 2 diabetic patients using the EQ‐5D (UKPDS 62). Med Decis Making 2002; 22: 340–349.
   PubMed Web of Science ®Google Scholar
• Smith DH, Johnson ES, Russell A, Hazlehurst B, Muraki C, Nichols GA, Oglesby A et al. Lower visual acuity predicts worse utility values among patients with type 2 diabetes. Qual Life Res 2008; 17: 1277–1284.
   Web of Science ®Google Scholar
• Langelaan M, De boer M, Van nispen R, Wouters B, Moll A, Van rens G. Impact of visual impairment on quality of life: a comparison with quality of life in the general population and with other chronic conditions. Ophthalmic Epidemiol 2007; 14: 119–126.
   PubMed Web of Science ®Google Scholar
• Kontodimopoulos N, Pappa E, Chadjiapostolou Z, Arvanitaki E, Papadopoulos AA, Niakas D. Comparing the sensitivity of EQ‐5D, SF‐6D and 15D utilities to the specific effect of diabetic complications. Eur J Health Econ 2010; 13: 111–120.
   Web of Science ®Google Scholar
• Sakamaki H, Ikeda S, Ikegami N, Uchigata Y, Iwamoto Y, Origasa H, Otani T et al. Measurement of HRQL using EQ‐5D in patients with type 2 diabetes mellitus in Japan. Value Health 2006; 9: 47–53.
   PubMed Web of Science ®Google Scholar
• Glasziou P, Alexander J, Beller E, Clarke P, ADVANCE Collaborative Group. Which health‐related quality of life score? A comparison of alternative utility measures in patients with type 2 diabetes in the ADVANCE trial. Health Qual Life Outcomes 2007; 5: 21.
   PubMed Web of Science ®Google Scholar
• Solli O, Stavem K, Kristiansen IS. Health‐related quality of life in diabetes: the associations of complications with EQ‐5D scores. Health Qual Life Outcomes 2010; 8: 18.
   PubMed Web of Science ®Google Scholar
• Mitchell P, Bandello F, Schmidt‐erfurth U, Lang GE, Massin P, Schlingemann RO, Sutter F et al. The RESTORE study: ranibizumab monotherapy or combined with laser versus laser monotherapy for diabetic macular edema. Ophthalmology 2011; 118: 615–625.
   PubMed Web of Science ®Google Scholar
• Fenwick E, Xie J, Ratcliffe R, Pesudovs K, Finger R, Wong T, Lamoureux E. The impact of diabetic retinopathy and diabetic macular oedema on health‐related quality of life in type 1 and type 2 diabetes. Invest Ophthalmol Vis Sci 2011; 53: 677–784.
   Web of Science ®Google Scholar
• Hays RD, Hahn H, Marshall G. Use of the SF‐36 and other health‐related quality of life measures to assess persons with disabilities. Arch Phys Med Rehabil 2002; 83: S4–S9.
   PubMed Web of Science ®Google Scholar
• Brenner M, Curbow B, Legro MW. The proximal‐distal continuum of multiple health outcomes measures: the case of cataract surgery. Med Care 1995; 33 (Suppl 4): AS236–AS244.
   PubMed Web of Science ®Google Scholar
• Hahl J, Hamalainen H, Sintonen H, Simell T, Arinen S, Simell O. Health‐related quality of life in type 1 diabetes without or with symptoms of long‐term complications. Qual Life Res 2002; 11: 427–436.
   PubMed Web of Science ®Google Scholar
• Misajon R, Hawthorne G, Richardson J, Barton J, Peacock S, Iezzi A, Keeffe J. Vision and quality of life: the development of a utility measure. Invest Ophthalmol Vis Sci 2005; 46: 4007–4015.
   PubMed Web of Science ®Google Scholar
• Peacock S, Misajon R, Iezzi A, Richardson J, Hawthorne G, Keeffe J. Vision and quality of life: development of methods for the VisQoL vision‐related utility instrument. Ophthalmic Epidemiol 2008; 15: 218–223.
   PubMed Web of Science ®Google Scholar
• Lamoureux EL, Fenwick E, Xie J, Mcauley A, Nicolaou T, Larizza M, Rees G et al. Methodology and early findings of the Diabetes Management Project: a cohort study investigating the barriers to optimal diabetes care in diabetic patients with and without diabetic retinopathy Clin Experiment Ophthalmol 2012; 40: 73–82.
   Web of Science ®Google Scholar
• Wilkinson CP, Ferris III FL, Klein RE, Lee PP, Agardh CD, Davis M, Dills D et al. Proposed international clinical diabetic retinopathy and diabetic macular edema disease severity scales. Ophthalmology 2003; 110: 1677–82.
   PubMed Web of Science ®Google Scholar
• Bharmal M, Thomas J. Comparing the EQ‐5D and the SF‐6D descriptive systems to assess their ceiling effects in the US general population. Value in Health 2006; 9: 262–271.
   PubMed Web of Science ®Google Scholar
• Buchinsky M. Recent advances in quantile regression models: a practical guideline for empirical research. J Human Resources 1998; 33: 88–126.
   Web of Science ®Google Scholar
• Ahola AJ, Saraheimo M, Forsblom C, Hietala K, Sintonen H, Groop PH. Health‐related quality of life in patients with type 1 diabetes‐association with diabetic complications (the FinDiane Study). Nephrol Dial Transplant 2010; 25: 1903–1908.
   PubMed Web of Science ®Google Scholar
• Bradley C. Importance of differentiating health status from quality of life. Lancet 2001; 357: 7–8.
   PubMed Web of Science ®Google Scholar
• Bilbao A, Quintana JM, Escobar A, Garcia S, Andradas E, Bare M, Elizalde B. Responsiveness and clinically important differences for the VF‐14 index, SF‐36, and visual acuity in patients undergoing cataract surgery. Ophthalmology 2009; 116: 418–424.
   Web of Science ®Google Scholar
• Lamoureux EL, Pesudovs K. Vision‐specific quality of life research: a need to improve the quality. Am J Ophthalmol 2011; 151: 195–197.
   PubMed Web of Science ®Google Scholar
• Kaplan RM, Tally S, Hays RD, Feeny D, Ganiats TG, Palta M, Fryback DG. Five preference‐based indexes in cataract and heart failure patients were not equally responsive to change. J Clin Epidemiol 2010; 64: 497–506.
   PubMed Web of Science ®Google Scholar