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Hematology Volume 17, 2012 - Issue sup1
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Original Article

Ensuring maximum outcomes and benefits in comprehensive care for bleeding disorders through surveillance and data collection

Mark W SkinnerWorld Federation of Hemophilia, Washington, DC, USACorrespondence[email protected]
Pages s147-s149 | Published online: 12 Nov 2013

References

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  • World Federation of Hemophilia. Guidelines for the management of hemophilia. Montreal (Que): World Federation of Hemophilia; 2005.
  • Colvin BT, Astermark J, Fischer K, Gringeri A, Lassila R, Schramm W, et al.. European principles of haemophilia care. Haemophilia. 2008;14:361–74.
  • Evatt BL. The natural evolution of haemophilia care: developing and sustaining comprehensive care globally. Haemophilia. 2006;12:13–21.
  • Soucie JM, Nuss R, Evatt B, Abdelhak A, Cowan L, Hill H, et al.. Mortality among males with hemophilia: relations with source of medical care. Blood. 2000;96:437–42.
  • Skinner MW. Haemophilia: provision of factors and novel therapies: World Federation of Hemophilia goals and achievements. Br J Haematol. 2011;154:704–14.
  • Skinner MW. WFH — the cornerstone of global development: 45 years of progress. Haemophilia. 2008;14:1–9.
  • Evatt B. Guide to developing a national patient registry. Montreal (Que): World Federation of Hemophilia; 2005.
  • European Haemophilia Consortium. Summary report of EHC Policy Roundtable on the Role of Patient Registries for People with Haemophilia. Montreal (Que): European Haemophilia Consortium; 2007.
  • Stonebraker JS, Bolton-Maggs PHB, Michael Soucie J, Walker I, Brooker M. A study of variations in the reported haemophilia: a prevalence around the world. Haemophilia. 2010;16:20–32.
  • World Federation of Hemophilia. WFH report on the Annual Global Survey 2010 [document on the Internet]. Montreal (Que): World Federation of Hemophilia; 2011 [cited 2012 Jan 15]. Available from: http://www.wfh.org/2/docs/Publications/Statistics/2010_WFH_Global_Survey_Report.pdf

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