The plurality of payers’ perspectives on hematopoietic stem cell transplantation

References

• Pasquini MC, Wang Z. Current use and outcome of hematopoietic stem cell transplantation: CIBMTR Summary Slides. Available at: http://www.cibmtr.org (accessed 4 January 2012).
   Google Scholar
• Hahn T, McCarthy PL, Hassebroek A, Klein J, Rizzo JD, Parsons SK, et al.. Significant improvement in day 100 and 1-year overall survival in patients who underwent myeloablative allogeneic hematopoietic cell transplant in the US or Canada between 1994 and 2005.Blood. 2010;116:3509 (abstract).
   Google Scholar
• Gooley TA, Chien JW, Pergam SA, Hingorani S, Sorror ML, Boeckh M, et al.. Reduced mortality after allogeneic hematopoietic-cell transplantation.N Engl J Med.2010; 363: 2091–101.
   Google Scholar
• Barr RD, Feeny D, Furlong W. Economic evaluation of treatments for cancer in childhood.Eur J Cancer.2004; 40: 1335–45.
   Google Scholar
• Schulman KA, Yabroff KR. Measuring the cost-effectiveness of cancer care.Oncology.1995; 9: 523–30, 3.
   Google Scholar
• Wong YN, Hamilton O, Egleston B, Salador K, Murphy C, Meropol NJ. Understanding how out-of-pocket expenses, treatment value, and patient characteristics influence treatment choices.Oncologist.2010; 15: 566–76.
   Google Scholar
• Barr RD, Sala A. Hidden financial costs in the treatment for childhood cancer.J Pediatr Hematol Oncol.2003; 25: 842–4.
   Google Scholar
• American Hospital Association. Hospitals continue to feel lingering effects of the economic recession. Available at: http://www.aha.org/presscenter/pressrel/2010/100623-pr-recessionimpact.shtml (accessed 5 January 2012).
   Google Scholar
• Majhail NS, Mothukuri JM, Brunstein CG, Weisdorf DJ. Costs of hematopoietic cell transplantation: comparison of umbilical cord blood and matched related donor transplantation and the impact of post-transplant complications.Biol Blood Marrow Transplant.2009; 15: 564–73.
   Google Scholar
• Majhail NS, Mothukuri JM, MacMillan ML, Verneris MR, Orchard PJ, Wagner JE, et al.. Costs of pediatric allogeneic hematopoietic-cell transplantation.Pediatr Blood Cancer.2010; 54: 138–43.
   Google Scholar
• Parsons SK, Weidner RA, Guinan EC. Implications of global pricing in pediatric stem cell transplantation: risk minimization strategies.Biol Blood Marrow Transplant. 2001; 7: 84 (abstract).
   Google Scholar
• Schulman KA, Birch R, Zhen B, Pania N, Weaver CH. Effect of CD34+ cell dose on resourse utilization in patients after high-dose chemotherapy with peripheral-blood stem-cell support.J Clin Oncol.1999; 17: 1227–33.
   Google Scholar
• Cordonnier C, Maury S, Esperou H, Pautas C, Beaune J, Rodet M, et al.. Do minitransplants have minicosts? A cost comparison between myeloablative and nonmyeloablative allogeneic stem cell transplant in patients with acute myeloid leukemia.Bone Marrow Transplant.2005; 36: 649–54.
   Google Scholar
• Farah RA, Aquino VM, Munoz LL, Sandler ES. Safety and cost-effectiveness of outpatient total body irradiation in pediatric patients undergoing stem cell transplantation.J Pediatr Hematol Oncol.1998; 20: 319–21.
   Google Scholar
• Applegate GL, Mittal BB, Kletzel M, Morgan E, Johnson P, Danner K, et al.. Outpatient total body irradiation prior to bone marrow transplantation in pediatric patients: a feasibility analysis.Bone Marrow Transplant.1998; 21: 651–2.
   Google Scholar
• Peters WP, Ross M, Vredenburg JJ, Hussein A, Rubin P, Dukelow K, et al.. The use of intensive clinic support to permit outpatient autologous bone marrow transplantation for breast cancer.Semin Oncol. 1994; 4Suppl 7: 25–31.
   Google Scholar
• Rizzo JD, Vogelsang GB, Krumm S, Frink B, Mock V, Bass EB. Outpatient-based bone marrow transplantation for hematologic malignancies: Cost saving or cost shifting?J Clin Oncol.1999; 17: 2811–8.
   Google Scholar
• Kim P. Cost of cancer care: the patient perspective.J Clin Oncol.2007; 25: 228–32.
   Google Scholar
• Cohn RJ, Goodenough B, Foreman T, Suneson J. Hidden financial costs in treatment for childhood cancer: an Australian study of lifestyle implications for families absorbing out-of-pocket expenses.J Pediatr Hematol Oncol.2003; 25: 854–63.
   Google Scholar
• Meehan KR, Fitzmaurice T, Root L, Kimtis E, Patchett L, Hill J. The financial requirements and time commitments of caregivers for autologous stem cell transplant recipients.J Support Oncol.2006; 4: 187–90.
   Google Scholar
• Goossens ME, Molken Rutten-vanMP, Vlaeyen JW, van der Linden SM. The cost diary: a method to measure direct and indirect costs in cost-effectiveness research.J Clin Epidemiol.2000; 53: 688–95.
   Google Scholar
• Lauzier S, Maunsell E, Drolet M, Coyle D, Hebert-Croteau N. Validity of information obtained from a method for estimating cancer costs from the perspective of patients and caregivers.Qual Life Res.2010; 19: 177–89.
   Google Scholar
• Dicker M, Sunshine JH. Determinants of financially burdensome family health expenses: United States, 1980. Hyattsville (MD): US Department of Health and Human Services, Public Health Service, National Center for Health Statistics; 1988. p. 1–66.
   Google Scholar
• Grumbach K, Bodenheimer T. Mechanisms for controlling costs.JAMA.1995; 273: 1223–30.
   Google Scholar
• Bernard D, Banthin J. Family level expenditures on health care and insurance premiums among the nonelderly population, 2006. Rockville, MD: Agency for Healthcare Research and Quality; 2009. Report No. Research Findings No. 29.
   Google Scholar
• Newacheck PW, Inkelas M, Kim SE. Health services use and health care expenditures for children with disabilities.Pediatrics.2004; 114: 79–85.
   Google Scholar
• Limburg H, Shaw AK, McBride ML. Impact of childhood cancer on parental employment and sources of income: a Canadian pilot study.Pediatr Blood Cancer.2008; 51: 93–8.
   Google Scholar
• Miedema B, Easley J, Fortin P, Hamilton R, Mathews M. The economic impact on families when a child is diagnosed with cancer.Curr Oncol.2008; 15: 173–8.
   Google Scholar
• Lerner D, Amick BC, III, Rogers WH, Malspeis S, Bungay K, Cynn D. The work limitations questionnaire.Med Care.2001; 39: 72–85.
   Google Scholar
• Burton WN, Chen CY, Conti DJ, Pransky G, Edington DW. Caregiving for ill dependents and its association with employee health risks and productivity.J Occup Environ Med.2004; 46: 1048–56.
   Google Scholar
• Parsons S, Terrin N, Ratichek S, Tighiouart H, Recklitis CJ, Chang G. Trajectories of HRQL following pediatric hematopoietic stem cell transplantation (HSCT). QLR J. 2009;A–44:Abstract1420.
   Google Scholar
• Parsons SK, Barlow SE, Levy SL, Supran SE, Kaplan SH. Health-related quality of life in pediatric bone marrow transplant survivors: according to whom?Int J Cancer Suppl.1999; 12: 46–51.
   Google Scholar
• Parsons SK, Shih MC, Mayer DK, Barlow SE, Supran SE, Levy SL, et al.. Preliminary psychometric evaluation of the Child Health Ratings Inventories (CHRIs) and Disease-Specific Impairment Inventory-HSCT (DSII-HSCT) in parents and children.Qual Life Res.2005; 14: 1613–25.
   Google Scholar
• Parsons SK, Shih MC, DuHamel KN, Ostroff J, Mayer DK, Austin J, et al.. Maternal perspectives on children’s health-related quality of life during the first year after pediatric hematopoietic stem cell transplant.J Pediatr Psychol.2006; 31: 1100–15.
   Google Scholar
• Kelly MJ, Pennarola BW, Rodday AM, Parson SK, on behalf of the Journeys to Recovery Study and the HSCT-CHESS Study. Health-related quality of life (HRQL) in children with sickle cell disease and thalassemia following hematopoietic stem cell transplant (HSCT). Pediatr Blood Cancer. 2011 Dec 19.
   Google Scholar
• US Department of Health and Human Services HRaSAMaCHB. Families of CSHCN have adequate private and/or public insurance to pay for the services they need. The National Survey of Children with Special Health Care Needs Chartbook 2005–2006. Rockville (MD): US Department of Health and Human Services; 2008.
   Google Scholar
• McCubbin H, Patterson J, Wilson L. Family inventory of life events and changes (FILE, 1983). In: McCubbin H, Thompson A, editors. Family assessment inventories for research and practice. Madison (WI): University of Wisconsin-Madison; 1991. p. 81–98.
   Google Scholar
• Leske JS, Jiricka MK. Impact of family demands and family strengths and capabilities on family well-being and adaptation after critical injury.Am J Crit Care.1998; 7: 383–92.
   Google Scholar
• Starzomski R, Hilton A. Patient and family adjustment to kidney transplantation with and without an interim period of dialysis.Nephrol Nurs J.2000; 27: 17–821–32.
   Google Scholar