1,934
Views
11
CrossRef citations to date
0
Altmetric
HEMOGLOBINOPATHY

Impact of educational programme regarding chelation therapy on the quality of life for B-thalassemia major children

, , &

References

  • Hoffman R. Haemetology: basic principles and practices. 5th ed. Philadelphia: Churchill Livingstone; 2009. p. 535–63.
  • Galanello R, Origa R. Beta-thalassemia. Orphanet J Rare Dis. 2010;5:11.
  • Giardina PJ, Forget BG. Thalassemia syndromes. In: Hoffman R, Benz EJ, Shattil SS, Furie B, Silberstein LE, et al., (eds.) Hematology: basic principles and practice. 5th ed. Philadelphia, PA: Elsevier Churchill Livingstone; 2008. Chap 41.
  • EL-Beshlawy A. The Egyptian experience with oral iron chelators. Hematology. 2005;10(1):174–5.
  • Olivieri NF, Brittenham GM. Iron-chelating therapy and the treatement of thalassemia. Blood. 1997;1(89):739–61.
  • Hassan K, Aslam MI. Parental knowledge and awareness in cases of thalassemia major. J Pak Inst Med Sci. 2002;13:623–6.
  • Brittenham GM, Nathan DG, Olivieri NF, Pippard MJ, Weatherall DJ. Deferiprone versus desferrioxamine in thalassemia and validation & utility. Lancet 2003;361(9352):183.
  • Abetz L, Baladi J, Jones P, Rofail D. The impact of iron overload and its treatment on quality of life: results from a literature review. Health Qual Life Outcomes 2006;4:73.
  • Dahlui M, Hishamshah MI, Rahman JM, Junids M. Quality of life in transfusion dependent thalassemia patients on desferrioxamine treatment. Singapore Med. J. 2009;50(8):794–9.
  • Bastable SB. Nurse as educator, principles of teaching and learning for nursing practice. 2nd ed. London: Mosby Company; 2003. p. 120–3.
  • Varni JW, Katz ER, Seid M, Quiggins DJ, Friedman-Bender A, Castro CM. The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument development, descriptive statistics, and cross-informant variance. Behav Med. 1998;21(2):179–204.
  • Arif F, Fayyaz J, Hamid A. Awareness among parents of children with thalassemia major. J Pak Med Association 2008;58(11):621–4.
  • Mazzone L, Battaglia L, Andreo F, Romeo MA, Mazzone D. Emotional impact in beta-thalassemia major children following cognitive-behavioural family therapy and quality of life of caregiving mothers. Clin Pract Epidemiol Ment Health 2009;5:5.
  • Rund D, Rachmilewitz E. Beta-thalassemia. N Engl J Med. 2005;353(11):1135–46.
  • Datta, P. Pediatric nursing. 2nd ed. New Delhi: Jaypee brothers medical publishers; 2009. p. 342–4.
  • NHLBI. National Heart, Lung, and Blood Institute. What are thalassemias? 2010. Available from: httb://www.nhlbi.nih.gov/health/dci/Diseases/Thalassemia/Thalassemia
  • Cazzola M, Borgna-Pignatti C, Locatelli F, Ponchio L, Beguin Y, De Stefano P. A moderate transfusion regimen may reduce iron loading in beta-thalassemia major without producing excessive expansion of erythropoiesis. Transfusion 1997;37(2):135–40.
  • Ishaq F, Abid H, Kokab F, Akhtar A, Mahmood S. Awareness among parents of B-thalassemia major patients, regarding prenatal diagnosis and premarital screening. J Coll Phys Surg Pak. 2012;22(4):218–21.
  • Pooya AA, Doroudchi M. Thalassemia major and consanguinity in Shiraz city, Iran. Turk J Haematol. 2004;21:127–30.
  • Al-mosooi KM. Assessment of health quality of life upon school age children (6–12) with thalassemia at thalassemia centre In Ibn- Baladi Hospital. TQMJ. 2011;5(2):100–8.
  • Hashim SF. Thalassemic children and their mothers understanding: Effect on compliance to thalassemia management plan. Doctorate thesis, pediatric nursing, Faculty of Nursing, Ain shams University; 2006.
  • Yaish HM. Paediatric thalassemia treatment and management, max J. Coppes MD Phd; 2010. Available from: http://emedicine.medscape.com/article/958850-diagnosis
  • Kwiatkowski JL. Real-world use of iron chelators, Children's Hospital of Philadelphia and University of Pennsylvania School of Medicine, Philadelphia, PA. Am Soc Hematol. 2012;(1):451–8.
  • Beatrice G. Iron overload and chelation therapy. Sickle cell information centre. 2010. Available from: http://www.google.com
  • Armeli C, Robbins SJ, Eunpu D. Comparing knowledge of beta-thalassemia in samples of Italians, Italian-Americans and non-Italian-Americans. J Genet Couns. 2005;14(5):365–76.
  • Telfer P, Constantinidou G, Andreou P, Christou S, Modell B, Angastiniotis M. Quality of life in thalassemia. Ann NY A Cad Sci. 2005;1054:273–82.
  • Ismail A, Campbell MJ, Ibrahim HM, Jones GL. Health related quality of life in Malaysian children with thalassaemia. Health Qual Life Outcomes 2006;4:39.
  • Shaligram D, Girimaji SC, Chaturvedi SK. Psychological problems and quality of life in children with thalassemia. Indian J Pediatr. 2007;74(8):727–30.
  • Wonke B. Clinical management of beta-Thalassaemia Major Semin. Hematology 2001;38(4):350–9.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.