The effect of caring on post-bereavement outcome: Research gaps and practice priorities

References

• World Health Organization. Global status report on noncommunicable diseases 2010. Geneva: World Health Organization; 2011 [accessed 2011 November 21]. Available from: http://www.who.int/nmh/publications/ncd_report2010/en/index.html.
   Google Scholar
• World Health Organization. Noncommunicable diseases country profiles 2011. Geneva: World Health Organization; 2011 [accessed 2011 November 21]. Available from: http://www.who.int/nmh/publications/ncd_report2010/en/index.html.
   Google Scholar
• Aoun S, Connors S, Priddis L, Breen LJ, Colyer S. Motor neurone disease family carers’ experiences of caring and bereavement: an exploratory qualitative study. Palliat Med 2011; doi: 10.1177/0269216311416036.
   Web of Science ®Google Scholar
• Aoun SM, Kristjanson LJ, Currow DC, Hudson PL. Caregiving for the terminally ill: at what cost? Palliat Med 2005;19:551–5.
   PubMed Web of Science ®Google Scholar
• McNamara B, Rosenwax L. Which carers of family members at the end of life need more support from health services and why? Soc Sci Med 2010;70:1035–41.
   PubMed Web of Science ®Google Scholar
• Guilfoyle A, Breen L, Fisher C, O'Connor M. Understanding the burden on palliative care home carers: a phenomenological account. Int J Interdiscip Soc Sci 2008;3(8):39–48.
   Google Scholar
• Haines IE. Managing patients with advanced cancer: the benefits of early referral for palliative care. Med J Aust 2011;194:107–8.
   PubMed Web of Science ®Google Scholar
• Berg-Weger M, Rubio DM, Tebb SS. Strengths-based family practice with family caregivers of the chronically ill: qualitative insights. Fam Soc 2001;82:263–72.
   Web of Science ®Google Scholar
• Boerner K, Schulz R, Horowitz A. Positive aspects of caregiving and adaptation to bereavement. Psychol Aging 2004;19:668–75.
   PubMed Web of Science ®Google Scholar
• Australian Bureau of Statistics. A profile of carers in Australia. (Cat. No. 4448.0), Canberra, Australia: Australian Bureau of Statistics; 2008 [accessed 2009 December 15]. Available from: http://www.abs.gov.au/AUSSTATS/[email protected]/DetailsPage/4448.02008?OpenDocument.
   Google Scholar
• Eiser C, Upton P. Costs of caring for a child with cancer: a questionnaire survey. Child: Care Health Dev 2006;33:455–9.
   Web of Science ®Google Scholar
• Hayman JA, Langa KM, Kabeto MU, Katz SJ, DeMonner SM, Chernew ME, et al. Estimating the cost of informal caregiving for elderly patients with cancer. J Clin Oncol 2001;19:3219–25.
   PubMed Web of Science ®Google Scholar
• Ontario Human Rights Commission. The cost of caring: report on the consultation on discrimination on the basis of family status. Ontario Human Rights Commission; 2006 [accessed 2009 January 30]. Available from: http://www.ohrc.on.ca/en/resources/discussion_consultation/famconsult/pdf.
   Google Scholar
• Bee PE, Barnes P, Luker KA. A systematic review of informal caregivers’ needs in providing home-based end-of-life care to people with cancer. J Clin Nurs 2009;18:1379–93.
   PubMed Web of Science ®Google Scholar
• Wong M-S, Chan SW-C. The experiences of Chinese family members of terminally ill patients – a qualitative study. J Clin Nurs 2007;16:2357–64.
   PubMed Web of Science ®Google Scholar
• National Audit Office. End of life care: report by the Comptroller and Auditor General. London: The Stationery Office; 2008 [accessed 2009 February 2]; Available from: http://www.nao.org.uk/publications/0708/end_of_life_care.aspx.
   Google Scholar
• McLaughlin D, Sullivan K, Hasson F. Hospice at Home service: the carer's perspective. Support Care Cancer 2007;15:163–70.
   PubMed Web of Science ®Google Scholar
• Vanderwerker LC, Laff RE, Kadan-Lottick NS, McColl S, Prigerson HG. Psychiatric disorders and mental health service use among caregivers of advanced cancer patients. J Clin Oncol 2005;23:6899–907.
   PubMed Web of Science ®Google Scholar
• Galfin JM, Watkins ER. Construal level, rumination, and psychological distress in palliative care. Psychooncology 2011; doi: 10.1002/pon.1948.
   PubMed Web of Science ®Google Scholar
• Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med 2011;26:7–22.
   PubMed Web of Science ®Google Scholar
• Schulz R, Boerner K, Hebert RS. Caregiving and bereavement. In: , Stroebe MS, Hansson RO, Schut H, Stroebe W (eds.) Handbook of bereavement research and practice: advances in theory and intervention. Washington, DC: American Psychological Association; 2008. p. 265–85.
   Google Scholar
• Lindemann E. Symptomatology and management of acute grief. Am J Psychiatry 1944;101:141–8.
   Web of Science ®Google Scholar
• Parkes CM, Weiss RS. Recovery from bereavement. New York: Basic Books; 1983.
   Google Scholar
• Breen LJ, O'Connor M. The fundamental paradox in the grief literature: a critical reflection. Omega– J Death Dying 2007;55:199–218.
   PubMed Web of Science ®Google Scholar
• Saldinger A, Cain AC. Deromanticizing anticipated death: denial, disbelief, and disconnection in bereaved spouses. J Psychosoc Oncol 2004;23(3):69–92.
   Google Scholar
• Schulz R, Newsom JT, Fleissner K, deCamp AR, Nieboer AP. The effects of bereavement after family caregiving. Aging Ment Health 1997;1:269–82.
   Web of Science ®Google Scholar
• Bonanno GA, Boerner K, Wortman CB. Trajectories of grieving. In: , Stroebe MS, Hansson RO, Schut H, Stroebe W (eds.) Handbook of bereavement research and practice: Advances in theory and intervention. Washington, DC: American Psychological Association; 2008. p. 287–307.
   Google Scholar
• Aneshensel CS, Botticello AL, Yamamoto-Mitani N. When caregiving ends: the course of depressive symptoms after bereavement. J Health Soc Behav 2004;45:422–40.
   PubMed Web of Science ®Google Scholar
• Bonnano GA, Moskowitz JT, Papa A, Folkman S. Resilience to loss in bereaved spouses, bereaved parents, and bereaved gay men. J Pers Soc Psychol 2005;88:827–43.
   PubMed Web of Science ®Google Scholar
• Hebert R, Dang Q, Schulz R. Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH study. J Palliat Med 2006;9:683–93.
   PubMed Web of Science ®Google Scholar
• Dumont I, Dumont S, Mongeau S. End-of-life care and the grieving process: family caregivers who have experienced the loss of a terminal-phase cancer patient. Qual Health Res 2008;18:1049–61.
   PubMed Web of Science ®Google Scholar
• Grande GE, Farquhar MC, Barclay SIG, Todd CJ. Caregiver bereavement outcome: relationship with hospice at home, satisfaction with care, and home death. J Palliat Care 2004;20(2):69–77.
   PubMed Web of Science ®Google Scholar
• Koop PM, Strang VR. The bereavement experience following home-based family caregiving for persons with advanced cancer. Clin Nurs Res 2003;12:127–44.
   PubMedGoogle Scholar
• Gilliland G, Fleming S. A comparison of spousal anticipatory grief and conventional grief. Death Stud 1998;22:541–69.
   PubMed Web of Science ®Google Scholar
• Kelly B, Edwards P, Synott R, Neil C, Baillie R, Battistutta D. Predictors of bereavement outcome for family carers of cancer patients. Psychooncology 1999;8:237–49.
   PubMed Web of Science ®Google Scholar
• Ferrario SR, Cardillo V, Vacario F, Balzarini E, Zotti AM. Advanced cancer at home: caregiving and bereavement. Palliat Med 2004;18:129–36.
   PubMed Web of Science ®Google Scholar
• O'Mara AM, St. Germain D, Ferrell B, Bornemann T. Challenges to and lessons learned from conducting palliative care research. J Pain Symptom Manage 2009;37:387–94.
   PubMed Web of Science ®Google Scholar
• Lobb EA, Kristjanson L, Aoun S, Monterosso L, Halkett GKB, Davies A. Predictors of complicated grief: a systematic review of empirical studies. Death Stud 2010;34:1–26.
   PubMed Web of Science ®Google Scholar
• Prigerson HG, Vanderwerker LC, Maciejewski PK. A case for inclusion of prolonged grief disorder in DSM-IV. In: , Stroebe MS, Hansson RO, Schut H, Stroebe W (eds.) Handbook of bereavement research and practice: advances in theory and intervention. Washington, DC: American Psychological Association; 2008. p. 165–86.
   Google Scholar
• Abbott J, O'Connor M, Payne S. An Australian survey of palliative care and hospice bereavement services. Aust J Cancer Nurs 2008;9(2):12–7.
   Google Scholar
• Aoun S, Breen LJ, O'Connor M, Nordstrom C, Rumbold B. A public health approach to bereavement support services in palliative care. Aust N Z J Public Health 2012;36:14–6.
   PubMed Web of Science ®Google Scholar
• deCinque N, Monterosso L, Dadd G, Sidhu R, Macpherson R, Aoun S. Bereavement support for families following the death of a child from cancer: experience of bereaved parents. J Psychosoc Oncol 2006;24(2):65–83.
   PubMed Web of Science ®Google Scholar
• Mather MA, Good PD, Cavenagh JD, Ravenscroft PJ. Survey of bereavement support provided by Australian palliative care services. Med J Aust 2008;188:228–30.
   PubMed Web of Science ®Google Scholar
• O'Connor M, Abbott J, Payne S, Demmer C. A comparison of bereavement services provided in hospice and palliative care settings in Australia, the UK and the USA. Prog Palliat Care 2009;17(2):69–74.
   Google Scholar
• National palliative care strategy. Commonwealth of Australia. Barton, Australian Capital Territory, Australia; 2010 [accessed 2011 September 21]. Available from: http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-strategy.htm.
   Google Scholar
• National Hospice and Palliative Care Organization. Guidelines for bereavement care in hospice. 2nd edn. Alexandria, VA: Author 2008.
   Google Scholar
• National Institute for Health and Clinical Excellence. Guidance on cancer services: Improving supportive and palliative care for adults with cancer. The Manual. London: National Institute for Health and Clinical Excellence; 2004 [accessed 2011 January 25]. Available from: http://guidance.nice.org.uk/CSGSP/Guidance/pdf/English.
   Google Scholar
• Hudson PL, Remedios C, Thomas K. A systematic review of psychosocial interventions for family carers and palliative care patients. BMC Palliat Care 2010;9:17.
   PubMedGoogle Scholar
• Palliative Care Australia. National Standards Assessment Program: National quality report. Deakin West, Australian Capital Territory, Australia: Palliative Care Australia; 2010 [accessed 2011 September 21]. Available from: http://www.standards.palliativecare.org.au/Portals/20/NSAP%20National%20Quality%20Report.pdf.
   Google Scholar
• de Kok IMCM, Polder JJ, Habbema JDF, Berkers L-M, Merding WJ, Rebolj M, et al. The impact of healthcare costs in the last year of life and in all life years gained on the cost-effectiveness of cancer screening. Br J Cancer 2009;100:1240–4.
   PubMed Web of Science ®Google Scholar
• Kardamandias K, Lim K, Da Cunha C, Taylor LK, Jorm LR. Hospital costs of older people in New South Wales in the last year of life. Med J Aust 2007;87:383–6.
   Google Scholar
• Grande G, Stajduhar K, Aoun S, Toye C, Funk L, Addington-Hall J, et al. Supporting lay carers in end of life care: current gaps and future priorities. Palliat Med 2009;23:339–44.
   PubMed Web of Science ®Google Scholar