956
Views
27
CrossRef citations to date
0
Altmetric
Research Papers

Quality of life and social inclusion across the lifespan: challenges and recommendations

, &

References

  • Algozzine B, Browder D, Karvonen M, Test DW and Wood WM. 2001. Effects of interventions to promote self-determination for individuals with disabilities. Review of Educational Research, 71, 219–277.
  • Barron K. 2001. Autonomy in everyday life, for whom? Disability & Society, 16, pp.431–447.
  • Beach Center on Disability, 2005. The Beach Center family quality of life scale. Lawrence, KS: Beach Center, The University of Kansas, in partnership with families, service providers and researchers.
  • Begun A. 1996. Family systems and family-centered care. In: Rosin P, Jesien G S, Whitehead A D and Begun A L, eds. Partnerships in family-centered care: a guide to collaborative early intervention. Baltimore, MD: Paul H Brookes , pp.33–63.
  • Bertoli M, Biasini G, Calignano MT, Celani G, De Grossi G, Digilio MCFermariello, C. C, Loffredo G, Luchino F, Marchese M, Mazotti S, Menghi B, Razzano C, Tiano C, Zambon Hobart A, Zampino G and Zuccalà G. 2011. Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy. Journal of Intellectual Disability Research, 55, 801–820.
  • Bollard M. 2009. Intellectual disability and social inclusion: a critical review. London: Churchill Livingstone, 5–18.
  • Brown I and Brown RI. 2003. Quality of life and disability: an approach for community practitioners. London: Jessica Kingsley.
  • Brown I and Brown RI. 2009. Choice as an aspect of quality of life for people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 6, 11–18.
  • Brown RI. 2007. Roles, education, training and professional values of disability personnel. In: Brown I and Percy M, eds. A comprehensive guide to intellectual and developmental disabilities. Baltimore, MD: Paul H. Brookes, pp.415–432.
  • Brown RI. 2011. Quality of life: dimensions, perceptions and practice. In: Jackson R, ed. Discovering Camphill: new perspectives, research and developments. Edinburgh: , pp.254–271.
  • Brown RI, Bayer MB and MacFarlane C. 1989. Rehabilitation programmes: performance and quality of life of adults with developmental handicaps. Toronto: Lugus Productions Ltd.
  • Brown RI and Brown I. 2014. Family quality of life. In: Michalos A C, ed. Encyclopedia of quality of life and well-being research. Dordrecht: Springer, pp.2194–2202.
  • Brown RI, Kyrkou MR and Samuel PR. (in press) Family quality of life in families where there is a person with intellectual and developmental disabilities. In: Rubin L, Merrick J, Greydanus D E and Patel D R, eds. Health care for people with intellectual and developmental disabilities across the lifespan. 3rd ed. Dordrecht: Springer.
  • Brown RI, Geider S, Primrose A and Jokinen N. 2011. Family life and the impact of previous and present residential and day care support for children with major cognitive and behavioural challenges: a dilemma for services and policy. Journal of Intellectual Disability Research, 55, 904–916.
  • Brown RI, MacAdam-Crisp J, Wang M and Iarocci G. 2006. Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 3, 238–246.
  • Buckmaster L and Thomas M. 2009. Social inclusion and social citizenship — towards a truly inclusive society. Canberra: Parliament of Australia, Research Paper No. 08 2009–2010.
  • Carter B and McGoldrick M. 1989. The changing family life cycle: a framework for family therapy. 2nd ed. London: Prentice-Hall.
  • Clegg J, Murphy E, Almack K and Harvey A. 2008. Tensions around inclusion: reframing the moral horizon. Journal of Applied Research in Intellectual Disability, 21, 81–94.
  • Cobigo V, Ouellette-Kuntz H, Lysaght R and Martin L. 2012. Shifting our conceptualization of social inclusion. Stigma Research and Action, 2, 75–84.
  • Cummins R. 1997. Assessing quality of life. In: Brown R I, ed. Quality of life for people with disabilities: models, research and practice. 2nd ed. Cheltenham: Stanley Thornes, pp.50–74.
  • Elwan A. 1999. Poverty and disability: a survey of the literature. Washington, DC: World Bank.
  • Emerson E. 2007. Poverty and people with intellectual disability. Mental Retardation and Developmental Disabilities Research Reviews, 13, 107–113.
  • Family Quality of Life Survey, 2006. Main caregivers of people with intellectual or developmental disabilities. Available at: <http://www.surreyplace.on.ca/about-intl-family-quality-of-life-project> [accessed 13 August 2014].
  • Finlay WML, Walton C and Antaki C. 2008. Promoting choice and control in residential services for people with learning disabilities. Disability & Society, 23, 349–360.
  • Gardiner E and Iarocci G. 2012. Unhappy (and happy) in their own way: a developmental psychopathology perspective on quality of life for families living with developmental disability with and without autism. Review in Developmental Disabilities, 33, 2177–2192.
  • Golubović Š and Škrbić R. 2013. Agreement in quality of life assessment between adolescents with intellectual disability and their parents. Review in Developmental Disabilities, 34, 1863–1869.
  • Hall SA. 2009. The social inclusion of people with disabilities: a qualitative meta-analysis. Journal of Ethnographic & Qualitative Research, 3, 162–173.
  • Harris J. 2003. Time to make up your mind: why choosing is difficult. British Journal of Learning Disabilities, 31, 3–8.
  • Kober R. 2011. Enhancing the quality of life of people with intellectual disabilities: from theory to practice. Dordrecht: Springer.
  • Lemay R. 2006. Social role valorization insights into the social integration conundrum. Mental Retardation, 44, 1–12.
  • Link BG and Phelan JC. 2001. Conceptualizing stigma. Annual Review of Sociology, 27, 363–385.
  • Lysaght R and Cobigo V. 2014. Enhancing the quality of life of marginalized populations through employment. In: Brown R I and Faragher R M, eds. Quality of life and intellectual disability: knowledge application to other social and educational challenge. New York: Nova Science, pp.155–168.
  • Morgan C, Burns T, Fitzpatrick R, Pinfold V and Priebe S. 2007. Social exclusion and mental health: conceptual and methodological review. British Journal of Psychiatry, 191, 477–483.
  • Parmenter TR. 2014. Inclusion and quality of life: are we there yet? In: Brown R I and Faragher R M, eds. Quality of life and intellectual disability: knowledge application to other social and educational challenges. New York: Nova Science, pp.299–318.
  • Renwick R and Brown I. 1996. The Centre for Health Promotion’s conceptual approach to quality of life. In: Renwick R, Brown I and Nagler M, eds. Quality of life in health promotion and rehabilitation: conceptual approaches, issues and application. Thousand Oaks, CA: Sage, pp.75–86.
  • Schalock RL and Verdugo MA. 2012. A leadership guide for today’s disabilities organizations: overcoming challenges and making change. Baltimore, MD: Brookes.
  • Schalock R, Brown I, Brown RI, Cummins RA, Felce D, Matikka L, Keith K and Parmenter T. 2002. Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: report of an international panel of experts. Mental Retardation, 40, 457–470.
  • Sherwin J. 2010. Leadership for social inclusion in the lives of people with disabilities. International Journal of Leadership in Public Services, 6(Supp), 84–93.
  • Shurack NY and Roling C. 2014. Incorporation of the concept of quality of life in individual support plans. In: Brown R I and Faragher R M, eds. Quality of life and intellectual disability: knowledge application to other social and educational challenges. New York: Nova Science, pp.265–284.
  • Taylor SJ. 1994. In support of research on quality of life, but against QOL. In: Goode D, ed. Quality of life for persons with disabilities: international perspectives and issues. Cambridge, MA: Brookline, pp.260–265.
  • Turnbull AP and Turnbull HR. 1986. Families, professionals and exceptionality: a special partnership. Columbus, OH: Merrill Publishing.
  • Turnbull AP and Turnbull HR. 2001. Families, professionals, and exceptionality: collaborating for empowerment. 4th ed. Upper Saddle River, NJ: Prentice-Hall.
  • Turnbull AP, Summers JA and Brotherson MJ. 1984. Working with families with disabled members: a family systems approach. Lawrence, KS: University of Kansas, Kansas Affiliated Faculty.
  • Turnbull AP, Brown I and Turnbull Reds. 2004. Families and people with mental retardation and quality of life: international perspectives. Washington, DC: American Association on Mental Retardation.
  • Turnbull HR III. 2014. Quality of life: four under-considered intersections. In: Brown R I and Faragher R M, eds. Quality of life and intellectual disability: knowledge application to other social and educational challenges. New York: Nova Science, pp.287–298.
  • Vinson T. 2009. Intergenerational disadvantage. Canberra: Department of Education, Employment and Workplace Relations.
  • United Nations, 2006. Convention on the rights of persons with disabilities (CRPD). Geneva: United Nations.
  • Zuna NI, Brown I and Brown RI. 2014. Family quality of life in intellectual and developmental disabilities: a support-based framework to enhance quality of life in other families. In: Brown R I and Faragher R M, eds. Quality of life and intellectual disability: knowledge application to other social and educational challenges. New York: Nova Science, pp.91–120.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.