272
Views
4
CrossRef citations to date
0
Altmetric
Original Article

The multi-faceted assessment of independence in patients with rheumatoid arthritis: preliminary validation from the ATTAIN study*

, , , &
Pages 1443-1453 | Accepted 17 Mar 2008, Published online: 09 Apr 2008

References

  • World Health Organization (WHO). International Classification of Functioning, Disability and Health. Geneva: World Health Organization, 2001
  • Nagi SZ. Disability concepts revisited: implications for prevention. In: Pope AM, Tarlov AR, editors. Disability in America: toward a national agenda for prevention. Washington, DC: National Academy Press, 1991, pp.309–27
  • Davies S, Laker S, Ellis L. Promoting autonomy and independence for older people within nursing practice: a literature review. J Adv Nurs 1997;26:408–17
  • Herschbach P, Berg P, Dankert A, et al. Fear of progression in chronic diseases: psychometric properties of the Fear of Progression Questionnaire. J Psychosom Res 2005;58:505–11
  • Baltes MM. The many faces of dependency in old age. Cambridge: Cambridge University Press, 1996
  • Clark PG. Ethical dimensions of quality of life in aging. Gerontologist 1991;31:631–9
  • Mack R, Salmoni A, Viverais-Dressler G, et al. Perceived risks to independent living: the views of older community-dwelling adults. Gerontologist 1997;37:729–36
  • National Advisory Council on Aging. Senior’s independence: whose responsibility? (Forum Collection). Ottawa, Canada: Minister of Supply and Services, 1992
  • Gignac MA, Cott C. A conceptual model of independence and dependence for adults with chronic physical illness and disability. Soc Sci Med 1998;47:739–53
  • Kaufman SR. The social construction of frailty: an anthropological perspective. J Aging Stud 1994;8:45–58
  • Thomasma DC. Freedom, dependency, and the care of the very old. J Am Geriatr Soc 1984;32:906–14
  • Williams GH. Disablement and the ideological crisis in health care. Soc Sci Med 1991;32:517–24
  • Gignac MA, Cott C, Badley EM. Adaptation to chronic illness and disability and its relationship to perceptions of independence and dependence. J Gerontol B Psychol Sci Soc Sci 2000;55:P362–72
  • Strating MHM, Suurmeijer TPBM, van Schuur WH. Disability, social support, and distress in rheumatoid arthritis: results from a thirteen-year prospective study. Arthritis Care Res 2006;55:736–44
  • Bazzichi L, Maser J, Piccinni A, et al. Quality of life in rheumatoid arthritis: impact of disability and lifetime depressive spectrum symptomology. Clin Exp Rheumatol 2005;23: 783–8
  • Burton W, Morrison A, Maclean R, et al. Systematic review of studies of productivity loss due to rheumatoid arthritis. Occup Med 2006;56:18–27
  • Cooper NJ. Economic burden of rheumatoid arthritis: a systematic review. Rheumatology 2000;39:28–33
  • Kvien TK. Epidemiology and burden of illness of rheumatoid arthritis. Pharmacoeconomics 2004;22(Suppl):1–12
  • Ozminkowski RJ, Burton WN, Goetzel RZ, et al. The impact of rheumatoid arthritis on medical expenditures, absenteeism, and short-term disability benefits. J Occup Environ Med 2006;48:135–48
  • Westhoff G, Listing J, Zink A. Loss of physical independence in rheumatoid arthritis: interview data from a representative sample of patients in rheumatologic care. Arthritis Care Res 2000;13:11–22
  • Katz PP, Morris A. Time use and patterns among women with rheumatoid arthritis: association with functional limitations and psychological status. Rheumatology 2007;46:490–5
  • Day B. Towards a concept of dependency. In: Dependency: personal and social relations, pp.90–115. Aldershot, UK: Avebury, 1992
  • Norburn JEK, Bernard SL, Konrad TR, et al. Self-care and assistance from others in coping with functional status limitations among a national sample of older adults. J Gerontol 1995;50B:S101–9
  • Wilkin D. Conceptual problems in dependency research. Soc Sci Med 1987;24:867–73
  • Marshall VW, McMullin JA, Ballantyne P, et al. Contributions to independence over the adult life course. Toronto, Canada: Centre for Studies of Aging, University of Toronto, 1995
  • Rubinstein RL, Kilbride JC, Nagy S. Choice, independence, and aging. In: Rubinstein RL, Kilbride JC, Nagy S, editors. Elders living alone: frailty and the perception of choice. New York NY: Aldine de Gruyter, 1992
  • Wahl HW. Dependence in the elderly from an interactional point of view: verbal and observational data. Psychol Aging 1991;6:238–46
  • George S. Measures of dependency: their use in assessing the need for residential care for the elderly. J Public Health Med 1991;13:178–81
  • Allen SM, Mor V, Raveis V, et al. Measurement of need for assistance with daily activities: quantifying the influence of gender roles. J Gerontol 1993;48:204–11
  • Pratt CC, Jones LL, Shin HY, et al. Autonomy and decision making between single older women and their caregiving daughters. Gerontologist 1989;29:792–7
  • Vetter NJ, Lewis PA, Llewellyn L. Supporting elderly dependent people at home. BMJ 1992;304:1290–2
  • Verbrugge LM. The iceberg of disability. In: Strahl SM, editor. Longevity: health and health care in later life. Sage: Newbury Park, CA, 1990, pp.55–75
  • Cott C, Gignac MAM. Independence and dependence for seniors with osteoarthritis or osteoporosis. Can J Aging 1999;18:1–25
  • Law M, Baptiste S, McColl M, et al. The Canadian Occupational Performance Measure: an outcome measure for occupational therapy. Can J Occup Ther 1990;57:82–7
  • Fisher AG. Assessment of motor and process skills. Vol. 1: development, standardization, and administration manual. 6th edn. Fort Collins, CO: Three Star Press, 2006
  • Fisher AG. Assessment of motor and process skills. Vol. 2: user manual. 6th edn. Fort Collins, CO: Three Star Press, 2006
  • Genovese MC, Becker J, Schiff M, et al. Abatacept for rheumatoid arthritis refractory to tumor necrosis factor α inhibition. N Engl J Med 2005;353:1114–23
  • Felson DT, Anderson JJ, Boers M, et al. American College of Rheumatology: preliminary definition of improvement in rheumatoid arthritis. Arthritis Rheum 1995;38:727–35
  • Ware JE Jr, Snow KK, Kosinski M, et al. SF-36 health survey manual and interpretation guide. Boston (MA): The Health Institute, 1993
  • Fries JF, Spitz P, Kraines RG, et al. Measurement of patient outcome in arthritis. Arthritis Rheum 1980;23:137–45
  • Prevoo ML, van T Hof MA, Kuper HH, et al. Modified disease activity scores that include twenty-eight-joint counts: development and validation in a prospective longitudinal study of patients with rheumatoid arthritis. Arthritis Rheum 1995;38:44–8
  • Hays RD, Morales LS, Reise SP. Item response theory and health outcomes measurement in the 21st century. Med Care 2000 Sep;38(Suppl):II28–42
  • Samejima F. Graded response model. In: van der Linden WJ, Hambleton R, editors. Handbook of modern item response theory. New York: Springer-Verlag, 1997
  • Rizopoulos D. ltm: an R package for latent variable modeling and item response theory analyses. J Stat Softw 2006;17:1–25
  • Yen W. Using simulation results to choose a latent trait model. Applied Psychological Measurement 1981;5:245–62
  • Stucki G, Cieza A, Geyh S, et al. ICF core sets for rheumatoid arthritis. J Rehabil Med 2004;44(Suppl):87–93
  • Rapoliene J, Krisciunas A. The effectiveness of occupational therapy in restoring the functional state of hands in rheumatoid arthritis patients. Medicine (Kaunas) 2006;42:823–8
  • Wolfe F, Michaud K, Strand V. Expanding the definition of clinical differences: from minimally clinically important differences to really important differences. Analyses in 8931 patients with rheumatoid arthritis. J Rheumatol 2005;32: 583–9
  • Clough DH, Derdiarian AA. Behavioral checklist to measure dependence and independence. Nurs Res 1980;29:55–8
  • Johnson M. Dependence and interdependence. In: Bonds J, P Coleman, editors. Ageing in society: an introduction to social gerontology. London: Sage, 1993, pp.255–79
  • Munnichs J. Dependency, interdependency and autonomy: an introduction. In: Munnichs I, Van den Heuvel WJA, editors. Dependency or interdependency in old age. The Hague: Martinus Nijhoff, 1976, pp.3–8
  • Williams GH, Wood PHN. Coming to terms with chronic illness: the negotiation of autonomy in rheumatoid arthritis. Int Disabil Stud 1988;10:128–33

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.