References
- National Institutes of Health, National Heart, Lung, and Blood Institute. Facts about sickle cell anemia. NIH Publication No. 96-4057. November 1996. Available at: http://www.nhlbi.nih.gov/health/public/blood/sickle/sca_fact.pdf [Last accessed 14 December 2010]
- Kavanagh PL, Sprinz PG, Vinci SR, et al. Management of children with sickle cell disease: a comprehensive review of the literature. Pediatrics 2011;128:e1552-74
- Information Center for Sickle Cell and Thalassemic Disorders. Transfusion Therapy in Sickle Cell Disease. 4 January 2001. Available at: http://sickle.bwh.harvard.edu/transfusion.html [Last accessed 12 July 2013]
- Fung EB, Harmatz P, Milet M, et al. Morbidity and mortality in chronically transfused subjects with thalassemia and sickle cell disease: a report from the multi-center study of iron overload. Am J Hematol 2007;82:255-65
- Claster S, Vichinsky E. Managing sickle cell disease. BMJ 2003;327:1151-5
- Porter JB. Practical management of iron overload. Br J Haematol 2001;115:239-52
- Shander A, Cappelilini MD, Goodnough LT. Iron overload and toxicity: the hidden risk of multiple blood transfusions. Vox Sang 2009;97:185-97
- Ballas SK. Iron overload is a determinant of morbidity and mortality in adult patients with sickle cell disease. Semin Hematol 2001;38(1 Suppl 1):30-6
- Kauf TL, Coates TP, Huazhi L, et al. The cost of health care for children and adults with sickle cell disease. Am J Hematol 2009;84:323-7
- Blinder MA, Vekeman F, Sasane M, et al. Age-related treatment patterns in sickle cell disease patients and the associated sickle cell complications and healthcare costs. Pediatr Blood Cancer 2013;60:828-35
- Wilkie DJ, Johnson B, Mack AK, et al. Sickle cell disease: an opportunity for palliative care across the life span. Nurs Clin North Am 2010;45:375-97
- Barakat LP, Schwartz LA, Salamon KS, Radcliffe J. A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease. J Pediatr Hematol Oncol 2010;32:540-7
- Jordan L, Swerdlow P, Coates TD. Systematic review of transition from adolescent to adult care in patients with sickle cell disease. J Pediatr Hematol Oncol 2013;35:165-9
- Brandow AM, Panepinto JA. Monitoring toxicity, impact, and adherence of hydroxyurea in children with sickle cell disease. Am J Hematol 2011;86:804-6
- Quinn CT, Rogers ZR, McCavit TL, Buchanan GR. Improved survival of children and adolescents with sickle cell disease. Blood 2010;115:3447-52
- Vichinsky EP, Ohene-Frempong K, Thein SL, et al. Transfusion and chelation practices in sickle cell disease: a regional perspective. Pediatr Hematol Oncol 2011;28:124-33
- Callahan ST, Winitzer RF, Keenan P. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Curr Opin Pediatr 2001;13:310-16
- Telfair J, Ehiri JE, Loosier PS, Baskin ML. Transition to adult care for adolescents with sickle cell disease: results of a national survey. Int J Adolesc Med Health 2004;16:47-64
- Telfair J, Alexander LR, Loosier PS, et al. Providers’ perspectives and beliefs regarding transition to adult care for adolescents with sickle cell disease. J Health Care Poor Underserved 2004;15:443-61
- McPherson M, Thaniel L, Minniti CP. Transition of patients with sickle cell disease from pediatric to adult care: assessing patient readiness. Pediatr Blood Cancer 2009;52:838-41
- Brousseau DC, Owens PL, Mosso AL, et al. Acute care utilization and rehospitalizations for sickle cell disease. JAMA 2010;303:1288-94
- Hemker BG, Brousseau DC, Yan K, et al. When children with sickle-cell disease become adults: lack of outpatient care leads to increased use of the emergency department. Am J Hematol 2011;86:863-5
- Powars DR, Chan LS, Hiti A, et al. Outcome of sickle cell anemia: a 4-decade observational study of 1056 patients. Medicine (Baltimore) 2005;84:363-76
- Ballas SK, Gupta K, Adams-Graves P. Sickle cell pain: a critical reappraisal. Blood 2012;120:3647-56
- Benjamin LJ, Swinson GI, Nagel RL. Sickle cell anemia day hospital: an approach for the management of uncomplicated painful crises. Blood 2000;95:1130-6
- Adams-Graves P, Ostric EJ, Martin M, et al. Sickle cell hospital unit: a disease-specific model. J Healthc Manag 2008;53:305-15; discussion 316-17