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PART II. PATIENT-LEVEL GEOMETRY: ADHERENCE AND UNCERTAINTY—THE CHALLENGE OF PRACTICING CHANGE WHILE CHANGING PRACTICE

Flexible Rigidity

Supporting HIV Treatment Adherence in a Rapidly-Changing Treatment Environment

&
Pages 133-150 | Published online: 22 Sep 2008

References

  • Angell , M. and Kassirer , J. P. 1994 . Clinical research-What should the public believe? [editorial] . New England Journal of Medicine , 331 : 189 – 90 .
  • Barr , D. 2000 . Put up your nukes! Poz. May., 2001. Shreds of evidence. Shudda, cudda, wudda: Reevaluating the treatment revolution after the fall . TAGline , [from the Treatment Action Group (TAG)] 8 (7) September. URL: http://www.thebody.com/tag/sept01/evidence.html [accessed 17 July, 2005]
  • Barr , M. 2001 . Gimme a break! . Poz. , August Available from URL: http://www.poz.com/articles/_1216.shtml [accessed 17 July, 2005]
  • Becker , M. H. , Maiman , L. A. , Kirscht , J. P. , Haefner , D. P. , Drachman , R. H. and Taylor , D. W. 1979 . “ Patient compliance: Recent studies of the health belief model ” . In Compliance in Health Care , Edited by: Haynes , R. B. , Taylor , D. W. and Sackett , D. L. 78 – 107 . Baltimore : Johns Hopkins University Press .
  • Bissel , P. , May , C. R. and Noyce , P. R. 2004 . From compliance to concordance: Barriers to accomplishing a re-framed model of health care interactions . Social Science & Medicine , 58 : 851 – 62 .
  • Boyer , A. and Indyk , D. Poor urban women with HIV: How well is the medical community meeting their needs? , in preparation.
  • Britten , N. 2001 . Prescribing and the defence of clinical autonomy . Sociology of Health and Illness , 23 : 478 – 96 .
  • Carter , M. 2002 . Life on HAART . GMHC Treatment Issues , 16 ( 3 ) March Available from URL: http://www.thebody.com/gmhc/issues/mar02/life_on_haart.html [accessed 17 July, 2005]
  • Carter , S. , Taylor , D. and Levenson , R. October 2003 . “ A Question of Choice: Compliance in Medicine-taking ” . In Medicine Partnership, , second éd. October , Available from: URL http://easi.negrisud.it/etica/DWL/CP/OI/aquestionofchoice.pdf [accessed 17 July, 2005]
  • Cheonis , N. 2000 . “ Structured treatment interruption: Future protocol or wishful thinking? ” . In Bulletin of Experimental Treatments for AIDS , San Francisco AIDS Foundation . Spring. Available from: URL http://www.sfaf.org/treatment/beta/b43/b43interrupt.html [accessed 17 July, 2005]
  • Chesney , M. A. 2003 . Adherence to HAART Regimens . AIDS Patient Care and STDs , 17 : 169 – 77 .
  • Chesney , M. A. , Morin , M. and Sherr , L. 2000 . Adherence to HIV therapy combination treatment . Social Science & Medicine , 50 : 1599 – 1605 .
  • Clifton , C. E. 2003 . To break or not to break, that is still the question . Positively Aware , [Test Positive Aware Network] Sept./Oct. Available from URL http://www.thebody.com/tpan/septoct_03/interruption.html [accessed 17 July, 2005]
  • Conrad , P. 1985 . The meaning of medication: Another look at compliance . Social Science & Medicine , 20 : 29 – 37 .
  • Donovan , J. L. and Blake , D. R. 1992 . Patient non-compliance: Deviance or reasoned decision-making? . Social Science & Medicine , 34 : 507 – 13 .
  • Gilden , D. 1998 . The latest on early intervention . Poz , October
  • Goodman , L. 2002 . The problem with protease . Poz. , September Available from URL: http://www.poz.com/articles/_944.shtml [accessed 17 July, 2005]
  • Goosby , E. Revisions and Anticipated Changes to the Federal Guidelines for the Treatment of HIV . Comments delivered on HIV Treatment Live! Internet tele-conference sponsored by HIVandHepatitis.com, hosted by Ron Baker . May 10 .
  • Hardey , M. 1999 . Doctor in the house: The Internet as a source of lay health knowledge and the challenge to expertise . Sociology of Health and Illness , 21 : 820 – 35 .
  • Harrington , M. 2001 . Hit Hard, Later … ? . GMHC [Gay Men's Health Crisis] Treatment Issues , 15(2/3[Feb./March]). Available from URL: http://www.thebody.com/gmhc/issues/febjnarOl/hit.html [accessed 17 July, 2005]
  • Hulka , B. S. 1979 . “ Patient-clinician interactions and compliance ” . In Compliance in Health Care , Edited by: Haynes , R. B. , Taylor , D. W. and Sackett , D. L. 63 – 77 . Baltimore : Johns Hopkins University Press .
  • Indyk , D. , Coury-Doniger , P. , Grosz , J. , Pruden , S. , Jordan , S. , Kaudeyr , K. , Edwards , T. , Klein , S. and Stevens , P. C. HIV prevention: Applying “stages of change” theory to accelerate bottom-up and top-down prevention knowledge production and technology transfer . Presented at the Public Health Conference on Records and Statistics and the National Committee on Vital and Health Statistics . Washington, D.C.. July .
  • Indyk , D. and Rier , D. A. 1993 . Grassroots AIDS knowledge: Implications for the boundaries of science and collective action . Knowledge: Creation, Diffusion, Utilization , 15 : 3 – 43 .
  • Indyk , D. and Rier , D. A. 2005 . Wiring the HIV/AIDS system: Building interorganizational infrastructure to link people, sites, and networks . Social Work in Health Care , 42 ( 3/4 ) : 29 – 45 .
  • Indyk , D. and Rier , D. A. 2005 . Requisites, benefits, and challenges of sustainable HIV/AIDS system-building: Where theory meets practice . Social Work in Health Care , 42 ( 3/4 ) : 93 – 110 .
  • James , J. S. 2002 . HIV medicine after Barcelona conference: Interview with Howard Grossman, M.D. . AIDS Treatment News , 6 September #383. Available from URL: http://www.thebody.com/atn/383/interview.html [accessed 17 July, 2005]
  • Josefson , D. 2003 . Breaks from antiretroviral treatment are not the answer for HIV patients . British Medical Journal , 327 ( 6 September ) : 520
  • Karwal , A. K. , Verkaik , R. and Jansen , C . 2000 . Non-adherence to procedures: Why does it happen? . Proceedings of the 12th Annual European Aviation Seminar . March 6–8 2000 , Amsterdam. Safety: Beginning at the Top , pp. 139 – 56 .
  • Lawrence , J. , Mayers , D. L. , Hullsiek , K. H. , Collins , G. , Abrams , D. I. , Reisler , R. B. , Crane , L. R. , Schmetter , B. S. , Dionne , T. J. , Saldanha , J. M. , Jones , M. C. and Baxter , J. D. 2003 . Structured treatment interruption in patients with multidrug-resistant Human Immunodeficiency Virus . New England Journal of Medicine , 349 (August 28) : 837 – 46 .
  • Learned , J. 2003 . Starting, switching, stopping: Personal perspectives on making treatment decisions , ACRIA [AIDS Community Research Initiative of America] Update 12 (3 [Summer]). Available from URL http://www.thebody.com/cria/summer03/learned.html, [accessed 17 July, 2005]
  • Lee , D. 2001 . Change of HAART . Poz. , May Available from URL: http://www.pozcom/articles/_1170.shtml [accessed 17 July, 2005]
  • Lerner , B. H. , Gulick , R. M. and Dubler , N. N. 1998 . Rethinking nonadherence: Historical perspectives on triple-drug therapy for HIV disease . Annals of Internal Medicine , 129 ( 7 ) : 573 – 78 .
  • Milano , M. 2001 . Living with guidelines: A personal perspective CRIA [AIDS Community Research Initiative of America] Update 10(2) [Spring]. URL: http://www.thebody.com/cria/springOl/guidelines.html [accessed 17 July, 2005]
  • Monroe , A. 2001 . Psychological issues and HIV: Dealing with the uncertainty of changing treatment strategies [Community Forum Summary] . AIDS Community Research Initiative of America , March. Available from URL: http://www.thebody.com/cria/forums/psychology.html [accessed 17 July, 2005]
  • Murray , C . 2003 . Letting someone else drive ACRIA [AIDS Community Research Initiative of America] Update 12(3) Summer. Available from URL: http://www.thebody.com/cria/summer03/murray.html [accessed 17 July, 2005]
  • Onstott , M. 1997 . The defiant ones . Poz. , October
  • Palella , F. J. Jr , Delaney , K. M. , Moorman , A. C. , Loveless , M. O. , Fuhrer , J. Satten , G A. 1998 . Declining morbidity and mortality among patients with advanced human immunodeficiency virus infection. HIV outpatient study investigators . New England Journal of Medicine , 338 : 853 – 60 .
  • Prochaska , J. O. and DiClemente , C. C. 1986 . “ Toward a comprehensive model of change ” . In Treating addictive behaviors: Processes of change , Edited by: Miller , W. R. and Heather , N. 3 – 27 . NY : Plenum Press .
  • Remien , R. H. , Hirky , A. E. , Johnson , M. O. , Weinhardt , L. S. , Whittier , D. and Le , G. M. 2003 . Adherence to medication treatment: A qualitative study of facilitators and barriers among a diverse sample of ‘G’+ men and women in four U.S. cities . AIDS and Behavior , 7 : 61 – 72 .
  • Reno , R. 1994 . Spare us the bad news on food-We don't care . New YorkNewsday , August 25 : A49
  • Rier , D. A. and Indyk , D. The rationale of interorganizational linkages to connect multiple sites of expertise, knowledge production, and knowledge transfer: An example from HIV/AIDS services for the inner city this volume. Accepted for publication in Social Work in Health Care.
  • Sackett , D. L. and Snow , J. C. 1979 . “ The magnitude of compliance and noncompliance ” . In Compliance in Health Care , Edited by: Haynes , R. B. , Taylor , D. W. and Sackett , D. L. 11 – 22 . Baltimore : Johns Hopkins University Press .
  • Steiner , J. F. and Earnest , M. A. 2000 . The language of medication-taking . Annals of Internal Medicine , 132 ( 11 ) : 926 – 30 .
  • Svarstad , B. L. 1976 . “ Physician-patient communication and patient conformity with medical advice ” . In The Growth of Bureaucratic Medicine , Edited by: Mechanic , D. 220 – 38 . NY : John Wiley & Sons .
  • Tebas , P. The Body . The 1st International AIDS Society Conference on HIV Pathogenesis and Treatment: IAS-USA panel . 10 July . Available from URL: http://www.thebody.com/confs/ias2001/tebas7.html [accessed 17 July, 2005]
  • Townsend , A. , Hunt , K. and Wyke , S. 2003 . Managing multiple morbidity in mid-life: A qualitative study of attitudes to drug use . British Medical Journal , 327 : 837 – 40 .
  • van Servellen , G. , Chang , B. , Garcia , L. and Lombardi , E. 2002 . Individual and system level factors associated with treatment nonadherence in Human Immunodeficiency Virus-infected men and women . AIDS Patient Care and STDs , 16 : 269 – 81 .
  • Volberding , P. A. Revisions and anticipated changes to the federal guidelines for the treatment of HIV. Comments delivered on HIV Treatment Live! Internet tele-conference sponsored by HIVandHepatitis.com, hosted by Ron Baker . May 10 .
  • WHO . 2003 . Adherence to long-term therapies: Evidence for action Available from URL: http://www.who.int/chronic_conditions/en/adherence_report.pdf [accessed 17 July, 2005]
  • Weiss , M. and Britten , N. 2003 . What is concordance? . The Pharmaceutical Journal , 271 : 493
  • Working Party . 1997 . From compliance to concordance: Achieving shared goals in medicine taking , London : Royal Pharmaceutical Society of Great Britain/Merck, Sharpe, and Dohme . Report of the Working Party. Available from URL: http://www.medicines-partnership.org/about-us/history-context [accessed 17 July, 2005]
  • Zola , I. K. [1981] 1987 . “ Structural constraints in the doctor-patient relationship: The case of non-compliance ” . In Dominant Issues in Medical Sociology, , 2nd ed. , Edited by: Schwartz , H. D. 203 – 09 . NY : Random House .

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