Relationships, Sexuality, Gender Identity, Gender Roles, and Self-Concept of Individuals Who Have Congenital Adrenal Hyperplasia: A Qualitative Investigation

REFERENCES

• Berenbaum , S. A. 1999 . Effects of early androgens on sex-types activities and interests in adolescents with congenital adrenal hyperplasia. . Hormones & Behavior , 35 : 102 – 110 .
   PubMed Web of Science ®Google Scholar
• Berenbaum , S. A. , Duck , S. C. and Bryk , K. 2000 . Behavioral effects of prenatal versus postnatal androgen excess in children with 21-hydroxylase-deficient congenital adrenal hyperplasia. . J. Clinical Endocrinology & Metabolism , 85 : 727 – 733 .
   PubMed Web of Science ®Google Scholar
• Bodies Like Ours . 2006 . Research and studies Retrieved March 16, 2006, from http://www.bodieslikeours.org/content/blogsection/3/170.
   Google Scholar
• Burns , D. D. 1989 . The Feeling Good Handbook. New York : Plume. .
   Google Scholar
• Chase , C. 1998 . Surgical progress is not the answer to intersexuality. . J. Clinical Ethics , 9 : 385 – 392 .
   PubMed Web of Science ®Google Scholar
• Deaton , M. A. , Glorioso , J. E. and McLean , D. B. 1999a . Congenital adrenal hyperplasia: Not really a zebra. . American Family Physician , 59 : 1190 – 1197 .
   Google Scholar
• Deaton , M. A. , Glorioso , J. E. and McClean , D. B. 1999b . Congenital adrenal hyperplasia: What it is and how it is treated. . American Family Physician , 59 : 1199
   Google Scholar
• Dittmann , R. W. 1992 . Body positions and movement patterns in female patients with congenital adrenal hyperplasia. . Hormones & Behavior , 26 : 441 – 456 .
   Google Scholar
• Dreger , A. D. 1998 . “Ambiguous sex” or ambivalent medicine? Ethical issues in the treatment of intersexuality. . Hastings Center Report , 28 : 24 – 35 .
   PubMed Web of Science ®Google Scholar
• Gruppuso , P. and Lee , P. 1999 . Should cosmetic surgery be performed on the genitals of children born with ambiguous genitals? (Point/Counterpoint). . Physician's Weekly , August 16
   Google Scholar
• Guth , L. J. and Murphy , L. 1998 . People First Language in middle and high schools: Usability and readability. . The Clearing House , 72 : 115 – 117 .
   Google Scholar
• Hines , M. and Kaufman , F. R. 1994 . Androgen and the development of human sex-typical behavior: Rough and tumble play and sex of preferred playmates in children with congenital adrenal hyperplasia (CAH). . Child Development , 65 : 1042 – 1053 .
   PubMed Web of Science ®Google Scholar
• Hiort , O. and Holterhus , P. M. 2000 . The molecular basis of male sexual differentiation. . European J. Endocrinology , 142 : 101 – 110 .
   Google Scholar
• Hochberg , Z. , Gardos , M. and Benderly , A. 1987 . Psychosexual outcome assigned to females and males with 46, XX virilizing congenital adrenal hyperplasia. . European J. Pediatrics , 146 : 497 – 499 .
   PubMed Web of Science ®Google Scholar
• Hughes , I. A. 1998 . Congenital adrenal hyperplasia: A continuum of disorders. . Lancet , 352 : 752 – 754 .
   Google Scholar
• Hurtig , A. L. , Radhakrishnan , J. , Reyes , H. M. and Rosenthal , I. M. 1983 . Psychological evaluation of treated females with virilizing congenital adrenal hyperplasia. . J. Pediatric Surgery , 18 : 887 – 891 .
   Web of Science ®Google Scholar
• Hurtig , A. L. and Rosenthal , I. M. 1987 . Psychological findings in early treated cases of female pseudohermaphroditism caused by virilizing congenital adrenal hyperplasia. . Archives Sexual Behavior , 16 : 209 – 221 .
   PubMed Web of Science ®Google Scholar
• Intersex Society of North America . 2006 . Intersex bibliography available on-line. Retrieved March 16, 2006, from http://www.isna.org/node/22.
   Google Scholar
• Kaplan , M. 1997 . Sexual Justice. New York : Routledge. .
   Google Scholar
• Kessler , S. J. 1998 . Lessons from the intersexed. New Jersey : Rutgers University Press. .
   Google Scholar
• King , B. M. 1999 . Human Sexuality Today, , 3rd Edition Upper Saddle River, NJ : Prentice Hall. .
   Google Scholar
• Kipnis , K. and Diamond , M. 1998 . Pediatric ethics and the surgical assignment of sex. . J. Clinical Ethics , 9 : 398 – 410 .
   PubMed Web of Science ®Google Scholar
• Krone , N. , Braun , A. , Roscher , A. A. , Knorr , D. and Schwartz , H. P. 2000 . Predicting phenotype in steroid 21-hydroxylase deficiency? Comprehensive genotyping in 155 unrelated, well defined patients from South Germany. . J. Clinical Endocrinology & Metabolism , 85 : 1059 – 1065 .
   PubMed Web of Science ®Google Scholar
• Kuhnle , U. , Bullinger , M. , Schwartz , H. P. and Knorr , D. 1993 . Partnership and sexuality in adult female patients with congenital adrenal hyperplasia. First results of a cross-sectional quality-of-life evaluation. . J. Steroid Biochemistry & Molecular Biology , 45 : 123 – 126 .
   PubMed Web of Science ®Google Scholar
• Kuhnle , U. , Bullinger , M. and Schwartz , H. P. 1995 . The quality of life in adult female patients with congenital adrenal hyperplasia: A comprehensive study of the impact of genital malformations and chronic disease on female patients life. . European J. Pediatrics , 158 : 708 – 716 .
   Google Scholar
• McGuire , L. S. , Ryan , K. O. and Omenn , G. S. 1975 . Congenital adrenal hyperplasia: Cognitive and behavioral studies. . Behavior Genetics , 5 : 175 – 188 .
   PubMed Web of Science ®Google Scholar
• Money , J. , Schwartz , M. and Lewis , V. G. 1984 . Adult erotosexual status & fetal hormonal masculinization & demasculinization: 46, XX congenital virilizing adrenal h yperplasia & 46, XY androgen-insensitivity syndrome compared. . Psychoneuroendocrinology , 9 : 405 – 414 .
   PubMed Web of Science ®Google Scholar
• Mulaikal , R. M. , Migeon , C. J. and Rock , J. A. 1987 . Fertility rates in female patients with congenital adrenal hyperplasia due to 21-hydroxylase deficiency. . New England J. Medicine , 316 : 178 – 182 .
   PubMed Web of Science ®Google Scholar
• New , M. I. 1998 . Diagnosis and management of congenital adrenal hyperplasia. . Annual Review of Medicine , 49 : 311 – 28 .
   PubMedGoogle Scholar
• Patton , M. Q. 1990 . Qualitative Evaluation and Research Methods, Revised Edition. Newbury Park, CA : Sage. .
   Google Scholar
• Priddy , A. R. and Williamson , C. 1996 . Spontaneous conception and vaginal delivery in a woman with salt-losing congenital adrenal hyperplasia. . J. Obstetrics & Gynecology , 16 : 89 – 90 .
   Google Scholar
• Root , A. W. 1999 . Genetic errors of sexual differentiation. . Advances in Pediatrics , 46 : 67 – 99 .
   Google Scholar
• Rye , B. J. 2000 . Teaching about intersexuality: A review of Hermaphrodites Speak! and a critique of introductory human sexuality textbooks . J. Sex Research , 37 : 295 – 298 .
   Google Scholar
• Slijper , F. , Drop , S. , Molenaar , J. C. and Keizer-Schrama , S. 1998 . Long-term psychological evaluation of intersex children. . Archives Sexual Behavior , 27 : 125 – 145 .
   PubMed Web of Science ®Google Scholar
• Wedell , A. 1998 . Molecular genetics of congenital adrenal hyperplasia 21-hydroxylase deficiency: Implications for diagnosis, prognosis and treatment. . Acta Paediatrica , 87 : 159 – 64 .
   PubMed Web of Science ®Google Scholar
• White , P. C. and Speiser , P. W. 2000 . Congenital adrenal hyperplasia due to 21-hydrox-ylase deficiency. . Endocrine Reviews , 21 : 245 – 291 .
   PubMed Web of Science ®Google Scholar
• Witchel , S. F. 1999 . Molecular diagnosis in the congenital adrenal hyperplasias. . The Endocrinologist , 9 : 197 – 207 .
   Google Scholar
• Witchel , S. S. and Lee , P. A. 1996 . “ Ambiguous genitalia ” . In Pediatric Endocrinology Edited by: Sperling , M. A. 31 – 49 . Philadelphia : W.B. Saunders .
   Google Scholar
• Witchel , S. F. and Lee , P. A. 1998 . Identification of heterozygotic carriers of 21-hydroxylase deficiency: Sensitivity of ACTH stimulation tests. . American J. Medical Genetics , 76 : 337 – 42 .
   PubMedGoogle Scholar
• Witchel , S. F. , Nayak , S. , Suda-Hartman , M. and Lee , P. A. 1997 . Newborn screening for 21-hydroxylase deficiency: Results of CYP21 molecular genetic analysis. . J. Pediatrics , 131 : 328 – 31 .
   Google Scholar
• Zucker , K. J. 1999 . Intersexuality and gender identity differentiation. . Annual Review Sex Research , 10 : 1 – 69 .
   PubMedGoogle Scholar
• Zucker , K. J. , Bradley , S. J. , Oliver , G. , Blake , J. , Fleming , S. and Hood , J. 1996 . Psychosexual development of women with congenital adrenal hyperplasia. . Hormonal Behavior , 30 : 300 – 318 .
   PubMed Web of Science ®Google Scholar