The Language of Recovery: How Effective Communication of Information Is Crucial to Restructuring Post-Stroke Life

REFERENCES

• Wiles R. Pain H. Buckland S. McLellan L. Providing appropriate information to patients and carers fol-lowing a stroke. I Adv Nurs. 1998;28(4):794–801.
   PubMed Web of Science ®Google Scholar
• Forster A, Smith J, Young J, Knapp P, House A, Wright J. Information provision for stroke patients and their caregivers (Cochrane review). The Cochrane Library. Oxford: Update Software; 2001:4.
   Google Scholar
• Teasell R, Doherty T, Speechley M, Foley N, Bhogal SK. Evidence-based Review of Stroke Rehabilitation. London, Ontario: Ministry of Health and Long Term Care & Heart and Stroke Foundation of Ontario; 2002.
   Google Scholar
• Clark MS. Patient and spouse perceptions of stroke and its rehabilitation. I Rehabil Res. 2000;23(1): 19–29.
   PubMed Web of Science ®Google Scholar
• Clark MS, Smith DS. Factors contributing to patient satisfactions with rehabilitation following stroke. Int J Rehabil Res. 1998;21:143–154.
   PubMed Web of Science ®Google Scholar
• Pound P, Gompertz P, Ebrahim S. Patients' satisfac-tion with stroke services. Clin Rehabil. 1994;8(1): 7–17.
   Google Scholar
• Rodgers H, Bond S, Curless R. Inadequacies in the provision of information to stroke patients and their families. Age Ageing. 2001;30:129–133.
   PubMed Web of Science ®Google Scholar
• Wellword I, Dennis M, Warlow C. Patients' and carers' satisfaction with acute stroke management. Age Ageing. 1995;24(6):519–524.
   PubMed Web of Science ®Google Scholar
• Kaplan RM. Health outcomes and communication research. Health Commun. 1997;9(1):75–82.
   Web of Science ®Google Scholar
• Sligo FX, Jameson AM. The knowledge-behav-ior gap in use of health information. I Am Soc Information Sci. 2000;51(9):858–869.
   Web of Science ®Google Scholar
• Kurtz SM. Doctor-patient communication: princi-ples and practices. Can I Neurol Sci. 2002;29\(suppl 2):523–29.
   Google Scholar
• Man-Son-Hing M, Laupacis A, O'Connor AM, et al. A patient decision aid regarding antithrom-botic therapy for stroke prevention in atrial fibrillation: a randomized controlled trial. 'AMA. 1999;282(8):737–743.
   PubMed Web of Science ®Google Scholar
• Stewart M, Brown JB, Boon H, Galajda J, Meredith L, Sangster M. Evidence on patient-doctor com-munication. Cancer Prey Control. 1999;3(1):25–30.
   PubMedGoogle Scholar
• Whelan T, Sawka C, Levine M, et al. Helping patients make informed choices: a randomized trial of a decision aid for adjuvant chemotherapy in lymph node-negative breast cancer. I Natl Cancer Inst. 2003;95(8):570–571.
   PubMedGoogle Scholar
• Dowswell G, Lawler J, Dowswell T, Young J, Forster A, Hearn J. Investigating recovery from stroke: a qualitative study. I Clin Nurs. 2000;9:507–515.
   PubMed Web of Science ®Google Scholar
• Bendz M. Rules of relevance after a stroke. Soc Sci Med. 2002;51(5):713–723.
   Web of Science ®Google Scholar
• Doolittle ND. The experience of recovery following lacunar stroke. Rehabil Nurs. 1992;17(3):122–125.
   PubMedGoogle Scholar
• Kaufman SR, Becker G. Content and boundaries of medicine in long term care: physicians talk about stroke. Gerontologist. 1991;31:238–245.
   PubMed Web of Science ®Google Scholar
• Lambert BL, Street RL, Cegala DJ, Smith DH, Kurtz S, Schofield T. Provider-patient communication, patient-centered care and the mangle of practice. Health Commun. 1997;9(1):27–43.
   Web of Science ®Google Scholar
• Burton CR. Living with stroke: a phenomenological study. I Adv Nurs. 2000;32(2):301–309.
   PubMed Web of Science ®Google Scholar
• Ellis-Hill CS, Horn S. Change in identity and self-concept: a new theoretical approach to recov-ery following a stroke. Clin Rehabil. 2000;14(3): 279–287.
   PubMed Web of Science ®Google Scholar
• Hochstenbach J, Donders R, Mulder T, Van Limbeek J, Schoonderwaldt H. Long-term outcome after stroke: a disability-orientated approach. Intl Rehabil Res. 1996;19:189–200.
   PubMed Web of Science ®Google Scholar
• Kirkevold M. The unfolding illness trajectory of stroke. Disabil Rehabil. 2002;24(17):887–898.
   PubMed Web of Science ®Google Scholar
• Lewis SC, Dennis MS, O'Rourke Si, Sharpe M. Negative attitudes among short-term stroke sur-vivors predict worse long-term survival. Stroke. 2001;32(7):1640–1645.
   PubMed Web of Science ®Google Scholar
• Glass TA, Maddox GL. The quality and quantity of social support: stroke recovery as psychosocial transition. Soc Sci Med. 1992; 34(11):1249–1261.
   PubMed Web of Science ®Google Scholar
• Norton R, Brenders D. Communication and Consequences: Laws of Interactions. Mahwah, NJ: Lawrence Erlbaum Associates; 1996.
   Google Scholar
• Glass TA, Dym B, Greenberg S, Rintell D, Roesch C, Berkman LF. Psychosocial intervention in stroke: families in recovery from stroke trial (FIRST). Am Orthopsychiatry. 2000;70(2):169–181.
   PubMed Web of Science ®Google Scholar
• Grant JS, Elliott TR, Weaver M, Bartolucci AA, Giger IN. Telephone intervention with family caregiv-ers of stroke survivors after rehabilitation. Stroke. 2002;33:2060–2065.
   PubMed Web of Science ®Google Scholar
• Johnston M, Gilbert P, Partridge C, Collins J. Perceived control, coping and recovery from disability follow-ing stroke. Psych Health. 1999;14:181–192.
   Web of Science ®Google Scholar
• Knapp P, Hewison J. The protective effects of social support against mood disorder after stroke. Psych Health Med. 1998;3:275–283.
   Google Scholar
• Partridge C, Johnston M. Perceived control of recovery from physical disability: measurement and prediction. B I Clin Psych. 1989;28:53–59.
   PubMed Web of Science ®Google Scholar
• Purkey W. An Overview of Self-Concept Theory for Counselors. Ann Arbor, MI: ERIC Clearinghouse on Counseling and Personnel Services; 1988. An ERIC/ CAPS Digest: ED304630.
   Google Scholar
• Caplan LR. Caplan's Stroke: A Clinical Approach, 3rd ed. Boston: Butterworth Heinemann; 2000.
   Google Scholar
• Hakim AM, Silver F, Hodgson C. Is Canada falling behind international standards for stroke care? CMAJ. 1998;159:671–673.
   Google Scholar
• Jones F, Mandy A. Who's in control after a stroke? Do we disempower our patients? Physio Res Inter. 2000;5(4):249–253.
   Google Scholar
• Fink RB, Schwartz MF. MossRehab Aphasia Center: A collaborative model for long-term rehabilitation. Top Stroke Rehabil. 2000;7(2):32–43.
   Google Scholar
• Kirby RL. Rehabilitation and stroke. CMAJ. 1999;160:784–785.
   PubMed Web of Science ®Google Scholar
• King R B. Quality of life after stroke. Stroke. 1996;27:1467–1472.
   PubMed Web of Science ®Google Scholar
• Watkins E, Baracaia S. Rumination and social problem solving in depression. Behav Res Ther. 2001;4:1179–1189.
   Google Scholar
• Nolen-Hoeksema S. Responses to depression and their effects on the duration of depressive episodes. Abnormal Psych. 1991;100:569–582.
   PubMed Web of Science ®Google Scholar
• Kant GL, D'Zurilla TJ, Maydeu-Olivares A. Social problem solving as a mediator of stress relat-ed depression and anxiety in middle-aged and elderly community residents. Cognitive Ther Res. 1997;21 (1):73–96.
   Web of Science ®Google Scholar
• Peterson C, Seligman MEP. Causal explanations as a risk factor for depression: theory and evidence. Psych Rev. 1984;91:347–374.
   PubMed Web of Science ®Google Scholar
• Abramson LB, Metalsky GI, Alloy LB. Hopelessness depression: a theory based subtype of depression. Psych Review. 1989;96:358–372.
   Web of Science ®Google Scholar
• Hollon SD, Garber J. Cognitive therapy: a social-cognitive perspective. In: Abramson LY, ed. Social Cognition and Clinical Psychology: A Synthesis. New York: Guilford; 1988:204–253.
   Google Scholar
• Nezu AM, Nezu CM, Perri MG. Problem-Solving Therapy for Depression: Theory, Research and Clinical Guidelines. New York: Wiley; 1989.
   Google Scholar
• Elliot T, Shewchuk R, Richards JS. Caregiver social problem-solving abilities and family member adjust-ment to recent-onset physical disability. Rehabil Psych. 1999;44:104–123.
   Web of Science ®Google Scholar
• Godolphin W, Towle A, McKendry R. Evaluation of the quality of patient information to sup-port informed shared decision-making. Health Expectations. 2001;4(4):235–242.
   PubMedGoogle Scholar
• Northouse LL, Northouse PG. Health Communication: Strategies for Health Professionals, 3rd ed. Stamford, CT: Appleton & Lange; 1998.
   Google Scholar
• Evans RL, Bishop DS, Matlock AL, Stranahan S, Pederson C. Family intervention after stroke: Does counseling or education help? Stroke. 1988;19: 1243–1249.
   PubMed Web of Science ®Google Scholar
• Indredavik B, Bakke F, Slordahl SA, Rokseth R, Haheim LL. Stroke unit treatment: 10-year follow-up. Stroke. 1999;30(8):1524–1527.
   PubMed Web of Science ®Google Scholar
• Jorgensen HS, Reith J, Nakayama H, Kammersgaard LP, Raaschou HO, Olsen TS. What determines good recovery in patients with the most severe strokes? The Copenhagen Stroke Study. Stroke. 1999;30(10):2008–2012.
   PubMed Web of Science ®Google Scholar
• Dempster C, Knapp P, House A. The collaboration of carers during psychological therapy. Mental Health Nurs. 1998;18(3):24–27.
   Google Scholar
• Taylor SE, Aspinwall LG. Mediating and moderating processes in psychosocial stress. In: Caplan HB, ed. Psychosocial Stress. San Diego, CA: Academic Press; 1996:71–110.
   Google Scholar
• Association of Medical Colleges Task Force. Report III: Contemporary Issues in Medicine: Communication in Medicine. Washington DC: Association of Medical Colleges; 1999.
   Google Scholar
• Coulter A, Entwistle V, Gilbert D. Sharing decisions with patients: Is the information good enough? BMJ. 1999;318: 218–322.
   Google Scholar
• Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ. 1999;319:766–771.
   PubMed Web of Science ®Google Scholar
• Tsouna-Hadjis E, Vemmos KN, Zakopoulous N, Stamtelopoulos S. First-stroke recovery process: the role of family social support. Arch Phys Med Rehabil. 2000;81(7):881–887.
   PubMed Web of Science ®Google Scholar
• Ell K. Social networks, social support and coping with serious illness: the family connection. Soc Sci Med. 1996;42(2):173–183.
   PubMed Web of Science ®Google Scholar
• Thompson SC, Sobolew-Shubin A. Overprotective relationships: a nonsupportive side of social net-works. Basic Appl Soc Psych. 1993;14(3):363–383.
   Web of Science ®Google Scholar
• Lilly CM, Sonna LA, Haley KJ, Massaro AF. Intensive communication: four-year follow-up from a clinical practice study. Crit Care Med. 2003;31(5 suppl): S394–399.
   Google Scholar
• Senge P, Kleiner A, Roberts C, Ross R, Roth G, Smith B. The Dance of Change: The Challenges to Sustaining Momentum in Learning Organizations. New York: Doubleday; 1999.
   Google Scholar