1,268
Views
134
CrossRef citations to date
0
Altmetric
Grand rounds

The Crisis of Stroke: Experiences of Patients and Their Family Caregivers

, , , &
Pages 786-797 | Published online: 05 Jan 2015

REFERENCES

  • Lloyd-Jones D, Adams RJ, Brown TM, et al. Heart disease and stroke statistics-2010 update: a report from the American Heart Association. Circulation. 2010;121 (7):e46—e215.
  • American Heart Association. Heart Disease and Stroke Statistics-2006 Update. http://www.americanheart.org/downloadable/heart/1105390918119HDSStats2005Update.pdf. Accessed January 22, 2006.
  • Dobrez D, Heinemann AW, Deutsch A, Manheim L, Mallinson T. Impact of Medicare's prospective payment system for inpatient rehabilitation facilities on stroke patient outcomes. Am I Phys Med Rehabil. 2010;89(3):198–204.
  • O'Brien SR. Trends in inpatient rehablitation stroke outcomes before and after advent of the prospective payment system: a systematic review. J Neurol Phys Ther. 2010;34:17–23.
  • Gillen R, Tennen H, McKee T. The impact of the inpatient rehabilitation facility prospective payment system on stroke program outcomes. Am I Phys Med Rehabil. 2007;86(5):356–363.
  • Schmidt SM, Guo L, Scheer SJ. Changes in the status of hospitalized stroke patients since inception of the prospective payment system in 1983. Arch Phys Med Rehabil. 2002;83(7):894–898.
  • National Alliance for Caregiving, AARP. Caregiving in the U.S. 2009. http://www.caregiving.org/data/Caregiving_in_the_US_2009_full_report.pdf. Accessed July 15, 2010.
  • National Alliance for Caregiving, Evercare. The Evercare survey of the economic downturn and its impact on family caregiving. 2009. http://www.caregiving.org/data/EVC_Caregivers_Economy_Report%20FINAL_4-28-09.pdf. Accessed July 15, 2010.
  • Chumbler NR, Rittman M, Van Puymbroeck M, Vogel WB, Qin H. The sense of coherence, burden, and depressive symptoms in informal caregivers during the first month after stroke. Int I Geriatr Psychiatry. 2004;19(10):944–953.
  • Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal carers of stroke survivors-factors influencing carers: a systematic review of quantitative studies. Disabil Rehabil. 2008;30(18): 1329–1349.
  • Lutz BJ, Young ME. Rethinking intervention strategies in stroke family caregiving. Rehabil Nurs. 2010;35(4):152–160.
  • Perrin PB, Heesacker M, Hinojosa MS, Uthe CE, Rittman MR. Identifying at-risk, ethnically diverse stroke caregivers for counseling: a longitudinal study of mental health. Rehabil Psycho!. 2009;54(2):138–149.
  • van Exel NJ, Koopmanschap MA, van den Berg B, Brouwer WB, van den Bos GA. Burden of informal caregiving for stroke patients. Identification of caregivers at risk of adverse health effects. Cerebrovasc Dis. 2005;19(1):11–17.
  • Talley RC, Crews JE. Framing the public health of caregiving. Am J Public Health. 2007;97(2):224–228.
  • Brereton L, Nolan M. "You do know he's had a stroke, don't you?" Preparation for family care-giving-the neglected dimension. I Clin Nurs. 2000;9(4):498–506.
  • van Exel NJ, Scholte op Reimer WI, Brouwer WB, van den Berg B, Koopmanschap MA, van den Bos GA. Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden. Clin Rehabil. 2004;18(2):203–214.
  • van Exel NJ, Brouwer WB, van den Berg B, Koopmanschap MA, van den Bos GA. What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden. Clin Rehabil. 2004;18(6):683–693.
  • McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36(10):2181–2186.
  • Shyu YI, Chen MC, Lee HC. Caregiver's needs as predictors of hospital readmission for the elderly in Taiwan. Soc Sci Med. 2003;58(2004):1395–1403.
  • Bowers B, Schatzman L. Dimensional analysis. In: Morse JM, Stern PN, Corbin JM, Charmaz KC, Bowers B, Clarke AE, eds. Developing Grounded Theory: The Second Generation. Walnut Creek, CA: Left Coast Press; 2009:86–121.
  • Caron CD, Bowers BJ. Methods, and application of dimensional analysis: a contribution to concept and knowledge development in nursing. In: Rodgers BL, Knafl KA, eds. Concept Development in Nursing: Foundatons, Techniques, and Applications. 2nd ed. Philadelphia: WB Saunders; 2000:285–319.
  • Schatzman L. Dimensional analysis: notes on an alternative approach to the grounding of theory in qualitative research. In: Maines DR, ed. Social Organization and Social Process Essays in Honor of Anselm Strauss. New York: Aldine De Gruyter; 1991:303–314.
  • Strauss AL. Qualitative Analysis for Social Scientists. New York: Cambridge University Press; 1987.
  • Strauss A, Corbin J. Basics of Qualitative Research. Thousand Oaks, CA: Sage Publications; 1998.
  • Shalin DN. Pragmatism and social interactionism. Am Sociol Rev. 1986;51:9–29.
  • NVivo Qualitative Data Analysis Program [computer program]. Version 8.0. Melbourne, Australia; 2008.
  • Dodds TA, Martin DP, Stolov WC, Deyo RA. A validation of the Functional Independence Measurement and its performance among rehabilitation inpatients. Arch Phys Med Rehabil. 1993;74:531–536.
  • Keith RA, Granger CV, Hamilton BB, Sherwin FS. The functional independence measure: a new tool for rehabilitation. In: Eisenberg MG, Grezesiak RC, eds. Advances in Clinical Rehabilitation. New York: Springer; 1987:6–18.
  • Oczkowski WI, Barreca S. The functional independence measure: its use to identify rehabilitation needs in stroke survivors. Arch Phys Med Rehabil. 1993;74(12):1291–1294.
  • Lutz BJ. Determinants of discharge destination for stroke patients. Rehabil Nurs. 2004;29(5):154–163.
  • Palmer S, Glass TA, Palmer JB, Loo S, Wegener ST. Crisis intervention with individuals and their families following stroke: a model for psychosocial service during inpatient rehabilitation. Rehabil Psychol. 2004;49(4):338–343.
  • Lutz BJ, Chumbler NR, Roland K. Care coordination/ home-telehealth for veterans with stroke and their caregivers: addressing an unmet need. Top Stroke Rehabil. 2007;14(2):32–42.
  • National Quality Forum. Care Coordination. Washington, DC, October 2010.
  • National Quality Forum. Preferred Practices and Performance Measures for Measuring and Reporting Care Coordination: A Consensus Report. Washington, DC: NQF; 2010.
  • Cameron JI, Gignac MA. "Timing It Right": a conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home. Patient Educ Couns. 2008;70(3):305–314.
  • Bakas T, Farran CJ, Austin JK, Given BA, Johnson EA, Williams LS. Stroke caregiver outcomes from the Telephone Assessment and Skill-Building Kit (TASK). Top Stroke Rehabil. 2009;16(2):105–121.
  • Grant JS, Elliott TR, Weaver M, Bartolucci AA, Giger IN. Telephone intervention with family caregivers of stroke survivors after rehabilitation. Stroke. 2002;33(8):2060–2065.
  • Hartke RJ, King RB. Telephone group intervention for older stroke caregivers. Top Stroke Rehabil. 2003;9(4):65–81.
  • Family Caregiver Alliance: Caregiving National Center on Cargiving. 2008. http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2313. Accessed July 27, 2009.
  • Feinberg LF. The state of the art of caregiver assessment. Generations. 2003;27(4):24–31.
  • Family Caregiver Alliance. Caregivers Count Too! A Toolkit to Help Practitioners Assess the Needs of Family Caregivers. San Francisco: Author; 2006.
  • National Quality Forum. Addressing national priorities. 2010. http://www.qualityforum.org/Setting_Priorities/Addressing_National_Priorities.aspx Accessed November 25, 2010.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.