REFERENCES
- National Stroke Foundation. Clinical Guidelines for Stroke Rehabilitation and Recovery. Melbourne, Australia: National Stroke Foundation; 2005:1–62.
- Dennis M, O’Rourke S, Lewis S, Sharpe M, Warlow C. A quantitative study of the emotional outcome of people caring for stroke survivors. Stroke. 1998; 2:1867–1872.
- Franzen-Dahlin A, Billing E, Nasman P, Martensson B, Wredling R, Murray V. Post-stroke depressioneffect on the life situation of the signifi cant other. Scand J Caring Sci. 2006;20: 412–416.
- Mackenzie A, Perry L, Lockhart E, Cottee M, Cloud G, Mann H. Family carers of stroke survivors: Needs, knowledge, satisfaction and competence in caring. Disabil Rehabil. 2007;29:111–121.
- Berg A, Lönnqvist J, Palomäki, H, Kaste M. Assessment of depression after stroke. A comparison of different screening instruments. Stroke. 2009;40:523–529.
- Han B, Haley WE. Family caregiving for patients with stroke: Review and analysis. Stroke. 1999;30: 1478–1485.
- Cumming TB, Cadilhac DA, Rubin G, Crafti N, Pearce DC. Psychological distress and social support in informal caregivers of stroke survivors. Brain Impairment. 2008;9(2):152–160.
- Low JTS, Payne S, Roderick P. The impact of stroke on informal carers: A literature review. Social Sci Med. 1999;49:711–725.
- Dowswell G, Lawler J, Dowswell T, Young J, Forster A, Hearn J. Investigating recovery from stroke: A qualitative study. J Clin Nurs. 2000;9: 507–515.
- Lamb M, Buchanana D, Godfrey, CM, Harrison MB, Oakley P. The psychosocial spiritual experience of elderly individuals recovering from stroke: A systematic review. Int J Evid Based Healthc. 2008;6:173–205.
- Visser-Meily A, Post M, Schepers V, Lindeman E. Spouses’ quality of life 1 year after stroke: Prediction at the start of clinical rehabilitation. Cerebrovasc Dis. 2005;20:443–448.
- Kalra L, Evans A, Perez I, et al. Training carers of stroke patients: Randomised controlled trial. Br Med J. 2004;328(7448):1–5.
- Forster A, Young J. Specialist nurse support for patients with stroke in the community: A randomised controlled trial. Br Med J. 1996;312 (7047):1642–1646.
- Hackett ML, Anderson CS. Frequency, management, and predictors of abnormal mood after stroke. Stroke. 2006;37:2123–2128.
- Parag V, Hackett ML, Yapa CM, et al. The impact of stroke on unpaid caregivers: Results from the Auckland Regional Community Stroke study, 2002–2003. Cerebrovasc Dis., 2008;25: 548–554.
- Bakas T, Austin JK, Okonkwo KF, Lewis, RR, Chadwick L. Needs, concerns, strategies, and advice of stroke caregivers the fi rst 6 months after discharge. J Neurosci Nurs. 2002;34(5):242–251.
- Bugge C, Alexander H, Hagen S. Stroke patients’ informal caregivers. Patient, caregiver, and service factors that affect caregiver strain. Stroke. 1999;30: 1517–1523.
- Lui, MHL, Ross FM, Thompson, DR. Supporting family caregivers in stroke care: A review of the evidence for problem solving. Stroke. 2005;36(11):2514–2522.
- Scolteop Reimer, WJM, de Haan RJ, Rijinders PT, Limburg M, van den Bos GAM. The burden of caregiving in partners of long-term stroke survivors. Stroke. 1999;29:1605–1611.
- McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36(10):2181–2186.
- McKevitt C, Redfern J, Mold F, Wolfe C. Qualitative studies of stroke: A systematic review. Stroke. 2004;35:1499–1505.
- Brereton, L, Nolan M. “You do know he’s had a stroke, don’t you?” Preparation for family caregiving – the neglected dimension. J Clin Nurs.2000;9:498–506.
- Pierce LL, Steiner V, Hicks B, Holzaepfel AL. Problems of new caregivers of persons with stroke. Rehabil Nurs. 2006;31(4):166–172.
- Eaves YD. Family recruitment issues and strategies: Caregiving in rural African Americans. Nurs Res. 1999;48(3):183–187.
- Smith LN, Norrie J, Kerr SM, Lawrence IM, Langhorne P, Lees, KR. Impact and infl uences on caregiver outcomes at one year post-stroke. Cerebrovasc Dis. 2004;18(2):145–153.
- Leedy PD, Ormrod JE. Practical Research: Planning and Design. New Jersey: Pearson Education; 2005.
- Dobkin RD, Rubino J T, Allen LA, et al. Predictors of treatment response to cognitive-behavioral therapy for depression in Parkinson’s disease [published online ahead of print March 12, 2012]. J Consult Clin Psychol.
- Suh M, Kim K, Kim I, Cho N, Choi H, Noh S. Caregiver’s burden, depression and support as predictors of post-stroke depression: A crosssectional survey. Int J Nurs Stud. 2005;42(6): 611–618.
- Visser-Meily A, Post M, van de Port I, Maas C, Forstberg-Wärleby G, Lindeman E. Psychosocial functioning of spouses of patients with stroke from initial inpatient rehabilitation to 3 years poststroke: Course and relations with coping strategies. Stroke. 2009;40: 1399–1404.
- Young J, Murray J, Forster A. Review of longer-term problems after disabling stroke. Rev Clin Gerontol. 2003;13:55–65.
- Dewey HM, Thrift AG, Mihalopoulos C, et al. Informal care for stroke survivors: Results from the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke. 2002;33:1028–1033.
- Hochstenbach J, Mulder T. Neuropsychology and the relearning of motor skills following stroke. Int J Rehabil Res. 1999;22: 11–19.
- Wade DT, Hewer RL. Functional abilities after stroke: Measurement, natural history and prognosis. J Neurol Neurosurg Psychiatry. 1987;50:177–182.
- Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
- Giorgi AP, Giorgi, BM. The descriptive phenomenological psychological method. In: Camic PM, Rhodes JE, Yardley L, eds. Qualitative Research in Psychology: Expanding Perspectives in Methodology and Design. Washington, DC: American Psychological Association; 2003: 243–259.
- Willig C. Introducing Qualitative Research in Psychology: Adventures in Theory and Method. Buckingham: Open University Press; 2001.
- Francis JJ, Johnston M, Robertson C, et al. What is an adequate sample size? Operationalising data saturation for theory-based interview studies. Psychol Health. 2009;22:1–17.
- Pierce LL. Caring and expressions of spirituality by urban caregivers of people with stroke in African American families. Qual Health Res. 2001;11: 339–352.
- Pierce LL, Steiner V, Havens H, Tormoehlen, K. Spirituality expressed by caregivers of stroke survivors. West J Nurs Res. 2008;30: 606–619.
- Noel-hoeksema S, Morrow J. Effects of rumination and distraction on naturally occurring depressed mood. Cognition Emotion. 1993;7: 561–570.
- Van den Heuvel ETP, de Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabil. 2001;15:669–677.
- Tiegs TJ, Heesacker M, Ketterson TU, et al. Coping by stroke caregivers: Sex similarities and differences. Top Stroke Rehabil. 2006;13(1):52–62.
- Barlow DH. Clinical Handbook of Psychological Disorders. 3rd ed. New York: The Guilford Press; 2001.
- Sharpe L, Curran L. Understanding the process of adjustment to illness. Social Sci Med. 2006; 62:1153–1166.
- Baer RA. Mindfulness meditation as a clinical intervention: A conceptual and empirical review. Clin Psychol: Sci Pract. 2003;10(2):125–143.
- Harris R. The Happiness Trap: Stop Struggling, Start Living. New South Wales: Exisle Publishing; 2007.
- Linehan MM. Skills Training Manual for Treating Borderline Personality Disorder. New York: Guilford Press; 1993.
- Ong, LML, De Haes JCJM, Hoos, AM, Lammes, FB. Doctor-patient communication: A review of the literature. Social Sci Med. 1995;40(7):903–918.
- Juraskova I, Butow P, Sharpe L, Campion M. “What does it mean?” Uncertainty, trust and communication following treatment for precancerous cervical abnormalities. Psycho-Oncology. 2007;16: 525–533.
- Klitzman R. Improving education on doctorpatient relationships and communication: lessons from doctors who become patients. Acad Med. 2006;81:447–453.
- Maguire P, Pitceathly C. Key communication skills and how to acquire them. Br Med J. 2002;325: 697–700.
- O’Rourke N, Barrett A, Jones R, Featherstone C, Hughes V. Collusion in doctor-patient communication: Patients rarely regret optimism. Br Med J. 2001;322: 1062–1063.
- Lutz B, Young ME, Cox, KJ, Martz, C, Creasy, KR. The crisis of stroke: experiences of patients and their family caregivers. Top Stroke Rehabil. 2011;18(6):786–797.
- Anderson S, Marlett NJ. The language of recovery: How effective communication of information is crucial to restructuring post-stroke life. Top Stroke Rehabil. 2004;11(4):55–67.
- Andersen, G, Vestergaard K, Ingemann-Nielsen M, Lauritzen L. Risk factors for post-stroke depression. Acta Psychiatrica Scand. 1995; 92(3):193–198.
- Periard ME, Ames BD. Lifestyle changes and coping patterns among caregivers of stroke survivors. Public Health Nurs., 1995;10(4):252–256.