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Expert Opinion on Therapeutic Patents Volume 15, 2005 - Issue 1
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Editorial

NIH data and resource sharing, data release and intellectual property policies for genomics community resource projects

Claire T Driscoll National Human Genome Research Institute, National Institutes of Health, Department of Health and Human Services, 12 South Drive MSC 5612, Bethesda, MD 20892-5612, USA
Pages 1-8 | Published online: 22 Apr 2005

Bibliography

  • COLLINS FS, GREEN ED, GUTTMACHER AE, GUYER MS et al: A vision for the future of genomics research. Nature (2003) 422:1–13.
  • HILBERT D: Mathematical problems. Bull. Am. Math. Soc. (1902) 8:437–479.
  • Sharing Data from Large-scale Biological Research Projects: A System of Tripartite Responsibility. Wellcome Trust report on Fort Lauderdale, USA (14–15 January, 2003).
  • BENTLEY DR: Genomic sequence information should be released immediately and freely in the public domain. Science (1996) 274:533–534.
  • THE INTERNATIONAL HAPMAP CONSORTIUM: International HapMap Consortium paper. Nature (2003) 426:789–796.
  • 35 USC § 202(a) (1994).
  • United States Public Health Service Technology Transfer Manual (Chapter 200): PHS Patent Policy.
  • Best practices for the licensing of genomicinventions. Fed. Reg. (2004) 69:67747–67748.
  • USPTO utility examination guidelines. Fed. Reg. (2001) 66:1092.
  • MARSHALL E: Patent on HIV receptor provokes an outcry. Science (2000) 287:1375–1377.
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  • EISENBERG RS: Patent swords and shields. Science (2003) 299:1018–1019.
  • DENNIS C: Geneticists Question Fees for Use of Patented 'Junk' DNA. Nature (2003) 423:105.
  • Proposed Genomic Research and Diagnostic Accessibility Act of 2002 (HR3967).
  • ABATE T: Do Patents Wrap Research in Red Tape. San Francisco Chronicle. (25/03/2002).

Websites

  • http://www.genome.gov/11006929 NHGRI April 14, 2003 press release: International Consortium Completes Human Genome Project.
  • http://www.ncbi.nlm.nih.gov/genome/guide/ human/ Human genome resources portal page.
  • http://www.nih.gov/science/models/mouse/s haring/l.html Trans -NIH Mouse Initiative web site.
  • http://mgc.nci.nih.gov Mammalian Gene Collection web site.
  • www.hapmap.org International HapMap Project web site.
  • http://www.genome.gov/1000910 NHGRI Policy on Release of Human Genomic Sequence Data.
  • http://www.gene.ud.ac.uldhugo/bermucia.htm Summary of principles agreed at the International Strategy Meeting on Human Genome Sequencing, Bermuda, (25–28 February, 1996).
  • http://www.wellcome.ac.uk/en/1/awtpubrep dat.html Wellcome Trust website.
  • http://www.nih.gov/news/researchtools/ Report of the NIH Working Group on Research Tools, presented to the Advisory Committee to the Director (June 4, 1998).
  • http://grants2.nih.gov/grants/policy/data_sha ring/ NIH data sharing information.
  • http://snp.cshl.org The SNP Consortium.
  • http://snp.cshl.org/about/faq.shtml The SNP Consortium: frequently asked questions.
  • http://www.nih.gov/science/models/mouse/ Trans-NIH mouse initiative.
  • http://www.nih.gov/science/models/mouse/s haring/ NIH statement of sharing and distributing mouse resources.
  • http://ott.od.nih.govinewpages/UBMTA.pdf Uniform Biological Materials Transfer Agreement (UBMTA).
  • http://mgc.nci.nih.gov/Info/Buy Mammalian Gene Collection — buying information.
  • www.nuffieldbioethics.org The ethics of patenting DNA: a discussion paper. Nuffield Council on Bioethics (July 2002).
  • http://europa.eu.int/ISPO/infosoc/legreg/doc s/969ec.html EU Database Directive 96/9/EC (1996).
  • http://grantsl.nih.gov/grants/guide/rfa-files/RFA-HG-04–004.html Example : request for application RFA-HG-04-004: intellectual property rights in genetics and genomics.
  • http://www.genome.gov/10001772 International Human Genome Sequencing Consortium (IHGSC)/Human Genome Project (HGP).
  • http://www.genome.gov/10001859 Mouse Genome Sequencing Consortium (MGSC).
  • http://www.genome.gov/11511308 Rat Genome Sequencing Consortium (RGSC).
  • http://www.nhgri.nih.gov/10005107 Encyclopaedia of DNA Elements (ENCODE).
  • www.royalsoc.ac.uk Royal Society website
  • www.austlii.edu.au/au/other/alrc/publication s/dp/68/ Gene Patenting and Human Health — discussion paper 68.
  • www.nationalacademies.org The National Academies website.

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