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Editorial

Complexities in transitioning a child with a rare disorder

Bibliography

  • Koop C. Executive Summary. In: Magrab P, Millar H, editors. Growing up and getting medical care: youth with special health care needs. US Public Health Service, Jekyll Island, GA, 1989. Available from: http://profiles.nlm.hih.gov/ps/access/NNBCZS.pdf
  • American Academy Pediatrics, American Academy of Family Physicians, American College of Physicians, American Society of Internal Medicine. A consensus statement on health care transition for young adults with special health care needs. Pediatrics 2002;110:1304-6
  • Institute of Medicine. Crossing the quaity chasm: a new health system for the twenty-first century. National Academies Press; Washington, DC: 2001
  • Nestrova G, Gahl WA. Cystinosis: the evolution of a treatable disease. Peadiatr Nephrol 2013;28:51-9
  • Theodoropoulos DS, Krasnewich D, Kaiser-Kupfer MI, Gahl WA. Classic nephropathic cystinosis as an adult disease. JAMA 1993;270:2200-4

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