Quality of life in psoriasis patients

References

• Augustin M, Reich K, Reich C, et al. Quality of psoriasis care in Germany – results of the national study PsoHealth. 2007;J Dtsch Dermatol Ges 2008;6(8):640-5
   Google Scholar
• Nelson PA, Barker Z, Griffiths CEM, et al. ‘On the surface’: a qualitative study of GPs’ and patients’ perspectives on psoriasis. BMC Fam Pract 2013;14:158
   PubMed Web of Science ®Google Scholar
• Fortune DG, Richards HL, Main C, Griffiths CEM. What patients with psoriasis believe about their condition. J Am Acad Dermatol 1998;39:196-201
   PubMed Web of Science ®Google Scholar
• Russo PAJ, Ilchef R, Cooper AJ. Psychiatric morbidity in psoriasis: a review. Australas J Dermatol 2004;45(3):155-9. quiz 160-1
   PubMedGoogle Scholar
• Augustin M, Reich K, Blome C, et al. Nail psoriasis in Germany: epidemiology and burden of disease. Br J Dermatol 2010;163(3):580-5
   PubMed Web of Science ®Google Scholar
• Jong EM de, Seegers BA, Gulinck MK, et al. Psoriasis of the nails associated with disability in a large number of patients: results of a recent interview with 1,728 patients. Dermatology 1996;193(4):300-3
   PubMedGoogle Scholar
• Zachariae R, Zachariae H, Blomqvist K, et al. Quality of life in 6497 Nordic patients with psoriasis. Br J Dermatol 2002;146(6):1006-16
   PubMedGoogle Scholar
• Samman PD, Fenton DA. The Nail in Disease. Oxford; London, UK: 1994
   Google Scholar
• Radtke MA, Reich K, Blome C, et al. Prevalence and clinical features of psoriatic arthritis and joint complaints in 2009 patients with psoriasis: results of a German national survey. J Eur Acad Dermatol Venereol 2009;23(6):683-91
   PubMed Web of Science ®Google Scholar
• Reich K, Krüger K, Mössner R, Augustin M. Epidemiology and clinical pattern of psoriatic arthritis in Germany: a prospective interdisciplinary epidemiological study of 1511 patients with plaque-type psoriasis. Br J Dermatol 2009;160(5):1040-7
   PubMed Web of Science ®Google Scholar
• Gisondi P, Girolomoni G, Sampogna F, et al. Prevalence of psoriatic arthritis and joint complaints in a large population of Italian patients hospitalised for psoriasis. Eur J Dermatol 2005;15(4):279-83
   PubMedGoogle Scholar
• Taylor WJ. Epidemiologgy of psoriatic arthritis. Curr Opin Rheumatol 2002;14:98-103
   PubMed Web of Science ®Google Scholar
• Radtke MA, Reich K, Beikert F, Augustin M. Psoriasisarthritis. Eine interdisziplinäre Herausforderung. Hautarzt 2011;62(10):779-90. quiz 791-2
   PubMedGoogle Scholar
• Wahl AK, Robinson HS, Langeland E, et al. Clinical characteristics associated with illness perception in psoriasis. Acta Derm Venereol 2013. [Epub ahead of print]
   PubMedGoogle Scholar
• Augustin M, Reich K, Glaeske G, et al. Co-morbidity and age-related prevalence of psoriasis: analysis of health insurance data in Germany. Acta Derm Venereol 2010;90(2):147-51
   PubMed Web of Science ®Google Scholar
• Reich K. The concept of psoriasis as a systemic inflammation: implications for disease management. J Eur Acad Dermatol Venereol 2012;26(Suppl 2):3-11
   PubMed Web of Science ®Google Scholar
• Montaudié H, Albert-Sabonnadière C, Acquacalda E, et al. Impact of systemic treatment of psoriasis on inflammatory parameters and markers of comorbidities and cardiovascular risk: results of a prospective longitudinal observational study. J Eur Acad Dermatol Venereol 2013; [Epub ahead of print]
   PubMedGoogle Scholar
• Augustin M, Reich K, Reusch M, et al. Health services research in psoriasis – the German approach. Dermatology 2009;218(4):293-301
   PubMedGoogle Scholar
• van de Kerkhof PCM. How to position antipsoriatic treatments? J Dermatolog Treat 2006;17(6):325-6
   PubMed Web of Science ®Google Scholar
• Poulin Y, Papp KA, Wasel NR, et al. A Canadian online survey to evaluate awareness and treatment satisfaction in individuals with moderate to severe plaque psoriasis. Int J Dermatol 2010;49(12):1368-75
   PubMed Web of Science ®Google Scholar
• Reich K, Mrowietz U. Treatment goals in psoriasis. J Dtsch Dermatol Ges 2007;5(7):566-74
   PubMedGoogle Scholar
• Krueger G, Koo J, Lebwohl M, et al. The impact of psoriasis on quality of life: results of a 1998 National Psoriasis Foundation patient-membership survey. Arch Dermatol 2001;137(3):280-4
   PubMed Web of Science ®Google Scholar
• Dubertret L, Mrowietz U, Ranki A, et al. European patient perspectives on the impact of psoriasis: the EUROPSO patient membership survey. Br J Dermatol 2006;155(4):729-36
   PubMed Web of Science ®Google Scholar
• Nast A, Boehncke WH, Mrowietz U, et al. S3 - Guidelines on the treatment of psoriasis vulgaris (English version). Update. J Dtsch Dermatol Ges 2012;10:1-95
   Web of Science ®Google Scholar
• Smith CH, Anstey AV, Barker JNWN, et al. British Association of Dermatologists guidelines for use of biological interventions in psoriasis 2005. Br J Dermatol 2005;153(3):486-97
   PubMed Web of Science ®Google Scholar
• Smith CH, Anstey AV, Barker JNWN, et al. British Association of Dermatologists’ guidelines for biologic interventions for psoriasis 2009. Br J Dermatol 2009;161(5):987-1019
   PubMed Web of Science ®Google Scholar
• Spuls PI, Tuut MK, van Everdingen JJ, de Rie MA. Richtlijn ‘Foto(chemo)therapie en systemische therapie bij ernstige chronische plaque-psoriasis’. Ned Tijdschr Geneeskd 2004;148(43):2121-5
   PubMedGoogle Scholar
• Pathirana D, Ormerod AD, Saiag P, et al. European S3-guidelines on the systemic treatment of psoriasis vulgaris. J Eur Acad Dermatol Venereol 2009;23(Suppl 2):1-70
   PubMed Web of Science ®Google Scholar
• Blome C, Simianer S, Purwins S, et al. Time needed for treatment is the major predictor of quality of life in psoriasis. Dermatology 2010;221(2):154-9
   PubMedGoogle Scholar
• Mrowietz U. Implementing treatment goals for successful long-term management of psoriasis. J Eur Acad Dermatol Venereol 2012;26(Suppl 2):12-20
   PubMed Web of Science ®Google Scholar
• Bullinger M, Kirchberger I, Ware J. Der deutsche SF-36 health survey. Übersetzung und psychometrische testung eines krankheitsübergreifenden Instruments zur erfassung der gesundheitsbezogenen lebensqualität. Z Gesundh Wiss 1995;3:21-36
   Google Scholar
• Finlay AY, Khan GK. Dermatology Life Quality Index (DLQI) – a simple practical measure for routine clinical use. Clin Exp Dermatol 1994;19(3):210-16
   PubMed Web of Science ®Google Scholar
• Augustin M, Radtke MA, Zschocke I, et al. The patient benefit index: a novel approach in patient-defined outcomes measurement for skin diseases. Arch Dermatol Res 2009;301(8):561-71
   PubMed Web of Science ®Google Scholar
• Kimball AB, Gieler U, Linder D, et al. Psoriasis: is the impairment to a patient’s life cumulative? J Eur Acad Dermatol Venereol 2010;24(9):989-1004
   PubMed Web of Science ®Google Scholar
• Bhatti ZU, Salek MS, Finlay AY. Major life changing decisions and cumulative life course impairment. J Eur Acad Dermatol Venereol 2011;25(2):245-6
   PubMedGoogle Scholar
• Kimball AB, Jacobson C, Weiss S, et al. The psychosocial burden of psoriasis. Am J Clin Dermatol 2005;6(6):383-92
   PubMed Web of Science ®Google Scholar
• Fortune DG, Richards HL, Griffiths CEM, Main CJ. Psychological stress, distress and disability in patients with psoriasis: consensus and variation in the contribution of illness perceptions, coping and alexithymia. Br J Clin Psychol 2002;41(Pt 2):157-74
   PubMedGoogle Scholar
• Augustin M. Cumulative life course impairment: identifying patients at risk. Curr Probl Dermatol 2013;44:74-81
   PubMedGoogle Scholar
• Koo J. Population-based epidemiologic study of psoriasis with emphasis on quality of life assessment. Dermatol Clin 1996;14(3):485-96
   PubMed Web of Science ®Google Scholar
• Rapp SR, Feldman SR, Exum ML, et al. Psoriasis causes as much disability as other major medical diseases. J Am Acad Dermatol 1999;41(3 Pt 1):401-7
   PubMed Web of Science ®Google Scholar
• Richards HL, Fortune DG, Weidmann A, et al. Detection of psychological distress in patients with psoriasis: low consensus between dermatologist and patient. Br J Dermatol 2004;151(6):1227-33
   PubMed Web of Science ®Google Scholar
• Nelson PA, Chew-Graham CA, Griffiths CEM, Cordingley L. Recognition of need in health care consultations: a qualitative study of people with psoriasis. Br J Dermatol 2013;168(2):354-61
   PubMed Web of Science ®Google Scholar
• Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30(6):473-83
   PubMed Web of Science ®Google Scholar
• McHorney CA, Ware JE, Raczek AE. The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 1993;31(3):247-63
   PubMed Web of Science ®Google Scholar
• Rabin R, de Charro F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med 2001;33(5):337-43
   PubMed Web of Science ®Google Scholar
• Augustin M, Zschocke I, Lange S, et al. Lebensqualität bei haut- erkrankungen: vergleich verschiedener lebensqualitäts-fragebögen bei psoriasis und atopischer dermatitis. Hautarzt 1999;50(10):715-22
   PubMed Web of Science ®Google Scholar
• Finlay AY, Kelly SE. Psoriasis – an index of disability. Clin Exp Dermatol 1987;12(1):8-11
   PubMedGoogle Scholar
• Lewis VJ, Finlay AY. Two decades experience of the Psoriasis Disability Index. Dermatology 2005;210(4):261-8
   PubMedGoogle Scholar
• Augustin M, Krüger K, Radtke MA, et al. Disease severity, quality of life and health care in plaque-type psoriasis: a multicenter cross-sectional study in Germany. Dermatology 2008;216(4):366-72
   PubMed Web of Science ®Google Scholar
• Mrowietz U, Kragballe K, Reich K, et al. Definition of treatment goals for moderate to severe psoriasis: a European consensus. Arch Dermatol Res 2011;303(1):1-10
   PubMed Web of Science ®Google Scholar
• Hongbo Y, Thomas CL, Harrison MA, et al. Translating the science of quality of life into practice: what do dermatology life quality index scores mean? J Invest Dermatol 2005;125(4):659-64
   PubMed Web of Science ®Google Scholar
• Hariram P, Mosam A, Aboobaker J, Esterhuizen T. Quality of life in psoriasis patients in KwaZulu Natal, South Africa. Indian J Dermatol Venereol Leprol 2011;77(3):333-4
   PubMedGoogle Scholar
• Aghaei S, Moradi A, Ardekani GS. Impact of psoriasis on quality of life in Iran. Indian J Dermatol Venereol Leprol 2009;75:220
   PubMedGoogle Scholar
• Lin T, See L, Shen Y, et al. Quality of life in patients with psoriasis in northern Taiwan. Chang Gung Med J 2011;34(2):186-96
   PubMedGoogle Scholar
• Gelfand JM, Feldman SR, Stern RS, et al. Determinants of quality of life in patients with psoriasis: a study from the US population. J Am Acad Dermatol 2004;51(5):704-8
   PubMed Web of Science ®Google Scholar
• Ciocon DH, Horn EJ, Kimball AB. Quality of life and treatment satisfaction among patients with psoriasis and psoriatic arthritis and patients with psoriasis only. Results of the 2005 Spring US National Psoriasis Foundation Survey. Am J Clin Dermatol 2008;9(2):111-17
   PubMedGoogle Scholar
• Puig L, Strohal R, Husni ME, et al. Cardiometabolic profile, clinical features, quality of life and treatment outcomes in patients with moderate-to-severe psoriasis and psoriatic arthritis. J Dermatolog Treat 2013. [Epub ahead of print]
   Web of Science ®Google Scholar
• Myon E, Finlay P, Lefrançois P, Taïeb C. Duration of psoriasis and quality of life. J Eur Acad Dermatol Venereol 2003;17:165
   Google Scholar
• Ginsburg IH, Link BG. Feelings of stigmatization in patients with psoriasis. J Am Acad Dermatol 1989;20(1):53-63
   PubMed Web of Science ®Google Scholar
• Richards HL, Fortune DG, Main CJ, Griffiths CEM. Stigmatization and psoriasis. Br J Dermatol 2003;149(1):209-11
   PubMedGoogle Scholar
• Korte J de, Sprangers MA, Mombers FM, Bos JD. Quality of life in patients with psoriasis: a systematic literature review. J Investig Dermatol Symp Proc 2004;9(2):140-7
   PubMedGoogle Scholar
• Gaikwad R, Deshpande S, Raje S, et al. Evaluation of functional impairment in psoriasis. Indian J Dermatol Venereol Leprol 2006;72(1):37-40
   PubMedGoogle Scholar
• Graça Pereira M, Brito L, Smith T. Dyadic Adjustment, Family Coping, Body Image, Quality of Life and Psychological Morbidity in Patients with Psoriasis and Their Partners. Int J Behav Med 2012;19:260-9
   PubMedGoogle Scholar
• Eghlileb AM, Davies EEG, Finlay AY. Psoriasis has a major secondary impact on the lives of family members and partners. Br J Dermatol 2007;156(6):1245-50
   PubMedGoogle Scholar
• Gupta MA, Gupta AK. Psoriasis and sex: a study of moderately to severely affected patients. Int J Dermatol 1997;36(4):259-62
   PubMed Web of Science ®Google Scholar
• Sampogna F, Gisondi P, Tabolli S, Abeni D; IDI Multipurpose Psoriasis Research on Vital Experiences Investigators. Impairment of sexual life in patients with psoriasis. Dermatology 2007;214:144-50
   PubMed Web of Science ®Google Scholar
• Picardi A, Abeni D, Renzi C, et al. Increased psychiatric morbidity in female outpatients with skin lesions on visible parts of the body. Acta Derm Venereol 2001;81(6):410-14
   PubMedGoogle Scholar
• Sojević Timotijević Z, Janković S, Trajković G, et al. Identification of psoriatic patients at risk of high quality of life impairment. J Dermatolog Treat 2013;40:797-804
   Google Scholar
• Young M. The psychological and social burdens of psoriasis. Dermatol Nurs 2005;17(1):15-19
   PubMedGoogle Scholar
• Varni JW, Globe DR, Gandra SR, et al. Health-related quality of life of pediatric patients with moderate to severe plaque psoriasis: comparisons to four common chronic diseases. Eur J Pediatr 2012;171(3):485-92
   PubMed Web of Science ®Google Scholar
• Ayala F, Sampogna F, Romano G, et al. The impact of psoriasis on work-related problems: a multicenter cross-sectional survey. J Eur Acad Dermatol Venereol 2013. [Epub ahead of print]
   Google Scholar
• Hughes JE, Barraclough BM, Hamblin LG, White JE. Pschiatric symptoms in dermatology patients. Br J Psychol 1983;143:51-4
   Google Scholar
• Horn EJ, Fox KM, Patel V, et al. Association of patient-reported psoriasis severity with income and employment. J Am Acad Dermatol 2007;57(6):963-71
   PubMed Web of Science ®Google Scholar
• Fowler JF, Duh MS, Rovba L, et al. The impact of psoriasis on health care costs and patient work loss. J Am Acad Dermatol 2008;59(5):772-80
   PubMed Web of Science ®Google Scholar
• Kimball AB, Yu AP, Signorovitch J, et al. The effects of adalimumab treatment and psoriasis severity on self-reported work productivity and activity impairment for patients with moderate to severe psoriasis. J Am Acad Dermatol 2012;66(2):e67-76
   PubMedGoogle Scholar
• Pearce DJ, Singh S, Balkrishnan R, et al. The negative impact of psoriasis on the workplace. J Dermatolog Treat 2006;17(1):24-8
   PubMed Web of Science ®Google Scholar
• Reich K, Schenkel B, Zhao N, et al. Ustekinumab decreases work limitations, improves work productivity, and reduces work days missed in patients with moderate-to-severe psoriasis: results from PHOENIX 2. J Dermatolog Treat 2011;22(6):337-47
   PubMed Web of Science ®Google Scholar
• Chan B, Hales B, Shear N, et al. Work-related lost productivity and its economic impact on Canadian patients with moderate to severe psoriasis. J Cutan Med Surg 2009;13(4):192-7
   PubMed Web of Science ®Google Scholar
• Feldman SR, Fleischer AB, Reboussin DM, et al. The economic impact of psoriasis increases with psoriasis severity. J Am Acad Dermatol 1997;37(4):564-9
   PubMed Web of Science ®Google Scholar
• Kotsis K, Voulgari PV, Tsifetaki N, et al. Anxiety and depressive symptoms and illness perceptions in psoriatic arthritis and associations with physical health-related quality of life. Arthritis Care Res (Hoboken) 2012;64(10):1593-601
   PubMed Web of Science ®Google Scholar
• Augustin M, Holland B, Dartsch D, et al. Adherence in the treatment of psoriasis: a systematic review. Dermatology 2011;222:363-74
   PubMed Web of Science ®Google Scholar
• Richards HL, Fortune DG, Griffiths CEM. Adherence to treatment in patients with psoriasis. J Eur Acad Dermatol Venereol 2006;20:370-9
   PubMed Web of Science ®Google Scholar
• Kimball AB, Gladman D, Gelfand JM, et al. National Psoriasis Foundation clinical consensus on psoriasis comorbidities and recommendations for screening. J Am Acad Dermatol 2008;58(6):1031-42
   PubMed Web of Science ®Google Scholar
• Daudén E, Castañeda S, Suárez C, et al. Clinical practice guideline for an integrated approach to comorbidity in patients with psoriasis. J Eur Acad Dermatol Venereol 2013;27(11):1387-404
   PubMed Web of Science ®Google Scholar
• Ljosaa TM, Rustoen T, Mörk C, et al. Skin pain and discomfort in psoriasis: an exploratory study of symptom prevalence and characteristics. Acta Derm Venereol 2010;90(1):39-45
   PubMed Web of Science ®Google Scholar
• McKenna KE, Stern RS. The impact of psoriasis on the quality of life of patients from the 16-center PUVA follow-up cohort. J Am Acad Dermatol 1997;36(3 Pt 1):388-94
   PubMedGoogle Scholar
• Sampogna F, Gisondi P, Melchi CF, et al. Prevalence of symptoms experienced by patients with different clinical types of psoriasis. Br J Dermatol 2004;151(3):594-9
   PubMed Web of Science ®Google Scholar
• Yosipovitch G, Goon A, Wee J, et al. The prevalence and clinical characteristics of pruritus among patients with extensive psoriasis. Br J Dermatol 2000;143(5):969-73
   PubMed Web of Science ®Google Scholar
• Amatya B, Wennersten G, Nordlind K. Patients’ perspective of pruritus in chronic plaque psoriasis: a questionnaire-based study. J Eur Acad Dermatol Venereol 2008;22(7):822-6
   PubMed Web of Science ®Google Scholar
• Globe D, Bayliss MS, Harrison DJ. The impact of itch symptoms in psoriasis: results from physician interviews and patient focus groups. Health Qual Life Outcomes 2009;7:62
   PubMed Web of Science ®Google Scholar
• Choi J, Koo JYM. Quality of life issues in psoriasis. J Am Acad Dermatol 2003;49(2 Suppl):S57-61
   PubMed Web of Science ®Google Scholar
• Zachariae R, Zachariae C, Ibsen HHW, et al. Psychological symptoms and quality of life of dermatology outpatients and hospitalized dermatology patients. Acta Derm Venereol 2004;84(3):205-12
   PubMed Web of Science ®Google Scholar
• Wahl A, Moum T, Hanestad BR, Wiklund I. The relationship between demographic and clinical variables, and quality of life aspects in patients with psoriasis. Qual Life Res 1999;8(4):319-26
   PubMedGoogle Scholar
• Ljosaa TM, Mork C, Stubhaug A, et al. Skin pain and skin discomfort is associated with quality of life in patients with psoriasis. J Eur Acad Dermatol Venereol 2012;26(1):29-35
   PubMedGoogle Scholar
• Augustin M, Alvaro-Gracia JM, Bagot M, et al. A framework for improving the quality of care for people with psoriasis. J Eur Acad Dermatol Venereol 2012;26(Suppl 4):1-16
   PubMedGoogle Scholar
• Mrowietz U, Kragballe K, Nast A, Reich K. Strategies for improving the quality of care in psoriasis with the use of treatment goals – a report on an implementation meeting. J Eur Acad Dermatol Venereol 2011;25(Suppl 3):1-13
   PubMedGoogle Scholar
• Jankowiak B, Sekmistrz S, Kowalewska B, et al. Satisfaction with life in a group of psoriasis patients. Postepy Dermatol Alergol 2013;30(2):85-90
   PubMedGoogle Scholar
• de Korte J, Sprangers MAG, Mombers FM, Bos JD. Quality of Life in Patients with Psoriasis: a Systematic Literature Review. J Investig Dermatol Symp Proc 2004;9(2):140-7
   PubMed Web of Science ®Google Scholar