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Expert Review of Pharmacoeconomics & Outcomes Research Volume 16, 2016 - Issue 2
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Special Report

Continuous patient engagement in cardiovascular disease clinical comparative effectiveness research

Joseph VandigoPharmaceutical Health Services Research Department, University of Maryland School of Pharmacy, Baltimore, MD, USACorrespondence[email protected]
,
Ebenezer OloyedePharmaceutical Health Services Research Department, University of Maryland School of Pharmacy, Baltimore, MD, USA
,
Abdalla AlyPharmerit International, Baltimore, MD, USA
,
Aurelia L. LairdClinical and Community Research, Bon Secours Baltimore Health System, Baltimore, MD, USA
,
Catherine E. CookeDepartment of Pharmacy Practice and Science, University of Maryland School of Pharmacy, Baltimore, MD, USA
&
C. Daniel MullinsPharmaceutical Health Services Research Department, University of Maryland School of Pharmacy, Baltimore, MD, USA
Pages 193-198 | Received 17 Jan 2016, Accepted 04 Mar 2016, Published online: 25 Mar 2016

References

  • National Institutes of Health. Estimates of funding for various research, condition, and disease categories (RCDC); 2014; [ cited 2015 Jan 26]. Available from: http://report.nih.gov/categorical_spending.aspx
  • Mozaffarian D, Benjamin EJ, Go AS, et al.; on behalf of the American Heart Association Statistics Committee and Stroke Statistics Subcommittee. Heart disease and stroke statistics—2016 update: a report from the American Heart Association. Circulation. 2016;133.
  • Centers for Disease Control and Prevention. Prevalence of hypertension and controlled hypertension — United States, 2007–2010. Morb Mortal Wkly Rep. 2013;Suppl 3:144–148.
  • Iglehart JK. Prioritizing comparative-effectiveness research–IOM recommendations. N Engl J Med. 2009;361:325–328.
  • Sox HC, Goodman SN. The methods of comparative effectiveness research. Annu Rev Public Health. 2012;33:425–445.
  • Patient-Centered Outcomes Research Institute. Research we support; 2014; [ cited 2016 Jan 25]. Availabe from: http://www.pcori.org/content/research-we-support
  • Mullins CD, Abdulhalim AM, Lavallee DC. Continuous patient engagement in comparative effectiveness research. Jama. 2012;307:1587–1588.
  • Concannon TW, Fuster M, Saunders T, et al. A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research. J Gen Intern Med. 2014;29(12):1692–1701.
  • Domecq JP, Prutsky G, Elraiyah T, et al. Patient engagement in research: a systematic review. BMC Health Serv Res. 2014;14:89.
  • Frank L, Forsythe L, Ellis L, et al. Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute. Quality Life Res: Intl J Qual life Aspects Treatt, Care Rehabil. 2015;24(5):1033–1041.
  • PCORI (Patient-Centered Outcomes Research Institute). PCORI engagement rubric; 2015; [ cited 2015 Nov 20. Available from: http://www.pcori.org/sites/default/files/Engagement-Rubric.pdf
  • Kauffman KS, Dosreis S, Ross M, et al. Engaging hard-to-reach patients in patient-centered outcomes research. J Comp Eff Res. 2013;2:313–324.
  • Lancsar E, Louviere J. Conducting discrete choice experiments to inform healthcare decision making: a user’s guide. Pharmacoeconomics. 2008;26:661–677.
  • Street J, Duszynski K, Krawczyk S, et al. The use of citizens’ juries in health policy decision-making: a systematic review. Soc Sci Med. 2014;109:1–9.
  • Gascón JJ, Sánchez-Ortuño M, Llor B, et al. Group ftTCiHS. Why hypertensive patients do not comply with the treatment: Results from a qualitative study. Fam Pract. 2004;21:125–130.
  • The National Institute for Health and Clinical Excellence. Hypertension: the clinical management of primary hypertension in adults: update of clinical guidelines 18 and 34. London: National Clinical Guideline Centre; 2011.
  • Cashman SB, Adeky S, Allen AJ, et al. The power and the promise: working with communities to analyze data, interpret findings, and get to outcomes. Am J Public Health. 2008 Aug;98(8):1407–1417.
  • Google Inc. Google Docs - create and edit documents online, for free; [ cited 2015 Mar 28]. Available from: www.google.com/docs/about/
  • Wyatt SB, Diekelmann N, Henderson F, et al. A community-driven model of research participation: the Jackson heart study participant recruitment and retention study. Ethn Dis. 2003;13:438–455.
  • Arsand E, Demiris G. User-centered methods for designing patient-centric self-help tools. Inform Health Soc Care. 2008;33:158–169.
  • Mullins CD, Vandigo J, Zheng Z, et al. Patient-centeredness in the design of clinical trials. Value health: J Int Soc Pharmacoeconomics Outcomes Res. 2014;17:471–475.
  • Lo B. Sharing clinical trial data: maximizing benefits, minimizing risk. Jama. 2015;313:793–794.
  • The Association of Black Cardiologists Inc. Patient resources; 2015; [ cited 2016 Jan 15]. Available from: http://www.abcardio.org/patientresources.php
  • Esmail L, Moore E, Rein A. Evaluating patient and stakeholder engagement in research: moving from theory to practice. J Comp Eff Res. 2015;4:133–145.
  • Lavallee DC, Wicks P, Alfonso Cristancho R, et al. Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech? Expert Rev Pharmacoecon Outcomes Res. 2014;14:335–344.

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