Non-communicating children’s pain checklist: better pain assessment for severely disabled children

References

• International Association for the Study of Pain, Task Fare on Taxonomy. Classification of Chronic Pain: Descriptions of chronic pain, 9mckames and definitions of pain terms. 2nd Ed IASP Press, WA, USA (1994).
   Google Scholar
• Anand KJS, Craig KD. New perspectives on the definition of pain. Pain 67,3–6 (1996).
   PubMed Web of Science ®Google Scholar
• Eland JM, Anderson JE. The experience of pain in children. In: Pain: A Source Book For Nurses Ancl Other Health Professionals. Jacox A. (Ed.). Little Brown, MA, USA 453–478 (1977).
   Google Scholar
• Guardiola E, Banos JE. Is there an increasing interest in pediatric pain? Analysis of the biomedical articles published in the 1980s. j Pain Symptom Manage. 8(7), 449–450 (1993).
   Google Scholar
• Schechter NL. The status of pediatric pain control. Child Adolesc. P9rhiatt: Clin. N Am. 6(4), 687–702 (1997).
   Google Scholar
• Broome ME, Richtsmeier A, Maikler V, Alexander M. Pediatric pain practices: a national survey of health professionals. Pain. Symptom Manage. 11(5), 312–320 (1996).
   PubMed Web of Science ®Google Scholar
• Schechter NL, Bernstein BA, Beck A, Hart L, Scherzer L. Individual differences in children's response to pain: role of temperament and parental characteristics. Pediatric587, 171–177 (1991).
   Google Scholar
• Maurer H, Newbrough JR. Facial expressions of mentally retarded and nonretarded children: II. Recognition by nonretarded adults with varying experience with mental retardation. Am. J. Ment. Defic. 91(5), 511–515 (1987).
   Google Scholar
• Maurer H, Newbrough JR. Facial expressions of mentally retarded and nonretarded children: I. Recognition by mentally retarded and nonretarded adults. Am. Ment. Defic. 91(5), 505–510 (1987).
   Google Scholar
• Nordin V, Gillberg C. Autism spectrum disorders in children with physical or mental disability or both. I: clinical and epidemiological aspects. Dev. Med. Child Neural 38(4), 297–313 (1996).
   Google Scholar
• Jancar J, Speller CJ. Fatal intestinalobstruction in the mentally handicapped. .1. Intellect. Disabil Res. 38,413-422 (1994).
   Google Scholar
• Leland NL, Garrard J, Smith DK. Comparison of injuries to children with and without disabilities in a day-care center. j Dev. Behav. Pedlar': 15(6), 402–408 (1994).
   Google Scholar
• Lorenz JM, Wooliever DE, Jetton JR, Paneth N. A quantitative review of mortality and developmental disability in extremely premature newborns. Ariz Pedlar': Adolesc. Med 152(5), 425–435 (1998).
   Google Scholar
• McGrath PJ, Unruh AM. Pain in Children and Adolescents. Elsevier, Amsterdam, The Netherlands (1987).
   Google Scholar
• Roy A, Simon GB. Intestinal obstruction as a cause of death in the mentally handicapped.' Ment. Del Res 31,193–197 (1987) .
   PubMedGoogle Scholar
• Fanurik D, Koh JL, Schmitz ML, Harrison RD, Conrad TM. Children with cognitive impairment: parent report of pain and coping. j Dev. Behav. Pedlar': 20(4), 228–234 (1999).
   Google Scholar
• Biersdorff KK. Pain insensitivity and indifference: alternative explanations for some medical catastrophes. Ment. Retard. 29(6), 359–362 (1991).
   PubMedGoogle Scholar
• Biersdorff KK. Incidence of significantly altered pain experience among individuals with developmental disabilities. Am. Ment. Retard. 98(5), 619–631 (1994).
   Google Scholar
• Lu DR Clinical investigation of relative indifference to pain among adolescent mental retardates. ASDCI Dent. Child. 48(4), 285–288 (1981).
   Google Scholar
• Oberlander TF. Pain assessment and management in infants and young children with developmental disabilities. Infants Young Children 14(2), 33–47 (2001).
   Google Scholar
• van Dongen IKAJ, Huijer Abu-Saad H, Hamers JPH, Terstegen C. Developing an individual pain profile for pain assessment in children with profound cognitive impairment. J. Intellectual Disability Reseatrh 44,303 (2000).
   Google Scholar
• van Dongen IKAJ, Abu-Saad HH, Hamers JPH. Pain assessment in children with profound cognitive impairment. Intellectual Disability Research 44,304 (2000).
   Google Scholar
• Anand KJS, Rovnaghi C, Walden M, Churchill J. Consciousness, behaviour and clinical impact of the definition of pain. Pain Forum 8(2), 64–73 (1999).
   Google Scholar
• Breau LM, MacLaren J, McGrath PJ, Camfield C, Finley GA. Caregivers' beliefs regarding pain in children with cognitive impairments: the relation between pain sensation and reaction increases with severity of impairment. Clin. j Pain (In Press).
   Google Scholar
• Breau LM, McGrath PJ, Camfield C, Rosmus C, Finley GA. Preliminary validation of an observational pain checklist for persons with cognitive impairments and inability to communicate verbally. Dev. Med. Child Neural 42 (9), 609–616 (2000).
   Google Scholar
• Hunt A, Burne R. Medical and nursing problems of children with neurodegenerative disease. Palliat. Med. 9, 19–26 (1995).
   PubMedGoogle Scholar
• Hadden KL, von Baeyer CL. Pain in children with cerebral palsy: commontriggers and expressive behaviors. Pain 99(1-2), 281–288 (2002).
   PubMedGoogle Scholar
• Stallard P, Williams L, Lenton S, Velleman R. Pain in cognitively impaired, non-communicating children. Arch. Dis. Child 85(6), 460–462 (2001).
   Google Scholar
• Breau LM, Camfield CS, McGrath PJ, Finley GA. The incidence of pain in children with severe cognitive impairments. (Submitted).
   Google Scholar
• Perquin CW, Hazebroek-Kampschreur AA, Hunfeld JA etal Pain in children and adolescents: a common experience. Pain 87(1), 51–58 (2000).
   PubMed Web of Science ®Google Scholar
• Finley GA, McGrath PJ, Forward SP, McNeill G, Fitzgerald P Parents' management of children's pain following minor surgery. Pain 64,83–87 (1996).
   PubMed Web of Science ®Google Scholar
• Reynell JK. Postoperative disturbances observed in children with cerebral palsy. Dev. Med Child Neural 7(4), 360–376 (1965).
   PubMedGoogle Scholar
• American Bychiatric Association. Diagnostic and Statistical Manual of Mental Disonlers. Fourth Ed American Psychiatric Association, Washington DC, USA (1994).
   Google Scholar
• Mette F, Abittan J. Essais devaluation de la douleur chez le polyhandicape. Annales 16nesitherapie 15,101–104 (1988).
   Google Scholar
• Collignon IPoimoguerE. Behar M, Combe JC, Pen in C Eautomutilation: expression de la douleur chez le Ryer deficient mental pmfond La Douleur de 'Enfant Quelles Resposes?UNESCO, Paris, 15–21 (1992).
   Google Scholar
• Collignon P, Giusiano B, Porsmoguer E, Jimeno ME, Combe JC. Difficultes du diagnostic de la douleur chez l'enfant polyhandicape. Ann. Pecliatr. 42(2), 123–126 (1995).
   Google Scholar
• Giusiano B, Jimeno MT, Collignon P, Chau Y. Utilization of a neural network in the elaboration of an evaluation scale for pain in cerebral palsy. Methods Med 34,498–502 (1995).
   PubMedGoogle Scholar
• Fanurik D, Koh JL, Harrison D, Conrad TM. Children with cognitive impairment: parent report of pain and coping. Pmceedings of the 8th 14brIcl Coignes on Pain, PogAss in Pain Research and Marwement, 299–299 (1996).
   Google Scholar
• Oberlander TF, Gilbert CA, Chambers CT, O'Donnell ME, Craig KD. Biobehavioral responses to acute pain in adolescents with a significant neurologic impairment. Clin. J Pain 15,201–209 (1999).
   Google Scholar
• Ekman P, Friesen WV Investigator's Guide to the Facial Action Coding System. Consulting Psychologists Press, Palo Alto, CA, USA (1978).
   Google Scholar
• Chambers CT, Cassidy KL, McGrath PJ, Gilbert CA, Craig KD. Child Facial Coding System: A Manual Dalhousie University and University of British Columbia, Canada (1996).
   Google Scholar
• Breau LM, McGrath PJ, Craig KD, Santor D, Cassidy KL, Reid GJ. Facial expression of children receiving immunizations: a principal components analysis of the child facial coding system. Clin. J Pain 17(2), 178–186 (2001).
   PubMedGoogle Scholar
• McGrath PJ, Rosmus C, Camfield C, Campbell MA, Hennigar AW. Behaviours caregivers use to determine pain in nonverbal, cognitively impaired individuals. Dev. Med Child Neural 40, 340–343 (1998).
   Google Scholar
• Fearon I, McGrath PJ, Achat H. Booboos: the study of everyday pain among young children. Pain 68,55–62 (1996).
   PubMed Web of Science ®Google Scholar
• Breau LM, Camfield CS, McGrath PJ, Rosmus C, Finley GA. Measuring pain accurately in children with cognitive impairments:refinement of a caregiver scale. Pediab: 138,721–727 (2001).
   Google Scholar
• Stallard P, Williams L, Velleman R, Lenton S, McGrath PJ, Taylor G. The development and evaluation of the pain indicator for communicately impaired children (PICIC). Pain 1-2(145), 145–149 (2002).
   Google Scholar
• Breau LM, Finley GA, McGrath PJ, Camfield CS. Validation of the non-communicating children's pain checklist-postoperative version. Anesthesiology 96(3), 528–535 (2002).
   PubMed Web of Science ®Google Scholar
• Merkel SI, Voepel Lewis T, Shayevitz JR, Malviya S. The FLACC: a behavioral scale for scoring postoperative pain in young children. Pecliati: Nuts. 23(3), 293–297 (1997).
   Google Scholar
• van Dijk M, de Boer JB, Koot HM, Tibboel D, Passchier J, Duivenvoorden HJ. The reliability and validity of the COMFORT scale as a postoperative pain instrument in 0 to 3 year old infants. Pain 84(2–3), 367–377 (2000).
   Google Scholar
• Voepel-Lewis T, Merkel S, Tait AR, Trzcinka A, Malviya S. The reliability and validity of the Face, Legs, Activity, CRY, Consolability observational tool as a measure of pain in children with cognitive impairment. Anesth. Analg: 95,1224-1229 (2002).
   Google Scholar
• Breau LM, McGrath PJ, Camfield C, Finley GA. Psychometric properties of the non-communicating children's pain checklist-revised. Pain 99,349–357 (2002).
   PubMed Web of Science ®Google Scholar
• Grunau RE, Oberlander TF, Whitfield MF, Fitzgerald C, Lee SK. Demographic and therapeutic determinants of pain reactivity in very low birth weight neonates at 32 weeks' postconceptional age. Pediatrics 107(1), 105–112 (2001).
   Google Scholar
• Carr TD, Lemanek KL, Armstrong FD. Pain and fear ratings: Clinical implications of age and gender differences. J Pain Symptom Manag. 15(5), 305–313 (1998).
   PubMed Web of Science ®Google Scholar
• Breau LM, Camfield C, Symon DN eta]. Pain and self-injurious behaviour in neurologically impaired children. J. PediatE (In Press).
   Google Scholar
• Gillberg C, Terenius L, Lonnerholm G. Endorphine activity in childhood psychosis. Spinal fluid levels in 24 cases. Atch. Gen. Psychiab: 42,780-783 (1985).
   Google Scholar
• Sandman CA, Barron J, Chicz-DeMet A, DeMet EM. Plasma B-Endorphin levels in patients with self-injurious behavior and stereotypy. Am. J Ment. Retard. 95(1), 84–92 (1990).
   Google Scholar
• Kain ZN, Cicchetti DV, McClain BC. Measurement of pain in children: state-of-the-art considerations. Anesthesiology 96(3), 523–526 (2002).
   PubMedGoogle Scholar
• Collignon P, Giusiano B. Validation of a pain evaluation scale for patients with severe cerebral palsy. Eur J Pain 5(4), 433–442 (2001).
   PubMed Web of Science ®Google Scholar
• Malviya S, Voepel-Lewis T, Tait AR et al Pain management in children with and without cognitive impairment following spine fusion surgery. Paediab: Anaesth. 11(4), 453–458 (2001).
   Google Scholar
• McGrath PJ, Unruh AM. Neonatal pain in a social context. In: Pain in Neonates: 2nd Revised and Enlarged Edition. Anand KJS, Stevens B, McGrath PJ (Eds). Elsevier, Amsterdam, The Netherlands, 237–250 (2000).
   Google Scholar