References
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- Post SG. The Moral Challenge of Alzheimer disease: Ethical Issues from Diagnosis to Dying 2nd Edition. Johns Hopkins University Press, MD, USA, 63–64, (2000). Very significant book, covering a number of issues in medical ethics relating to dementia and discussing the concept of quality of life in a number of areas.
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- •Classic paper in establishing the method of dementia care mapping.
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- Albert SM, Logsdon RG (Eds). Assessing Quality of Life in Alzheimer's disease. Springer Publishing Company, NY, USA (2000).
- ••Contains a number of highly informativearticles both about the development of quality of life assessments and, more conceptually, about of quality of life itself.
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- •One of the few papers to consider the philosophical approaches to measuring quality of life.
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- Griffin JP. Well-Being: its Meaning, Measumment and Moral Importance. Clarendon Press, Oxford, UK (1986).
- •Still the most commonly cited philosophical text in this area.
- Jennings B. A life greater than the sum of its sensations: ethics, dementia and the quality of life. In: Assessing Quality of Life in Alzheimeti disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 171 (2000).
- Ibid
- Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 95–132 (1993).
- •Useful paper commenting on theories of quality of life and finking them to our understanding of other issues in medical ethics.
- Jennings B. A life greater than the sum of its sensations: ethics, dementia and the quality of life. In: Assessing Quality of Life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 172 (2000).
- Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 97 (1993).
- Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 98 (1993).
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- Rabins P. Measuring Quality of life in persons with dementia. int. PTchogetiatE 12\(Suppl. 1), 47–49 (2000).
- Volicer L, Hurley AC, Camberg L. A model of psychological well-being in advanceddementia. In: Assessing Quality of Life in Alzheimer's Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company, NY, USA, 111–124 (2000).
- Hughes JC. Ethics and the antidementia drugs. Int. J Geriatc Psychiatry 15,538–543 (2000).
- Department of Health. Reference Guide to Consent for Examination or Treatment. Department of Health, London, UK (2001).
- Dworkin R Lifis Dominion. An Argument about Abortion and Euthanasia. Harper Collins, London, UK, 201 (1993).
- Dresser R. Dworkin on dementia: elegant theory, questionable policy. Hastings Cent. Rep. 25,32–38 (1995).
- Hope T Personal identity and psychiatric illness. In: Philosophy Psychology and Psychiatry Griffiths AP (Ed.). Cambridge University Press, Cambridge, UK, 131–143 (1995).
- Jaworska A. Respecting the margins of agency: Alzheimer's patients and the capacity to value. Philos. Public Aff 28, 105–138 (1999).
- Bond J. Sociological perspectives. In: A Handbook of Dementia Care. Cantley C (Ed.). Open University Press, Buckingham and Philadelphia, USA, 44–61 (2001).
- Hughes JC. Views of the person with dementia. J Med. Ethics. 27,86–91 (2001).
- •One of a few papers specifically to consider personhood in dementia.
- Brock D. Quality of life measures in healthcare and medical ethics. In: The Quality of Life. Nussbaum M, Sen A (Eds). Clarendon Press, Oxford, UK, 98 (1993).
- Schermer M. In search of the good life for demented elderly. Med. Healthcam Philos. 6(1), 35–44 (2003).
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- Kitwood T, Bredin K. Towards a theory of dementia care: personhood and well-being. Ageing Soc. 12,269–287 (1992).
- •Classic paper in establishing the links between personhood in dementia and well-being.
- Whitehouse PJ, Rabins P. Quality of life and dementia. Alzheimer. Dis. Assoc. Disoml. 6,135–138 (1992).
- Whitehouse PJ. Quality of life: future directions. In: Assessing Quality of life in Alzheimer, Disease. Albert SM, Logsdon RG (Eds). Springer Publishing Company NY, USA, 179–184 (2000).
Websites
- Ready RE, Ott BR. Quality of life measures for dementia. Health Qual Life. Outcomes 1(1), 11 (2003). Available online at: www.hqlo.com/content/1/1/11 (Accessed 31st May, 2003).
- ••Important on-line resource with an up-to-date review of assessment schedules for quality of life and some well-informed comments about future developments.
- World Health Organization. The structure of the WHOQOL-100. www.who.indevidence/assessment-instruments/Q0L/q15.htm (Accessed 21st May, 2003).
- World Health Organization. Introducing the WHOQOL instruments. www.whaindevidence/assessment-instruments/Q0L/q11.htm (Accessed 21st May, 2003).
- •Useful to have the World Health Organization definition of quality of life and access to a description of this well researched instrument. It is not, however, particularly well-established as a tool in dementia care.
- Department of Health. Reference Guide to Consent for Examination or Treatment www.doh.gov.uk/consent/refguide/pdf (Accessed 31st May, 2003).
- Policy, Ethics and Life Sciences Research Institute. Newcastle Symposium on the Goals of Ageing Research, April 2001. www.peals.ncl.ac.uldageing/index.htm (Accessed 29th May, 2003).
- •Several papers in this symposium are relevant and mention quality of life but particularly the papers in Session 3, entitled 'Priorities and quality of life' by Midgley and Lesser.