Feasibility and linguistic validity of the Swedish version of the PDQ-39

References

• Lang AE, Lozano AM. Parkinson’s disease. N. Engl. J. Med. 339(16), 1130–1143 (1998).
   PubMed Web of Science ®Google Scholar
• Shulman LM, Taback RL, Rabinstein AA, Weiner WJ. Non-recognition of depression and other non-motor symptoms in Parkinson’s disease. Parkinsonism Relat. Disord. 8(3), 193–197 (2002).
   PubMed Web of Science ®Google Scholar
• Quinn NP. Classification of fluctuations in patients with Parkinson’s disease. Neurology 51(Suppl. 2), S25–S29 (1998).
   PubMed Web of Science ®Google Scholar
• Mitchell SL, Harper DW, Lau A, Bhalla R. Pattern of outcome measurement in Parkinson’s disease clinical trials. Neuroepidemiology 19(2), 100–108 (2000).
   PubMed Web of Science ®Google Scholar
• Devinsky O. Outcome research in neurology: incorporating health-related quality of life. Ann. Neurol. 37(2), 141–142 (1995).
   Google Scholar
• Hobart JC, Freeman JA, Lamping DL. Physician and patient-oriented outcomes in progressive neurological disease: which to measure? Curr. Opin. Neurol. 9(6), 441–444 (1996).
   PubMed Web of Science ®Google Scholar
• World Health Organization. Constitution of the World Health Organization: chronicle of the World Health Organization 1. World Health Organization, Geneva, Switzerland (1947).
   Google Scholar
• Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med. Care 27(Suppl.), S217–S232 (1989).
   PubMed Web of Science ®Google Scholar
• Fayers PM, Machin D. Quality of Life: Assessment, Analysis and Interpretation. John Wiley & Sons, Ltd, West Sussex, UK (2000).
   Google Scholar
• Cella DF, Lloyd SR, Wright BD. Cross-cultural instrument equating: Current research and future directions. In: Quality of Life and Pharmacoeconomics in Clinical Trials. Second Edition. Spilker B (Ed.). Lippincott-Raven Publishers, PA, USA, 707–715 (1996).
   Google Scholar
• Doward LC, Meads DM, Thorsen H. Requirements for quality of life instruments in clinical research. Value Health 7(Suppl. 1), S13–S16 (2004).
   PubMedGoogle Scholar
• McKenna SP, Whalley D. Coping with the language barrier. Good Clin. Pract. J. 4(5), 14–17 (1997).
   Google Scholar
• Scientific Advisory Committee of the Medical Outcomes Trust. Assessing health status and quality-of-life instruments: attributes and review criteria. Qual. Life Res. 11(3), 193–205 (2002).
   PubMed Web of Science ®Google Scholar
• Streiner DL, Norman GR. Health Measurement Scales: A Practical Guide to their Development and Use. Second Edition. Oxford University Press, UK (1995).
   Google Scholar
• Peto V, Jenkinson C, Fitzpatrick R, Greenhall R. The development and validation of a short measure of functioning and well-being for individuals with Parkinson´s disease. Qual. Life Res. 4(3), 241–248 (1995).
   PubMed Web of Science ®Google Scholar
• Marinus J, Ramaker C, van Hilten JJ, Stiggelbout AM. Health related quality of life in Parkinson’s disease: a systematic review of disease specific instruments. J. Neurol. Neurosurg. Psychiatry 72(2), 241–248 (2002).
   PubMed Web of Science ®Google Scholar
• Jenkinson C, Fitzpatrick R, Peto V. The Parkinson’s Disease Questionnaire. User Manual for the PDQ-39, PDQ-8 and PDQ Summary Index. Health Services Research Unit, Department of Public Health, University of Oxford, Oxford, UK (1998).
   Google Scholar
• Hagell P, McKenna SP. International use of health status questionnaires in Parkinson’s disease: translation is not enough. Parkinsonism Relat. Disord. 10(2), 89–92 (2003).
   PubMed Web of Science ®Google Scholar
• Leplège A, Verdier A. The adaptation of health status measures: methodological aspects of the translation procedure. In: International Use and Performance of Health-Related Quality of Life Instruments. Shumaker S, Berzon R (Eds). Oxford Rapid Communication, Oxford, UK, 93–101 (1995).
   Google Scholar
• Swaine-Verdier A, Doward LC, Hagell P, Thorsen H, McKenna SP. Adapting quality of life instruments. Value Health 7(Suppl. 1), S27–S30 (2004).
   PubMed Web of Science ®Google Scholar
• Fukuhara S, Bito S, Green J, Hsiao A, Kurokawa K. Translation, adaption, and validation of the SF-36 health survey for use in Japan. J. Clin. Epidemiol. 51(11), 1037–1044 (1998).
   PubMed Web of Science ®Google Scholar
• Hagell P, McKenna SP. International use of health status questionnaires in Parkinson’s disease: translation is not enough. ISPOR 6th Annual European Congress. Barcelona, Spain, Value Health 6(6), 770 (2003).
   Google Scholar
• Hagell P, Whalley D, McKenna SP, Lindvall O. Health status measurement in Parkinson’s disease: validity of the PDQ-39 and Nottingham Health Profile. Mov. Disord. 18(7), 773–783 (2003).
   PubMed Web of Science ®Google Scholar
• Hagell P, Dahlberg A, Kim MY. Feasibility and linguistic validity of the revised Swedish version of the PDQ-39. 11th Annual Conference of the International Society for Quality of Life Research. Hong Kong SAR, China. Qual. Life Res. 13(9), 1545 (2004).
   Google Scholar
• Zach M, Friedman A, Slawek J, Derejko M. Quality of life in Polish patients with long-lasting Parkinson's disease. Mov. Disord. 19(6), 667–672 (2004).
   PubMedGoogle Scholar
• Bushnell DM, Martin ML. Quality of life and Parkinson's disease: Translation and validation of the US Parkinson's Disease Questionnaire (PDQ-39). Qual. Life Res. 8(4), 345–350 (1999).
   PubMed Web of Science ®Google Scholar
• Tan LCS, Luo N, Nazri M, Li SC, Thumboo J. Validity and reliability of the PDQ-39 and the PDQ-8 in English-speaking Parkinson’s disease patients in Singapore. Parkinsonism Relat. Disord. 10(8), 493–499 (2004).
   PubMed Web of Science ®Google Scholar
• Rasch G. Probabilistic models for some intelligence and attainment tests. Danish Institute for Educational Research, Copenhagen, Denmark (1960). Reprinted by the University of Chicago Press, IL, USA (1980).
   Google Scholar
• Tennant A, McKenna SP, Hagell P. Application of Rasch analysis in the development and application of quality of life instruments. Value Health 7(Suppl. 1), S22–S26 (2004).
   Google Scholar
• Tesio L. Measuring behaviours and perceptions: Rasch analysis as a tool for rehabilitation research. J. Rehabil. Med. 35(3), 105–115 (2003).
   Google Scholar
• Leplège A, Ecosse E and WHOQOL Rasch Project Scientific Committee. Methodological issues in using the Rasch model to select cross culturally equivalent items in order to develop a quality of life index: the analysis of four WHOQOL-100 data sets (Argentina, France, Hong Kong, United Kingdom). J. Appl. Meas. 1(4), 372–392 (2000).
   PubMedGoogle Scholar
• McKenna SP. Measuring quality of life in schizophrenia. Eur. Psychiatry 12(Suppl. 3), S267–S274 (1997).
   PubMedGoogle Scholar
• Dunbar MJ, Robertsson O, Ryd L. Non-psychometric properties of seven outcome questionnaires as applied to 3600 patients from the national Swedish knee arthroplasty registry. Transactions of the 45th Annual Meeting of the Orthopaedic Research Society. Anaheim, CA, USA, 150 (1999).
   Google Scholar
• Reimer J, Hagell P. Perceived relevance of generic and disease-specific patient-reported outcome measures in Parkinson’s disease. 11th Annual Conference of the International Society for Quality of Life Research. Hong Kong SAR, China. Qual. Life Res. 13(9), 1602 (2004).
   Google Scholar
• de Boer AGEM, Wijker W, Speelman JD, de Haes JCJM. Quality of life in patients with Parkinson's disease: development of a questionnaire. J. Neurol. Neurosurg. Psychiatry 61(1), 70–74 (1996).
   PubMed Web of Science ®Google Scholar
• van denBerg M. Leben mit Parkinson – Entwicklung und psychometrische Testung des Fragebogens PLQ. Neurol. Rehabil. 4(5), 221–226 (1998).
   Google Scholar