14
Views
3
CrossRef citations to date
0
Altmetric
Special Report

Acquiring an evidence base in palliative care: challenges and future directions

Pages 37-40 | Published online: 09 Jan 2014

References

  • Chochinov HM. Palliative care: an opportunity for mental health professionals. Can. J. Psych. 49(6), 347 (2004).
  • SUPPORT Study Principle Investigators. A controlled trial to improve care for seriously ill hospitalized patients: a study to understand prognoses and preferences for outcomes and risks of treatments. JAMA 274, 1591–1598 (1995).
  • Lorenz K, Lynn J, Morton S et al. End-of-life care and outcomes. Evidence Report/Technology Assessment No. 110 (Prepared by the Southern California evidence-based practice center under contract no. 290–02–0003.) AHRQ Publication No.05-E004–2. Agency for Healthcare Research and Quality, Rockville, MD, USA (October 2004).
  • Von Gunten CF, Lupu D. Development of a medical subspecialty in palliative medicine: progress report. J. Palliat. Med. 7(2), 209–219 (2004).
  • Carstairs S. Still not there: quality end-of-life care: A progress report. Ottawa, Canada (2005).
  • Savary S. Report on knowledge translation for palliative care research in Canada: Environmental scan. Health Canada – contract number H654910, Ottawa, Canada (2004).
  • Institute of Medicine (IOM). Crossing the quality chasm: a new health system for the 21st century. National Academy Press, Washington DC, USA (2001).
  • Higginson IJ. Evidence based palliative care. Br. Med. J. 319, 462–463 (1999).
  • Plonk WM, Arnold RM. Terminal care: the last weeks of life. J. Palliat. Med.8(5), 1042–1054 (2005).
  • World Health Organization. National cancer control programmes: Policies and managerial guidelines (2nd Ed.). Geneva, Switzerland (2002).
  • McClement SE, Degner LF. Knowing is not enough: we must do. Can. J. Nurs. Res. 37(2), 9–12 (2005).
  • Rutledge DN. Evidence-based interventions. In: Palliative practices: an interdisciplinary approach. Kuebler K, Davis MP, Dea Moore C (Eds). Elsevier Mosby, St. Louis, MO, USA, 49–62 (2005).
  • Atkins D, Eccles M, Flottorp S et al. Systems for grading the quality of evidence and the strength of recommendations I: critical appraisal for existing approaches. The GRADE Working Group. BMC Health Serv Res. 4(1) (2004).
  • Bluhm R. From hierarchy to network: a richer view of evidence for evidence-based medicine. Perspect. Biol. Med. 48(4), 535–537 (2005).
  • Rychetnik L, Frommer M, Hawe P, Shiell A. Criteria for evaluating evidence on public health interventions. J. Epidemiol. Community Health 56, 119–127 (2002).
  • Aoun SM, Kristjanson LJ. Evidence in palliative care research: how should it be gathered? Med. J. Aust. 183(5), 264–266 (2005).
  • Dean RA, McClement SE. Palliative care research: methodological and ethical challenges. Int. J. Pall. Nurs. 8(8), 376–380 (2002).
  • McMillan SC, Weitzner MA. Methodological issues in collecting data from debilitated patients with cancer near the end of life. Oncol. Nurs. Forum 30(1), 123–129 (2003).
  • Arraf K, Cox G, Oberle K. Using the Canadian code of ethics for registered nurses to explore ethics in palliative care research. Nurs. Ethics 11(6), 600–609 (2004).
  • Lees S, Kristjanson L. Human research ethics committees: issues in palliative care research. Int. J. Palliat. Nurs. 9(1), 13–18 (2003).
  • Degner LF, Henteleff PD, Ringer C. The relationship between theory and measurement in evaluations of palliative care services. J. Palliat. Care 3(2), 8–13 (1987).
  • Chochinov HM, Hack T, Hassard T Kristjanson L, McClement S, Harlos M. Dignity therapy a novel psychotherapeutic intervention for patients near the end of life. Clin. Oncol. 23(24), 5520–5525 (2005).
  • Cohen SR, Leis A. What determines the quality of life of terminally ill cancer patients from their own perspective? J. Palliat. Care. 18(1), 48–58 (2002).
  • Thompson G, McClement SE. Defining and determining quality in end-of-life care. Int. J. Palliat. Nurs. 8(6), 288–293 (2002).
  • Bottorff JL, Kelly M, Young J. Methodological issues in researching palliative care nursing practice. Can. J. Nurs. Res. 37(2), 50–68 (2005).
  • Addington-Hall J. Palliative care research in practice. Can. J. Nurs. Res. 37(2), 85–93 (2005).
  • Thomas J, Harden A, Oakley A et al. Integrating qualitative research with trials in systematic reviews. Br. Med. J. 328(7446), 1010–1012 (2004).
  • Giogi A. The phenomenological movement and research in the human sciences. Nurs. Sci. Q. 18(1), 75–82 (2005).
  • Lee S, Chan LY, Chau AM, Kwok KP, Kleinman A. The experience of SARS-related stigma at Amoy gardens. Soc. Sci. Med. 61(9), 2038–2046 (2005).
  • Morita T, Takigawa C, Onishi H et al. Opioid rotation from morphine to fentanyl in delirious cancer patients: an open-label trial. J. Pain Symptom Manage.30(1), 96–103 (2005).
  • Sarhill N, Walsh D, Nelson KA, Homsi J, LeGrand S, Davis MP. Methlyphenidate for fatigue in advanced cancer: a prospective open-label pilot study. Am. J. Hosp. Palliat. Care 18(3), 187–192 (2001).
  • Hughes RA, Sinha A, Higginson I, Down K, Leigh PN. Living with motor neurone disease: lived, experiences of services and suggestions for change. Health Soc. Care Community 13(1), 64–74 (2005).
  • Parker D, Grbich C, Brown M, Maddocks I, Willis E, Roe P. A palliative approach or specialist palliative care? What happens in aged care facilities for residents with a noncancer diagnosis? J. Palliat. Care 21(2), 80–87 (2005).
  • Donnelly JP, Huff SM, Lindsey ML, McMahon KA, Schumacher JD. The needs of children with life-limiting conditions: a healthcare-provider-based model. Am. J. Hosp. Palliat. Care 22(4), 259–267 (2005).

Websites

  • News from National Institute of Nursing Research (NINR). End of life. http://ninr.nih.gov/ninr/news-info/pubs/outlookjan01.htm
  • Describing death in America: what we need to know. www.nap.edu/openbook/ 0309087252/html
  • Clinical practice guidelines for quality palliative care. www.guideline.gov/summary/ summary.aspx
  • National Institutes of Health state-of-the science consensus statement: improving end-of-life care. http://consensus.nih.gov/2004/2004EndOfLifeCareSOS024html.htm
  • Report of NIH conference. www.cochrane.org/cochrane/revabstr/SYMPTAbstractIndex.htm

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.