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Review

Risk communication for patients seeking IVF

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Pages 489-500 | Published online: 10 Jan 2014

References

  • Wright VC, Chang J, Jeng G et al. Assisted reproductive technology surveillance – United States, 2003. MMWR Surveill. Summ.55(SS04), 1–22 (2006).
  • Oakley L, Doyle P. Predicting the impact of in vitro fertilisation and other forms of assisted conception on perinatal and infant mortality in England and Wales: examining the role of multiplicity. Br. J. Obstet. Gynaecol.113, 738–741 (2006).
  • Pinborg A, Loft A, Anderson NA. Neonatal outcome in a Danish national cohort of 8602 children born after in vitro fertilization or intracytoplasmic sperm injection: the role of twin pregnancy. Acta Obstet. Gynecol. Scand.83, 1071–1078 (2004).
  • Wright VC, Schieve LA, Reynolds MA, Jeng G. Assisted reproductive technology surveillance – United States, 2000. MMWR Surveill. Summ.52(SS09), 1–16 (2003).
  • Trevena LJ, Davey HM, Barratt A, Butow P, Caldwell P. A systematic review on communicating with patients about evidence. J. Eval. Clin. Pract.12, 13–23 (2006).
  • Campbell FA, Goldman BD, Boccia ML, Skinner M. The effect of format modifications and reading comprehension on recall of informed consent information by low-income patients: a comparison of print, video and computer-based presentations. Patient Educ. Couns.53, 205–216 (2004).
  • Rothman RL, DeWalt DA, Bryant MR et al. Influence of patient literacy on the effectiveness of a primary care-based diabetes disease management program. JAMA292, 1711–1716 (2004).
  • Schillinger D, Grumback K, Piette J et al. Association of health literacy with diabetes outcomes. JAMA288, 475–482 (2002).
  • Powell CL, Hill EG, Clancy DE. The relationship between health literacy and diabetes knowledge and readiness to take health actions. Diabetes Educ.33, 144–151 (2007).
  • Estrada CS, Martin-Hryniewicz M, Peek BT, Collins C, Byrd JC. Literacy and numeracy skills and anticoagulation control. Am. J. Med. Sci.328, 88–93 (2004).
  • Davis TC, Williams MV, Marin E, Parker RM, Glass J. Health literacy and cancer communication. CA Cancer J. Clin.52, 134–149 (2002).
  • Safeer RS, Keenan J. Health literacy: the gap between physicians and patients. Am. Fam. Physician72, 463–468 (2005).
  • Rogers ES, Wallace LS, Weiss BD. Misperceptions of medical understanding in low-literacy patients: implications for cancer prevention. Cancer Control13, 225–229 (2006).
  • Merriman G, Ades T, Seffrin JR. Health literacy in the information age: communicating cancer information to patients and families. CA Cancer J. Clin.52, 130–134 (2002).
  • Kools M, van de Wiel MW, Ruiter RA, Kok G. Pictures and text in instructions for medical devices: effects on recall and actual performance. Patient Educ. Couns.64, 104–111 (2006).
  • Schapira MM, Nattinger AB, McAuliffe TL. The influence of graphic format on breast cancer risk communication. J. Health Commun.11, 569–582 (2006).
  • Edwards A, Elwyn G, Mulley A. Explaining risks: turning numerical data into meaningful pictures. Br. Med. J.324, 827–830 (2002).
  • Chapman K, Abraham C, Jenkins V, Fallowfield L. Lay understanding of terms used in cancer consultation. Psycho-oncology12, 557–566 (2003).
  • Schwartzberg JG, VanGeest JB, Wang CC (Eds). Understanding Health Literacy: Implications for Medicine and Public Health. American Medical Association Press, IL, USA (2005).
  • Zacarcadoolas C, Pleasant AF, Greer DS. Advancing Health Literacy: a Framework for Understanding and Action. Jossey-Bass, CA, USA (2006).
  • Paasche-Orlow MK, Riekert KA, Bilderback A et al. Tailored education may reduce health literacy disparities in asthma self-management. Am. J. Resp. Crit. Care Med.172, 980–986 (2005).
  • Boulous MN. British internet-derived patient information on diabetes mellitus: is it readable? Diabetes Technol. Ther.7, 528–535 (2005).
  • Rothman RL, Housam R, Weiss H et al. Patient understanding of food labels: the role of literacy and numeracy. Am. J. Prev. Med.31, 391–398 (2006).
  • Miller DP Jr, Brownlee CD, McCoy TP, Pignone MP. The effect of health literacy on knowledge and receipt of colorectal cancer screening: a survey study. BMC Fam. Pract.8, 16 (2007).
  • Hoffmann T, McKenna K. Analysis of stroke patients’ and carers’ reading ability and the content and design of written materials. Patient Educ. Couns.60, 286–293 (2006).
  • Liang W, Burnett CB, Rowland JH et al. Communication between physicians and older women with localized breast cancer: implications for treatment and patient satisfaction. J. Clin. Oncol.20, 1008–1016 (2002).
  • Phillips TG, Hickner J. Calling acute bronchitis a chest cold may improve patient satisfaction with appropriate antibiotic use. J. Am. Board Fam. Pract.18, 459–463 (2005).
  • Schmid Mast M, Kindimann A, Langewitz W. Recipients’ perspective on breaking bad news: how you put it really makes a difference. Patient Educ. Couns.58, 244–251 (2005).
  • Randall TC, Wearn AM. Receiving bad news: patients with haematological cancer reflect on their experience. Palliat. Med.19, 594–601 (2005).
  • Schillinger D, Piette J, Grumbach K et al. Physician communication with diabetic patients who have low literacy. Arch. Intern. Med.163, 83–90 (2003).
  • Pattenden J, Watt I, Lewin RJP. Decision-making process in people with symptoms of acute myocardial infarction: qualitative study. Br. Med. J.324, 1006–1009 (2002).
  • Gwede CK, Pow-Sang J, Seigne J et al. Treatment decision-making strategies and influences in patients with localized prostate carcinoma. Cancer104, 1381–1390 (2005).
  • Practice Committee of the Society for Assisted Reproductive Technology; Practice Committee of the American Society for Reproductive Medicine. Guidelines on number of embryos transferred. Fertil. Steril.86(5 Suppl.), S51–S52 (2006).
  • Reddy UM, Wapner RJ, Rebar RW, Tasca RJ. Infertility, assisted reproductive technology, and adverse pregnancy outcomes: executive summary of a National Institute of Child Health and Human Development workshop. Obstet. Gynecol.109, 967–977 (2007).
  • Grobman WA, Milad MKP, Stout J et al. Patient perceptions of multiple gestations: an assessment of knowledge and risk aversion. Am. J. Obstet. Gynecol.185, 920–924 (2001).
  • Helmerhorst FM, Perquin DAM, Donker D et al. Perinatal outcome of singletons and twins after assisted conception: a systematic review of controlled studies. Br. Med J.328, 261 (2004).
  • De Geyter C, De Geyter M, Steimann S et al. Comparative birth weights of singletons born after assisted reproduction and natural conception in previously infertile women. Hum. Reprod.21, 705–712 (2006).
  • Blennborn M, Nilsson S, Hillervik C, Hellberg D. The couple’s decision-making in IVF: one or two embryos at transfer? Hum. Reprod.20, 1292–1297 (2005).
  • Ryan GL, Zhang SH, Dokras A et al. The desire of infertile patients for multiple births. Fertil. Steril.81, 500–504 (2004).
  • Murray S, Shetty A, Rattray A et al. A randomized comparison of alternative methods of information provision on the acceptability of elective single embryo transfer. Hum. Reprod.19, 911–916 (2004).
  • Maher ER. Imprinting and assisted reproductive technology. Hum. Mol. Genet.14, R133–R138 (2005).
  • Thompson JR, Williams CJ. Genomic imprinting and assisted reproductive technology: connections and potential risks. Sem. Reprod. Med.23, 285–295 (2005).
  • Gosden R, Trasler J, Lucifero D et al. Rare congenital disorders, imprinted genes, and assisted reproductive technology. Lancet361, 9373–9375 (2003).
  • Foresta C, Barolla A, Bartonloni L, Bettella A, Ferlin A. Genetic abnormalities among severely oligospermic men who are candidates for intracytoplasmic sperm injection. J. Clin. Endocrinol. Metab.90, 152–156 (2005).
  • Aittomaki K, Wennerholm UB, Bergh C, Selbing A, Hazekamp J, Nygren KG. Safety issues in assisted reproduction technology: should ICSI patients have genetic testing before treatment? A practical proposition to help patient information. Hum. Reprod.19, 472–476 (2004).
  • Gordts S, Campo R, Puttemans P et al. Belgian legislation and the effect of elective single embryo transfer on IVF outcome. Reprod. Biomed. Online10, 436–441 (2005).
  • van Montfoort APA, Dumoulin JCM, Land JA, Coonen E, Dergaag JG, Evers JLH. Elective single embryo transfer (eSET) policy in the first three IVF/ICSI treatment cycles. Hum. Reprod.20, 433–436 (2005).
  • Peddie VL, van Teijlingen E, Bhattacharya S. A qualitative study of women’s decision-making at the end of IVF treatment. Hum. Reprod.20, 1944–1945 (2005).
  • Hock DL, Seifer DB, Kontopoulos E et al. Practice patterns among board-certified reproductive endocrinologists regarding high-order multiple gestations: a United States national survey. Obstet. Gynecol.99, 763–770 (2002).
  • Chang G, McNamara TK, Haimovici F, Hornstein MD. Problem drinking in women evaluated for infertility. Am. J. Addict.15, 174–179 (2006).
  • Grainger DA, Frazier LM, Rowland CA. Preconception care and treatment with assisted reproductive technologies. Matern. Child Health J.82, 834–340 (2006).
  • Etchegary H, Perrier C. Information processing in the context of genetic risk: implications for genetic risk communication. J. Genet. Couns. DOI: 10.1007/s10897-006-9082-z (2007) (Epub ahead of print).
  • Gore TD, Bracken CC. Testing the theoretical design of a health risk message: reexamining the major tenets of the Extended Parallel Process Model. Health Educ. Behav.32, 27–41 (2005).
  • McKay DL, Berkowitz JM, Blumberg JB, Goldberg JP. Communicating cardiovascular disease risk due to elevated homocysteine levels: using the EPPM to develop print materials. Health Educ. Behav.31, 355–371 (2004).
  • Nelson HD, Huffman LH, Fu R et al. Genetic risk assessment and BRCA mutation testing for breast and ovarian cancer susceptibility: systematic evidence review for the US Preventive Services Task Force. Ann. Intern. Med.143, 362–379 (2005).
  • Gurmankin AD, Baron J, Armstrong K. Intended message versus message received in hypothetical physician risk communications: exploring the gap. Risk Anal.24, 1337–1347 (2004).
  • Chan T, Eckert K, Venesoen P, Leslie K, Chin-Yee I. Consenting to blood: what do patients remember? Transfus. Med.15, 461–466 (2005).
  • Bikowski RM, Ripsin CM, Lorraine VL. Patient–physician congruence regarding medication regimens. J. Am. Geratri. Soc.49, 1353–1357 (2001).
  • Leeb BF, Sautner J, Leeb BA, Fassl C, Rintelen B. Lack of agreement between patients’ and physicians’ perspectives of rheumatoid arthritis disease activity changes. Scand. J. Rheumatol.35, 441–446 (2006).
  • Haagen EC, Tuil W, Hendriks J, de Gruijn RP, Braat DD, Kremer JA. Current internet use and preferences of IVF and ICSI patients. Hum. Reprod.18, 2073–2078 (2003).
  • Himmel W, Meyer J, Kochen MM, Michelmann HW. Information needs and visitors’ experience of an internet expert forum on infertility. J. Med. Internet Res.7, e20 (2005).
  • Abusief ME, Hornstein MD, Jain T; American Society for Reproductive Medicine, Society for Assisted Reproductive Technology. Assessment of United States fertility clinic websites according to the American Society for Reproductive Medicine (ASRM)/Society for Assisted Reproductive Technology (SART) guidelines. Fertil. Steril.87, 88–92 (2007).
  • Jain T, Hornstein MD. Disparities in access to infertility services in a state with mandated insurance coverage. Fertil. Steril.84, 221–223 (2005).
  • Nachtigall RD. International disparities in access to infertility services. Fertil. Steril.85, 871–875 (2006).
  • Jain T. Socioeconomic and racial disparities among infertility patients seeking care. Fertil. Steril.85, 876–881 (2006).
  • Becker G, Castrillo M, Jackson R, Nachtigall RD. Infertility among low-income Latinos. Fertil. Steril.85, 882–887 (2006).
  • Jain T, Harlow BL, Hornstein MD. Insurance coverage and outcomes of in vitro fertilization. N. Engl. J. Med.347, 661–666 (2002).
  • The Practice Committee of the American Society for Reproductive Medicine. Elements to be considered in obtaining informed consent for ART. Fertil. Steril.86(Suppl. 4), S272–S273 (2006).
  • Stableford S, Mettger W. Plain language: a strategic response to the health literacy challenge. J. Public Health Policy28, 71–93 (2007).
  • Kerr D. Information in diabetes care: is there a need to dumb down even more? Diabet. Med.24, 561–563 (2007).
  • Williams K. Comprehending disclosure: must patients understand the risks they run? Med. Law Int.4, 97–109 (2000).
  • Schwendemann WD, O’Brien JM, Barton JR et al. Modifiable risk factors for growth restriction in twin pregnancies. Am. J. Obstet. Gynecol.192, 1440–1442 (2005).
  • Luke B, Hediger ML, Nugent C et al. Body mass index – specific weight gains associated with optimal birth weights in twin pregnancies. J. Reprod. Med.48, 217–224 (2003).

Websites

  • Infertility. Pregnancy and newborn health education center, March of Dimes www.marchofdimes.com/printablearticles/173_14308.asp.
  • ASRM resources for patients. American Society for Reproductive Medicine www.asrm.org/patients/mainpati.html
  • Public information. British Fertility Society www.britishfertilitysociety.org.uk/public/index.html
  • Making health communication programs work. National Cancer Institute, Office of Cancer Communications. NIH Publication No. 04–5145 (2004) www.cancer.gov/pdf/41f04dd8–495a-4444-a258–1334b1d864f7/pink_book.pdf
  • Scientific and Technical Information Simply Put (Second Edition). CDC, Office of Communication (1999) www.cdc.gov/communication/resources/ simpput.pdf
  • The Plain Language Association International www.plainlanguagenetwork.org
  • Kutner M, Greenberg E, Jin Y, Paulsen C. The health literacy of America’s adults: results from the 2003 National Assessment of Adult Literacy. NCES Publication No. 2006–483. US Department of Education, National Center for Education Statistics (2006) http://nces.ed.gov/naal/
  • Zorn M, Marin A, Horowitz AM (Compilers). Understanding health literacy and its barriers. Current Bibliographies in Medicine. National Library of Medicine (2004) www.nlm.nih.gov/pubs/cbm/healthliteracybarriers.html
  • Theory at a glance: a guide for health promotion practice. Publication No. 05–3896. National Cancer Institute www.nci.nih.gov/cancer_information/cancer_literature
  • Society for Reproductive Assisted Technology www.sart.org
  • Infertility Network UK www.infertilitynetworkuk.com
  • RESOLVE: The National Infertility Association www.resolve.org

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