The psychological management of facial transplantation

References

• Hettiaratchy S, Butler PEM. Face transplantation – fantasy or the future. Lancet360(9326), 5–6 (2002).
   PubMed Web of Science ®Google Scholar
• Devauchelle B, Bodet L, Lengele B et al. First human face allograft: early report. Lancet368(9531), 203–209 (2006).
   PubMed Web of Science ®Google Scholar
• Guo S, Han Y, Zhang et al. Human facial allotransplantation: a 2 year follow-up study. Lancet372(9639), 631–638 (2008).
   PubMedGoogle Scholar
• Lantieri L, Meningaud J-P, Grimbert P et al. Repair of the lower and middle parts of the face by composite tissue allotransplantation in a patient with massive plexiform neurofibroma: a 1 year study. Lancet372(9639), 603–604 (2008).
   PubMedGoogle Scholar
• Dubernard J-M, Lengele B, Morelon E et al. Outcomes 18 months after the first human partial face transplantation. N. Engl. J. Med.357(24), 2451–2460 (2007).
   PubMed Web of Science ®Google Scholar
• Dubernard J-M, Petruzzo P, Lanzetta M et al. Functional results of the first human double-hand transplantation. Ann. Surg.238(1), 128–136 (2003).
   PubMed Web of Science ®Google Scholar
• Schuind F, Van Holder C, Mouraux D et al. The first Belgian hand transplantation – 37 month term results. J. Hand Surg.31(4), 371–376 (2003).
   Google Scholar
• Clark PA. Face transplantation: a medical perspective. Med. Sci. Monit.11(1), RA1–RA6 (2005).
   PubMedGoogle Scholar
• Morris PJ, Bradley JA, Doyal L et al. Facial transplantation: a working party report from the Royal College of Surgeons of England. Transplantation77(3), 330–338 (2004).
   PubMed Web of Science ®Google Scholar
• Morris PJ, Bradley JA, Doyal L et al. Facial transplantation: a review of the technical, immunological, psychological and clinical issues with recommendations for good practice. Transplantation83(2), 109–128 (2007).
   PubMed Web of Science ®Google Scholar
• Hall C. Full-face transplant gets go-ahead. The Daily Telegraph, 26th October (2006).
   Google Scholar
• Berber K, Falvey S, Hamilton C, Collett D, Rudge C. Potential for organ donation in the UK: audit of intensive care records. BMJ332(7550), 1124–1127 (2006).
   PubMedGoogle Scholar
• Breidenbach WC, Gonzales NR, Kaufman CL et al. Outcomes of the first 2 American hand transplants at 8 and 6 years post transplant. J. Hand Surg. Am.]33(7), 1039–1047 (2008).
   PubMedGoogle Scholar
• Barker J, Brown C, Cunningham M et al. Ethical considerations in human facial tissue allotransplantation. Ann. Plast. Surg.60(1), 103–109 (2008).
   PubMedGoogle Scholar
• Barker J. Furr A, Cunningham M et al. Investigation of risk in facial transplantation. Plast. Reconstr. Surg.118(3), 663–670 (2006).
   PubMed Web of Science ®Google Scholar
• Vasilic D, Alloway R, Barker J et al. Risk assessment of immunosuppressive therapy in facial transplantation. Plast. Reconstr. Surg.120(3), 657–668 (2007).
   PubMed Web of Science ®Google Scholar
• Butler PEM, Clarke A, Ashcroft R. Face transplantation: when and for whom? AJOB4(3), 22–24 (2004).
   Google Scholar
• Neipp M, Karavul B, Jackobs S et al. Quality of life in adult transplant recipients more than 15 years after kidney transplantation. Transplantation8(12), 1640–1644 (2006).
   Google Scholar
• Burra P, De Bona M. Quality of life following organ transplantation. Transpl. Int.20(5), 397–409 (2007).
   PubMed Web of Science ®Google Scholar
• Dew M, Goycoolea J, Switzer JG, Allen A. Quality of life in organ transplantation: effects on adult recipients and their families. In: The Transplant Patient: Biological, Psychiatric & Ethical Issues in Organ Transplantation. Trzepacz P, DiMartini A (Eds). Cambridge University Press, Cambridge, UK, Chapter 4, 67–145 (2000).
   Google Scholar
• Grady K l, Naftel DC, Kobashigawa J et al. Patterns and predictors of quality of life at 5–10 years after heart transplantation. J. Heart Lung Transplant.26(5), 535–543 (2007).
   PubMed Web of Science ®Google Scholar
• Fusar-Poli P, Martinelli V, Klersy C et al. Depression and quality of life in patients living 10 to 18 years beyond heart transplantation. J. Heart Lung Transplant.24(12), 2269–2278 (2005).
   PubMed Web of Science ®Google Scholar
• Smeritschnig B, Jaksch P, Kocher A et al. Quality of life after lung transplantation: a cross sectional study. J. Heart Lung Transplant.24(4), 474–480 (2005).
   PubMedGoogle Scholar
• O’Carroll R, Couston M, Cossar J, Masteton G, Hayes PC. Psychological outcome and quality of life following liver transplantation: a prospective, national, single-center study. Liver Transpl.9(7), 712–720 (2003).
   PubMed Web of Science ®Google Scholar
• Clarke A. Psychosocial aspects of facial disfigurement: problems, management and the role of a lay-led organisation. Psycho. Health Med.4(2), 127–142 (1999).
   Google Scholar
• Rumsey N, Harcourt D. The Psychology of Appearance. Open University Press, Buckingham, UK (2005).
   Google Scholar
• Ong JL, Clarke A, Johnson M, White P, Withey S, Butler PEM. Does severity predict distress? The relationship between subjective and objective measures of severity in patients treated for facial lipoatrophy. Body Image4(3), 239–248 (2007)
   PubMed Web of Science ®Google Scholar
• Furr L, Wiggins O, Cunningham M et al. Psychosocial implications of disfigurement and the future of human face transplantation. Plast. Reconstr. Surg.120(2), 559–565 (2007).
   PubMed Web of Science ®Google Scholar
• Partridge J. Changing Faces: the Challenge of Facial Disfigurement. Penguin, London, UK (1995).
   Google Scholar
• Veale D, Willson R, Clarke A. Overcoming Body Image Problems Including Body Dysmorphic Disorder. Robinson, London, UK (2009).
   Google Scholar
• Weinstein N. Unrealistic optimism about susceptibility to health problems: conclusions from a community wide sample. J. Behav. Med.10, 481–500 (1987).
   PubMed Web of Science ®Google Scholar
• Butler PEM, Clarke A, Hettiaratchy S. Facial transplantation: a new option in reconstruction of severe facial injury. BMJ331(7529), 349–1350 (2005).
   Google Scholar
• Butler PEM, Clarke A, Hettiaratchy S. Facial transplantation: a new gold standard in facial reconstruction? J. Plast. Reconstr. Aesthet. Surg.59(3), 211–212 (2006).
   PubMedGoogle Scholar
• Butler PEM, Hettiaratchy S, Clarke A. What if it fails? Managing the risks of facial transplantation. Lancet368(9535), 561–563 (2006).
   PubMed Web of Science ®Google Scholar
• Clarke A, Lester KJ, Withey SJ, Butler PEM. A funding model for a psychological service to plastic and reconstructive surgery in UK practice. Br. J. Plast. Surg.58(5), 708–713 (2005).
   PubMedGoogle Scholar
• Cahill T, Hettiaratchy S, Clarke A, Butler PEM. Predictive value and limitations of animal models for human transplantation: do we need more models for facial transplantation? Transpl. Rev.20(2), 76–81 (2006).
   Google Scholar
• Berry D. Risk, Communication and Health Psychology. OUP, Maidenhead, UK (2004).
   Google Scholar
• Sheridan SL, Pignone M. Numeracy and the medical student’s ability to interpret data. Eff. Clin. Pract.5(1), 35–40 (2002).
   PubMedGoogle Scholar
• Gigerenza G. Reckoning with Risk. Penguin, London, UK (2002).
   Google Scholar
• Opelz G, Dohler B. Lymphomas after solid organ transplantation: a collaborative transplant study report. Am. J. Transplant.4(2), 222–230 (2004).
   PubMed Web of Science ®Google Scholar
• Opelz G, Naujokat C, Dabuek V. Disassociation between risk of graft loss and risk of non-Hodgkin lymphoma with induction agents in renal transplant recipients. Transplantation81(9), 1227–1233 (2006).
   PubMed Web of Science ®Google Scholar
• Tversky A, Kahneman D. Judgement under uncertainty: heuristics and biases. Science185(4157), 1124–1131(1974).
   PubMed Web of Science ®Google Scholar
• Kanvil N, Umeh KF. Lung cancer and cigarette use: cognitive factors, protection motivation and past behaviour. Br. J. Health Psychol.5, 235–248 (2000).
   Web of Science ®Google Scholar
• Lloyd A, Hayes P, Bell PRF, Naylor AR. The role of risk and benefit perception in informed consent for surgery. Med. Decis. Making21(2), 141–149 (2001).
   PubMed Web of Science ®Google Scholar
• Hunt SA. Cardiac transplantation, mechanical ventricular support, and endomyocardial biopsy. In: Hurst’s The Heart (10th Edition). Fuster V, Alexander RW, O’Rourke RA (Eds.) McGraw-Hill. Volume 1, 725–747 (2001).
   Google Scholar
• Yankaskas JR. Cystic fibrosis. In: Baum’s Textbook of Pulmonary Diseases (7th Edition). Crapo JP, Glassroth JL, Karlinsky JB, King TE Jr. (Eds). Lippincott Williams and Wilkins, PA, USA 247–256 (2004).
   Google Scholar
• Ziegelmann J, Griva K, Hankins M et al. The transplant effects questionnaire: the development of a questionnaire for assessing the multi-dimensional outcome of organ transplantation. Br. J. Health Psychol.7(4), 393–407 (2002).
   PubMed Web of Science ®Google Scholar
• Brill SE, Clarke A, Veale DM, Butler PEM. Psychological management and body image issues in facial transplantation. Body Image3(1), 1–15 (2006).
   PubMedGoogle Scholar
• Renshaw A, Clarke A, Butler PEM. Skin tonal matching in face and hand allotransplantation. Presented at: 7th International Symposium on Composite Tissue Allotransplantation. Innsbruck, Austria, 7–8 September, 2007.
   Google Scholar
• Clarke A, Simmons J, White P, Withey S, Butler PEM. Attitudes to face transplantation: results of a public engagement exercise at the Royal Society Summer Science Exhibition. J. Burn Care Res.27(3), 394–398 (2006).
   PubMed Web of Science ®Google Scholar
• Clarke A, Butler PEM. Face transplantation: adding to the reconstructive options after severe facial injury and disease. EOBT5(12), 1–8 (2005).
   Google Scholar
• Clarke A, Murphy F, White, P, Brough V, Butler PEM. Transplant professionals’ attitudes toward facial transplantation in the United Kingdom. Prog. Transplant.17(3), 228–233 (2007).
   PubMedGoogle Scholar
• Burloux G, Bachmann D. Psychology and hand transplantation: Clinical experiences. In: Enabling technologies: Body image and body function. MacLachlan M, Gallagher P (Eds). Churchill Livingstone, Edinburgh, UK 169–185 (2004).
   Google Scholar
• Health Psychology in Practice. Michie S, Abraham C (Eds). BPS Blackwells, London, UK (2004).
   Google Scholar
• Butler JA, Roderick P, Mullee M, Mason JC, Peveler RC. Frequency and impact of nonadherence to immunosuppressants after renal transplantation: a systematic review. Transplantation77(5), 769–776 (2004).
   PubMed Web of Science ®Google Scholar
• Baines LS, Zawada ET, Jindal RM. Psychosocial profiling: a holistic management tool for non-compliance. Clin. Transplant.19(1), 38–44 (2005).
   PubMed Web of Science ®Google Scholar
• Michie S, Johnston M, Abraham C et al. Making psychological theory useful for implementing evidence based practice: a consensus approach. Qual. Saf. Health Care.14, 26–33 (2005).
   PubMed Web of Science ®Google Scholar
• Bunzel B, Laederach-Hofmann K. Solid organ transplantation: are there predictors for posttransplant noncompliance? A literature review. Transplantation70(5), 711–716 (2000).
   PubMed Web of Science ®Google Scholar
• Dobbels F, Vanhaecke J, Desmyttere A, Dupont L, Nevens F, De Geest S. Prevalence and correlates of self-reported pretransplant nonadherence with medication in heart, liver, and lung transplant candidates. Transplantation79(11), 1588–1595 (2005).
   PubMedGoogle Scholar
• Laederach-Hofmann K, Bunzel B. Noncompliance in organ transplant recipients: a literature review. Gen. Hosp. Psychiatry22(6), 412–424 (2000).
   PubMed Web of Science ®Google Scholar
• Clarke A, Butler PEM. Face transplantation: psychological assessment and preparation for surgery. Psychol. Health Med.9(3), 321–332 (2004).
   Google Scholar
• Achille MA, Ouellette A, Fournier S, Vachon M, Hébert MJ. Impact of stress, distress and indebtedness on adherence to immunosuppression after kidney transplantation. Clin. Transplant.20(3), 301–306 (2006).
   PubMed Web of Science ®Google Scholar
• Khan AA, Diver A, Clarke A, Butler PEM. A mathematical risk-benefit analysis of composite tissue allotransplantation. Transplantation84(11), 1384–1390 (2007).
   PubMedGoogle Scholar
• Ryan JJ, Schnakenberg-Ott SD. Prorating Wechsler Adult Intelligence Scale –III summary scores. J. Clin. Psychol.56(6), 807–811 (2003).
   Google Scholar
• Zigmond A, Snaith R. The Hospital Anxiety and Depression Scale. Acta Psych. Scandinavica67, 361–370 (1983).
   PubMed Web of Science ®Google Scholar
• Beck AT, Steer RA, Brown GK. Manual for the Beck Depression Inventory II. Psychological Corporation, TX, USA (1996).
   Google Scholar
• Brewin CR, Rose S, Andrews B et al. Brief screening instrument for post-traumatic stress disorder. Br. J. Psychiat.181, 158–162 (2002).
   PubMed Web of Science ®Google Scholar
• Ware JE, Sherbourne CD. The MOS 36 item short form health survey (SF-36): conceptual framework and items selection. Med. Care30, 473–483 (1992).
   PubMed Web of Science ®Google Scholar
• Carr AT, Harris D L, James C. The Derriford Appearance Scale (DAS59): a new psychometric scale for the evaluation of patients with disfigurements and aesthetic problems of appearance. Br. J. Plast. Surg.54(3), 216–222 (2000).
   Google Scholar
• Leary Responses to social exclusion: social anxiety, jealousy, loneliness, depression and low self-esteem. J. Soc. Clin. Psychol.9, 221–229 (1990).
   Web of Science ®Google Scholar
• Horne R, Weinman J, Hankins M. The beliefs about medicines questionnaire: the development and evaluation of a new method of assessing the cognitive representation of medication. Psychol. Health14, 1–24 (1999).
   Web of Science ®Google Scholar