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Review

Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis

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Pages 117-124 | Published online: 21 Oct 2016

References

  • ShakkottaiAKidwellKMTownsendMNasrSZA five-year retrospective analysis of adherence in cystic fibrosisPediatr Pulmonol201550121224122926346919
  • GovanJRBrownPHMaddisonJEvidence for transmission of Pseudomonas cepacia by social contact in cystic fibrosisLancet1993342886215197686239
  • KalishLAWaltzDADoveyMImpact of Burkholderia dolosa on lung function and survival in cystic fibrosisAm J Respir Crit Care Med2006173442142516272450
  • SaimanLSiegelJDLiPumaJJInfection prevention and control guideline for cystic fibrosis: 2013 updateInfect Control Hosp Epidemiol201435Suppl 1S1S67
  • SawickiGSRenCLKonstanMWMillarSJPastaDJQuittnerALInvestigators and Coordinators of the Epidemiologic Study of Cystic FibrosisTreatment complexity in cystic fibrosis: trends over time and associations with site-specific outcomesJ Cyst Fibros201312546146723352205
  • StoltzDAMeyerholzDVMWelshMJOrigins of cystic fibrosis lung diseaseN Engl J Med2015372361362
  • ColinAAWohlMECystic fibrosisPediatr Rev19941551922008036195
  • PrestonWHighlights of the 2014 Patient Registry DataCystic Fibrosis Foundation Yearly Publication2014 Available from: https://www.cff.org/Our-Research/CF-Patient-Registry/Highlights-of-the-2014-Patient-Registry-Data/Accessed October 07,2016
  • SawickiGSSellersDERobinsonWMHigh treatment burden in adults with cystic fibrosis: challenges to disease self-managementJ Cyst Fibros200982919618952504
  • EakinMNBilderbeckABoyleMPMogayzelPJRiekertKALongitudinal association between medication adherence and lung health in people with cystic fibrosisJ Cyst Fibros201110425826421458391
  • JohnsonKBRavertRDEvertonAHopkins teen central: assessment of an internet based support group for children with cystic fibrosisPediatrics20011072E2411158498
  • SavageEBeirnePVNi ChroininMDuffAFitzgeraldTFarrellDSelf-management education for cystic fibrosisCochrane Database Syst Rev20117CD007641
  • KettlerLSawyerSWinefieldHGrevilleHDeterminants of adherence in adults with cystic fibrosisThorax200257545946411978927
  • ChengJPurcellHNDimitriouSMGrossoehmeDHTesting the feasibility and acceptability of a chaplaincy intervention to improving treatment attitudes and self-efficacy of adolescents with cystic fibrosis: a pilot studyJ Health Care Chaplain2015212769025793423
  • KirkbyJAuroraPSpencerHReesSSonnappaSStocksJStitching and switching: the impact of discontinuous lung function reference equationsEur Respir J20123951256125722547732
  • QuittnerALZhangJMarynchenkoMPulmonary medication adherence and health-care use in cystic fibrosisChest2014146114215124480974
  • McPhailGLActonJDFenchelMCAminRSSeidMImprovements in lung function outcomes in children with cystic fibrosis are associated with better nutrition, fewer chronic Pseudomonas aeruginosa infections, and dornase alfa useJ Pediatr2008153675275718760423
  • PrasadSACernyFJFactors that influence adherence to exercise and their effectiveness: application to cystic fibrosisPediatr Pulmonol2002341667212112800
  • KriemlerSKieserSJungeSEffect of supervised training on FEV1 in cystic fibrosis: a randomised controlled trialJ Cyst Fibros201312671472023588193
  • MoorcroftADoddMMorrisJWebbAIndividualised unsupervised exercise training in adults with cystic fibrosis: a 1 year randomised controlled trialThorax200459121074108015563708
  • ParanjapeSMBarnesLACarsonKAvon BergKLoosenHMogayzelPJJrExercise improves lung function and habitual activity in children with cystic fibrosisJ Cyst Fibros2012111182321890433
  • Schneiderman-WalkerJPollockSLCoreyMA randomized controlled trial of a 3-year home exercise program in cystic fibrosisJ Pediatr2000136330431010700685
  • SelvaduraiHCBlimkieCJMeyersNMellisCMCooperPJVan AsperenPPRandomized controlled study of in-hospital exercise training programs in children with cystic fibrosisPediatr Pulmonol200233319420011836799
  • Arias LlorenteRPBousoño GarcíaCDíaz MartínJJTreatment compliance in children and adults with cystic fibrosisJ Cyst Fibros20087535936718304896
  • ConwaySPPondMNHamnettTWatsonACompliance with treatment in adult patients with cystic fibrosisThorax199651129338658364
  • DanielsTGoodacreLSuttonCPollardKConwaySPeckhamDAccurate assessment of adherence: self-report and clinician report vs electronic monitoring of nebulizersChest2011140242543221330381
  • SiracusaCMRyanJBurnsLElectronic monitoring reveals highly variable adherence patterns in patients prescribed ivacaftorJ Cyst Fibros201514562162626074007
  • BurrowsJABuntingJPMaselPJBellSCNebulised dornase alpha: adherence in adults with cystic fibrosisJ Cyst Fibros20021425525915463823
  • ModiACLimCSYuNGellerDWagnerMHQuittnerALA multi-method assessment of treatment adherence for children with cystic fibrosisJ Cyst Fibros20065317718516679071
  • BucksRSHawkinsKSkinnerTCHornSSeddonPHorneRAdherence to treatment in adolescents with cystic fibrosis: the role of illness perceptions and treatment beliefsJ Pediatr Psychol200934889390219196850
  • ZindaniGNStreetmanDDStreetmanDSNasrSZAdherence to treatment in children and adolescent patients with cystic fibrosisJ Adolesc Heal20063811317
  • GoodfellowNAHawwaAFReidAJHorneRShieldsMDMcElnayJCAdherence to treatment in children and adolescents with cystic fibrosis: a cross-sectional, multi-method study investigating the influence of beliefs about treatment and parental depressive symptomsBMC Pulm Med2015154325927329
  • DeLamboKEIevers-LandisCEDrotarDQuittnerALAssociation of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosisJ Pediatr Psychol200429534335315187173
  • ModiACQuittnerALBarriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way?J Pediatr Psychol200631884685816401680
  • ButcherJLNasrSZDirect observation of respiratory treatments in cystic fibrosis: parent-child interactions relate to medical regimen adherenceJ Pediatr Psychol201540181725236709
  • PattersonJMWallMBergeJMillaCGender differences in treatment adherence among youth with cystic fibrosis: development of a new questionnaireJ Cyst Fibros20087215416417719857
  • DziubanEJSaab-AbazeedLChaudhrySRStreetmanDSNasrSZIdentifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosisPediatr Pulmonol201045545045820425852
  • SawickiGSHellerKSDemarsNRobinsonWMMotivating adherence among adolescents with cystic fibrosis: youth and parent perspectivesPediatr Pulmonol201550212713624616259
  • RiekertKAEakinMNBilderbackARidgeAKMarshallBCOpportunities for cystic fibrosis care teams to support treatment adherenceJ Cyst Fibros201514114214825459564
  • HilliardMEEakinMNBorrelliBGreenARiekertKAMedication beliefs mediate between depressive symptoms and medication adherence in cystic fibrosisHealth Psychol201534549650425110847
  • WeitzmanERZiemnikREHuangQLevySAlcohol and marijuana use and treatment nonadherence among medically vulnerable youthPediatrics2015136345045726668849
  • WatsonHBiltonDTrubyHA randomized controlled trial of a new behavioral home-based nutrition education program, “Eat Well with CF,” in adults with cystic fibrosisJ Am Diet Assoc2008108584785218442509
  • CottrellCKYoungGACreerTLHolroydKAKotsesHThe development and evaluation of a self-management program for cystic fibrosisPediatr Asthma Allergy Immunol2009103109118
  • StapletonDRGurrinLCZubrickSRSilburnSRSherriffJLSlyPDThe effect of “Go and Grow with CF” on nutrition and pancreatic enzyme knowledge of children with cystic fibrosisAust J Nutr Diet2001583164169
  • DownsJARobertsCMBlackmoreAMLe SouëfPNJenkinsSCBenefits of an education programme on the self-management of aerosol and airway clearance treatments for children with cystic fibrosisChron Respir Dis200631192716509174
  • StarkLJKnappLGBowenAMIncreasing calorie consumption in children with cystic fibrosis: replication with 2-year follow-upJ Appl Behav Anal19932644354508307828
  • StarkLJMulvihillMMPowersSWBehavioral intervention to improve calorie intake of children with cystic fibrosis: treatment versus wait list controlJ Pediatr Gastroenterol Nutr19962232402538708877
  • StarkLJPowersSWJelalianERapeRNMillerDLModifying problematic mealtime interactions of children with cystic fibrosis and their parents via behavioral parent trainingJ Pediatr Psychol19941967517687830215
  • GoldbeckLFidikaAHerleMQuittnerALPsychological interventions for individuals with cystic fibrosis and their familiesCochrane Database Syst Rev20146CD003148
  • KahanaSDrotarDFrazierTMeta-analysis of psychological interventions to promote adherence to treatment in pediatric chronic health conditionsJ Pediatr Psychol200833659061118192300
  • BernardRSCohenLLIncreasing adherence to cystic fibrosis treatment: a systematic review of behavioral techniquesPediatr Pulmonol200437181614679483
  • QuittnerAKimbergCMarcielKZhangJRiekertKRandomized, controlled trial of a behavioral adherence intervention for adolescents with cystic fibrosis: I change adherence and raise expectations (iCARE)Chest20111404_MeetingAbstracts908A
  • QuittnerALHernándezCMKroekerLRWS4.5 Knowledge and skills in managing CF: data from the I Change Adherence and Raise Expectations (iCARE) studyJ Cyst Fibros201211S10
  • DuffAJLatchfordGJMotivational interviewing for adherence problems in cystic fibrosisPediatr Pulmonol201045321122020146366
  • Majeed-ArissRBaildamECampbellMApps and adolescents: a systematic review of adolescents’ use of mobile phone and tablet apps that support personal management of their chronic or long-term physical conditionsJ Med Internet Res20151712e28726701961
  • MarcielKKSaimanLQuittellLMDawkinsKQuittnerALCell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectivesPediatr Pulmonol201045215716420054860
  • HilliardMEHahnARidgeAKEakinMNRiekertKAUser preferences and design recommendations for an mHealth app to promote cystic fibrosis self-managementJMIR MHealth UHealth201424e4425344616
  • TaglienteITriesteLSolvollTMurgiaFBellaSTelemonitoring in cystic fibrosis: a 4-year assessment and simulation for the next 6 yearsInteract J Med Res201652e1127142963
  • LechtzinNWestNAllgoodSRationale and design of a randomized trial of home electronic symptom and lung function monitoring to detect cystic fibrosis pulmonary exacerbations: the early intervention in cystic fibrosis exacerbation (eICE) trialContemp Clin Trials201336246046924055998
  • CostelloRWFosterJMGriggJRespiratory Effectiveness GroupThe seven stages of man: the role of developmental stage on medication adherence in respiratory diseasesJ Allergy Clin Immunol Pract20164581382027587315
  • Rivera-SpoljaricKHalleyMWilsonSRShared clinician-patient decision-making about treatment of pediatric asthma: what do we know and how can we use it?Curr Opin Allergy Clin Immunol201414216116724553296
  • WilsonSRStrubPBuistASBetter Outcomes of Asthma Treatment (BOAT) Study GroupShared treatment decision making improves adherence and outcomes in poorly controlled asthmaAm J Respir Crit Care Med2010181656657720019345
  • NazarethMRichardsJJavalkarKRelating health locus of control to health care use, adherence, and transition readiness among youths with chronic conditions, North Carolina, 2015Prev Chronic Dis201613E9327442993
  • SmaldoneAFindleySBakkenSMatizLStudy protocol for a randomized controlled trial to assess the feasibility of an open label intervention to improve hydroxyurea adherence in youth with sickle cellContemp Clin Trials20164913414227327779
  • DeanAJWaltersJHallAA systematic review of interventions to enhance medication adherence in children and adolescents with chronic illnessArch Dis Child201095971772320522463