Perspectives Of Health Professionals And Educators On The Outcomes Of A National Education Project In Pediatric Palliative Care: The Quality Of Care Collaborative Australia

References

• Fraser LK, Miller M, Hain R, et al. Rising national prevalence of life-limiting conditions in children in England. Pediatrics. 2012;129(4):e923–e929. doi:10.1542/peds.2011-2846
   PubMed Web of Science ®Google Scholar
• Sepúlveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: the World Health Organization’s global perspective. J Pain Symptom Manag. 2002;24:91–96.
   PubMed Web of Science ®Google Scholar
• Mherekumombe MF, Frost J, Hanson S, Shepherd E, Collins J. Pop up: a new model of Paediatric Palliative Care. J Paediatr Child H. 2016;52:979–982.
   PubMed Web of Science ®Google Scholar
• Ahmann E, Abraham M, Johnson B. Institute for patient- and family-centered care. Emergen Med. 2010;15:109–111.
   Google Scholar
• Luckett T, Phillips J, Agar M, Virdun C, Green A, Davidson PM. Elements of effective palliative care models: a rapid review. BMC Health Serv Res. 2014;14:136.
   PubMed Web of Science ®Google Scholar
• Limbo R, Wool C. Perinatal palliative care. J Obstetric Gynecol Neonat Nurs. 2016;45:611–613.
   Web of Science ®Google Scholar
• Ajayi TA, Edmonds KP. Palliative care answers the challenges of transitioning serious illness of childhood to adult medicine. J Palliat Med. 2014;17:469–471.
   Web of Science ®Google Scholar
• Selman LE, Brighton LJ, Robinson V, et al. Primary care physicians’ educational needs and learning preferences in end of life care: a focus group study in the UK. BMC Palliat Care. 2017;16:17.
   Web of Science ®Google Scholar
• Reid FC. Lived experiences of adult community nurses delivering palliative care to children and young people in rural areas. Int J Palliat Nurs. 2013;19:541–547.
   Google Scholar
• Herbert A, Bradford N, Donovan L, Pedersen L, Irving H. Development of a state-wide pediatric palliative care service in Australia: referral and outcomes over two years. J Palliat Med. 2014;17:288–295.
   Web of Science ®Google Scholar
• Baggio S, Herbert A, Delaney A, et al. A national quality of care collaboration to improve Paediatric Palliative Care outcomes. National Rural Health Conference. National Rural Health Alliance; 2017.
   Google Scholar
• Mherekumombe MF. From inpatient to clinic to home to hospice and back: using the “Pop up” pediatric palliative model of care. Children. 2018;5(5):55.
   PubMedGoogle Scholar
• Slater PJ, Herbert AR, Baggio SJ, et al. Evaluating the impact of national education in pediatric palliative care: the quality of care collaborative Australia. Adv Med Educ Pract. 2018;9:927–941.
   Web of Science ®Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–357.
   PubMed Web of Science ®Google Scholar
• Wilcock PM, Stewart Brown GC, Bateson J, Carver J, Machin S. Using patient stories to inspire quality improvement within the NHS modernization agency collaborative programmes. J Clin Nurs. 2003;12:422–430.
   PubMed Web of Science ®Google Scholar
• Bridges J, Gray W, Box G, Machin S. Discovery interviews: a mechanism for user involvement. Int J Older People Nurs. 2008;3:206–210.
   PubMedGoogle Scholar
• NHS I. Learning from Patient and Carer Experience. A Guide to Using Discovery Interviews to Improve Care. Leicester, UK: NHS Modernisation Agency; 2009.
   Google Scholar
• Slater PJ, Philpot SP. Telling the story of childhood cancer: an evaluation of the discovery interview methodology conducted within the Queensland Children’s Cancer Centre. Patient Intell. 2016;2016:39–46.
   Google Scholar
• Cruickshank M, Wainohu D, Stevens H, Winskill R, Paliadelis P. Implementing family-centred care: an exploration of the beliefs and practices of paediatric nurses. Aust J Adv Nurs. 2005;23:31–36.
   PubMed Web of Science ®Google Scholar
• Dedoose. Dedoose Version 8.0.35, Web Application for Managing, Analyzing, and Presenting Qualitative and Mixed Method Research Data. Los Angeles, CA: LLC; 2018.
   Google Scholar
• Braun V, Clarke V, Terry G. Thematic analysis. Qual Res Clin Health Psychol. 2014;24:95–114.
   Google Scholar
• CareSearch. South Australia.
   Google Scholar
• Levine S, O’Mahony S, Baron A, et al. Training the workforce: description of a longitudinal interdisciplinary education and mentoring program in palliative care. J Pain Symptom Manag. 2017;53:728–737.
   PubMed Web of Science ®Google Scholar
• Downing K, Michelson K, Murday P, Arsala EG. Providing pediatric palliative care in Non-Urban Areas of Illinois: challenges identified and recommendations for process improvement (TH320D). J Pain Symptom Manag. 2018;55:571.
   Web of Science ®Google Scholar
• James K, Schank C, Downing KK, et al. Pediatric palliative physician and nurse mentorship training program: a personalized didactic and experiential training curriculum developed to enhance access to care in non-metropolitan communities. Pediatr. 2018;142(1): Meeting Abstract, 656. Section on Hospice and Palliative Medicine Program.
   Google Scholar
• Hinderer KA, Jarosinski JM, Seldomridge LA, Reid TP. From expert clinician to nurse educator: outcomes of a faculty academy initiative. Nurs Educ. 2016;41:194–198.
   Web of Science ®Google Scholar
• Fraser SE, Roth S, Vogt K, Clauson MI. Experience of Educators Who Have Participated in the Educator Pathway Program: a Qualitative Descriptive Study. Vancouver: Faculty Research and Publications, The University of British Columbia; 2016.
   Google Scholar
• Schoening AM. From bedside to classroom: the nurse educator transition model. Nurs Educ Perspect. 2013;34:167–172.
   Google Scholar
• Vesel T, Beveridge C. From fear to confidence: changing providers’ attitudes about pediatric palliative and hospice care. J Pain Symptom Manag. 2018;56(2):205–212.
   Web of Science ®Google Scholar
• Wiener L, Weaver MS, Bell CJ, Sansom-Daly UM. Threading the cloak: palliative care education for care providers of adolescents and young adults with cancer. Clin Oncol Adolesc Young Adults. 2015;5:1–18.
   Google Scholar
• Widger K, Wolfe J, Friedrichsdorf S, et al. National impact of the EPEC-pediatrics enhanced train-the-trainer model for delivering education on pediatric palliative care. J Palliat Med. 2018;21(9):1249–1256.
   Web of Science ®Google Scholar
• Maddocks I, Rayner R. Issues in palliative care for indigenous communities. 2003;179(6):S17.
   Google Scholar