Methods used to account for caregivers’ sex and gender within studies examining the financial burden of caregivers of children and adolescents : Results from a scoping review

References

• Queenan JA, Wong ST, Barber D, Morkem R, Salman A. The Prevalence of Common Chronic Conditions seen in Canadian Primary Care: Results from the Canadian Primary Care Sentinel Surveillance Network. Canadian Primary Care Sentinel Surveillance Network; 2021.
   Google Scholar
• Van Cleave J, Gortmaker SL, Perrin JM. Dynamics of obesity and chronic health conditions among children and youth. JAMA. 2010;303(7):623–630.
   PubMed Web of Science ®Google Scholar
• Roberts AA. The labor market consequences of family illness. J Ment Health Policy Econ. 1999;2(4):183–195.
   PubMedGoogle Scholar
• Sharpe L, Butow P, Smith C, McConnell D, Clarke S. The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers. Psychooncology. 2005;14(2):102–114.
   PubMed Web of Science ®Google Scholar
• Piran P, Khademi Z, Tayari N, Mansouri N. Caregiving burden of children with chronic diseases. Electron Physician. 2017;9(9):5380–5387.
   PubMedGoogle Scholar
• Abedi H, Abbaszadeh A, Kazemi M. Silent Screams: experiences of Caregiver Suffering by Parents of Children with Thalassemia: a Qualitative Study. Journal of Qualitative Research in Health Sciences. 2020;3(3):281–291.
   Google Scholar
• Jafarmanesh H, Ranjbaran M, Vakilian K, Rezaei K, Zand S, Tajik R. Survey of levels of anxiety and depression in parents of children with chronic illness. Iranian Journal of Psychiatric Nursin. 2014;1:45–53.
   Google Scholar
• Oskouie F. Quality of Life in Parent of Children with Leukemia and its Related Factors. Iran J Nurs. 2013;26:1–10.
   Google Scholar
• Kobos E, Imiela J. Factors affecting the level of burden of caregivers of children with type 1 diabetes. Appl Nurs Res. 2015;28(2):142–149.
   PubMed Web of Science ®Google Scholar
• Raina P, O’Donnell M, Rosenbaum P, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6):e626–636.
   PubMed Web of Science ®Google Scholar
• Canning RD, Harris ES, Kelleher KJ. Factors predicting distress among caregivers to children with chronic medical conditions. J Pediatr Psychol. 1996;21(5):735–749.
   PubMed Web of Science ®Google Scholar
• Liu Z, Heffernan C, Tan J. Caregiver burden: a concept analysis. Int J Nurs Sci. 2020;7(4):438–445.
   PubMed Web of Science ®Google Scholar
• Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20(6):649–655.
   PubMed Web of Science ®Google Scholar
• Hunt CK. Concepts in caregiver research. J Nurs Scholarsh. 2003;35(1):27–32.
   PubMed Web of Science ®Google Scholar
• Goodrich K, Kaambwa B, Al-Janabi H. The inclusion of informal care in applied economic evaluation: a review. Value Health. 2012;15(6):975–981.
   PubMed Web of Science ®Google Scholar
• Krol M, Papenburg J, van Exel J. Does including informal care in economic evaluations matter? A systematic review of inclusion and impact of informal care in cost-effectiveness studies. Pharmacoeconomics. 2015;33(2):123–135.
   PubMed Web of Science ®Google Scholar
• Lavelle TA, D’Cruz BN, Mohit B, et al. Family Spillover Effects in Pediatric Cost-Utility Analyses. Appl Health Econ Health Pol. 2019;17(2):163–174.
   PubMed Web of Science ®Google Scholar
• Mattingly TJ, Diaz FV, Seo D, Melgar CAI. A review of caregiver costs included in cost-of-illness studies. Expert Rev Pharmacoecon Outcomes Res. 2022;22(7):1051–1060.
   PubMed Web of Science ®Google Scholar
• Brehaut JC, Garner RE, Miller AR, et al. Changes over time in the health of caregivers of children with health problems: growth-curve findings from a 10-year Canadian population-based study. Am J Public Health. 2011;101(12):2308–2316.
   PubMed Web of Science ®Google Scholar
• Brehaut JC, Kohen DE, Garner RE, et al. Health among caregivers of children with health problems: findings from a Canadian population-based study. Am J Public Health. 2009;99(7):1254–1262.
   PubMed Web of Science ®Google Scholar
• Brehaut JC, Kohen DE, Raina P, et al. The Health of Primary Caregivers of Children With Cerebral Palsy: how Does It Compare With That of Other Canadian Caregivers? Pediatrics. 2004;114(2):e182–e191.
   PubMed Web of Science ®Google Scholar
• Breslau N, Staruch KS, Mortimer EA. Psychological distress in mothers of disabled children. Am J Dis Child. 1982;136(8):682–686.
   PubMedGoogle Scholar
• Burton P, Phipps S. Economic Costs of Caring for Children with Disabilities in Canada. Canadian Public Policy / Analyse de Politiques. 2009;35(3):269–290.
   Web of Science ®Google Scholar
• Dogba MJ, Bedos C, Durigova M, et al. The impact of severe osteogenesis imperfecta on the lives of young patients and their parents - A qualitative analysis. BMC Pediatr. 2013;13:153.
   PubMed Web of Science ®Google Scholar
• Miller GF, Coffield E, Leroy Z, Wallin R. Prevalence and Costs of Five Chronic Conditions in Children. J Sch Nurs. 2016;32(5):357–364.
   PubMed Web of Science ®Google Scholar
• Lin PJ, D’Cruz B, Leech AA, et al. Family and Caregiver Spillover Effects in Cost-Utility Analyses of Alzheimer’s Disease Interventions. Pharmacoeconomics. 2019;37(4):597–608.
   PubMed Web of Science ®Google Scholar
• Olazarán J, Agüera-Ortiz L, Argimón JM, et al. Costs and quality of life in community-dwelling patients with Alzheimer’s disease in Spain: results from the GERAS II observational study. International Psychogeriatrics. 2017;29(12):2081–2093.
   PubMed Web of Science ®Google Scholar
• Wimo A, Winblad B, Stoffler A, Wirth Y, Mobius HJ. Resource utilisation and cost analysis of memantine in patients with moderate to severe Alzheimer’s disease. Pharmacoeconomics. 2003;21(5):327–340.
   PubMed Web of Science ®Google Scholar
• Longo CJ, Fitch M, Deber RB, Williams AP. Financial and family burden associated with cancer treatment in Ontario, Canada. Support Care Cancer. 2006;14(11):1077–1085.
   PubMed Web of Science ®Google Scholar
• Van Houtven CH, Ramsey SD, Hornbrook MC, Atienza AA, van Ryn M. Economic burden for informal caregivers of lung and colorectal cancer patients. Oncologist. 2010;15(8):883–893.
   PubMed Web of Science ®Google Scholar
• Luengo-Fernandez R, Leal J, Gray A, Sullivan R. Economic burden of cancer across the European Union: a population-based cost analysis. Lancet Oncol. 2013;14(12):1165–1174.
   PubMed Web of Science ®Google Scholar
• Schreiber-Katz O, Klug C, Thiele S, et al. Comparative cost of illness analysis and assessment of health care burden of Duchenne and Becker muscular dystrophies in Germany. Orphanet J Rare Dis. 2014;9:210.
   PubMed Web of Science ®Google Scholar
• Cavazza M, Kodra Y, Armeni P, et al. Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe. Eur J Health Econ. 2016;17 Suppl 1:19–29.
   PubMed Web of Science ®Google Scholar
• Yang G, Cintina I, Pariser A, Oehrlein E, Sullivan J, Kennedy A. The national economic burden of rare disease in the United States in 2019. Orphanet J Rare Dis. 2022;17(1):163.
   PubMed Web of Science ®Google Scholar
• Cardinali P, Migliorini L, Rania N. The Caregiving Experiences of Fathers and Mothers of Children With Rare Diseases in Italy: challenges and Social Support Perceptions. Front Psychol. 2019;10:1780.
   PubMed Web of Science ®Google Scholar
• Beckman PJ. Influence of selected child characteristics on stress in families of handicapped infants. Am J Ment Defic. 1983;88(2):150–156.
   PubMedGoogle Scholar
• Dyson L, Edgar E, Crnic K. Psychological predictors of adjustment by siblings of developmentally disabled children. Am J Ment Retard. 1989;94(3):292–302.
   PubMedGoogle Scholar
• Frey KS, Greenberg MT, Fewell RR. Stress and coping among parents of handicapped children: a multidimensional approach. Am J Ment Retard. 1989;94(3):240–249.
   PubMedGoogle Scholar
• Gowen JW, Johnson-Martin N, Goldman BD, Appelbaum M. Feelings of depression and parenting competence of mothers of handicapped and nonhandicapped infants: a longitudinal study. Am J Ment Retard. 1989;94(3):259–271.
   PubMedGoogle Scholar
• McKinney B, Peterson RA. Predictors of stress in parents of developmentally disabled children. J Pediatr Psychol. 1987;12(1):133–150.
   PubMed Web of Science ®Google Scholar
• Chu SY, Wen CC, Weng CY. Gender Differences in Caring for Children with Genetic or Rare Diseases: a Mixed-Methods Study. Children. 2022;9(5):56.
   PubMedGoogle Scholar
• Sharma N, Chakrabarti S, Grover S. Gender differences in caregiving among family - caregivers of people with mental illnesses. World J Psychiatry. 2016;6(1):7–17.
   PubMed Web of Science ®Google Scholar
• Swinkels J, Tilburg TV, Verbakel E, Broese van Groenou M. Explaining the Gender Gap in the Caregiving Burden of Partner Caregivers. J Gerontol B Psychol Sci Soc Sci. 2019;74(2):309–317.
   PubMed Web of Science ®Google Scholar
• Krieger N. Genders, sexes, and health: what are the connections--and why does it matter? Int J Epidemiol. 2003;32(4):652–657.
   PubMed Web of Science ®Google Scholar
• Hasson-Ohayon I, Goldzweig G, Sela-Oren T, Pizem N, Bar-Sela G, Wolf I. Attachment style, social support and finding meaning among spouses of colorectal cancer patients: gender differences. Palliative Supportive Care. 2015;13(3):527–535.
   PubMed Web of Science ®Google Scholar
• Wadhwa D, Burman D, Swami N, Rodin G, Lo C, Zimmermann C. Quality of life and mental health in caregivers of outpatients with advanced cancer. Psychooncology. 2013;22(2):403–410.
   PubMed Web of Science ®Google Scholar
• Schrank B, Ebert-Vogel A, Amering M, et al. Gender differences in caregiver burden and its determinants in family members of terminally ill cancer patients. Psychooncology. 2016;25(7):808–814.
   PubMed Web of Science ®Google Scholar
• Statistics Canada. More than half of women provide care to children and care-dependent adults in Canada, 2022; 2022. Available from: https://www150.statcan.gc.ca/n1/daily-quotidien/221108/dq221108b-eng.htm. Accessed January 12, 2023.
   Google Scholar
• Burns CM, LeBlanc TW, Abernethy A, Currow D. Young caregivers in the end-of-life setting: a population-based profile of an emerging group. J Palliat Med. 2010;13(10):1225–1235.
   PubMed Web of Science ®Google Scholar
• Peters MD, Godfrey C, McInerney P, Munn Z, Tricco AC, Khalil H. Chapter 11: scoping Reviews. In: Aromatis MZ, editor JBI Manual for Evidence Synthesis. 2020.
   Google Scholar
• Tricco AC, Lillie E, Zarin W, et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): checklist and Explanation. Ann Intern Med. 2018;169(7):467–473.
   PubMed Web of Science ®Google Scholar
• McGowan J, Sampson M, Salzwedel DM, Cogo E, Foerster V, Lefebvre C. PRESS Peer Review of Electronic Search Strategies: 2015 Guideline Statement. J Clin Epidemiol. 2016;75:40–46.
   PubMed Web of Science ®Google Scholar
• Bramer WM, Giustini D, de Jonge GB, Holland L, Bekhuis T. De-duplication of database search results for systematic reviews in EndNote. J Med Libr Assoc. 2016;104(3):240–243.
   PubMed Web of Science ®Google Scholar
• Amoakoh HB, Aikins M. Household cost of out-patient treatment of Buruli ulcer in Ghana: a case study of Obom in Ga South Municipality. BMC Health Serv Res. 2013;13:507.
   PubMed Web of Science ®Google Scholar
• Abdullat M, Hayajneh W, Banni Issa A, et al. Use of health care resources for varicella in the paediatric population, Jordan. East Mediterr Health J. 2021;27(2):159–166.
   PubMed Web of Science ®Google Scholar
• Abuosi AA, Adzei FA, Anarfi J, Badasu DM, Atobrah D, Yawson A. Investigating parents/caregivers financial burden of care for children with non-communicable diseases in Ghana. BMC Pediatr. 2015;15:185.
   PubMed Web of Science ®Google Scholar
• Adamu AL, Karia B, Bello MM, et al. The cost of illness for childhood clinical pneumonia and invasive pneumococcal disease in Nigeria. BMJ glob. 2022;7(1):01.
   Web of Science ®Google Scholar
• Adegoke SA, Abioye-Kuteyi EA, Orji EO. The rate and cost of hospitalisation in children with sickle cell anaemia and its implications in a developing economy. Afr Health Sci. 2014;14(2):475–480.
   PubMed Web of Science ®Google Scholar
• Adjagba A, Onwujekwe O, Bocoum F, Osei-Akoto I, Matovu F. Economic cost of malaria in four countries in sub-Saharan Africa: a comparative analysis. African Journal of Health Economics. 2019;8(1):23–33.
   Google Scholar
• Aerts C, Leahy S, Mucasse H, et al. Quantifying the Acute Care Costs of Neonatal Bacterial Sepsis and Meningitis in Mozambique and South Africa. Clin Infect Dis. 2022;74:S64–S69.
   PubMed Web of Science ®Google Scholar
• Ahmad A. Socio-Economic Challenges of Afghan Parents of Children with Cancer: the Children’s Hospital Lahore Pakistan Experience. Pediatr Blood Cancer. 2021;68(SUPPL 5):567.
   Google Scholar
• Ahmed S, Dorin F, Satter SM, et al. The economic burden of rotavirus hospitalization among children < 5 years of age in selected hospitals in Bangladesh. Vaccine. 2021;39(48):7082–7090.
   PubMed Web of Science ®Google Scholar
• Ahuja S, Lederman S, Bagai P, Tsimicalis A, Martiniuk A, Arora R. A pilot study to determine the out-of-pocket expenditures by families of children being treated for cancer at public hospitals in India. Pediatr Blood Cancer. 2014;61:S159.
   Web of Science ®Google Scholar
• Al-Farsi Y, Waly M, Al-Sharbati M, et al. Variation in Socio-Economic Burden for Caring of Children with Autism Spectrum Disorder in Oman: caregiver Perspectives. J Autism Dev Disord. 2013;43(5):1214–1221.
   PubMed Web of Science ®Google Scholar
• Aliabadi N, Bonkoungou IJO, Pindyck T, et al. Cost of pediatric hospitalizations in Burkina Faso: a cross-sectional study of children aged <5 years enrolled through an acute gastroenteritis surveillance program. Vaccine. 2020;38(42):6517–6523.
   PubMed Web of Science ®Google Scholar
• Aljunid SM, Al Bashir L, Ismail AB, Aizuddin AN, Rashid SAZA, Nur AM. Economic impact of switching from partially combined vaccine “Pentaxim® and hepatitis B” to fully combined vaccine “Hexaxim®” in the Malaysian National Immunization Program. BMC Health Serv Res. 2022;22(1):1–12.
   PubMed Web of Science ®Google Scholar
• Angelis A, Kanavos P, Lopez-Bastida J, et al. Social/economic costs and health-related quality of life in patients with epidermolysis bullosa in Europe. Eur J Health Econ. 2016;17 Suppl 1:31–42.
   PubMed Web of Science ®Google Scholar
• Anjum MU, Nadeem K, Durrani AU, Riaz H. Economic burden of childhood pneumonia in Abbottabad, Pakistan. Med Forum Mon. 2017;28(5):55–58.
   Google Scholar
• Apte A, Shrivastava R, Sanghavi S, et al. Multicentric Hospital-Based Surveillance of Pertussis Amongst Infants Admitted in Tertiary Care Facilities in India. Indian Pediatr. 2021;58(8):709–717.
   PubMed Web of Science ®Google Scholar
• Arora S, Goodall S, Viney R, Einfeld S. Societal cost of childhood intellectual disability in Australia. J Intellect Disabil Res. 2020;64(7):524–537.
   PubMed Web of Science ®Google Scholar
• At Thobari J, Mulyadi AWE, Watts E, et al. Direct and indirect costs of acute diarrhea in children under five years of age in Indonesia: health facilities and community survey. Lancet Reg Health West Pac. 2022;19:100333.
   PubMedGoogle Scholar
• Atehortúa S, Flórez ID, Ceballos M, Granados C, Orozco LE, Mejía A. Cost-effectiveness analysis of ondansetron for the treatment of vomiting in children under 5 years of age with gastroenteritis in Colombia. Value in Health Regional Issues. 2015;8:1–7.
   PubMedGoogle Scholar
• Aung L, Saw SM, Chan MY, Khaing T, Quah TC, Verkooijen HM. The hidden impact of childhood cancer on the family: a multi-institutional study from Singapore. Ann Acad Med Singapore. 2012;41(4):170–175.
   PubMed Web of Science ®Google Scholar
• Badaru UM, Abdulrahman H, Ahmad RY, Lawal IU, Zakari MK. Analysis of Direct Monthly Cost of Outpatient Hospital-Based Care for Children With Cerebral Palsy in Kano, Nigeria. Value in Health Regional Issues. 2019;19:145–150.
   PubMedGoogle Scholar
• Baddour K, Mady LJ, Schwarzbach HL, et al. Exploring caregiver burden and financial toxicity in caregivers of tracheostomy-dependent children. Int J Pediatr Otorhinolaryngol. 2021;145:110713.
   PubMed Web of Science ®Google Scholar
• Bant DD, Kapfo TU. The burden, social and economic consequences of childhood pneumonia in north Karnataka-A cross-sectional study. Indian J Public Health Res Dev. 2020;11(9):19–23.
   Google Scholar
• Barron DA, Molosankwe I, Romeo R, Hassiotis A. Urban adolescents with intellectual disability and challenging behaviour: costs and characteristics during transition to adult services. Health Soc Care Community. 2013;21(3):283–292.
   PubMed Web of Science ®Google Scholar
• Bello A, Sangweni B, Mudi A, Khumalo T, Moonsamy G, Levy C. The Financial Cost Incurred by Families of Children on Long-Term Dialysis. Perit Dial Int. 2018;38(1):14–17.
   PubMed Web of Science ®Google Scholar
• Benevides TW, Lee J, Nwosu NAO, Franks J. Understanding the Family Impact of Autism Spectrum Disorder in a Racially and Ethnically Diverse Sample: findings from the National Survey of Children with Special Health Care Needs. Maternal Child Health J. 2019;23(7):951–960.
   PubMed Web of Science ®Google Scholar
• Bhaumik U, Norris K, Charron G, et al. A Cost Analysis for a Community-Based Case Management Intervention Program for Pediatric Asthma. J Asthma. 2013;50(3):310–317.
   PubMed Web of Science ®Google Scholar
• Bhuiyan MU, Luby SP, Alamgir NI, et al. Costs of hospitalization with respiratory syncytial virus illness among children aged <5 years and the financial impact on households in Bangladesh, 2010. J Global Health. 2017;7(1):193–201.
   Web of Science ®Google Scholar
• Bian C, Peng F, Guo H, Chen K. Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou. J Healthc Eng. 2022;2022:1519689.
   PubMed Web of Science ®Google Scholar
• Biddell CB, Kasow KA, Killela MK, et al. Understanding the financial and psychological impact of employment disruption among caregivers of pediatric HSCT recipients: a mixed methods analysis. Support Care Cancer. 2022;07:07.
   Google Scholar
• Bilaver LA, Kester K, Smith B, Gupta R. Socioeconomic disparities in the economic impact of childhood food allergy. J Allergy Clin Immunol. 2016;137(2).
   Web of Science ®Google Scholar
• Burke RM, Rebolledo PA, Embrey SR, et al. The burden of pediatric diarrhea: a cross-sectional study of incurred costs and perceptions of cost among Bolivian families. BMC Public Health. 2013;13:708.
   PubMed Web of Science ®Google Scholar
• Burke RM, Smith ER, Dahl RM, et al. The economic burden of pediatric gastroenteritis to Bolivian families: a cross-sectional study of correlates of catastrophic cost and overall cost burden. BMC Public Health. 2014;14(1):1535–1561.
   Google Scholar
• Burnett E, Rahajamanana VL, Raboba JL, et al. Diarrhea hospitalization costs among children <5 years old in Madagascar. Vaccine. 2020;38(47):7440–7444.
   PubMed Web of Science ®Google Scholar
• Caicedo C. Families with special needs children: family health, functioning, and care burden. J Am Psychiatr Nurses Assoc. 2014;20(6):398–407.
   PubMed Web of Science ®Google Scholar
• Carrello J, Lung T, Killedar A, Baur LA, Hayes A. Relationship between obesity and school absenteeism in Australian children: implications for carer productivity. Obes Res Clin Pract. 2021;15(6):587–592.
   PubMed Web of Science ®Google Scholar
• Cavazza M, Kodra Y, Armeni P, et al. Social/economic costs and quality of life in patients with haemophilia in Europe. Eur J Health Econ. 2016;17:53–65.
   PubMed Web of Science ®Google Scholar
• Chambers GM, Settumba SN, Carey KA, et al. Prenusinersen economic and health-related quality of life burden of spinal muscular atrophy. Neurology. 2020;95(1):e1–e10.
   PubMed Web of Science ®Google Scholar
• Chatterji P, Decker SL, Markowitz S. The effects of mandated health insurance benefits for autism on out-of-pocket costs and access to treatment. J Policy Anal Manage. 2015;34(2):328–353.
   PubMed Web of Science ®Google Scholar
• Cheng BT, Silverberg JI. Association of pediatric atopic dermatitis and psoriasis with school absenteeism and parental work absenteeism: a cross-sectional United States population-based study. J Am Acad Dermatol. 2021;85(4):885–892.
   PubMed Web of Science ®Google Scholar
• Cherian RA, P P, Panda BK. Direct medical costs in management of preterm neonates with respiratory distress syndrome in an Indian tertiary care teaching hospital. J Pharm Health Serv Res. 2017;8(4):275–279.
   Google Scholar
• Chevreul K, Berg Brigham K, Brunn M, Es Portes V. Fragile X syndrome: economic burden and health-related quality of life of patients and caregivers in France. J Intellect Disabil Res. 2015;59(12):1108–1120.
   PubMed Web of Science ®Google Scholar
• Chevreul K, Berg Brigham K, Clément M. Economic burden and health-related quality of life associated with Prader-Willi syndrome in France. J Intellect Disabil Res. 2016;60(9):879–890.
   PubMed Web of Science ®Google Scholar
• Chevreul K, Gandré C, Brigham K, et al. Social/economic costs and health-related quality of life in patients with fragile X syndrome in Europe. Eur J Health Econ. 2016;17:43–52.
   PubMed Web of Science ®Google Scholar
• Chevreul K, Michel M, Brigham K, et al. Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe. Eur J Health Econ. 2016;17:7–18.
   PubMed Web of Science ®Google Scholar
• Chiluba BC, Moyo G. Caring for a cerebral palsy child: a caregivers perspective at the University Teaching Hospital, Zambia. BMC Res Notes. 2017;10(1):724.
   PubMedGoogle Scholar
• Clark M, Cummings B, Kuhlthau K, Frassica N, Noviski N. Nonmedical out-of-pocket expenses, work absenteeism, and productivity for families with a child admitted to the pediatric intensive care unit. Chest. 2015;148(4):56.
   Web of Science ®Google Scholar
• Clark ME, Cummings BM, Kuhlthau K, Frassica N, Noviski N. Impact of Pediatric Intensive Care Unit Admission on Family Financial Status and Productivity: a Pilot Study. J Intensive Care Med. 2019;34(11–12):973–977.
   PubMed Web of Science ®Google Scholar
• Coronell-Rodriguez W, Arteta acosta C, Alvis-Guzman N, Alvis-Zakzuk NJ. Costs of the acute otitis media in pediatrics, in a City of the Colombian Caribbean coast. Value Health. 2017;20(5).
   Web of Science ®Google Scholar
• Crabtree-Ide C, Lillvis DF, Nie J, et al. Evaluating the Financial Sustainability of the School-Based Telemedicine Asthma Management Program. Popul Health Manag. 2021;24(6):664–674.
   PubMed Web of Science ®Google Scholar
• Crawford B, Hashim SS, Prepageran N, et al. Impact of Pediatric Acute Otitis Media on Child and Parental Quality of Life and Associated Productivity Loss in Malaysia: a Prospective Observational Study. Drugs - Real World Outcomes. 2017;4(1):21–31.
   PubMedGoogle Scholar
• Crettenden A, Wright A, Skinner N. Mothers caring for children and young people with developmental disabilities: intent to work, patterns of participation in paid employment and the experience of workplace flexibility. Community, Work & Family. 2014;17(3):244–267.
   Google Scholar
• Cutter S, Molter D, Dunn S, et al. Impact of mild to severe hemophilia on education and work by US adult men and women and caregivers of children with hemophilia B: the bridging hemophilia B experiences results and opportunities into solutions (B-HERO-S) study. Haemophilia. 2016;22:38–39.
   Web of Science ®Google Scholar
• Darwish MM, Hassan SH, Taha SF, El-Megeed HS A, Ismail TAM. Family impact and economic burden among caregivers of children with chronic kidney disease in Assiut, Egypt. J Egypt Public Health Assoc. 2020;95(1):27.
   PubMed Web of Science ®Google Scholar
• Dawson CP, Aryeetey GC, Agyemang SA, Mensah K, Addo R, Nonvignon J. Costs, burden and quality of life associated with informal caregiving for children with Lymphoma attending a tertiary hospital in Ghana. International Journal of Care Coordination. 2020;23(4):165–172.
   Web of Science ®Google Scholar
• De Broucker G, Ssebagereka A, Apolot RR, et al. The economic burden of measles in children under five in Uganda. Vaccine: X. 2020;6:100077.
   PubMedGoogle Scholar
• Dennett KV, Tracy S, Fisher S, et al. Treatment of perforated appendicitis in children: what is the cost? J Pediatr Surg. 2012;47(6):1177–1184.
   PubMed Web of Science ®Google Scholar
• DeRigne L, Porterfield SL. Employment Change Among Married Parents of Children With Special Health Care Needs. J Family Issues. 2017;38(5):579–606.
   Web of Science ®Google Scholar
• Dovgan KN, Mazurek MO. Differential Effects of Child Difficulties on Family Burdens across Diagnostic Groups. J Child Family Stud. 2018;27(3):872–884.
   Web of Science ®Google Scholar
• Dragojlovic N, van Karnebeek CDM, Ghani A, et al. The cost trajectory of the diagnostic care pathway for children with suspected genetic disorders. Genet Med. 2020;22(2):292–300.
   PubMed Web of Science ®Google Scholar
• Duru CO, Okpokowuruk FS, Adesina AD, et al. Caring for Children with Congenital Heart Diseases:Economic Burden of Pre-Surgical Management on Nigerian Families. West Afr J Med. 2021;38(2):144–151.
   PubMedGoogle Scholar
• De Broucker G, Ahmed S, Hasan MZ, et al. The economic burden of measles in children under five in Bangladesh. BMC Health Serv Res. 2020;20(1):1026.
   PubMed Web of Science ®Google Scholar
• Ebrahim AJ, Naik F, Teni FS. Costs incurred by caregivers of under-five inpatients with community-acquired pneumonia at a university hospital in south-western Ethiopia. S. 2019;34(1):109.
   Google Scholar
• Edwards CH, Bekkevold T, Flem E. Lost workdays and healthcare use before and after hospital visits due to rotavirus and other gastroenteritis among young children in Norway. Vaccine. 2017;35(28):3528–3533.
   PubMed Web of Science ®Google Scholar
• Eijgelshoven I, Demirdas S, Smith TA, van Loon JMT, Latour S, Bosch AM. The time consuming nature of phenylketonuria: a cross-sectional study investigating time burden and costs of phenylketonuria in the Netherlands. Mol Genet Metab. 2013;109(3):237–242.
   PubMed Web of Science ®Google Scholar
• Ekirapa-Kiracho E, De Broucker G, Ssebagereka A, et al. The economic burden of pneumonia in children under five in Uganda. Vaccine: X. 2021;8:100095.
   PubMedGoogle Scholar
• Feenstra DJ, Hutsebaut J, Laurenssen EM, Verheul R, Busschbach JJ, Soeteman DI. The burden of disease among adolescents with personality pathology: quality of life and costs. J Personal Disord. 2012;26(4):593–604.
   PubMed Web of Science ®Google Scholar
• Fenny AP, Otieku E, Labi -KA-K, Asante FA, Enemark U. Costs and Extra Length of Stay because of Neonatal Bloodstream Infection at a Teaching Hospital in Ghana. PharmacoEconomics. 2020:1–10.
   Web of Science ®Google Scholar
• Flores D, Ribate MP, Montolio M, Ramos FJ, Gomez M, Garcia CB. Quantifying the economic impact of caregiving for Duchenne muscular dystrophy (DMD) in Spain. Eur J Health Econ. 2020;21(7):1015–1023.
   PubMed Web of Science ®Google Scholar
• Fluchel MN, Kirchhoff AC, Bodson J, et al. Geography and the burden of care in pediatric cancers. Pediatr Blood Cancer. 2014;61(11):1918–1924.
   PubMed Web of Science ®Google Scholar
• Foster CC, Chorniy A, Soyang K, Kan K, Heard-Garris N, Davis MM. Children With Special Health Care Needs and Forgone Family Employment. Pediatrics. 2021;148(3):1–11.
   Web of Science ®Google Scholar
• Garnett A, Browne G. The Relationship Between Traumatic Injury in Children and Long-Term Use of Health and Social Services by Children and Their Families. J Trauma Nurs. 2016;23(4):215–226.
   PubMed Web of Science ®Google Scholar
• Gasana J, Gibson-Young L, Ibrahimou B, et al. Asthma in schoolchildren in Monroe county, Florida: school-based needs assessment. J Asthma. 2016;53(3):330–338.
   PubMed Web of Science ®Google Scholar
• Gaw J, Crowley S, Monagle P, Jones S, Newall F. The economic costs of routine INR monitoring in infants and children. J Thromb Haemost. 2013;11:91.
   Web of Science ®Google Scholar
• Genereaux D, van Karnebeek CD, Birch PH. Costs of caring for children with an intellectual developmental disorder. Disabil Health J. 2015;8(4):646–651.
   PubMed Web of Science ®Google Scholar
• Ghandour RM, Hirai AH, Blumberg SJ, Strickland BB, Kogan MD. Financial and nonfinancial burden among families of CSHCN: changes between 2001 and 2009-2010. Acad Pediatr. 2014;14(1):92–100.
   PubMed Web of Science ®Google Scholar
• Ghatak N, Trehan A, Bansal D. Financial burden of therapy in families with a child with acute lymphoblastic leukemia: report from north India. Support Care Cancer. 2016;24(1):103–108.
   PubMed Web of Science ®Google Scholar
• Goldhagen J, Fafard M, Komatz K, Eason T, Livingood WC. Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study. BMC Palliat Care. 2016;15:1–12.
   PubMed Web of Science ®Google Scholar
• Gomez C, Barrena J, Garcia-Paz V, et al. Impact of house dust mite-driven asthma on children’s school performance and activity. Eur J Pediatr. 2021;21:21.
   Google Scholar
• Graves JM, Moore M, Kehoe L, et al. Family Hardship Following Youth Concussion: beyond the Medical Bills. J Pediatr Nurs. 2020;51:15–20.
   PubMed Web of Science ®Google Scholar
• Grau J, Zollner JP, Schubert-Bast S, et al. Direct and indirect costs and cost-driving factors of Tuberous sclerosis complex in children, adolescents, and caregivers: a multicenter cohort study. Orphanet J Rare Dis. 2021;16(1):282.
   PubMed Web of Science ®Google Scholar
• Gupta R, Holdford D, Bilaver L, Dyer A, Holl JL, Meltzer D. The economic impact of childhood food allergy in the United States. JAMA Pediatr. 2013;167(11):1026–1031.
   PubMed Web of Science ®Google Scholar
• Handa S, Jain N, Narang T. Cost of care of atopic dermatitis in India. Contact Dermatitis. 2014;70:100.
   Google Scholar
• Hannan N, McMillan SS, Tiralongo E, Steel A. Treatment Burden for Pediatric Eosinophilic Esophagitis: a Cross-Sectional Survey of Carers. J Pediatr Psychol. 2021;46(1):100–111.
   PubMed Web of Science ®Google Scholar
• Hasan H, Syed Mohamed A, Mn A. The Costs of Caregivers for Children with Disabilities that Participate in Centre-Based and Home-Based Community-Based Rehabilitation (CBR) Programmes in the East Coast of Malaysia. Intellectual Discourse. 2019;27:945–963.
   Web of Science ®Google Scholar
• Hasan MZ, Mehdi GG, De Broucker G, et al. The economic burden of diarrhea in children under 5 years in Bangladesh. Int J Infect Dis. 2021;107:37–46.
   PubMed Web of Science ®Google Scholar
• Hatzmann J, Peek N, Heymans H, Maurice-Stam H, Grootenhuis M. Consequences of caring for a child with a chronic disease: employment and leisure time of parents. J Child Health Care. 2014;18(4):346–357.
   PubMed Web of Science ®Google Scholar
• Heidemann CH, Lauridsen HH, Kjeldsen AD, Faber CE, Johansen EC, Godballe C. Caregiver Quality of Life and Daily Functioning in Relation to Ventilating Tube Treatment. Otolaryngol - Head Neck Surgery. 2014;151(2):341–347.
   PubMed Web of Science ®Google Scholar
• Hennessee I, Chinkhumba J, Briggs-Hagen M, et al. Household costs among patients hospitalized with malaria: evidence from a national survey in Malawi, 2012. Malar J. 2017;16(1):395.
   PubMedGoogle Scholar
• Hussain SA, Ortendahl JD, Bentley TGK, et al. The economic burden of caregiving in epilepsy: an estimate based on a survey of US caregivers. Epilepsia. 2020;61(2):319–329.
   PubMed Web of Science ®Google Scholar
• Ismail A, Sk Abd Razak R, Suddin LS, Mahmud A, Kamaralzaman S, Yusri G. The Economic Burden and Determinant Factors of Parents/Caregivers of Children with Cerebral Palsy in Malaysia: a Mixed Methods Study. Int J Environ Res. 2022;19(1):01.
   Web of Science ®Google Scholar
• Kalski M, Schubert-Bast S, Kieslich M, et al. Clinical characteristics, resource utilization, quality of life and care situation for patients with Dravet syndrome in Germany. Zeitschrift fur Epileptologie. 2019;32(4):326–338.
   Web of Science ®Google Scholar
• Katana PV, Abubakar A, Nyongesa MK, et al. Economic burden and mental health of primary caregivers of perinatally HIV infected adolescents from Kilifi, Kenya. BMC Public Health. 2020;20(1):504.
   PubMed Web of Science ®Google Scholar
• Khatun M, Datta D, Hazra A, Ghosh P, Selim MB, Mondal R. Economic Burden of Juvenile Idiopathic Arthritis in India. Indian Pediatr. 2021;58(1):38–40.
   PubMed Web of Science ®Google Scholar
• King-Stephens D, Wheless J, Krogh C, et al. Burden of disease in patients with a history of status epilepticus and their caregivers. Epilepsy Behav. 2020;112:107374.
   PubMed Web of Science ®Google Scholar
• Kittikraisak W, Suntarattiwong P, Kanjanapattanakul W, et al. Comparison of incidence and cost of influenza between healthy and high-risk children <60 months old in Thailand, 2011-2015. PLoS One. 2018;13(5):1–15.
   Web of Science ®Google Scholar
• Kobayashi M, Abdul-Karim A, Milucky JL, et al. Estimating the economic burden of pneumococcal meningitis and pneumonia in northern Ghana in the African meningitis belt post-PCV13 introduction. Vaccine. 2021;39(33):4685–4699.
   PubMed Web of Science ®Google Scholar
• Kodhiambo MO, Oyugi JO, Amugune BK. Modelling the household cost of paediatric malaria treatment in a rural county in Kenya: do non-user fee payments matter? A partial cost of illness analysis. BMJ open. 2020;10(3):e033192.
   PubMed Web of Science ®Google Scholar
• Kodra Y, Cavazza M, Santis M, et al. Social Economic Costs, Health-Related Quality of Life and Disability in Patients with Cri Du Chat Syndrome. Int J Environ Res. 2020;17(16):17.
   Web of Science ®Google Scholar
• Kodra Y, Cavazza M, Schieppati A, et al. The social burden and quality of life of patients with haemophilia in Italy. Blood Transfusion. 2014;12(Suppl 3):s567–575.
   PubMed Web of Science ®Google Scholar
• Krah NM, Bardsley T, Nelson R, et al. Economic Burden of Home Antimicrobial Therapy: OPAT Versus Oral Therapy. Hosp. 2019;9(4):234–240.
   Google Scholar
• Krepiakevich A, Khowaja AR, Kabajaasi O, et al. Out of pocket costs and time/productivity losses for pediatric sepsis in Uganda: a mixed-methods study. BMC Health Serv Res. 2021;21(1):1252.
   PubMed Web of Science ®Google Scholar
• Kuhlmann A, Schmidt T, Treskova M, et al. Social/economic costs and health-related quality of life in patients with juvenile idiopathic arthritis in Europe. Eur J Health Econ. 2016;17 Suppl 1:79–87.
   PubMed Web of Science ®Google Scholar
• Labisa P, Andreozzi V, Mota M, et al. Cost of Illness in Patients with Duchenne Muscular Dystrophy in Portugal: the COIDUCH Study. PharmacoEconomics. 2021:1–8.
   PubMed Web of Science ®Google Scholar
• Lagae L, Irwin J, Gibson E, Battersby A. Caregiver impact and health service use in high and low severity Dravet syndrome: a multinational cohort study. Seizure. 2019;65:72–79.
   PubMed Web of Science ®Google Scholar
• Laizane G, Kivite A, Stars I, Cikovska M, Grope I, Gardovska D. Health-related quality of life of the parents of children hospitalized due to acute rotavirus infection: a cross-sectional study in Latvia. BMC Pediatr. 2018;18(1):114.
   PubMedGoogle Scholar
• Landfeldt E, Lindgren P, Bell CF, et al. The burden of Duchenne muscular dystrophy: an international, cross-sectional study. Neurology. 2014;83(6):529–36.
   PubMed Web of Science ®Google Scholar
• Lavelle TA, Weinstein MC, Newhouse JP, Munir K, Kuhlthau KA, Prosser LA. Economic burden of childhood autism spectrum disorders. Pediatrics. 2014;133(3):e520–529.
   PubMed Web of Science ®Google Scholar
• Le ND, Phung NH, Vo TQ. Economic outcomes of dengue fever in hospitalized cases in Vietnam: a cross-sectional study. Value Health. 2017;20(5).
   Web of Science ®Google Scholar
• Linhares AC, Macias-Parra M, Sáez-Llorens X, et al. Rotavirus gastroenteritis in Latin America: a hospital-based study in children under 3 years of age. Trials Vaccinol. 2012;1:36–41.
   Google Scholar
• Lopez-Bastida J, Linertova R, Oliva-Moreno J, et al. Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe. Eur J Health Econ. 2016;17 Suppl 1:99–108.
   PubMed Web of Science ®Google Scholar
• Lopez-Bastida J, Lopez-Siguero JP, Oliva-Moreno J, et al. Social economic costs of type 1 diabetes mellitus in pediatric patients in Spain: CHRYSTAL observational study. Diabet Res Clin Pract. 2017;127:59–69.
   PubMed Web of Science ®Google Scholar
• López-Bastida J, Peña-Longobardo L, Aranda-Reneo I, et al. Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain. Orphanet J Rare Diseases. 2017;12:1–7.
   PubMed Web of Science ®Google Scholar
• MacDonald A, Smith TA, Silva S, Alam V, van Loon JM. The personal burden for caregivers of children with phenylketonuria: a cross-sectional study investigating time burden and costs in the UK. Mol Genet Metab Rep. 2016;9:1–5.
   PubMed Web of Science ®Google Scholar
• Machuki JA, Aduda DSO, Omondi A, Onono MA. Patient-level cost of home- and facility-based child pneumonia treatment in Suba Sub County, Kenya. PLoS One. 2019;14(11):1–10.
   Web of Science ®Google Scholar
• MacKinnon N, St-Louis E, Yousef Y, Poenaru D, Situma M. Out-of-Pocket and Catastrophic Expenses Incurred by Seeking Pediatric and Adult Surgical Care at a Public, Tertiary Care Centre in Uganda. World J Surg. 2018;42(11):3520–3527.
   PubMed Web of Science ®Google Scholar
• Mandic CG, Johaningsmeir S, Corden TE, Earle A, Acevedo-Garcia D, Gordon JB. Impact of caring for children with medical complexity on parents’ employment and time. Community, Work & Family. 2017;20(4):444–458.
   Web of Science ®Google Scholar
• Marques G. The family of the child with cancer: socioeconomic needs. Rev Gaucha Enferm. 2017;38(4):e2016–2078.
   PubMedGoogle Scholar
• McClung N, Glidewell J, Farr SL. Financial burdens and mental health needs in families of children with congenital heart disease. Congenit Heart Dis. 2018;13(4):554–562.
   PubMed Web of Science ®Google Scholar
• Medway M, Tong A, Craig JC, et al. Parental perspectives on the financial impact of caring for a child with chronic kidney disease. Nephrology. 2014;19:64.
   Web of Science ®Google Scholar
• Mejia N, Pallas SW, Saha S, et al. Typhoid and Paratyphoid Cost of Illness in Bangladesh: patient and Health Facility Costs From the Surveillance for Enteric Fever in Asia Project II. Clin Infect Dis. 2020;71(Suppl 3):548.
   Google Scholar
• Menon MP, Njau JD, McFarland DA. Uganda Malaria Indicator Survey Technical Working G. Cost and Predictors of Care-Seeking Behaviors Among Caregivers of Febrile Children-Uganda, 2009. Am J Trop Med Hyg. 2016;94(4):932–937.
   PubMed Web of Science ®Google Scholar
• Mlcoch T, Puda R, Jesina P, Lhotakova M, Sterbova S, Dolezal T. Dietary patterns, cost and compliance with low-protein diet of phenylketonuria and other inherited metabolic diseases. Eur J Clin Nutr. 2018;72(1):87–92.
   PubMed Web of Science ®Google Scholar
• Mujuru HA, Burnett E, Nathoo KJ, et al. Cost estimates of diarrhea hospitalizations among children <5 years old in Zimbabwe. Vaccine. 2020;38(43):6735–6740.
   PubMed Web of Science ®Google Scholar
• Mustafa G, Al Aidaroos AY, Al Abaidani IS, et al. Incidence and economic burden of acute otitis media in children aged up to 5 years in three Middle Eastern countries and Pakistan: a multinational, retrospective, observational study. Journal of Epidemiology and Global Health. 2017;7(2):123–130.
   PubMed Web of Science ®Google Scholar
• Nanyonjo A, Bagorogoza B, Kasteng F, et al. Estimating the cost of referral and willingness to pay for referral to higher-level health facilities: a case series study from an integrated community case management programme in Uganda. BMC Health Serv Res. 2015;15(1):347.
   PubMedGoogle Scholar
• Neri L, Lucidi V, Catastini P, Colombo C. Caregiver burden and vocational participation among parents of adolescents with CF. Pediatr Pulmonol. 2016;51(3):243–252.
   PubMed Web of Science ®Google Scholar
• Nes RB, Hauge LJ, Kornstad T, et al. Maternal Work Absence: a Longitudinal Study of Language Impairment and Behavior Problems in Preschool Children. J Marriage Fam. 2015;77(5):1282–1298.
   PubMed Web of Science ®Google Scholar
• Ngabo F, Mvundura M, Gazley L, et al. The Economic Burden Attributable to a Child’s Inpatient Admission for Diarrheal Disease in Rwanda. PLoS One. 2016;11(2):e0149805.
   PubMed Web of Science ®Google Scholar
• Nhi TNY, Trung VQ. The economic value of informal care for dengue patients in Vietnam. IntJ Res Ayurveda Pharmacy. 2016;7(6):101–106.
   Google Scholar
• Nhu Hue BT, Riewpaiboon A, Pham LD, Thu Nguyen TT, Chaikledkaew U, Quang Vo T. Economic Burden of Hand, Foot, and Mouth Disease in Vietnam; an Evidence for Priority Setting and Efficiency Management. Pharm Sci Asia. 2020;48(1):73–78.
   Google Scholar
• Niyibitegeka F, Riewpaiboon A, Youngkong S, Thavorncharoensap M. Economic burden of childhood diarrhea in Burundi. Glob Health Res Policy. 2021;6(1):13.
   PubMedGoogle Scholar
• Nonoyama M, Katz S, Amin R, et al. Healthcare utilization and costs of pediatric home mechanical ventilation in Canada. Eur Respir J. 2019;54.
   Web of Science ®Google Scholar
• O’Brien MA, Rojas-Farreras S, Lee H-C, et al. Family impact of Rotavirus Gastroenteritis in Taiwan and Vietnam: an Ethnographic Study. BMC Infect Dis. 2015;15(1):1–9.
   PubMedGoogle Scholar
• Olsson M, Bajpai R, Wee LWY, et al. The cost of childhood atopic dermatitis in a multi-ethnic Asian population: a cost-of-illness study. Br J Dermatol. 2020;182(5):1245–1252.
   PubMed Web of Science ®Google Scholar
• Olsson M, Bajpai R, Yew YW, et al. Associations between health‐related quality of life and health care costs among children with atopic dermatitis and their caregivers: a cross‐sectional study. Pediatr Dermatol. 2020;37(2):284–293.
   PubMed Web of Science ®Google Scholar
• Ortega-Sanchez IR, Molinari N-AM, Fairbrother G, et al. Indirect, out-of-pocket and medical costs from influenza-related illness in young children. Vaccine. 2012;30(28):4175–4181.
   PubMed Web of Science ®Google Scholar
• Ouyang L, Grosse SD, Riley C, et al. A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability. Res Dev Disabil. 2014;35(7):1518–1527.
   PubMed Web of Science ®Google Scholar
• Parish SL, Rose RA, Dababnah S, Yoo J, Cassiman SA. State-level income inequality and family burden of U.S. families raising children with special health care needs. Soc sci med. 2012;74(3):399–407.
   PubMed Web of Science ®Google Scholar
• Pena-Longobardo LM, Aranda-Reneo I, Oliva-Moreno J, et al. The Economic Impact and Health-Related Quality of Life of Spinal Muscular Atrophy. An Analysis across Europe. Int J Environ Res. 2020;17(16):05.
   Web of Science ®Google Scholar
• Péntek M, Gulácsi L, Brodszky V, et al. Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe. Eur J Health Econ. 2016;17:89–98.
   PubMed Web of Science ®Google Scholar
• Pijnacker R, Mangen MJ, van den Bunt G, Franz E, van Pelt W, Mughini-Gras L. Incidence and economic burden of community-acquired gastroenteritis in the Netherlands: does having children in the household make a difference? PLoS One. 2019;14(5):e0217347.
   PubMed Web of Science ®Google Scholar
• Pinto M, Madureira A, Barros LBP, et al. Complex care, high cost, and loss of income: frequent issues for families of children and adolescents with rare health conditions. Cad Saude Publica. 2019;35(9):e00180218.
   PubMed Web of Science ®Google Scholar
• Pinto M, Moreira MEL, Barros LBP, Costa A, Fernandes S, Kuper H. Catastrophic expenditure on congenital Zika syndrome: results of a cross-sectional study of caregivers of children in Rio de Janeiro, Brazil. Cad Saude Publica. 2021;37(11):e00007021.
   PubMed Web of Science ®Google Scholar
• Qi X, Xu J, Shan L, et al. Economic burden and health related quality of life of ultra-rare Gaucher disease in China. Orphanet J Rare Diseases. 2021;16(1):358.
   PubMed Web of Science ®Google Scholar
• Quinn BJ, Mancinelli ADO, Rooney-Otero K, et al. Scalp Staples Placed in a Pediatric Emergency Department: feasibility and Benefits of Home Removal. Pediatr Emerg Care. 2022;38(3):e1143–e1146.
   PubMed Web of Science ®Google Scholar
• Quintero J, Ramos-Quiroga JA, Sebastian JS, et al. Health care and societal costs of the management of children and adolescents with attention-deficit/hyperactivity disorder in Spain: a descriptive analysis. BMC Psychiatry. 2018;18(1):40.
   PubMedGoogle Scholar
• Razzaque Sarker A, Islam Z, Ansary Khan I, et al. Cost of illness for cholera in a high risk urban area in Bangladesh: an analysis from household perspective. BMC Infect Dis. 2013;13(1):1–13.
   PubMedGoogle Scholar
• Reich SM, Dahlin M, Tulagan N, et al. Caregivers’ Experiences During the COVID-19 Pandemic and Their Children’s Behavior. J Family Issues. 2021;1.
   Web of Science ®Google Scholar
• Ren Y, Li X. Direct and indirect costs of families with a child with acute lymphoblastic leukaemia in an academic hospital in China: a cross-sectional survey. BMJ open. 2019;9(7):e030511.
   PubMed Web of Science ®Google Scholar
• Riechmann J, Strzelczyk A, Reese JP, et al. Costs of epilepsy and cost-driving factors in children, adolescents, and their caregivers in Germany. Epilepsia. 2015;56(9):1388–1397.
   PubMed Web of Science ®Google Scholar
• Riewpaiboon A, Shin S, Thi Phuong Mai L, et al. Cost of rotavirus diarrhea for programmatic evaluation of vaccination in Vietnam. BMC Public Health. 2016;16(1):1–7.
   PubMedGoogle Scholar
• Rochanathimoke O, Riewpaiboon A, Tharmaphornpilas P, Jiamsiri S, Thavorncharoensap M, Postma MJ. Economic burden of rotavirus diarrhea in Thailand: report from a pilot study on rotavirus vaccination. Vaccine. 2019;37(4):587–594.
   PubMed Web of Science ®Google Scholar
• Roddy A, O’Neill C. The economic costs and its predictors for childhood autism spectrum disorders in Ireland: how is the burden distributed? Autism. 2019;23(5):1106–1118.
   PubMed Web of Science ®Google Scholar
• Romaire MA, Bell JF, Grossman DC. Medical home access and health care use and expenditures among children with special health care needs. Arch Pediatr Adolesc Med. 2012;166(4):323–330.
   PubMedGoogle Scholar
• Romley JA, Shah AK, Chung PJ, Elliott MN, Vestal KD, Schuster MA. Family-Provided Health Care for Children With Special Health Care Needs. Pediatrics. 2017;139(1):01.
   Web of Science ®Google Scholar
• Salcedo-Mejia F, Alvis-Zakzuk NJ, Carrasquilla-Sotomayor M, et al. Economic Cost of Severe Acute Respiratory Infection Associated to Influenza in Colombian Children: a Single Setting Analysis. Value in Health Regional Issues. 2019;20:159–163.
   PubMedGoogle Scholar
• Saunders BS, Tilford JM, Fussell JJ, Schulz EG, Casey PH, Kuo DZ. Financial and employment impact of intellectual disability on families of children with autism. Fam Syst Health. 2015;33(1):36–45.
   PubMed Web of Science ®Google Scholar
• Schwartz CE, Stark RB, Audhya IF, Gooch KL. Characterizing the quality-of-life impact of Duchenne muscular dystrophy on caregivers: a case-control investigation. J Patient Rep Outcomes. 2021;5(1):124.
   PubMedGoogle Scholar
• Seear M, Kapur A, Wensley D, Morrison K, Behroozi A. The quality of life of home-ventilated children and their primary caregivers plus the associated social and economic burdens: a prospective study. Arch Dis Child. 2016;101(7):620–627.
   PubMed Web of Science ®Google Scholar
• Shillcutt SD, LeFevre AE, Fischer Walker CL, Taneja S, Black RE, Mazumder S. Economic costs to caregivers of diarrhoea treatment among children below 5 in rural Gujarat India: findings from an external evaluation of the DAZT programme. Health Policy Plan. 2016;31(10):1411–1422.
   PubMed Web of Science ®Google Scholar
• Shillcutt SD, LeFevre AE, Fischer-Walker CL, Taneja S, Black RE, Mazumder S. Cost-effectiveness analysis of the diarrhea alleviation through zinc and oral rehydration therapy (DAZT) program in rural Gujarat India: an application of the net-benefit regression framework. Cost Eff Resour Allocation. 2017;15(1):58.
   Google Scholar
• Siregar AYM, Pitriyan P, Walters D. The annual cost of not breastfeeding in Indonesia: the economic burden of treating diarrhea and respiratory disease among children (< 24mo) due to not breastfeeding according to recommendation. Int Breastfeed J. 2018;13:10.
   PubMed Web of Science ®Google Scholar
• Sonali Fernando E, Headley TY, Tissera H, Wilder-Smith A, De Silva A, Tozan Y. Household and Hospitalization Costs of Pediatric Dengue Illness in Colombo, Sri Lanka. Am J Trop Med Hyg. 2021;105(1):110–116.
   PubMed Web of Science ®Google Scholar
• Srinivasan M, Sindhu KN, Nag A, et al. Hospitalization Rates and Direct Medical Costs for Fever in a Pediatric Cohort in South India. J Infect Dis. 2021;224(Supple 5).
   Google Scholar
• Sritipsukho P, Matchimmadamrong K, Chinratanapisit S, Deerojanawong J. Economic Burden of Hospitalization with Acute Wheezing in Preschool Children: a Multi-Center Study. J Med Assoc Thai. 2016;99 Suppl 4:S239–S245.
   PubMedGoogle Scholar
• Strzelczyk A, Kalski M, Bast T, et al. Burden-of-illness and cost-driving factors in Dravet syndrome patients and carers: a prospective, multicenter study from Germany. Eur J Paediatr Neurol. 2019;23(3):392–403.
   PubMed Web of Science ®Google Scholar
• Strzelczyk A, Schubert-Bast S, Bast T, et al. A multicenter, matched case-control analysis comparing burden-of-illness in Dravet syndrome to refractory epilepsy and seizure remission in patients and caregivers in Germany. Epilepsia. 2019;60(8):1697–1710.
   PubMed Web of Science ®Google Scholar
• Sullivan P, Ghushchyan VG, Navaratnam P, et al. School absence and productivity outcomes associated with childhood asthma in the USA. J Asthma. 2018;55(2):161–168.
   PubMed Web of Science ®Google Scholar
• Sultana M, Alam NH, Ali N, et al. Household economic burden of childhood severe pneumonia in Bangladesh: a cost-of-illness study. Arch Dis Child. 2021;106(6):539–546.
   PubMed Web of Science ®Google Scholar
• Sunny AK, Gurung R, Gurung A, Basnet O, Kc A. Out of Pocket Expenditure for Sick Newborn Care in Referral Hospitals of Nepal. Maternal Child Health J. 2020;24(Suppl 1):e54.
   PubMed Web of Science ®Google Scholar
• Suthoff E, Rosenfeld M, Mainz JG, et al. Caregiver burden due to pulmonary exacerbations in CF: a survey of caregivers of children with cf in the US, UK, Ireland, and Germany. Pediatr Pulmonol. 2017;52:309–310.
   Web of Science ®Google Scholar
• Tankersley M, Winders T, Aagren M, et al. Subcutaneous immunotherapy takes more than the time in the clinic. Curr Med Res Opin. 2021;37(11):1925–1931.
   PubMed Web of Science ®Google Scholar
• Teoh LJ, Geelhoed EA, Bayley K, Leonard H, Laing NG. Health care utilization and costs for children and adults with Duchenne muscular dystrophy. Muscle Nerve. 2016;53(6):877–884.
   PubMed Web of Science ®Google Scholar
• Thorrington D, Balasegaram S, Cleary P, Hay C, Eames K. Social and Economic Impacts of School Influenza Outbreaks in England: survey of Caregivers. J Sch Health. 2017;87(3):209–216.
   PubMed Web of Science ®Google Scholar
• Toulany A, Matthew W, Katzman DK, et al. Cost analysis of inpatient treatment of anorexia nervosa in adolescents: hospital and caregiver perspectives. CMAJ Open. 2015;3(2):E192–E197.
   PubMedGoogle Scholar
• Ughasoro MD, Akpeh JO, Echendu N, et al. Direct and Indirect Costs of Non-surgical Treatment for Acute Tonsillitis in Children in Southeast Nigeria. Pharmacoeconom Open. 2021;5(4):755–764.
   PubMed Web of Science ®Google Scholar
• Ughasoro MD, Onwujekwe OE, Ojinnaka NC. Economic cost of treatment of childhood epilepsy in Enugu, southeast Nigeria. Int J Technology Assessment in Health Care. 2014;30(4):469–474.
   PubMed Web of Science ®Google Scholar
• Umar U, Adamu H, Abdulkareem A. Economic evaluation of cerebral palsy in a resource-challenged setting. Niger J Basic Clin Sci. 2020;17(1):50–56.
   Google Scholar
• Usuf E, Mackenzie G, Sambou S, Atherly D, Suraratdecha C. The economic burden of childhood pneumococcal diseases in The Gambia. Cost Eff Resour Allocation. 2016;14(1):559.
   Google Scholar
• Vann WF, Divaris K, Gizlice Z, Baker AD, Lee JY, Vann WF. Caregivers’ health literacy and their young children’s oral-health-related expenditures. J Dent Res. 2013;92:S55.
   Web of Science ®Google Scholar
• Velandia MR, Carreño Moreno SP. Family Economic Burden Associated to Caring for Children with Cancer. Investigacion & Educacion en Enfermeria. 2018;36(1):70–82.
   Google Scholar
• Vessey JA, DiFazio RL, Strout TD, Snyder BD. Impact of Non-medical Out-of-pocket Expenses on Families of Children With Cerebral Palsy Following Orthopaedic Surgery. J Pediatr Nurs. 2017;37:101–107.
   PubMed Web of Science ®Google Scholar
• Vohra R, Madhavan S, Sambamoorthi U, St Peter C. Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism. 2014;18(7):815–826.
   PubMed Web of Science ®Google Scholar
• Wang L, Zou H, Ye F, et al. Household financial burden of phenylketonuria and its impact on treatment in China: a cross-sectional study. J Inherit Metab Dis. 2017;40(3):369–376.
   PubMed Web of Science ®Google Scholar
• Wang N, Zhou S, Wang S, et al. Economic burden of Down syndrome patients and psychological and social discrimination to female caregivers in Changsha, China. Chung Hua I Hsueh I Chuan Hsueh Tsa Chih. 2022;39(1):11–15.
   Google Scholar
• Warner EL, Kirchhoff AC, Nam GE, Fluchel M. Original Contribution. Financial Burden of Pediatric Cancer for Patients and Their Families. J Oncol Pract. 2015;11(1):12–18.
   PubMed Web of Science ®Google Scholar
• Watson SL, Stine F, Tumin D, Stiles KM. Employment and well-being among caregivers of children with autism spectrum disorder. Child Health Care. 2021;50(1):16–27.
   Web of Science ®Google Scholar
• Weaver MS, Wichman B, Bace S, et al. Measuring the Impact of the Home Health Nursing Shortage on Family Caregivers of Children Receiving Palliative Care. J Hosp Palliat Nurs. 2018;20(3):260–265.
   PubMedGoogle Scholar
• Whittington MD, Knupp KG, Vanderveen G, Kim C, Gammaitoni A, Campbell JD. The direct and indirect costs of Dravet Syndrome. Epilepsy Behav. 2018;80:109–113.
   PubMed Web of Science ®Google Scholar
• Wright A, Crettenden A, Skinner N. Dads care too! Participation in paid employment and experiences of workplace flexibility for Australian fathers caring for children and young adults with disabilities. Community, Work & Family. 2016;19(3):340–361.
   Web of Science ®Google Scholar
• Wysocki J, Malecka I, Stryczynska-Kazubska J, Rampakakis E, Kuter B, Wolfson LJ. Varicella in Poland: economic burden in children 1-12 years of age in Poland, 2010-2015. BMC Public Health. 2018;18(1):410.
   PubMedGoogle Scholar
• Zan H, Scharff RL. The heterogeneity in financial and time burden of caregiving to children with chronic conditions. Maternal Child Health J. 2015;19(3):615–625.
   PubMed Web of Science ®Google Scholar
• Zhao X, Page TF, Altszuler AR, et al. Family Burden of Raising a Child with ADHD. J Abnorm Child Psychol. 2019;47(8):1327–1338.
   PubMed Web of Science ®Google Scholar
• Zhao YN, Luo YN, Wang XY, Fan HY, Zhang R, Zheng XY. Research on the direct financial burden on families with 2-6 years old children having autism spectrum disorder in China. Chine J Dis Prevention. 2021;25(9):1085–1090.
   Google Scholar
• Zheng Y, Jit M, Wu JT, et al. Economic costs and health-related quality of life for hand, foot and mouth disease (HFMD) patients in China. PLoS One. 2017;12(9):e0184266.
   PubMed Web of Science ®Google Scholar
• Zhou Y, Cai S, Jin M, et al. Economic burden for retinoblastoma patients in China. J Med Econ. 2020;23(12):1553–1557.
   PubMed Web of Science ®Google Scholar
• Zhou Z-Y, Koerper MA, Johnson KA, et al. Burden of illness: direct and indirect costs among persons with hemophilia A in the United States. J Med Econ. 2015;18(6):457–465.
   PubMed Web of Science ®Google Scholar
• Reilly MC, Zbrozek AS, Dukes EM. The validity and reproducibility of a work productivity and activity impairment instrument. Pharmacoeconomics. 1993;4(5):353–365.
   PubMed Web of Science ®Google Scholar
• Järbrink K, McCrone P, Fombonne E, Zandén H, Knapp M. Cost-impact of young adults with high-functioning autistic spectrum disorder. Res Dev Disabil. 2007;28(1):94–104.
   PubMed Web of Science ®Google Scholar
• Schwartz CE, Powell VE, Eldar-Lissai A. Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure. Qual Life Res. 2017;26(9):2551–2562.
   PubMed Web of Science ®Google Scholar
• Holloway B, Mathur A, Pathak A, Bergström A. Utilisation of diagnostics in India: a rapid ethnographic study exploring context and behaviour. BMJ Open. 2020;10(11):e041087.
   PubMed Web of Science ®Google Scholar
• Laberge M, Coulibaly LP, Berthelot S, et al. Development and validation of an instrument to measure health-related out-of-pocket costs: the Cost for Patients Questionnaire (CoPaQ). Value Health. 2021;24(8):1172–1181.
   PubMed Web of Science ®Google Scholar
• Heidari S, Babor TF, De Castro P, Tort S, Curno M. Sex and Gender Equity in Research: rationale for the SAGER guidelines and recommended use. Res Integr Peer Rev. 2016;1:2.
   PubMedGoogle Scholar
• Drummond M, Sculpher M, Claxton K, Stoddart G, Torrance G. Methods for the Economic Evaluation of Health Care Programmes. Fourth Edition ed. Oxford: Oxford University Press; 2015.
   Google Scholar
• Johnson JL, Greaves L, Repta R. Better science with sex and gender: facilitating the use of a sex and gender-based analysis in health research. Int J Equity Health. 2009;8:14.
   PubMed Web of Science ®Google Scholar