Quality of life predictors in informal caregivers of seniors with a functional performance deficit – an example of home care in Poland

References

• European Commission Directorate-General for Economic and Financial Affairs. The 2015 ageing report economic and budgetary projections for the 28 EU Member States (2013–2060). Econ Finan Aff. 2015;3:399 Available from: http://ec.europa.eu/economy_finance/publications/european_economy/2015/pdf/ee3_en.pdf.
   Google Scholar
• Eurostat newsrelease. Population projections 2010–2060. EU27 population is expected to peak by around 2040. One person in eight aged 80 or more in 2060. Population. Available from: http://ec.europa.eu/eurostat/documents/2995521/5039334/3-08062011-BP-EN.PDF/fad284a6-74eb-4eb6-9e6c-f29331b875f0. Accessed 525, 2018.
   Google Scholar
• Czekanowski P. The aging process of societies and the family situation of old people. Sociol Rev. 2013;62(2):55–78.
   Google Scholar
• Beck O, Kędziora-Kornatowska K, Kornatowski M. Long-term home care in Poland – framework, problems, prospects. Hygeia Public Health. 2014;49(2):192–196.
   Google Scholar
• Ryan AA, McCann S, McKenna H. Impact of community care in enabling older people with complex needs to remain at home. Int J Older People Nurs. 2009;4(1):22–32. doi:10.1111/j.1748-3743.2008.00152.x20925798
   PubMedGoogle Scholar
• Verbeek H, Meyer G, Leino-Kilpi H, et al. A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study. BMC Public Health. 2012;12:68. doi:10.1186/1471-2458-12-6822269343
   PubMed Web of Science ®Google Scholar
• Hiel L, Beenackers MA, Renders CM, et al. Providing personal informal care to older European adults: should we care about the caregivers‘ health? Prev Med. 2015;70:64–68. doi:10.1016/j.ypmed.2014.10.02825450490
   PubMed Web of Science ®Google Scholar
• Van Houtven CH, Voils CI, Weinberger M. An organizing framework for informal caregiver interventions: detailing caregiving activities and caregiver and care recipient outcomes to optimize evaluation efforts. BMC Geriatr. 2011;11:77. doi:10.1186/1471-2318-11-7722107600
   PubMed Web of Science ®Google Scholar
• Musich S, Wang SS, Kraemer S, Hawkins K, Wicker E. Caregivers for older adults: prevalence, characteristics, and health care utilization and expenditures. Geriatr Nurs. 2017;38(1):9–16. doi:10.1016/j.gerinurse.2016.06.01727477086
   PubMed Web of Science ®Google Scholar
• Furmańska-Maruszak A. Work and eldercare balance. Support for informal elderly carers in the labour market international comparisons. Acta Universitatis Lodziensis Folia Oeconomica. 2015;2(312):111–126.
   Google Scholar
• Eurofamcare. Services for supporting family carers of of elderly people in Europe: characteristics, coverage and usage. Summary of main findings from Eurofamcare. Available from: https://www.uke.de/extern/eurofamcare/. Accessed 520, 2018.
   Google Scholar
• Grabowska-Fudala B, Jaracz K, Smelkowska A, et al. The burden of caregivers of patients with Alzheimer‘s disease. Preliminary results. Now Lek. 2013;82(1):25–30.
   Google Scholar
• Ganapathy V, Graham GD, DiBonaventura MD, et al. Caregiver burden, productivity loss, and indirect costs associated with caring for patients with poststroke spasticity. Clin Interv Aging. 2015;10:1793–1802.26609225
   PubMedGoogle Scholar
• Roth DL, Haley WE, Hovater M, Perkins M, Wadley VG, Judd S. Family caregiving and all-cause mortality: findings from a population-based propensity-matched analysis. Am J Epidemiol. 2013;178(10):1571–1578. doi:10.1093/aje/kwt22524091890
   PubMed Web of Science ®Google Scholar
• Rosochacka-Gmitrzak M. Support for informal carers - towards the balance of social expectations and caring abilities of familie In: Racław M, editor. Public Care, Private Care. Local Communities Towards the Elderly. Warsaw: Institute of Public Affairs; 2011:95–140.
   Google Scholar
• Huber M, Rodrigues R, Hoffmann F, Gasior K, Marin B. Facts and Figures on Long-Term Care. Europe and North America, Occasional Reports Series 6. Vienna: European Center; 2009.
   Google Scholar
• Furmańska-Maruszak A, Wójtewicz A. The directions of development of long-term care services in Poland. Studia Oeconomica Posnaniensia. 2016;4(9):28–42. doi:10.18559/SOEP.2016.9.2
   Google Scholar
• Szweda-Lewandowska Z. Models of care for dependent persons. Econ Stud. 2014;179:215–224.
   Google Scholar
• World Bank. Current status and future of long-term care in an aging Poland. 2015 Available from: http://www.niesamodzielnym.pl/uploads/Bank%20%C5%9Awiatowy%20Opieka_dlugoterminowa.pdf.
   Google Scholar
• Czekanowski P. Family in the lives of the elderly people and the elderly people in the family In: Synak B, editor. Polish Aging. Gdansk: Publishing House University of Gdansk; 2002:163–167.
   Google Scholar
• Błedowski P, Pedich W Services for supporting family carers of elderly people in Europe: characteristics, coverage and usage. National background report for Poland. Available from: http://www.monitoringris.org/documents/tools_nat/nabare/nabare_poland_rc1_a4.pdf Accessed 5 20, 2018.
   Google Scholar
• Szatur-Jaworska B. The forms of family life among older people In: Błędowski P, editor. Medical, Psychological, Sociological and Economic Aspects of the Aging People in Poland. Warsaw: Warsaw School of Economics Institute of Labour and Social Studies in Warsaw; 2011:12–17.
   Google Scholar
• Ziomek-Michalak K. Role of the family in the ageing process and the man’s perception of old age. Annal Theol. 2015;62(10):175–194.
   Google Scholar
• Wóycicka I, Rurarz R. Demand for care In: Kotowska IE, Sztanderska U, Wóycicka I, editors. Professional and Educational Activity in Consideration of Family Responsibilities. Warsaw: Scholar; 2007:269–282.
   Google Scholar
• Gawlik M, Kurpas D. Evaluation of caregivers’ quality of life in patients with cancer with the use of the Caregiver Quality of Life-Cancer questionnaire. Palliat Med. 2015;7(1):67–77.
   Google Scholar
• Kosińska M, Kułagowska E, Niebrój L, Stanisławczyk D. Burdens of caregivers of patients classified for long-term home care. Environ Med. 2013;16(2):59–68.
   Google Scholar
• Ciałkowska-Kuźmińska M, Kasprzak M. Caregivers’ burden as a factor of nursing home admission. Polish J Geriatr Psychiatry. 2012;9(2):69–76.
   Google Scholar
• Zysnarska M, Wojnicz-Michera I, Taborowska M, Kołecki P, Maksymiuk T. Woman - a carer for a chronically-ill person – determinants of overload. Now Lek. 2010;79(5):386–391.
   Google Scholar
• Kosmala K, Kloszewska I. The burden of providing care for Alzheimer’s disease patients in Poland. Int J Geriatr Psychiatry. 2004;19:191–193. doi:10.1002/gps.105414758587
   PubMed Web of Science ®Google Scholar
• Bień B, Wojszel ZB, Doroszkiewicz H. Level of disability of older persons as indication for supporting of family caregivers. Polish Gerontol. 2008;16(1):25–34.
   Google Scholar
• Marczak M, Tasak A. Expectations of patients and their guardians regarding nursing care system provided to chronically ill patients at home. Polit Zdrow. 2008/2009;7:77–81.
   Google Scholar
• Abramczyk A. Expectations of family circles/guardians of diabetics within the scope of education in diabetes - in the light of nationwide research. Environ Med. 2013;16(1):58–66.
   Google Scholar
• Karczewska B, Bień B, Ołdak E, Jemiołkowski J. Family caregivers of older people with dementia or cognitive disorders in Poland - risk factors of care burden. Polish Gerontol. 2012;20(2):59–67.
   Google Scholar
• Grochowska J. Feeling of satisfaction and being burdened with duties among informal care givers of the elderly according to the level of efficacy of care recipients. Med Og Nauki Zdr. 2014;20(1):46–50.
   Google Scholar
• Reinhard SC, Given B, Petlick NH, Bemis A. Supporting family caregivers in providing care In: Hughes RG, editor. Patient Safety and Quality: An Evidence-Based Handbook for Nurses. Rockville (MD): Agency for Healthcare Research and Quality (US); 2008:1–46. Available from: https://www.ncbi.nlm.nih.gov/books/NBK2665/.
   Google Scholar
• Kim H, Chang M, Rose K, Kim S. Predictors of caregiver burden in caregivers of individuals with dementia. J Adv Nurs. 2012;68(4):846–855. doi:10.1111/j.1365-2648.2011.05787.x21793872
   PubMed Web of Science ®Google Scholar
• Rachel W, Datka W, Zyss T, Zięba A. The influence of long-term care on the health of caregivers of Alzheimer’s disease patients. Przegl Lek. 2014;71(12):703–706.25951701
   PubMedGoogle Scholar
• Caballero FF, Miret M, Power M, et al. Validation of an instrument to evaluate quality of life in the aging population: WHOQOL-AGE. Health Qual Life Outcomes. 2013;11:177. doi:10.1186/1477-7525-11-8324152691
   PubMed Web of Science ®Google Scholar
• Zawisza K, Gałaś A, Tobiasz-Adamczyk B. Validation of the Polish version of the WHOQOL-AGE scale in older population. Polish Gerontol. 2016;24:7–16.
   Google Scholar
• Mahoney FI, Barthel DW. Functional evaluation: the Barthel Index A simple index of independence useful in scoring improvement in the rehabilitation of the chronically ill. Md State Med J. 1965;14:61–65.
   PubMedGoogle Scholar
• Kuźmicz I, Brzostek T, Górkiewicz M. Barthel questionnaire as measurement tool for physical independence of older adults. Med Stud. 2008;12:17–21.
   Google Scholar
• Romanik W, Łazarewicz M. The Polish version of the Abbreviated Mental Test Score (AMTS) – methodology issues. J Psychiatr Clin Psychol. 2017;17(3):203–207.
   Google Scholar
• Albiński R, Kleszczewska-Albińska A, Bedyńska S. Geriatric Depression Scale (GDS). Validity and reliability of different versions of the scale – review. Pol Psychiatr. 2011;45(4):555–562.
   PubMed Web of Science ®Google Scholar
• Yesavage JA, Brink TL, Rose TL, et al. Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res. 1982;17(1):37–49.7183759
   PubMed Web of Science ®Google Scholar
• Bedyńska S, Książek M. Statistical Guideline 3 - Practical Guide for the Use of Regression Models and Structural Equations. Warsaw: College of Social Psychology; 2012.
   Google Scholar
• Fang J, Power M, Lin Y, Zhang J, Hao Y, Chatterji S. Development of short versions for the WHOQOL-OLD module. Gerontologist. 2012;52(1):66–78. doi:10.1093/geront/gnr08522021402
   PubMed Web of Science ®Google Scholar
• Santos D, Abad FJ, Miret M, et al. Measurement invariance of the WHOQOL-AGE questionnaire across three European countries. Qual Life Res. 2018;27(4):1015–1025. doi:10.1007/s11136-017-1737-829143905
   PubMed Web of Science ®Google Scholar
• Kotowska IE, Wóycicka I Caring for care and other conditions for increasing the professional activity of people at older working age. Research report. Department of Economic Analysis and Forecasts Ministry of Labor and Social Policy Available from: http://www.analizy.mpips.gov.pl/images/stories/publ_i_raporty/sprawowanie_opieki.pdf. Accessed 521, 2018.
   Google Scholar
• Eurofamcare. Examples of good and innovative practices in supporting family carers in Europe; 2 2006: 41 Available from: https://www.uke.de/extern/eurofamcare/. Accessed 520, 2018.
   Google Scholar
• Vitaliano PP, Zhang J, Scanlan JM. Is caregiving hazardous to one’s physical health? A meta-analysis. Psychol Bull. 2003;129(6):946–972. doi:10.1037/0033-2909.129.6.94614599289
   PubMed Web of Science ®Google Scholar
• Working Group for the Preparation of the Non-Alliance Risk Insurance Act at the Senators Club of the Civic Platform: Long-term care in Poland. Description, diagnosis, recommendations. Available from: http://rszarf.ips.uw.edu.pl/kierunki/ODzielona.pdf. Accessed 521, 2018.
   Google Scholar
• Assumptions of the “We will cope with them” project. Available from: https://damy-rade.info/o-projekcie. Accessed 521, 2018.
   Google Scholar
• Bleijlevens MH, Stolt M, Stephan A, et al. Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study. J Adv Nurs. 2015;71(6):1378–1391. doi:10.1111/jan.1256125403434
   PubMed Web of Science ®Google Scholar
• Rodrigues AM, Ferreira PL, Ferré-Grau C. Providing informal home care for pressure ulcer patients: how it affects carers’ quality of life and burden. J Clin Nurs. 2016;25(19–20):3026–3035. doi:10.1111/jocn.1335627577533
   PubMed Web of Science ®Google Scholar
• Basińska MA, Lewandowska PN, Kasprzak A. Social support and fatigue of everyday life of the caregivers of people with Alzheimer’s diseas. Polish J Geriatr Psychiatry. 2013;10(2):49–58.
   Google Scholar
• Głębocka A, Szarzyńska M. Social support and well-being among the elderly. Polish Gerontol. 2005;13(4):255–259.
   Google Scholar
• Pinquart M, Sörensen S. Correlates of physical health of informal caregivers: a meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2007;62(2):126–137. doi:10.1093/geronb/62.2.P126
   PubMed Web of Science ®Google Scholar
• Chappell NL, Dujela C. Caregiving: predicting at-risk status. Can J Aging. 2008;27(2):169–179. doi:10.3138/cja.27.2.16918845512
   PubMed Web of Science ®Google Scholar
• Brown SL, Smith DM, Schulz R, et al. Caregiving behavior is associated with decreased mortality risk. Psychol Sci. 2009;20(4):488–494. doi:10.1111/j.1467-9280.2009.02323.x19320860
   PubMed Web of Science ®Google Scholar
• Buyck JF, Bonnaud S, Boumendil A, et al. Informal caregiving and self-reported mental and physical health: results from the Gazel Cohort Study. Am J Public Health. 2011;101(10):1971–1979. doi:10.2105/AJPH.2010.30004421493948
   PubMed Web of Science ®Google Scholar
• Fisher GG, Frank MM, Plassman BL, et al. Caring for individuals with dementia and CIND: findings from the Aging, Demographics, and Memory Study. J Am Geriatr Soc. 2011;59(3):488–494. doi:10.1111/j.1532-5415.2010.03304.x21391939
   PubMed Web of Science ®Google Scholar
• Jones SL, Hadjistavropoulos HD, Janzen JA, Hadjistavropoulos T. The relation of pain and caregiver burden in informal older adult caregivers. Pain Med. 2011;12(1):51–58. doi:10.1111/j.1526-4637.2010.01018.x21143758
   PubMed Web of Science ®Google Scholar
• Fredman L, Cauley JA, Satterfield S, et al. Caregiving, mortality, and mobility decline: the Health, Aging, and Body Composition (Health ABC) Study. Arch Intern Med. 2008;168(19):2154–2162. doi:10.1001/archinte.168.19.215418955646
   PubMedGoogle Scholar
• Bertrand RM, Saczynski JS, Mezzacappa C, et al. Caregiving and cognitive function in older women: evidence for the healthy caregiver hypothesis. J Aging Health. 2012;24(1):48–66. doi:10.1177/089826431142136721934121
   PubMed Web of Science ®Google Scholar
• Yıkılkan H, Aypak C, Görpelioğlu S. Depression, anxiety and quality of life in caregivers of long-term home care patients. Arch Psychiatr Nurs. 2014;28(3):193–196. doi:10.1016/j.apnu.2014.01.00124856272
   PubMed Web of Science ®Google Scholar
• Robison J, Fortinsky R, Kleppinger A, Shugrue N, Porter M. A broader view of family caregiving: effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. J Gerontol B Psychol Sci Soc Sci. 2009;64(6):788–798. doi:10.1093/geronb/gbp01519318470
   PubMed Web of Science ®Google Scholar
• Mittelman MS, Ferris SH, Shulman E, et al. A comprehensive support program: effect on depression in spouse-caregivers of AD patients. Gerontologist. 1995;35(6):792–802.8557206
   PubMed Web of Science ®Google Scholar
• Covinsky KE, Newcomer R, Fox P, et al. Patient and caregiver characteristics associated with depression in caregivers of patients with dementia. J Gen Intern Med. 2003;18(12):1006–1014.14687259
   PubMed Web of Science ®Google Scholar
• McPherson CJ, Wilson KG, Chyurlia L, Leclerc C. The balance of give and take in caregiver-partner relationships: an examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke. Rehabil Psychol. 2010;55(2):194–203. doi:10.1037/a001935920496974
   PubMed Web of Science ®Google Scholar
• Pinquart M, Sörensen S. Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: a meta-analytic comparison. Anging Ment Health. 2004;8(5):438–439. doi:10.1080/13607860410001725036
   PubMed Web of Science ®Google Scholar
• Castora-Binkley M, Noelker LS, Ejaz FK, Rose M. Inclusion of caregiver supports and services in home-and community-based service programs: recent reports from state units on aging. J Aging Soc Policy. 2011;23(1):19–33. doi:10.1080/08959420.2011.53200121207304
   PubMed Web of Science ®Google Scholar
• Jowsey T, McRae I, Gillespie J, Banfield M, Yen L. Time to care? Health of informal older carers and time spent on health related activities: an Australian survey. BMC Public Health. 2013;13(1):374–384. doi:10.1186/1471-2458-13-37423607727
   PubMed Web of Science ®Google Scholar
• Chow EO, Ho HC. The relationship between psychological resources, social resources, and depression: results from older spousal caregivers in Hong Kong. Aging Ment Health. 2012;16(8):1016–1027. doi:10.1080/13607863.2012.69276922690796
   PubMed Web of Science ®Google Scholar
• Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: A clinical review. JAMA. 2014;311(10):1052–1060. doi:10.1001/jama.2014.30424618967
   PubMed Web of Science ®Google Scholar