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Review

Illness representations of dementia: a scoping review

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Pages 179-193 | Published online: 18 Jan 2019

References

  • LeventhalHMeyerDNerenzDThe common-sense representations of illness and dangerRachmanRContributions to Medical PsychologyOxfordPergamon Press1980
  • Moss-MorrisRWeinmanJPetrieKHorneRCameronLBuickDThe revised illness perception questionnaire (IPQ-R)Psychol Health2002171116
  • RichardsonEMSchüzNSandersonKScottJLSchüzBIllness representations, coping, and illness outcomes in people with cancer: a systematic review and meta-analysisPsychooncology201726672473727412423
  • KarademasECDimitrakiGPapastefanakisEAdaptation to inflammatory rheumatic disease: do illness representations predict patients’ physical functioning over time? A complex relationshipJ Behav Med201841223224228936564
  • SachdevPSBlackerDBlazerDGClassifying neurocognitive disorders: the DSM-5 approachNat Rev Neurol2014101163464225266297
  • ChestonRChristopherGIsmailSDementia as an existential threat: the importance of self-esteem, social connectedness and meaning in lifeSci Prog201598Pt 441641926790180
  • WernerPSavvaGMMaidmentIDementia: introduction, epidemiology and economic impactChew-GrahamCARayMMental Health and Older PeopleBaselSpringer International Publishing2016197209
  • Tejada-veraBMortality from Alzheimer’s Disease in the United States: data for 2000 and 2010NCHS Data Brief201311618
  • FrankishHHortonRPrevention and management of dementia: a priority for public healthLancet2017390101132614261528735854
  • McgradyMEPeughJLHoodKKIllness representations predict adherence in adolescents and young adults with type 1 diabetesPsychol Health201429998599824588345
  • SonneyJInselKCSegrinCGeraldLBKi MooreIMAssociation of asthma illness representations and reported controller medication adherence among school-aged children and their parentsJ Pediatr Health Care201731670371228734618
  • DavisKDreyNGouldDWhat are scoping studies? A review of the nursing literatureInt J Nurs Stud200946101386140019328488
  • GrantMJBoothAA typology of reviews: an analysis of 14 review types and associated methodologiesHealth Infor Libra200926291108
  • MoherDLiberatiATetzlaffJAltmanDGPRISMA GroupPreferred reporting items for systematic reviews and meta-analyses: the PRISMA statementAnn Intern Med2009151426426919622511
  • ClareLGoaterTWoodsBIllness representations in early-stage dementia: a preliminary investigationInt J Geriatr Psychiatry200621876176716906633
  • HarmanGClareLIllness representations and lived experience in early-stage dementiaQual Health Res200616448450216513992
  • LinglerJHNightingaleMCErlenJAMaking sense of mild cognitive impairment: a qualitative exploration of the patient’s experienceGerontologist200646679180017169934
  • Moniz-CookEManthorpeJCarrIFacing the future: a qualitative study of older people referred to a memory clinic prior to assessment and diagnosisDementia200653375395
  • GleasonCEDowlingNMBentonSFKaseroffAGunnWEdwardsDFCommon sense model factors affecting African Americans’ willingness to consult a healthcare provider regarding symptoms of mild cognitive impairmentAm J Geriatr Psychiatry201624753754626809602
  • HurtCSBurnsABrownRGBarrowcloughCPerceptions of subjective memory complaint in older adults: the illness perception Questionnaire-Memory (IPQ-M)Int Psychogeriatr201022575076020096152
  • LinglerJHTerhorstLSchulzRGentryALopezODyadic analysis of illness perceptions among persons with mild cognitive impairment and their family membersGerontologist201656588689526035901
  • RobertsJSConnellCMIllness representations among first-degree relatives of people with Alzheimer diseaseAlzheimer Dis Assoc Disord200014312913610994653
  • GlidewellLJohnstonMThomasRShared understandings of dementia? An application of the common sense self-regulation model to a case studyDementia2012112217250
  • ClareLQuinnCJonesIRWoodsRT“I don’t think of it as an illness”: illness representations in mild to moderate dementiaJAD201651113915026836172
  • MatchwickCDomoneRLeroiISimpsonJPerceptions of cause and control in people with Alzheimer’s diseaseGerontologist201454226827623512771
  • HurtCSBurnsABrownRGBarrowcloughCWhy don’t older adults with subjective memory complaints seek help?Int J Geriatr Psychiatry201227439440021560161
  • LinFHeidrichSMRole of older adult’s illness schemata in coping with mild cognitive impairmentJ Psychosom Res201272535736322469277
  • LinFGleasonCEHeidrichSMIllness representations in older adults with mild cognitive impairmentRes Gerontol Nurs20125319520622716654
  • QuinnCJonesIRClareLIllness representations in caregivers of people with dementiaAging Ment Health201721555356126729580
  • Lo SterzoEOrgetaVIllness representation and sense of coherence in dementia caregivingJ Health Psychol201722672273226585862
  • Shinan-AltmanSWernerPCohenMSocial workers’ and nurses’ illness representations about Alzheimer diseaseAlzheimer Dis Assoc Disord2014281737824113562
  • Shinan-AltmanSWernerPCohenMThe connection between illness representations of Alzheimer’s disease and burnout among social workers and nurses in nursing homes and hospitals: a mixed-methods investigationAging Ment Health201620435236125674968
  • Hamilton-WestKEMilneAJCheneryATilbrookCHelp-seeking in relation to signs of dementia: a pilot study to evaluate the utility of the common-sense model of illness representationsPsychol Health Med201015554054920835964
  • RobertsJSConnellCMCisewskiDHippsYGDemissieSGreenRCDifferences between African Americans and whites in their perceptions of Alzheimer diseaseAlzheimer Dis Assoc Disord2003171192612621316
  • Shinan-AltmanSWernerPIs there an association between help-seeking for early detection of Alzheimer’s disease and illness representations of this disease among the lay public?Int J Geriatr Psychiatry20173212e100e10628111803
  • ParveenSPeltierCOyebodeJRPerceptions of dementia and use of services in minority ethnic communities: a scoping exerciseHealth Soc Care Community201725273474227278859
  • AndersonLNMccaulKDLangleyLKCommon-sense beliefs about the prevention of Alzheimer’s diseaseAging Ment Health201115792293121867385
  • QuinnCMorrisRGClareLBeliefs about dementia: development and validation of the representations and adjustment to dementia index (Radix)Am J Geriatr Psychiatry201826668068929704986
  • GiebelCMWordenAChallisDAge, memory loss and perceptions of dementia in South Asian ethnic minoritiesAging Ment Health2017275110
  • WimoAGuerchetMAliGCThe worldwide costs of dementia 2015 and comparisons with 2010Alzheimers Dement20171311727583652
  • Shinan-AltmanSMedical social workers’ perceptions of obesityJ Soc Work2017173343357
  • GastonAMCottrellDJFullenTAn examination of how adolescent-caregiver dyad illness representations relate to adolescents’ reported diabetes self-managementChild Care Health Dev201238451351921722157
  • RexhajSPythonNVMorinDBonsackCFavrodJCorrelational study: illness representations and coping styles in caregivers for individuals with schizophreniaAnn Gen Psychiatry20131212723984848
  • CampCJFlexibility in persons with dementiaSinnottJDIdentity Flexibility During AdulthoodChamSpringer201799114
  • DröesRMChattatRDiazASocial health and dementia: a European consensus on the operationalization of the concept and directions for research and practiceAging Ment Health201721141727869503
  • GoldsmithMHearing the Voice of People with Dementia: Opportunities and ObstaclesLondonJessica Kingsley1996
  • SabatSRVoices of Alzheimer’s disease sufferers: a call for treatment based on personhoodJ Clin Ethics19989135489598431
  • BainesTWittkowskiAA systematic review of the literature exploring illness perceptions in mental health utilising the self-regulation modelJ Clin Psychol Med Settings201320326327423108509
  • KalesHCGitlinLNLyketsosCGAssessment and management of behavioral and psychological symptoms of dementiaBMJ2015350
  • CahillSPierceMWernerPDarleyABoberskyAA systematic review of the public’s knowledge and understanding of Alzheimer’s disease and dementiaAlzheimer Dis Assoc Disord201529325527526207322
  • World Health OrganizationGlobal action plan on the public health response to dementia 2017–20252017
  • BishopGDConverseSAIllness representations: a prototype approachHealth Psychol198652951143732230
  • WernerPGoldsteinDKarpasDSChanLLaiCHelp-seeking for dementia: a systematic review of the literatureAlzheimer Dis Assoc Disord201428429931025321607
  • EustaceABruceICoenRBehavioural disturbance triggers recognition of dementia by family informantsInt J Geriatr Psychiatry200722657457917136712
  • Perry-YoungLOwenGKellySOwensCHow people come to recognise a problem and seek medical help for a person showing early signs of dementia: a systematic review and meta-ethnographyDementia2018171346026764265
  • DevoySSimpsonEEAHelp-seeking intentions for early dementia diagnosis in a sample of Irish adultsAging Ment Health201721887087827149181
  • PanegyresPBerryRBurchellJEarly dementia screeningDiagnostics2016616
  • CabassaLJLagomasinoITDwight-JohnsonMHansenMCXieBMeasuring Latinos’ perceptions of depression: a confirmatory factor analysis of the illness perception questionnaireCultur Divers Ethnic Minor Psychol200814437738418954174
  • ArcoleoKFeldmanJAsthma illness representations: do they really change over time?Biol Psychol2017129377
  • WeinmanJPetrieKJMoss-MorrisRHorneRThe illness perception questionnaire: a new method for assessing the cognitive representation of illnessPsychol Health1996113431445
  • LeventhalHIanBThe common-sense model of self-regulation of health and illnessCameronLLeventhalHThe Self-Regulation of Health and Illness BehaviorLondonRoutledge20125679
  • HillmanALatimerJCultural representations of dementiaPLoS Med2017143e100227428350889
  • PerroneFCacaceRvan MosseveldeSGenetic screening in early-onset dementia patients with unclear phenotype: relevance for clinical diagnosisNeurobiol Aging201869292.e7292.e14