A training intervention to reduce paternalistic care and promote autonomy: a preliminary study

References

• Culver CM, Gert B. The justification of paternalism In: Robison WL, Pritchard MS, editors. Medical Responsibility. NJ: Human Press; 1979:1–14.
   Google Scholar
• Halper T. The double-edged sword: paternalism as a policy in the problems of aging. Milbank Q. 1980;58(3):472–499. doi:10.2307/3349735
   Web of Science ®Google Scholar
• Fernández-Ballesteros R, Bustillos A, Santacreu M, Schettini R, Díaz-Veiga P, Huici C. Is older adult care mediated by caregivers’ cultural stereotypes? The role of competence and warmth attribution. Clin Interv Aging. 2016;11:545–552. doi:10.2147/CIA.S9623527217736
   PubMed Web of Science ®Google Scholar
• American Geriatrics Society Expert Panel on Person-Centered Care. Person-centered care: a definition and essential elements. J Am Geriatr Soc. 2016;64(1):15–18. doi:10.1111/jgs.1386626626262
   PubMed Web of Science ®Google Scholar
• Brownie S, Nancarrow S. Effects of person-centered care on residents and staff in aged-care facilities: a systematic review. Clin Interv Aging. 2013;1-10.
   Google Scholar
• Gallagher-Thompson D, Coon DW, Rivera P, Powers D, Zeiss AM. Family Caregiving In: Hersen M, Van Hasselt VB (Eds.)Handbook of Clinical Geropsychology. Boston (MA): Springer US; 1998:469–493.
   Google Scholar
• Parsons T. The Social System. Glencoe (IL): Free Press; 1951.
   Google Scholar
• Rosher RB, Robinson S. Impact of the eden alternative on family satisfaction. J Am Med Dir Assoc. 2005;6(3):189–193. doi:10.1016/j.jamda.2005.03.00515894248
   PubMedGoogle Scholar
• Nelson TD (Ed). Ageism : Stereotyping and Prejudice against Older Persons. London, UK: MIT Press; 2002:372.
   Google Scholar
• Nelson TD. Ageism: prejudice against our feared future self. J Soc Issues. 2005;61(2):207–221. doi:10.1111/j.1540-4560.2005.00402.x
   Web of Science ®Google Scholar
• Coleman MT, Looney S, O’Brien J, Ziegler C, Pastorino CA, Turner C. The Eden alternative: findings after 1 year of implementation. J Gerontol A Biol Sci Med Sci. 2002;57(7):M422–M427. doi:10.1093/gerona/57.7.M42212084803
   PubMed Web of Science ®Google Scholar
• Cimarolli VR, Boerner K, Reinhardt JP, Horowitz A. Perceived overprotection, instrumental support and rehabilitation use in elders with vision loss: A longitudinal perspective. Psychol Health. 2013;28(4):369–383. doi:10.1080/08870446.2012.72983523039860
   PubMed Web of Science ®Google Scholar
• Thompson SC, Sobolew-Shubin A. Overprotective relationships: a nonsupportive side of social networks. Basic Appl Soc Psych. 1993;14(3):363–383. doi:10.1207/s15324834basp1403_8
   Web of Science ®Google Scholar
• Thompson SC, Sobolew-Shubin A. Perceptions of overprotection in III adults1. J Appl Soc Psychol. 1993;23(2):85–97. doi:10.1111/j.1559-1816.1993.tb01053.x
   Web of Science ®Google Scholar
• Thompson S, Galbraith M, Thomas C, Swan J, Vrungos S. Caregivers of stroke patient family members: behavioral and attitudinal indicators of overprotective care. Psychol Health. 2002;17(3):297–312. doi:10.1080/08870440290029557
   Web of Science ®Google Scholar
• Nolan MR, Brown J, Davies S, Nolan J, Keady J The senses framework: improving care for older people through a relationship-centred approach. Getting research into practice (GRiP) Report No 2. 2006.
   Google Scholar
• Crandall LG, White DL, Schuldheis S, Talerico KA. Initiating person-centered care practices in long-term care facilities. J Gerontol Nurs. 2007;33(11):47–56.18019118
   PubMed Web of Science ®Google Scholar
• Rader J, Semradek J. Organizational culture and bathing practice. J Soc Work Long-Term Care. 2003;2(3–4):269–283. doi:10.1300/J181v02n03_04
   Google Scholar
• Fernández-Ballesteros R, Sánchez-Izquierdo M, Olmos R, et al. Cultural stereotypes in care contexts. Clin Interv Aging. 2018;13. doi:10.2147/CIA.S169487
   Web of Science ®Google Scholar
• Fernandez-Ballesteros R. Buen Trato. Cómo Quieren Ser Tratadas Las Personas Mayores. In: Guía PRÁCTICA Para Favorecer El Buen Trato a Las Personas Mayores. Madrid: SEGG; 2011:15–24.
   Google Scholar
• Kane RA. Definition, measurement, and correlates of quality of life in nursing homes: toward a reasonable practice, research, and policy agenda. Gerontologist. 2003;43(2):28–36. doi:10.1093/geront/43.suppl_2.2812711722
   PubMed Web of Science ®Google Scholar
• Fawcett T, Josephine N, Rhynas SJ. Re-finding the ‘human side’ of human factors in nursing: helping student nurses to combine person-centred care with the rigours of patient safety. Nurse Educ Today. 2014;34(9):1238–1241. doi:10.1016/j.nedt.2014.05.00224508399
   PubMed Web of Science ®Google Scholar
• Mead N, Bower P. Patient-centredness: a conceptual framework and review of the empirical literature. Soc Sci Med. 2000;51:1087–1110. doi:10.1016/S0277-9536(00)00098-811005395
   PubMed Web of Science ®Google Scholar
• Leplege A, Gzil F, Cammelli M, Lefeve C, Pachoud B, Ville I. Person-centredness: conceptual and historical perspectives. Disabil Rehabil. 2007;29(20–21):1555–1565. doi:10.1080/0963828070161866117922326
   PubMed Web of Science ®Google Scholar
• Rodriguez-Osorio CA, Dominguez-Cherit G. Medical decision making: paternalism versus patient-centered (autonomous) care. Curr Opin Crit Care. 2008;14(6):708–713. doi:10.1097/MCC.0b013e328315a61119005314
   PubMed Web of Science ®Google Scholar
• Epp TD. Person-centred dementia care: a vision to be refined. Can Alzheimer Dis Rev. 2003; April,14–18.
   Google Scholar
• Talerico KA, O’Brien JA, Swafford KL. Person-centered care. An important approach for 21st century health care. J Psychosoc Nurs Ment Health Serv. 2003;41(11):12–16.
   Google Scholar
• Werner P, Koroknay V, Braun J, Cohen-Mansfield J. Individualized care alternatives used in the process of removing physical restraints in the nursing home. J Am Geriatr Soc. 1994;42(3):321–325. doi:10.1111/j.1532-5415.1994.tb01759.x8120319
   PubMed Web of Science ®Google Scholar
• Williams B, Cattell D, Greenwood M, LeFevre S, Murray I, Thomas P. Exploring “person-centredness”: user perspectives on a model of social psychiatry. Health Soc Care Community. 1999;7(6):475–482.11560664
   PubMed Web of Science ®Google Scholar
• Osborn Gould M. Resident-centered care. Heal Prog. 2001;82(6):56–58.
   Google Scholar
• Ashburner C, Meyer J, Johnson B, Smith C. Using action research to address loss of personhood in a continuing care setting. Illness, Cris Loss. 2004;12(1):23–37. doi:10.1177/1054137303259739
   Google Scholar
• Bergman-Evans B. Beyond the basics. Effects of the Eden alternative model on quality of life issues. J Gerontol Nurs. 2004;30(6):27–34. doi:10.3928/0098-9134-20040601-0715227934
   PubMedGoogle Scholar
• Tuckett AG. On paternalism, autonomy and best interests: telling the (competent) aged-care resident what they want to know. Int J Nurs Pract. 2006;12(3):166–173. doi:10.1111/ijn.2006.12.issue-316674784
   PubMedGoogle Scholar
• Edvardsson D, Winblad B, Sandman P. Person-centred care of people with severe Alzheimer’s disease: current status and ways forward. Lancet Neurol. 2008;7(4):362–367. doi:10.1016/S1474-4422(08)70063-218339351
   PubMed Web of Science ®Google Scholar
• Yoon JY. Relationships among person-centered care, nursing home adjustment, and life satisfaction: a cross-sectional survey study. Int Psychogeriatr. 2018;30(10):1519–1530. doi:10.1017/S104161021800019429606154
   PubMed Web of Science ®Google Scholar
• Boumans N, Berkhout A, Landeweerd A. Effects of resident-oriented care on quality of care, wellbeing and satisfaction with care. Scand J Caring Sci. 2005;19(3):240–250. doi:10.1111/scs.2005.19.issue-316101852
   PubMed Web of Science ®Google Scholar
• McMillan SS, Kendall E, Sav A, et al. Patient-centered approaches to health care. Med Care Res Rev. 2013;70(6):567–596. doi:10.1177/107755871349631823894060
   PubMed Web of Science ®Google Scholar
• Berkhout JMB, Boumans PG, Nijhuis JN, Van Breukelen G, Huijer Abu-saad H. Effects of resident-oriented care on job characteristics of nursing caregivers. Work Stress. 2003;17(4):337–353. doi:10.1080/02678370310001647645
   Web of Science ®Google Scholar
• Pol-Grevelink A, Jukema JS, Smits CHM. Person-centred care and job satisfaction of caregivers in nursing homes: a systematic review of the impact of different forms of person-centred care on various dimensions of job satisfaction. Int J Geriatr Psychiatry. 2012;27(3):219–229. doi:10.1002/gps.271621538536
   PubMed Web of Science ®Google Scholar
• Røen I, Kirkevold Ø, Testad I, Selbæk G, Engedal K, Bergh S. Person-centered care in Norwegian nursing homes and its relation to organizational factors and staff characteristics: a cross-sectional survey. Int Psychogeriatr. 2018;30(9):1279–1290. doi:10.1017/S104161021700270829198221
   PubMed Web of Science ®Google Scholar
• WHO, The World Health Report 2000 - Health Systems: Improving Performance. WHO; 2013 Available from: https://www.who.int/whr/2000/en/. Accessed 729, 2019.
   Google Scholar
• The Health Foundation. Person-centred Care Made Simple What Everyone Should Know about Person-centred Care. London; 2016 Available from: https://www.health.org.uk/sites/default/files/PersonCentredCareMadeSimple.pdf. Accessed 729, 2019.
   Google Scholar
• Harding E, Wait S, Scrutton J The state of play in person-centred care: report summary. 2015 Available from: http://www.healthpolicypartnership.com/person-centred-care/http://personcentredcare.health.org.uk/around-the-world. Accessed 729, 2019.
   Google Scholar
• Crossing the quality chasm. Available from: http://www.nationalacademies.org/hmd/~/media/Files/ReportFiles/2001/Crossing-the-Quality-Chasm/QualityChasm2001reportbrief.pdf. Accessed 729, 2019.
   Google Scholar
• Lawton MP, Nahemow L. Ecology and the aging process In: Eisdorfer C,  Lawton MP (Eds.). The Psychology of Adult Development and Aging. Washington, DC, US: American Psychological Association; 1973: 619–674.
   Google Scholar
• Langer EJ, Rodin J. The effects of choice and enhanced personal responsibility for the aged: a field experiment in an institutional setting. J Pers Soc Psychol. 1976;34(2):191–198. doi:10.1037/0022-3514.34.2.1911011073
   PubMed Web of Science ®Google Scholar
• Pavlish C, Brown-Saltzman K, Hersh M, Shirk M, Rounkle AM. Nursing priorities, actions, and regrets for ethical situations in clinical practice. J Nurs Scholarsh. 2011;43(4):385–395. doi:10.1111/j.1547-5069.2011.01422.x22008185
   PubMed Web of Science ®Google Scholar
• Fernández Ballesteros R, Benetos A, Robine J-M. The Cambridge Handbook of Successful Aging. ISBN 9781107162259: New York: Cambridge University Press; 2018:384–400.
   Google Scholar
• Schaie KW, Klaus W. Aging Independently : Living Arrangements and Mobility. New York: Springer; 2003:355.
   Google Scholar
• Wahl H-W, Schilling O, Oswald F, Iwarsson S. The home environment and quality of life-related outcomes in advanced old age: findings of the ENABLE-AGE project. Eur J Ageing. 2009;6(2):101–111. doi:10.1007/s10433-009-0114-z28798597
   PubMed Web of Science ®Google Scholar
• America I of M (US) C on Q of HC in. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington (DC): National Academies Press (US); 2001.
   Google Scholar
• Brownie S, Nancarrow S. Effects of person-centered care on residents and staff in aged-care facilities: a systematic review. Clin Interv Aging. 2013;8:1. doi:10.2147/CIA.S3858923319855
   PubMed Web of Science ®Google Scholar
• Burgio LD, Allen-burge R, Roth DL, et al. Come talk with me : improving communication between nursing assistants and nursing home residents during care routines. Gerontologist. 2001;41(4):449–460. doi:10.1093/geront/41.1.2411490043
   PubMed Web of Science ®Google Scholar
• Beck C, Ortigara A, Mercer S, Shue V. Enabling and Empowering Certified Nursing Assistants for Quality dementia care. Int J Geriatr Psychiatry 1999:197–211.
   Google Scholar
• McCallion P, Toseland RW, Freeman K. An evaluation of a family visit education program. J Am Geriatr Soc. 1999;47(2):203–214. doi:10.1111/j.1532-5415.1999.tb04579.x9988292
   PubMed Web of Science ®Google Scholar
• Allen-Burge R, Burgio LD, Bourgeois MS, Sims R, Nunnikhoven J. Increasing communication among nursing home residents. J Clin Geropsychol. 2001;7(3):213–230. doi:10.1023/A:1011343212424
   Google Scholar
• Ribera Casado JM, Bustillos A, Guerra Vaquero AI, Huici Casal C, Fernández-Ballesteros R. ¿Se discrimina a los mayores en función de su edad? Visión del profesional. Rev Esp Geriatr Gerontol. 2016;51(5):270–275. doi:10.1016/j.regg.2016.03.00527264615
   PubMedGoogle Scholar
• Levy B, Langer E. Aging free from negative stereotypes: successful memory in China and among the American deaf. J Pers Soc Psychol. 1994;66(6):989–997. doi:10.1037/0022-3514.66.6.9898046582
   PubMed Web of Science ®Google Scholar
• WHO. World Report on Ageing and Health 2015. Geneva. Switzerland. WHO; 2017 Available from: https://www.who.int/ageing/events/world-report-2015-launch/en/. Accessed 729, 2019.
   Google Scholar
• Fernández-Ballesteros R, Caprara M, Schettini R, et al. Effects of university programs for older adults: changes in cultural and group stereotype, self-perception of aging, and emotional balance. Educ Gerontol. 2013;39(2):119–131. doi:10.1080/03601277.2012.699817
   Web of Science ®Google Scholar
• Martin G, Pear J. Behavior Modification : What It Is and How to Do It. Boston: Pearson Education/Allyn & Bacon; 2011:462.
   Google Scholar
• Eymard AS, Douglas DH. Ageism among health care providers and interventions to improve their attitudes toward older adults: an integrative review. J Gerontol Nurs. 2012;38(5):26–35. doi:10.3928/00989134-20120307-09
   PubMed Web of Science ®Google Scholar
• Kotter-Grühn D, Hess TM. The impact of age stereotypes on self-perceptions of aging across the adult lifespan. J Gerontol B Psychol Sci Soc Sci. 2012;67(5):563–571. doi:10.1093/geronb/gbr15322367710
   PubMed Web of Science ®Google Scholar
• Levy B. Stereotype embodiment: A psychosocial approach to aging In: Current Directions in Psychological Science. Vol. 18 Sage Publications, Inc.Association for Psychological Science; 2009:332–336.20802838
   PubMedGoogle Scholar
• Fingerman KL, Berg CA, Smith J, Antonucci TC. Handbook of Life-span Development. Springer 905.
   Google Scholar
• Levy BR, Banaji MR. Implicit ageism In: Nelson TD, editor. Ageism: Stereotyping and Prejudice against Older Persons. Cambridge (MA, US): The MIT Press; 2002:49–75.
   Google Scholar
• Fernández‐Ballesteros R, Sánchez‐Izquierdo M, Olmos R, et al. Development and validation of a paternalism & autonomist care assessment. J Adv Nurs. 2019, in press.
   Web of Science ®Google Scholar
• Fernandez-Ballesteros R, Olmos R, Santacreu M, Bustillos A, Molina MA. The role of perceived discrimination on active aging. Arch Gerontol Geriatr. 2017;71:14–20. doi:10.1016/j.archger.2017.02.00428242578
   PubMed Web of Science ®Google Scholar
• Fernández-Ballesteros R. Sistema De Evaluación De Residencias De Ancianos: SERA (SID). INSERSO. Madrid: Instituto Nacional de Servicios Sociales; 1995:352.
   Google Scholar
• Moos RH, Lemke S. Evaluating Residential Facilities: The Multiphasic Environmental Assessment Procedure. - PsycNET. CA, US: Sage Publications, Inc.; 1996.
   Google Scholar
• Fiske ST, Cuddy AJC, Glick P, Xu J. A model of (often mixed) stereotype content: competence and warmth respectively follow from perceived status and competition. J Pers Soc Psychol. 2002;82(6):878–902. doi:10.1037/0022-3514.82.6.87812051578
   PubMed Web of Science ®Google Scholar
• Fernández-Ballesteros R, Sánchez-Izquierdo M, Olmos R, Huici C, Ribera Casado JM, Cruz Jentoft A. Paternalism vs. autonomy: are they alternative types of formal care? Front Psychol. 2019;10. doi:10.3389/fpsyg.2019.00038
   Web of Science ®Google Scholar
• Burnes D, Sheppard C, Henderson CR, et al. Interventions to reduce ageism against older adults: a systematic review and meta-analysis. Am J Public Health. 2019;109(8):e1–e9. doi:10.2105/AJPH.2019.305123
   PubMed Web of Science ®Google Scholar
• Weiner AS, Ronch JL (Eds). Culture Change in Long-term Care. New York: Haworth Social Work Practice Press. .
   Google Scholar
• Chang Y-P, Li J, Porock D. The effect on nursing home resident outcomes of creating a household within a traditional structure. J Am Med Dir Assoc. 2013;14(4):293–299. doi:10.1016/j.jamda.2013.01.01323434319
   PubMed Web of Science ®Google Scholar
• Grant LA, Fund C. Culture Change in a For-Profit-Nursing Home Chain: An Evaluation. Commonwealth Fund; 2008 Available from: https://www.commonwealthfund.org/publications/fund-reports/2008/feb/culture-change-profit-nursing-home-chain-evaluation. Accessed 729, 2019.
   Google Scholar
• Kihlgren M, Hallgren A, Norberg A, Bråne G, Karlsson I. Effects of the training of integrity-promoting care on the interaction at a long-term ward. Scand J Caring Sci. 1990;4(1):21–28. doi:10.1111/j.1471-6712.1990.tb00003.x2315567
   PubMedGoogle Scholar
• Kihlgren M, Lindsten IG, Norberg A, Karlsson I. The content of the oral daily reports at a long-term ward before and after staff training in integrity promoting care. Scand J Caring Sci. 1992;6(2):105–112. doi:10.1111/j.1471-6712.1992.tb00132.x1641530
   PubMedGoogle Scholar
• Kihlgren M, Kuremyr D, Norberg A, et al. Nurse-patient interaction after training in integrity promoting care at a long-term ward: analysis of video-recorded morning care sessions. Int J Nurs Stud. 1993;30(1):1–13. doi:10.1016/0020-7489(93)90088-C8449654
   PubMed Web of Science ®Google Scholar
• Salas E, DiazGranados D, Klein C, et al. Does team training improve team performance? a meta-analysis. Hum Factors J Hum Factors Ergon Soc. 2008;50(6):903–933. doi:10.1518/001872008X375009
   PubMed Web of Science ®Google Scholar
• Salas E, Weaver SJ, DiazGranados D, Lyons R, King H. Sounding the call for team training in health care: some insights and warnings. Acad Med. 2009;84(Supplement):S128–S131. doi:10.1097/ACM.0b013e3181b37d4819907374
   PubMed Web of Science ®Google Scholar